Re: Any Interest in Taking a Survey?

[Guest guest]

yes!

>

> I'm thinking of surveying all of you across some common dimensions

so

> that we can build a database of information that could be passed

along

> to the NIH or other researchers. If I set up a link to the

survey,

> would you be interested in participating? If we get an

overwhelming

> response in support of this, I will go ahead to set this up and

then

> share the results with all. Let me know if you are intending on

> participating, as well as thoughts on questions and I will soft

through

> them. Some initial thoughts include probing areas such as (in no

> particular order):

> 1. Sex of the child

> 2. Age of the child

> 3. Cycle timing, frequency, and duration

> 4. Symptom severity across fevers, headaches, vomitting, etc..

> 5. CBC/Blood Work Information

> 6. Nationality of the family/child

> 7. Age of onset and/or age of cessation of symptoms

> 8. Treatment options and effectivness (cimetidine, singulair,

> prednisone, T & A, et al.)

> 9. T & A and duration of cessation of symptoms

> 10. Cycle frequency after prednisone administration

> 11. Country, region, city/town in which you live and/or in which

the

> child has been raised

> 12. Any challenges the child encountered that were distinctive

thusfar

> in their life (jaundice, infection, reflux, etc..)

>

> I'm sure there will be more, so there's much more to do. Let me

know.

>