Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 good for you lets see your opion after five years. i hope she can help you . good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 good for you lets see your opion after five years. i hope she can help you . good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 this concerns me as we just saw a rhuematologist yesterday. He said that what our son has is not genetic as we have not seen anything like this in any other family members. Does this sound right? We are struggling with something else on top of these fevers. We spent two nights in the hospital last week as our son has C Diff Colitis from antibiotic use. He got dehydrated and we were unable to give him the medicine for the c diff. Anyway, we are trying to get past this c diff so we can go ahead with a tonsillectomy. The infectious disease dr said that would be our best choice considering all that we are going through. We have yet to try the prednisone because since we got the prescription he had an ear infection that would not go away, then the antibiotics then the c diff. He has only had two other ear infections in his life, so this was new to us. There has been no talk of genetic testing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 No does not sound right. Just bc you have never seen it in the family does not mean that a gene does not exist in you childs body. Seesh! I wonder what this doctor thinks of rare genetic disorders? I would not accept this lame answer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 No does not sound right. Just bc you have never seen it in the family does not mean that a gene does not exist in you childs body. Seesh! I wonder what this doctor thinks of rare genetic disorders? I would not accept this lame answer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Thanks, where do I find info to back this up to shove in their faces! Really, I really want this testing done. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Hello! My son Dashall (23 months) was " diagnosed " with in March by my pediatrician, after he started fevering again after a 7 month hiatus. The pediatrican group had an idea of what was going on based on having another child in their practice with the same symptoms. We also tried prednisone once while on vacation and the fever stopped right away. Returning quickly, and considering his manic mood, we have not given it again. The Dr. has kept up to date with specialists at UCSF, so we didn't seek more answers. However, after two particularly bad fever episodes (both while on vacation!) we have an appointment with Dr. Milojevic next month. I recognized her name and read your post... Are you happy you saw this particular Dr.? I have read on this site to see a Infectious Disesaes specialist? She is Rheumatology, yes? We have absolutely no reason to believe that what Dash is suffering from is genetic, based on our family histories. Was there anything she asked you that would be helpful for me to think about? How long did she spend in the evaluation? Any other info would be great. We also have a referral for an ENT in Oakland because Dash has had 6+ear infections and has a speech delay. I want to know all our options, T and A being one of them. We are not big on the routine medicine route. My pediatrician said to see Dr. Milojecic first, but the appointment is so far away. Anyone have an opinion? Thank you! Teja (Mom of Dash, fevering since 8 months, and Rowan 4 3/4, fever free) Teja Quote Link to comment Share on other sites More sharing options...
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