Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Hi to all the beautiful People (Stilligans)!: Folks I am going to attempt to put emotions into words. A few of the others that attended our first conference managed to do a beautiful job now I hope that I can at least equal it although this is not a contest. We (Carole and I) arrived at the Orleans Hotel a day earlier than everyone else and much to our surprise it was a very nice Hotel. We got all registered in and partook of a little of the slot machine which I promptly gave a bunch of dollars to. Well, we were both pretty beat so we went to dinner and retired to our room for the evening and caught up on the news. We awoke the next morning and had a very good breakfast and were looking forward to meeting everyone in the lobby at noon. Thank goodness for my wheelchair or I would have never made it around that casino. Well, we kept checking the lobby around the desk from about 11am but no one was there. Then all of a sudden I rounded the corner and what a delightful surprise overtook my eyes. Now you have to remember that I have CRS! There sitting on the couch next to the sign in desk was our dear Melt, her hubby Smilin and ! Warm wonderful hugs and lots of tears all around were the order of the moment. It was so wonderful to meet these wonderful people in person. And I felt like I had known them all my life! Now everything starts getting fuzzy because as emotional as I was I can't remember who showed up next but in the end we had Louise and Greg, Sue #2 and her Beautiful Mom Lois, Ron, Al (with the great voice) and his wife Sue, Tricia and her husband Dan, and Traci who captured me mid hallway! The Hugs and tears really flowed that day and the subsequent days when we got together. We had some great meals together and some great times and talks. The first day was total confusion but full of love and friendship and emotion! The second day wasn't much better because after having breakfast and lunch with some of the folks we all joined together in Louise and Greg's room since they had the largest one The intention was to have our small auction, make a small presentation, discuss a few things and make a little money for the Foundation. Well all started off right I said a few words and kept it short going over the bank account and then the presentation of the plaque to Tom and then we all started saying a few words.You talk about Hugs and tears and emotions?????? The room was saturated with them. I believe that everyone had something to say and I will repeat what Carole and I had to say about the Stilligans: We have adopted every one of the Stilligans as our own children, it doesn't matter how old you are you are our adopted children and as far as all the help we are supposed to have give to you all and the Foundation Carole said it beautifully when she said that " You are really helping us " because after the Death of our daughter we were lost and this foundation and you Stilligans have kept us busy enough to know that maybe we are making a difference and at least we are helping someone. For the rest of our lives we will never forget this first conference, nor any future ones. The days of that conference and the emotions that I have had and felt will be with me forever. Of course there were many tearful goodbyes and Carole and I stayed at the Hotel for another day to rest up, LOLOLOLOL, prior to our continuing on our trip. All in all we were gone from home a total of 33 days and we enjoyed every minute of those 33 days but none as much as we enjoyed the days we spent with our Stilligan Family! Folks I hope that a lot more of you get to attend the next conference when ever that will be and where ever it will be. It will do so much for your outlook on life and the people that you meet. I know that most of what I have reported is pretty disjointed but that s the way it is when you have CRS, lol! The main thing is that I loved every minute of it and so did Carole. We love you all. Take care now and be PAIN FREE! We Will Win Love Y'all Mom & Dad Bob & Carole Please Visit the International Stills Disease Foundation Web Site at: www.stillsdisease.org Quote Link to comment Share on other sites More sharing options...
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