Re: Please read Phantom Fevers

[Guest guest]

Kim, will you please ask him about the face reddning also? With me my face

will get bright red (not a butterfly rash) but my entire cheeks in the

evening around the same time, it will feel hot when you touch it and last an

hour or a few hours then go away, exactly the same pattern as the rash.

Has he heard of this? thanks

GO DAWGS !!!!!

[Guest guest]

Kim, will you please ask him about the face reddning also? With me my face

will get bright red (not a butterfly rash) but my entire cheeks in the

evening around the same time, it will feel hot when you touch it and last an

hour or a few hours then go away, exactly the same pattern as the rash.

Has he heard of this? thanks

GO DAWGS !!!!!

[Guest guest]

Kim, another thing might be to list the length of time each has had

Stills.

> I've been keeping a list of the names that have replied to say they

> have experienced what I call phantom fevers...If you have

experienced

> them but are not on the list, please write me. If your name is on

> the list in error, please write me golightlyfredd@y...

>

> I would like to let Dr. Cush know at my next apt.

>

> Tricia

>

> Caroline

>

> Melt 25years

> Marcia

>

>

> 2

> Graham

>

>

> When I asked Dr. Cush about this he couldn't tell me why this

> happens. I am going to see if he'll do a study. Maybe he will use

> us for the research.

>

> Love you all!!! Kim

[Guest guest]

Kim, another thing might be to list the length of time each has had

Stills.

> I've been keeping a list of the names that have replied to say they

> have experienced what I call phantom fevers...If you have

experienced

> them but are not on the list, please write me. If your name is on

> the list in error, please write me golightlyfredd@y...

>

> I would like to let Dr. Cush know at my next apt.

>

> Tricia

>

> Caroline

>

> Melt 25years

> Marcia

>

>

> 2

> Graham

>

>

> When I asked Dr. Cush about this he couldn't tell me why this

> happens. I am going to see if he'll do a study. Maybe he will use

> us for the research.

>

> Love you all!!! Kim

[Guest guest]

I too have strange " hot flashes " . They cannot be explained except by the

usual I am 36 and pre-memapausal, or maybe it's a side effect from either the

pred or MTX...who knows? I am slowly coming out of denial that my body is

now new and I must become acquainted with it.

[Guest guest]

Or perhaps you'd like to ask Dr Cush if there are any stats that he'd like

collected from the group?

Graham

West Sussex

UK

At 01:13 29/10/2002, you wrote:

>Kim, another thing might be to list the length of time each has had

>Stills.

> > I've been keeping a list of the names that have replied to say they

> > have experienced what I call phantom fevers...If you have

>experienced

> > them but are not on the list, please write me. If your name is on

> > the list in error, please write me golightlyfredd@y...

> >

> > I would like to let Dr. Cush know at my next apt.

> >

> > Tricia

> >

> > Caroline

> >

> > Melt 25years

> > Marcia

> >

> >

> > 2

> > Graham

> >

> >

> > When I asked Dr. Cush about this he couldn't tell me why this

> > happens. I am going to see if he'll do a study. Maybe he will use

> > us for the research.

> >

> > Love you all!!! Kim

[Guest guest]

Add me too! (Jul)

Please read Phantom Fevers

I've been keeping a list of the names that have replied to say they

have experienced what I call phantom fevers...If you have experienced

them but are not on the list, please write me. If your name is on

the list in error, please write me golightlyfredd@...

I would like to let Dr. Cush know at my next apt.

Tricia

Caroline

Melt

Marcia

2

Graham

When I asked Dr. Cush about this he couldn't tell me why this

happens. I am going to see if he'll do a study. Maybe he will use

us for the research.

Love you all!!! Kim

[Guest guest]

I only get a rash on my face. It covers my chin and one cheek but never the

other. I always thought it was a wierd sunburn (because that is what it

looks like) until I was diagnosed with Stills (well, i needed some

explanation for getting this red discoloring on my face almost every day at

the same time! It didn't make sense to be sunburn, but...)

Lelsie

[Guest guest]

You can add Al to your list. Best of luck. aka suenal

>From: " golightlyfredd " <golightlyfredd@...>

>Reply-Stillsdisease

>Stillsdisease

>Subject: Please read Phantom Fevers

>Date: Tue, 29 Oct 2002 00:28:49 -0000

>

>I've been keeping a list of the names that have replied to say they

>have experienced what I call phantom fevers...If you have experienced

>them but are not on the list, please write me. If your name is on

>the list in error, please write me golightlyfredd@...

>

>I would like to let Dr. Cush know at my next apt.

>

>Tricia

>

>Caroline

>

>Melt

>Marcia

>

>

> 2

>Graham

>

>

>When I asked Dr. Cush about this he couldn't tell me why this

>happens. I am going to see if he'll do a study. Maybe he will use

>us for the research.

>

>Love you all!!! Kim

>

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[Guest guest]

Yes I have had and still do have the Phantom Fevers

Nettie

Please read Phantom Fevers

>Date: Tue, 29 Oct 2002 00:28:49 -0000

>

>I've been keeping a list of the names that have replied to say they

>have experienced what I call phantom fevers...If you have experienced

>them but are not on the list, please write me. If your name is on

>the list in error, please write me golightlyfredd@...

>

>I would like to let Dr. Cush know at my next apt.

>

>Tricia

>

>Caroline

>

>Melt

>Marcia

>

>

> 2

>Graham

>

>

>When I asked Dr. Cush about this he couldn't tell me why this

>happens. I am going to see if he'll do a study. Maybe he will use

>us for the research.

>

>Love you all!!! Kim

>

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