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Re: Hi-New to the Group

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Hi ! Welcome to the group. You WILL finds tons of information.

Sometimes I have to take a break from reading all the posts...there is just

soooo much.

I...like most of us...can relate to what you are going through.

Sometimes you just feel so overwhelmed! I can tell you the thing that has made

helped ...is the prednisone. It does not work well for everyone though.

had sever headaches, dizziness, and stomach pain (besides high fevers) and

within 30 minutes of the medication he is almost back to normal. With ,

the medication has not brought his episodes closer together, like other

children. Also, his doctor said when a child has that kind of response with

prednisone (symptoms gone after taking pred.) it is a good sign that he has

> Of coarse....you still need to rule out other illnesses first. But, his

doc said if he had something else, other than , his symptoms would have

come back and not been gone totally. I hope I'm making sense. Anyways, read

on. You will have many of your questions answered by reading the posts and

links. Good luck and hang in there. Cheri

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