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Thinning hair

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Betty,

Did you finally get on the list? Let me know. I am slowly getting back

to doing a little at a time. My brother in law is still on life support,

but yesterday his kidney shut down, and I do not think he is going to make

it, they can not wake him up, even cutting down the seditives to almost

nothing, he is no longer responding at all, they are afraid of brain damage.

Just wanted to touch base, and I saw you post and didn't know if you got

that through the list or if someone forwarded it to you.

Rosemary Commisso

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If you have natural food stores or vitamin stores, not GNC type, you can find

it.

aW

Re: Thinning hair

Where does one buy Pure Coconut oil, almond oil or Jojoba oil? These were

some ideas for use in thinning hair.

Thanks,

Betty Pappas

MGB: 3/13/01

250/139

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  • 1 year later...
Guest guest

yes, mine has

[ ] Thinning Hair

> Has anyone noticed that since they have been so sick and on so many

> antibiotics that their hair has gotten much thinner? I had really

> thick hair and it's starting to significantly become thinner. Just

> thought I would ask.

> -Holly

>

>

>

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Holly,

When I was very sick with Lyme and on loads of antibiotics, my hair

drastically thinned out in the front. I would find a lot of hair on the floor

of the shower. I even had to start combing it differently. It has come

back significantly over the past couple of years. Antibiotics taken for

extended periods of time are known to do that.

Sue Rauch

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HI,

When my daughter was very sick at a very young age (it was diagnosed as

Henoch-Schoenlein Purpura, basically a type of vasculitis), she lost almost

all of her hair. It was frightening to find entire ringlets on her little

pillow. She was in tremendous pain and had swelling that would come and go.

The wonderful pediatric chief of staff who stepped in and took over her case

because it was so highly unusual said he felt the hair loss might have been a

strong indicator of auto-immune response -- or it even could have been from

swelling, causing the hair to break right at the scalp. She was having so

many strange and horrid symptoms, but the hair loss was the most visible and

made this little girl feel even more freakish.

I have wondered since -- now that my son is so sick with Lyme -- if she might

have been suffering from Lyme, too. All I know is that I.V. gamma globulin

given every three weeks over the course of 6 months slowly turned her health

back around. She is now in 8th grade and doing pretty well, which is alot to

be grateful for!

Take care, everyone...

~Judie

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Dear Janet & others,

I too have hair that has thinned out tremendously. I know that hair

loss/baldness is one of the items on those Lyme check lists.

Haven't a clue about the metabolic mechanism. Does anyone else know?

Is it hair follicles damaged by the bacteria?

Hormone imbalance?

Wild guesses, I have no idea.

best,

bluesky

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I noticed a posting on this or another Lyme group about someone being

told she had elevated DHEA levels and that this was a known product

of the Lyme. One of the undesirable side effects of DHEA is hair

loss. Has anyone else heard of elevated DHEA levels beign associated

with Lyme?

> Has anyone noticed that since they have been so sick and on so many

> antibiotics that their hair has gotten much thinner? I had really

> thick hair and it's starting to significantly become thinner. Just

> thought I would ask.

> -Holly

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  • 5 years later...
Guest guest

Dear ,

I always had thick hair until I started taking Inteferon. It started to come

back with Gleevec, but then started getting thin again. On Sprycel, it started

getting thick again and now in the SKI trial, it is so thin, the dermatologist

noticed and asked if my hair was always like that. He said there are hundreds

of thousands of little hair underneath there that will eventually grow out, but

I will continually lose what I now have. He also asked if it was the same

texture and I said it was frizzy. He said it was indictive of chemo. I

certainly do envy anyone who ages as I have and still have a full head of hair.

My sister is older and still has a full head of hair. My oldest brother died at

88 and had a full head of hair. My other brother is now 88 and still has a crop

of grey hair that he cuts GI style. Nothing we can do to control it.

Blessings, Lottie

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Granny's hair is thinning. She is on Gleevec daily, and antibiotics almost all

the time. With the antibiotics, a perm won't take. Her hair is thin and what she

has, she can't do much with it. So, yesterday she sort of had a melt down. With

the Thyroid problem, the CML, the constant bladder infections and she got a

stuffed up nose and then her hair is so thin, she is sick of feeling bad and now

her hair is coming out. She is better today. I am going to get her to come over

Saturday and we are going to look at wigs and try to get one ordered for her. I

feel so bad for her. I know she could be alot worse off but, that's hard to see

when you do feel so bad.

[ ] Thinning hair

Dear ,

I always had thick hair until I started taking Inteferon. It started to come

back with Gleevec, but then started getting thin again. On Sprycel, it started

getting thick again and now in the SKI trial, it is so thin, the dermatologist

noticed and asked if my hair was always like that. He said there are hundreds of

thousands of little hair underneath there that will eventually grow out, but I

will continually lose what I now have. He also asked if it was the same texture

and I said it was frizzy. He said it was indictive of chemo. I certainly do envy

anyone who ages as I have and still have a full head of hair. My sister is older

and still has a full head of hair. My oldest brother died at 88 and had a full

head of hair. My other brother is now 88 and still has a crop of grey hair that

he cuts GI style. Nothing we can do to control it.

Blessings, Lottie

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