Re: Med ?'s and Info

[Guest guest]

,

glad you are back in the group for however long you can stay. I too do the

disappearing act (usually while traveling, but then it takes a long time to

get back in the swing of things.)

As to the meds: I keep a running log on the computer, that I update before

going to any doc. I'm attaching a copy of the current list. Prescription

meds are on top, the rest are OTCs and vitamins etc.

Hope that the list is useful. At this point my major symptoms are under

very good control. The only real problem is in my right wrist (which often

prevents me from typing) and we are working on it now with the Naproxin,

ice, and partial immobilization.

Stay well

Ann K

Med ?'s and Info

> Hello Everyone,

>

> I was wondering if anyone would feel comfortable sharing with the group or

> me personally, all meds that you are currently taking and for what? Could

> you also include Vitamins, OTC stuff etc... I completely understand if

you

> don't want to. I know this is a very personal question. I wanted to

> compare notes so to speak. This info would be greatly appreciated and

kept

> confidential if you prefer. I will go first.

>

> I am on Enbrel and Plaquenil for the Stills, Hyoscyamine (IBS), Clonazepam

> (Fibro), Celexa (Antidepressant), Oxycontin and Oxy Ir (Pain), Restoril

(New

> Med for Sleep), Immitrex Injections as needed (Migraines), Multivitamin,

> Calcium with A & D, Surfak (Constipation). I take all of these daily except

> the Immitrex and Restoril as needed.

>

> All of these meds work but I still feel I need something else, another med

> to control my Stills. However I have no idea what med would do it for me.

> I unfortunately can't take a lot of the meds due to side effects.

>

> For instance I can't take Prednisone, Methotrexate, Arava, Celebrex, Viox,

I

> can't take any Antiflammatories, etc... I have learned to listen and to

> trust my inner feelings. I get a really bad feeling about the Remicade so

I

> won't try it. I am not sure what I think about the new med Kineret. I

hope

> I spelled that correctly. I am certainly up for all and any suggestions

for

> meds to try.

>

> Thanks in advance for sharing the Med Info with me, it is greatly

> appreciated. You are all in my thoughts and prayers.

>

> Love,

>

>

> jatw@...

>

>

>

>

>

>

[Guest guest]

Hi -

I cheerfully will share my meds because, for the first time in years, they

are declining in number. About 4 months ago, I replaced enbrel with Kineret.

Since then, I have stopped my Arava and my NSAID. I have also cut down the

prednisone from 5 to 4, and soon, now to 3. I still take MTX, but hope to be

able to reduce/eliminate that if i am succusseful at getting off the

prednisone.

I no longer need hydrocodone for pain. I am on an ACE inhibitor for blood

pressure, fosamax once/week for osteoporosis, and vitamin E, calcium with

magnesium and vitamin D, a multivitamin, ester C and low dose aspirin. Whew -

still seems like a long list, but it is getting shorter.

If you intuitively feel that your meds aren't doing all you'd hope, think

about trying kineret. It has been a far superior medication for me over the

enbrel, remicade, and various combos. I am wondering if the IL1 (cytokine

inhibitor) that is kineret might not really tune in to the cause of

inflammation in Stills. I guess we will only know as more stilligans try it.

Keep us posted on what, if any, changes you decide to make.

Praising the wonders of medical science,

Marcia

[Guest guest]

Hi -

I cheerfully will share my meds because, for the first time in years, they

are declining in number. About 4 months ago, I replaced enbrel with Kineret.

Since then, I have stopped my Arava and my NSAID. I have also cut down the

prednisone from 5 to 4, and soon, now to 3. I still take MTX, but hope to be

able to reduce/eliminate that if i am succusseful at getting off the

prednisone.

I no longer need hydrocodone for pain. I am on an ACE inhibitor for blood

pressure, fosamax once/week for osteoporosis, and vitamin E, calcium with

magnesium and vitamin D, a multivitamin, ester C and low dose aspirin. Whew -

still seems like a long list, but it is getting shorter.

If you intuitively feel that your meds aren't doing all you'd hope, think

about trying kineret. It has been a far superior medication for me over the

enbrel, remicade, and various combos. I am wondering if the IL1 (cytokine

inhibitor) that is kineret might not really tune in to the cause of

inflammation in Stills. I guess we will only know as more stilligans try it.

Keep us posted on what, if any, changes you decide to make.

Praising the wonders of medical science,

Marcia

[Guest guest]

Hi , this is the list that I give to my doctors which lists my meds and

conditions. Hope it turns out alright.

Marilyn

MEDICATION DOSAGE AMOUNT WHEN

(EACH)

rheumatoid arthritis:

Remicade 3 Vials Infusion every 6 weeks

Arava 20 MG 1 TAB EVERY OTHER DAY

Celebrex 200 MG 2 TABS 1 MORN/1 EVENING

Prednisone 5 MG 1½ TABS MORNING

Tylenol 3 30 MG - AS NEEDED (EVERY OTHER DAY) -

Apo Famotidine 40 MG 1 TAB EVENING

high uric acid:

Allopurinal 300 MG 1 TAB AFTERNOON

blood pressure:

Norvasc 10 MG 1 TAB AFTERNOON

bloodclots: (right arm)

Coumadin 2 MG 2/1½ TABS 6 PM; alternate

diabetes:

Metformin 500MG 4 TABS 2 MORN/2 EVENING

cholesterol:

Lipidil Supra 60MG 1 TAB EVENING

Lipitor 20 MG 1 TAB MORNING

osteoporosis/osteopenia:

Fosamax 70 MG 1 TAB/week MORNING

vitamins & sleeping pills, etc.:

Centrum Forte 1 TAB MORNING

Calcium/Vitamin “D” 5 TABS 2 MORN/ 3 EVENING

Vitamin “E” 400 I.U. 1 TAB AFTERNOON

Vitamin “C”

Vitamin B6 100 MG 1 TAB AFTERNOON

Cyclobenzaprine 10 MG --------- AS REQUIRED --------

Imovane (Zopiclone) 7.5 MG ----------AS REQUIRED---------

Imodium --------- AS REQUIRED --------

ALLERGIES: Minocin, Hydroxychloroquine, Gold Injections, IVP Dye

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Dear Marilyn,

Thanks for the med info. That is quite a list. I have a few questions

about the meds you listed if you don't mind? What is the Cyclobenzaprine

for? What side effects or allergic reaction did you have to the

Hydroxychloroquine?

Thanks so much for the info.

Love,

jatw@...

[Guest guest]

Dear Marcia,

It is wonderful that you have been able to reduce your meds I can hear the

hope and excitement in your post. The Kineret sounds like a med I should

explore and possibly look in to.

I know that the Arava and Enbrel have been the best meds I have been on.

Unfortunately I had side effects from the Arava so I had to stop that med.

Enbrel is helping quite a bit just not enough. It definitely is encouraging

that I have responded much better to the newer meds. Thanks for the info.

Love,

jatw@...

[Guest guest]

I take enbrel once a week, sometimes every two weeks

zoloft 100mg

desiprimine 50mg (both for fibro pain)

PRN: (As Needed)

darvocet

cyclobenzaprine (Flexeril)

Bentyl for IBS and Imodium

Nature's code multivitamin

green tea

vitex and false unicorn root (fertility meds)

[Guest guest]

Dear ,

Thanks for the info. I have a few questions if you don't mind. How well

does the Flexeril work for the Fibro? Is this med a muscle relaxer? Does

the Enbrel work as well for you at a lower dose than what is usually

prescribed?

Have A Wonderful Day!

Love,

jatw@...