, re: update and venting

[Guest guest]

Hi ,

I'd try Kineret if I were you. Marcia swears by it and I don't remember her

saying anything about a reaction site. Someone else here swears by it also.

If you do have any side effects, you can always stop and try Enbrel. I was

at the Pharmacists today and he was telling me that he has tons of people on

Enbrel. It must be working for them. I should have asked him about Kineret

but it didn't occur to me since I am doing quite well on Enbrel. I also take

15mgs. of MTX along with the Enbrel. I can't recall if anyone here takes it

alone and does well with it. I haven't had any adverse reaction in the

injection site but I'm the type that never looks for the side effects. I

forget and maybe my positive attitude helps.

You know, the back of my knees feel like they are stretched too tight also.

I wonder what that means? Must be some fluid in the knees. I went to my

Rheumatologist the other day and he's letting me reduce my

Prednisone.....thank goodness..... He also noticed that I've gained about

twenty pounds in a year so maybe I'll lose some weight if I can wean off of

it. I am thinking of changing my California driver's license to a Michigan

one and I was looking at my Ca. picture today and thinking............is that

what I used to look like?.......pretty sad!!!!

I hope this Epidural lasts longer than the one before. Is two weeks the

norm? I know you are sick and tired of the pain and fatigue. Let's hope

that Caroline's discovery is a break through for us Stilligan's!

I don't know much about Disc Degeneration but if you have not injured your

back, I don't understand either why you are having it. You are so young.

Gosh, I wish we could find a " feel good " pill and get on with a better life.

Keep us informed about your decision regarding Kineret. If my Enbrel stops

helping me, that's the road I am taking........ )

xxoo

Carmen