Char NIH info contacts....

[Guest guest]

Char and all...

Below is the study information at NIH with contacts...

http://clinicalstudies.info.nih.gov/cgi/wais/bold032001.pl?A_94-AR-0105.html@fam\

ilial@mediterranean

Beverly Barham, R.N., B.S.N., C.C.R.C.

Nurse Specialist (Research) 301-594-2494

bbarham@...

Office of the Clinical Director Main Contact

Fleming-Wells

Office of the Clinical Director

9000 Rockville Pike

Building 10, Room 6N226

Bethesda, land 20892-1616

E-mail: fleminme@...

Phone: 301-451-5890

Fax: 301-402-0012

Anne

Nurse Specialist 301-451-8078

ajones@...

Start with Anne and ask about current study… Call or email is fine.

ALSO: www.genedx.com

Is the lab for swabbing genetic studies… You would look up FMF, TRAPs and HIDS

specifically.

If anyone is looking for GENEDX the lab that does the genetic studies for the

various PFS.... I just posted the link.

God Bless

Fran