Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi all, We met with the ENT regarding a T & A. I went in hopeful that we'd have a surgery date scheduled, but we were told that we're on hold as my son has clotting issues that need to be addressed. One is a confirmed factor deficiency and the other we're re-testing to confirm the severity. For the most part he's not severe enough that we'd notice on a regular basis, but seeing that the T & A is prone to bleeding complications they take this very seriously. Our ENT said that with if he does prove positive for the one condition then they won't do a T & A on those kids. He mentioned 2 cases his colleague worked on that only did partial T & As to eliminate periodic fevers. Apparently they remove the adenoids and all but 10% of the tonsils. This remaining 10% is the part particularly prone to bleeding issues due to muscle involvement. Curious if anyone else has heard of this or had a partial. He seemed to indicate those were the only 2 cases so there's really no testing to see the effectiveness, but... may be our only option. One the positive those 2 children had success but as we know that's not a large enough population. To say we're disappointed is an understatement! My son has had severe tonsil involvement in at least the past 6 episodes and we're now thinking all of them. We were SO hopeful that the T & A would be our cure all! Never a dull moment! Best, Vivian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Vivian, I don't have an answer for you - but I certainly hope all works out with the blood clotting testing. I do know that there were a lot of posts about 9-12 months ago on partial T & A... you might look in the archives to see what was there and find some specific names of folks. Wishing you luck! Ginger Daughter - le, almost 3 years old (fevering since 7 months, diagnosed at 15 months, T & A on 12/11/07, Fever-free since 11/16/07) Son - Jay, 1 year old ----------------------------------------- ==================================================== This message contains PRIVILEGED and CONFIDENTIAL information that is intended only for use by the named recipient. If you are not the named recipient, any disclosure, dissemination, or action based on the contents of this message is prohibited. In such case please notify us and destroy and delete all copies of this transmission. Thank you. ==================================================== Quote Link to comment Share on other sites More sharing options...
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