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Sue - PCRU continuing

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Good Afternoon All

Had my 3 monthly appointment this week

I am still PCRU but even better than that result is the BCR

is now 0.0 as well

Normally I am PCRU since late last year the BCR had results such as a negative

12, then negative 11 and then a negative 10 and this weeks result BCR was a 0.0

Specialist could not believe it - even in the best of outcomes this is a great

outcome - he was a pretty happy man

I asked if I could reduce dosage due to skin rashes and bleeds etc

fragile skin etc - looked at me like I had three heads and said NO WAY

- we are on a winner and not playing around with it - we will manage all

side effects - hope he is right.

Even though PCRU my general chemistry is going down with all other levels lower

than they were the test before - so medico will wait and see what the next

results are. I have to be careful that I do not get infections - neut levels

low again.

Medicos excitement was infectious so thought I would share.

I did not realise that BCR results were also important and not just the

BCR/abl together

Sue (Aussie)

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