Re: Dr appt/Thanks

[Guest guest]

Laurie,

Your story sounded so familiar. However, I knew what the immunologists

reaction was going to be - so we didn't see her until after the T & A. My

pediatrician did send her a memo letting her know that he and our ENT

were in agreement that it was the right course of action.

If it is any consolation - he tried to explain that depending on the

field of medicine a doctor is trained to try medicines to treat or try

surgeries to treat -- therefore, many pediatricians try for example

antibiotics for a while to cure ear infections. But an ENT is more

prone to putting in ear tubes. Immunologists are naturally predisposed

against surgery.

While I can't comment on " years " of success - we have had over 8 months

- and almost NO other illnesses in that 9 month (middle of flu/virus

season) and my daughter is also 3 years old.

We still hope/pray that the fevers stay away - but we will always be

glad for the time we've had if the fevers do come back.

Best of luck to you.

Ginger

Daughter - le, 3 years old

(fevering since 7 months, diagnosed at 15 months, T & A on

12/11/07, Fever-free since 11/16/07)

Son - Jay, 15 months old

-----------------------------------------

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[Guest guest]

Laurie,

Your story sounded so familiar. However, I knew what the immunologists

reaction was going to be - so we didn't see her until after the T & A. My

pediatrician did send her a memo letting her know that he and our ENT

were in agreement that it was the right course of action.

If it is any consolation - he tried to explain that depending on the

field of medicine a doctor is trained to try medicines to treat or try

surgeries to treat -- therefore, many pediatricians try for example

antibiotics for a while to cure ear infections. But an ENT is more

prone to putting in ear tubes. Immunologists are naturally predisposed

against surgery.

While I can't comment on " years " of success - we have had over 8 months

- and almost NO other illnesses in that 9 month (middle of flu/virus

season) and my daughter is also 3 years old.

We still hope/pray that the fevers stay away - but we will always be

glad for the time we've had if the fevers do come back.

Best of luck to you.

Ginger

Daughter - le, 3 years old

(fevering since 7 months, diagnosed at 15 months, T & A on

12/11/07, Fever-free since 11/16/07)

Son - Jay, 15 months old

-----------------------------------------

====================================================

This message contains PRIVILEGED and CONFIDENTIAL

information that is intended only for use by the

named recipient. If you are not the named recipient,

any disclosure, dissemination, or action based on

the contents of this message is prohibited. In such

case please notify us and destroy and delete all

copies of this transmission. Thank you.

====================================================

[Guest guest]

Laurie,

 

I know how you feel as I was very worried that I would lose my job with being

home so much for my daughter's fevering episodes.  Luckily I have a boss who is

expecting twins, so I have been able to work things out to work at home as

needed. Is there any chance you could go back and request some flexibility?

 

Anyway, that's not why I'm writing.  I'm writing b/c our pediatrician believes

that my daughter has , however the immunologist said that she doesn't, only

because, we cannot set a clock or calendar to when she has her fevers.  His

feeling about it was that it should be like clockwork, but they simply aren't. 

They're every 2-4 weeks, and getting to 4 weeks is only during summer months.

 

WIth our pediatrician's agreement, I took my daughter to see an ENT and had all

sorts of articles and studies with me to show some evidence of a link between

tonsillectomy and ending the fevers...obviously knowing that there are no

guarantees for success. 

 

He didn't even look at the articles or studies, he reviewed her chart, saw

frequency and symptoms, as well as the immunologists's opinion, but asserted

that he thinks that she is a candidate for tonsillectomy.  So, she'll have the

procedure the Wednesday before Columbus Day. 

 

So obviously, based on our experience, I would suggest that you consult an ENT

for another opinion. :-)

 

Good luck!  I can relate.

 

Short

daughter , fevering since 2, now is 5, T & A scheduled for 10-08-08

[Guest guest]

Laurie,

 

I also agree with .  An ENT is the way to go.  We were referred to one

from our pediatrician.  The ENT briefly examined our son (who was not having an

episode at the time).  He had previously reviewed the chart notes sent over from

the peds office.  He was already aware of the recent study and explained to us

what would happen during the procedure before he asked us if we still wanted to

do it.  I think because the T & A is their field they are more current on the

issue.

 

Pruden

Tyler Pruden 2yr 8mo fevering since 3mo - PFAP - T & A 8/05/08...waiting to see if

it worked

Dylan Pruden 5 months old

[Guest guest]

Laurie,

 

I also agree with .  An ENT is the way to go.  We were referred to one

from our pediatrician.  The ENT briefly examined our son (who was not having an

episode at the time).  He had previously reviewed the chart notes sent over from

the peds office.  He was already aware of the recent study and explained to us

what would happen during the procedure before he asked us if we still wanted to

do it.  I think because the T & A is their field they are more current on the

issue.

 

Pruden

Tyler Pruden 2yr 8mo fevering since 3mo - PFAP - T & A 8/05/08...waiting to see if

it worked

Dylan Pruden 5 months old

[Guest guest]

Hi Laurie,

We went to several different Drs for opinions, including an ID, an

Immunologist, a Rheum and an ENT. Each seemed to have a different

take. The immunologist we saw told us that we would try the following

for , in this order: 1. Cimedetine, 2.Prednisone, 3. T & A When I

asked why we wouldn't just try the T & A if it seems to be pretty

successful for a lot of kids he told me that the tonsils are the

" soldiers of your immune system " and that they shouldn't be removed

until the teens(think that was his timeframe) if the alternatives

work. We then saw an ENT and when I asked him about the " soldiers " he

said if they remove them and it takes the fevers away then they

obviously weren't working correctly. So, like everyone said... depends

on which type of Dr. you consult.

I don't want to jinx us, but we started my son on the Cimetedine and

so far we've had our longest stretch yet since starting the

Prednisone. I noticed a change within a few days of starting

it(despite hearing that you need to be on it for a few months before

seeing an impact). Perhaps it's coincidence, but his coloring is

great, he's eating us out of house and home(I never ever thought I'd

say that)... and he even eats veggies! All around he just seems so

much better. We're keeping our fingers crossed as the T & A is not a

great option for my son due to potential blood clotting issues.

Hope this helps!

Vivian

[Guest guest]

Hi Laurie,

We went to several different Drs for opinions, including an ID, an

Immunologist, a Rheum and an ENT. Each seemed to have a different

take. The immunologist we saw told us that we would try the following

for , in this order: 1. Cimedetine, 2.Prednisone, 3. T & A When I

asked why we wouldn't just try the T & A if it seems to be pretty

successful for a lot of kids he told me that the tonsils are the

" soldiers of your immune system " and that they shouldn't be removed

until the teens(think that was his timeframe) if the alternatives

work. We then saw an ENT and when I asked him about the " soldiers " he

said if they remove them and it takes the fevers away then they

obviously weren't working correctly. So, like everyone said... depends

on which type of Dr. you consult.

I don't want to jinx us, but we started my son on the Cimetedine and

so far we've had our longest stretch yet since starting the

Prednisone. I noticed a change within a few days of starting

it(despite hearing that you need to be on it for a few months before

seeing an impact). Perhaps it's coincidence, but his coloring is

great, he's eating us out of house and home(I never ever thought I'd

say that)... and he even eats veggies! All around he just seems so

much better. We're keeping our fingers crossed as the T & A is not a

great option for my son due to potential blood clotting issues.

Hope this helps!

Vivian

[Guest guest]

Hi Laurie, my name is Jenn and I'm from Spring Hill,

FL...about an hour north of st.pete/clearwater. When

my son , Mikey( 4yrs.), started the fevers we thought

we'd have to go to ALL Children's hospital or the

other down there. However, due to some advice from

others close by we decided to stick close to home and

we saw Dr. Donnelly (ENT) He is based out of

Tampa and Spring Hill, FL. We also see Dr. Ledford

(Allergy and immunology) out of Tampa and Spring Hill.

I cannot tell you how wonderful both of them have

been to us. Both did research on their own for us and

worked together to diagnose Mikey. Mikey started

fevering this January and today we saw Dr. Donnelly

and guess what....he was so pro the T & A and as a

father, he was very understanding of our decision and

our T & A is scheduled for Sept. 10th...that's just two

weeks away!! The specialist at All Children's

suggested we put him on steroids twice a day or use

the cimetidine? first...I was not comfortable at all

with that suggestion and both of our docs agreed. Dr.

Donnelly said a lot of docs are against the T & A b/c

they simply don't know enough about it and the results

of how wonderful the T & A works for a cure to are

fairly recent. Anyhow, He does have an office in

Tampa and that's not far from you. I highly recommend

him and I feel so blessed with the way things have

worked out for us. Mikey only had to go through blood

work once, and see Donnelly and Ledford twice each for

this....I feel for those who have gone through so much

just to get to this same conclusion..T & A. If you have

any other questions or want info on either doc please

let me know. Good Luck!! Jenn

[Guest guest]

Hi Laurie, my name is Jenn and I'm from Spring Hill,

FL...about an hour north of st.pete/clearwater. When

my son , Mikey( 4yrs.), started the fevers we thought

we'd have to go to ALL Children's hospital or the

other down there. However, due to some advice from

others close by we decided to stick close to home and

we saw Dr. Donnelly (ENT) He is based out of

Tampa and Spring Hill, FL. We also see Dr. Ledford

(Allergy and immunology) out of Tampa and Spring Hill.

I cannot tell you how wonderful both of them have

been to us. Both did research on their own for us and

worked together to diagnose Mikey. Mikey started

fevering this January and today we saw Dr. Donnelly

and guess what....he was so pro the T & A and as a

father, he was very understanding of our decision and

our T & A is scheduled for Sept. 10th...that's just two

weeks away!! The specialist at All Children's

suggested we put him on steroids twice a day or use

the cimetidine? first...I was not comfortable at all

with that suggestion and both of our docs agreed. Dr.

Donnelly said a lot of docs are against the T & A b/c

they simply don't know enough about it and the results

of how wonderful the T & A works for a cure to are

fairly recent. Anyhow, He does have an office in

Tampa and that's not far from you. I highly recommend

him and I feel so blessed with the way things have

worked out for us. Mikey only had to go through blood

work once, and see Donnelly and Ledford twice each for

this....I feel for those who have gone through so much

just to get to this same conclusion..T & A. If you have

any other questions or want info on either doc please

let me know. Good Luck!! Jenn