Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 Hi Everyone, Question- Has anyone advocated to have a Clinical Study implemented? Last night I was both surprised and disappointed when I visited the NIH website and could not find any clinical studies now or in the past. I would be thrilled to hear any stories! My 16 month old daughter was recently diagnosed and I can't imagine going through this for approx. 5 more years with only steriods (which we don't plan to try), tylenol and motrin to rely on. I emailed the Research Dept at Children's Hospital of Philadelphia this morning to inquire into the possibility of a clinical study. Does anyone care to join me in an emailing campaign? If so, let me know and I will post the email address. I told before I left work this morning that mommy was going to kick some but today! lol.. Thanks, Jen C. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.