Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Modulating meaning what????? Unsticking the overdrive system doesn't make sense to me. Could I find out scientifically the explanation? I am a family nurse practitioner and feel I could handle the specific reasoning. I will not risk trying something that doesn't make good sense to me. Thanks, Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Hi Ellen, I would be interested in reading that article if you would please forward it. I have had RA for almost 28 years & with everything I have tried none of them seem to really stop this disease. I am currently on Enbrel,mtx injections,folic acid,mobic & ultram & am quite disappointed that the Enbrel was not the " miracle " that I had heard so much about. When I see the rheumy in Dec. we will talk about what is next in line since this is not working. I am willing to try just about anything at this point! God Bless, Barbara --- Ellen <ellensherbhouse@...> wrote: > I believe the supplement balanced the immune system, > unsticking the > overdrive response...what they called " modulating " > now. > > I'd be happy to send you a full article featured in > IMMUNE > PERspective.........on the hyperimmune egg... > > Always, remember dietary supplements don't target > disease... instead this > one targets the immune system.......in doing so, > many things fall into > place.............I am pretty hopeful that this will > help those that haven't > found anything that will.......and it doesn't > intervere with any > drugs............. > Ellen > > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 I agree with you Lin. It doesn’t make sense to me either. I would like more of a scientific explanation, test trials etc.. Thanks, Carla -----Original Message----- From: Jetskilin@... [mailto:Jetskilin@...] Sent: Friday, November 09, 2001 1:06 PM To: Rheumatoid Arthritis Subject: Re: explanation Modulating meaning what????? Unsticking the overdrive system doesn't make sense to me. Could I find out scientifically the explanation? I am a family nurse practitioner and feel I could handle the specific reasoning. I will not risk trying something that doesn't make good sense to me. Thanks, Lin Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 Barbara, Just wondering if you have ever heard of a company called Advocare. They have 4-5 products that are great in reducing the effects of RA, some times making them disappear forever. If you or anyone else would like information, please let me know. They have work for several of my friends and I know that they can help you too! --Pamela =============== Pamela Foreman pamelaforeman@... http://www.anonlinebookstore.f2s.com I sell things on eBay! http://members.ebay.com/aboutme/pamelaforemanatt (DOT) net/ Looking to take control of your life? Advocare is the way!! > From: Barbara Kinney <bjjt_us@...> > Reply-Rheumatoid Arthritis > Date: Fri, 9 Nov 2001 08:09:59 -0800 (PST) > Rheumatoid Arthritis > Subject: Re: explanation > > Hi Ellen, > I would be interested in reading that article if you > would please forward it. I have had RA for almost 28 > years & with everything I have tried none of them seem > to really stop this disease. I am currently on > Enbrel,mtx injections,folic acid,mobic & ultram & am > quite disappointed that the Enbrel was not the > " miracle " that I had heard so much about. When I see > the rheumy in Dec. we will talk about what is next in > line since this is not working. I am willing to try > just about anything at this point! > God Bless, Barbara > --- Ellen <ellensherbhouse@...> wrote: >> I believe the supplement balanced the immune system, >> unsticking the >> overdrive response...what they called " modulating " >> now. >> >> I'd be happy to send you a full article featured in >> IMMUNE >> PERspective.........on the hyperimmune egg... >> >> Always, remember dietary supplements don't target >> disease... instead this >> one targets the immune system.......in doing so, >> many things fall into >> place.............I am pretty hopeful that this will >> help those that haven't >> found anything that will.......and it doesn't >> intervere with any >> drugs............. >> Ellen >> >> >> > _________________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 PAMELA...I WOULD BE INTERESTED IN THIS INFO...PLEASE FORWARD IT TO... RUSTY ----- Original Message ----- From: Pamela Foreman Rheumatoid Arthritis Sent: Saturday, November 10, 2001 9:21 AM Subject: Re: explanation Barbara,Just wondering if you have ever heard of a company called Advocare. Theyhave 4-5 products that are great in reducing the effects of RA, some timesmaking them disappear forever. If you or anyone else would like information,please let me know. They have work for several of my friends and I know thatthey can help you too!--Pamela===============Pamela Foremanpamelaforeman@...http://www.anonlinebookstore.f2s.comI sell things on eBay!http://members.ebay.com/aboutme/pamelaforeman@.../Looking to take control of your life?Advocare is the way!!> From: Barbara Kinney <bjjt_us@...>> Reply-Rheumatoid Arthritis > Date: Fri, 9 Nov 2001 08:09:59 -0800 (PST)> Rheumatoid Arthritis > Subject: Re: explanation> > Hi Ellen,> I would be interested in reading that article if you> would please forward it. I have had RA for almost 28> years & with everything I have tried none of them seem> to really stop this disease. I am currently on> Enbrel,mtx injections,folic acid,mobic & ultram & am> quite disappointed that the Enbrel was not the> "miracle" that I had heard so much about. When I see> the rheumy in Dec. we will talk about what is next in> line since this is not working. I am willing to try> just about anything at this point!> God Bless, Barbara> --- Ellen <ellensherbhouse@...> wrote:>> I believe the supplement balanced the immune system,>> unsticking the>> overdrive response...what they called "modulating">> now.>> >> I'd be happy to send you a full article featured in>> IMMUNE>> PERspective.........on the hyperimmune egg...>> >> Always, remember dietary supplements don't target>> disease... instead this>> one targets the immune system.......in doing so,>> many things fall into>> place.............I am pretty hopeful that this will>> help those that haven't>> found anything that will.......and it doesn't>> intervere with any>> drugs.............>> Ellen>> >> >> > _________________________________________________________>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 ELLEN...I WOULD BE VERY INTERESTED IN THIS...COULD YOU PLEASE FORWARD IT TO ME THANKS, RUSTY ----- Original Message ----- From: Ellen Rheumatoid Arthritis Sent: Thursday, November 08, 2001 5:15 AM Subject: explanation I believe the supplement balanced the immune system, unsticking theoverdrive response...what they called "modulating" now.I'd be happy to send you a full article featured in IMMUNEPERspective.........on the hyperimmune egg...Always, remember dietary supplements don't target disease... instead thisone targets the immune system.......in doing so, many things fall intoplace.............I am pretty hopeful that this will help those that haven'tfound anything that will.......and it doesn't intervere with anydrugs.............Ellen_________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Hi Sue! I’m so very sorry for your trouble in finding an understanding doctor. Many of us have, or have had, troubles in getting a diagnose but your case seem to win it all. I’m not sure at all that I and my youngest son Patric ever had got the diagnose it hadn’t been for my eldest son Pierre who has it more severe but had the luck to be sent to a doctor who was very well-educated in CMT; she said he probably has CMT after have seen him walk just a few steps. My father on the other hand has probably seen hundreds of doctors of different kind for CMT-related problems but none has ever discovered his CMT or at least sent him to a neurologist. He still wants to believe that his feet are so deformed because he had to wear too small shoes as a kid (which one doctor told him). When I was a kid one doctor said to my parents that my funny way to walk would disappear when I got old enough to get engaged (I’ve tried but sorry, it didn’t help). Have your sons got a diagnose for their problems? If not, would it be a possibility to see doctors for them instead? Many hugs, Rose-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 No Rose-Marie none of us have had a diagnosis because the odd times my boys have had an appointment themselves I've been the one who has taken them and they all seem to have family notes etc. They diagnose my boys as having CMT then they have to give me the same diagnosis. I've had a geneticist and a neurologist say that three generations of my family do have funny feet (me included) but they can't say whether they are connected are not. This is when I give up on them and move on to someone else.... But seriously I'm wasting my time in the UK now I have to go abroad for a diagnosis of the commonest inherited neurological disease there is - and that makes even less sense. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer " I Thank God for my handicaps, for through them, I have found myself, my work, and my God. " - Helen Keller ----- Original Message ----- From: Rose-Marie Isakson Sent: Sunday, December 23, 2001 11:18 PM Subject: Re: [] Explanation Hi Sue! I'm so very sorry for your trouble in finding an understanding doctor. Many of us have, or have had, troubles in getting a diagnose but your case seem to win it all. I'm not sure at all that I and my youngest son Patric ever had got the diagnose it hadn't been for my eldest son Pierre who has it more severe but had the luck to be sent to a doctor who was very well-educated in CMT; she said he probably has CMT after have seen him walk just a few steps. My father on the other hand has probably seen hundreds of doctors of different kind for CMT-related problems but none has ever discovered his CMT or at least sent him to a neurologist. He still wants to believe that his feet are so deformed because he had to wear too small shoes as a kid (which one doctor told him). When I was a kid one doctor said to my parents that my funny way to walk would disappear when I got old enough to get engaged (I've tried but sorry, it didn't help). Have your sons got a diagnose for their problems? If not, would it be a possibility to see doctors for them instead? Many hugs, Rose-Marie Quote Link to comment Share on other sites More sharing options...
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