New to Group

January 6, 2006

Hi welcome to the group

I have had both knees replaced and it all went well.It has made a big

difference to my walking.

Joyce from the UK

Sherrie <scorn720@...> wrote:

Hi my name is Sherrie and live in Oklahoma I have had RA for around 14

years I am looking for a group to were i can be a part of to chat and

meet other people in the same fix I am on remicade and imuran

plaquenil. prednisone and mobic and oxycontin for pain right now i am

looding for a knee replacement in 2 weeks has anyone had it done and

if so how did it go

Sherrie

January 8, 2006

In a message dated 1/8/2006 9:31:08 PM Eastern Standard Time, mafiakitn@... writes:

Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00

in Grand Rapids. We're having a head scan.

Hi. I am new too. So I dont know much but been doing alot of research. Here is a site that might help you. CAPPS Plagio Information. It looks like to me your son has Positional Brachycephaly a type of plagio. I hope this helps. There is insurance help on there too. you ever need to talk add all_natural25 to messenger I usually have it on all the time..

A beary special New Year

(»o«)

('o"o')

**..(_©_)..**

dwh./_\(_)/\(_)/_\.dwh

('o"o')/~~\('o"o')

(_©_)/2006\(_©_)

(_)(_)*=*=*(_)(_)

*andra*

January 8, 2006

In a message dated 1/8/2006 9:31:08 PM Eastern Standard Time, mafiakitn@... writes:

Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00

in Grand Rapids. We're having a head scan.

Hi. I am new too. So I dont know much but been doing alot of research. Here is a site that might help you. CAPPS Plagio Information. It looks like to me your son has Positional Brachycephaly a type of plagio. I hope this helps. There is insurance help on there too. you ever need to talk add all_natural25 to messenger I usually have it on all the time..

A beary special New Year

(»o«)

('o"o')

**..(_©_)..**

dwh./_\(_)/\(_)/_\.dwh

('o"o')/~~\('o"o')

(_©_)/2006\(_©_)

(_)(_)*=*=*(_)(_)

*andra*

January 8, 2006

In a message dated 1/8/2006 11:03:45 PM Eastern Standard Time, mafiakitn@... writes:

http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg

He is soo cute!

[¤].~©~.[¤].~©~.[¤]

Gettin' all their hugs and kisses

..-.-.....-.-.dwh.-.-.

/__'__\./__'__\./__'__\

`.___.'.`.___.'.`.___.'

~andra~

[¤].~©~.[¤].~©~.[¤]

January 8, 2006

In a message dated 1/8/2006 11:03:45 PM Eastern Standard Time, mafiakitn@... writes:

http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg

He is soo cute!

[¤].~©~.[¤].~©~.[¤]

Gettin' all their hugs and kisses

..-.-.....-.-.dwh.-.-.

/__'__\./__'__\./__'__\

`.___.'.`.___.'.`.___.'

~andra~

[¤].~©~.[¤].~©~.[¤]

January 8, 2006

Cris,

Welcome to the group!

Yes you are within your right to ask for a prescription. Is Charlie

getting a CT Scan or are they using the STAR scanner? You said he was

getting scanned tomorrow and I wasn't sure what type. We have parents

here who use MFB in Grand Rapids and I believe they have a STAR

scanner.

If you want to be armed with information on banding print up some

stuff in the files section.

You mentioned getting a prescription for a DOC Band. Cranialtech.com

has lots of great information to print up too. If you choose to get a

DOC Band you probably will be venturing to Chicago for one.

I think Charlie could definitely benefit from a band. You'll be

amazed at how well the bands can work.

Let us know how it goes tomorrow and post pictures so we can see his

cute little face too!

Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

January 8, 2006

Cris,

Welcome to the group!

Yes you are within your right to ask for a prescription. Is Charlie

getting a CT Scan or are they using the STAR scanner? You said he was

getting scanned tomorrow and I wasn't sure what type. We have parents

here who use MFB in Grand Rapids and I believe they have a STAR

scanner.

If you want to be armed with information on banding print up some

stuff in the files section.

You mentioned getting a prescription for a DOC Band. Cranialtech.com

has lots of great information to print up too. If you choose to get a

DOC Band you probably will be venturing to Chicago for one.

I think Charlie could definitely benefit from a band. You'll be

amazed at how well the bands can work.

Let us know how it goes tomorrow and post pictures so we can see his

cute little face too!

Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

January 8, 2006

Hi !

Thanks for your quick and detailed reply.

I think it is a CT Scan, as it is an initial scan - a

first appointment with the neurologist. I am not sure

what kind of scan, to tell you the truth, so I guess

it could be a STAR scan. (laugh)

We are going to Freebed Hospital. Is that MFB?

I will print up the info and I will also look at the

CT site for additional information. I just want to be

able to ask directed and intelligent questions in

order to facilitate getting Charlie banded. He is

already 6.5 months, and I know time is running out.

Here's his lil face:

http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg

I'll let you know how it goes tomorrow!

Cris (in Michigan)

--- rmanias <manias@...> wrote:

> Cris,

> Welcome to the group!

> Yes you are within your right to ask for a

> prescription. Is Charlie

> getting a CT Scan or are they using the STAR

> scanner? You said he was

> getting scanned tomorrow and I wasn't sure what

> type. We have parents

> here who use MFB in Grand Rapids and I believe they

> have a STAR

> scanner.

> If you want to be armed with information on banding

> print up some

> stuff in the files section.

> You mentioned getting a prescription for a DOC Band.

> Cranialtech.com

> has lots of great information to print up too. If

> you choose to get a

> DOC Band you probably will be venturing to Chicago

> for one.

> I think Charlie could definitely benefit from a

> band. You'll be

> amazed at how well the bands can work.

> Let us know how it goes tomorrow and post pictures

> so we can see his

> cute little face too!

>

> Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

January 8, 2006

Hi !

Thanks for your quick and detailed reply.

I think it is a CT Scan, as it is an initial scan - a

first appointment with the neurologist. I am not sure

what kind of scan, to tell you the truth, so I guess

it could be a STAR scan. (laugh)

We are going to Freebed Hospital. Is that MFB?

I will print up the info and I will also look at the

CT site for additional information. I just want to be

able to ask directed and intelligent questions in

order to facilitate getting Charlie banded. He is

already 6.5 months, and I know time is running out.

Here's his lil face:

http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg

I'll let you know how it goes tomorrow!

Cris (in Michigan)

--- rmanias <manias@...> wrote:

> Cris,

> Welcome to the group!

> Yes you are within your right to ask for a

> prescription. Is Charlie

> getting a CT Scan or are they using the STAR

> scanner? You said he was

> getting scanned tomorrow and I wasn't sure what

> type. We have parents

> here who use MFB in Grand Rapids and I believe they

> have a STAR

> scanner.

> If you want to be armed with information on banding

> print up some

> stuff in the files section.

> You mentioned getting a prescription for a DOC Band.

> Cranialtech.com

> has lots of great information to print up too. If

> you choose to get a

> DOC Band you probably will be venturing to Chicago

> for one.

> I think Charlie could definitely benefit from a

> band. You'll be

> amazed at how well the bands can work.

> Let us know how it goes tomorrow and post pictures

> so we can see his

> cute little face too!

>

> Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

January 8, 2006

Hi Cris,

Welcome to the group. It's good that he doesn't have tort. Charlie

is a big boy A lot of peds think it is only cosmetic. However,

the FDA does not consider it to be cosmetic. It is an abnormality.

There is some evidence that a flat head can cause issues later. We

have some research in the files section. The AAP recommends cranial

orthosis if flatness persists after 6 months of age.

Yes, I think you should come outright and ask the Dr for a RX. Tell

him you are very concerned about this flatness. You hve done some

research into the AAP guidelines and possible effects. Possible

long term issues are migraines, TMJ (jaw issues), eye sight, and

chronic ear infection. Chec kthe files - print some out to take

with you. It's your right to ask. If he won't write it find one

who will. Where in Michigan are you? We have quite a few members

from Michigan. Are you going to Free Bed??

na, 2 1/2 yrs, DOC Band Grad Feb 2004

Kiersten, 7 months, DOC 1/10/06, Tort

www.thefilyaws.com

>

> Hi -

>

> My son, Charlie, is 6.5 months and has a very flat

> head. I have an appointment at the neurologist

> tomorrow so that they can take a scan of his head. My

> pediatrician has said she is not concerned with his

> head, she has admitted that he has a flat head, but

> has also said it is only a cosmetic issue, not a

> developmental issue. He doesn't have any muscular

> problems turning his head (I think you call this

> tort?) and his head isn't asymmetrical. He is just

> very flat in the back.

>

> He's a big boy - 29.5 " and 21lbs 7oz. The flatness is

> positional. (He was a caesarean baby)

>

> I am concerned even though my doctor isn't. I don't

> want him to hvae a flat head as a kid or as an adult.

> Am I within my rights to out and out request that the

> neurologist write a prescription for a DOC band?

> What wording should I use when telling my neurologist

> what I want? I wanted to bite my pediatrician when

> she said " Well, yes, he is going to have a flat head,

> but there's nothing wrong with that. " DUH, doc!

>

> I know that for cosmetic treatment there is no hope

> for my insurance to cover the treatment. I don't care

> if I have to pay out of pocket for the helmet; I just

> want my son to have a beautifully shaped, round head.

>

> I have pictures of his head that I would like to post,

> but am not sure where or how to do this. SO I posted

> them in my own website.

> http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

>

> Thanks for your suggestion. Our appointment is

> tomorrow (3/9) at 3:00 in Grand Rapids. We're having

> a head scan.

>

> Thanks Everyone!

>

> Cris in Michigan

>

> P.S. Sorry if this is a duplicate post. I tried on

> the message board and it said something about needing

> approval?

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

January 8, 2006

Hi Cris,

Welcome to the group. It's good that he doesn't have tort. Charlie

is a big boy A lot of peds think it is only cosmetic. However,

the FDA does not consider it to be cosmetic. It is an abnormality.

There is some evidence that a flat head can cause issues later. We

have some research in the files section. The AAP recommends cranial

orthosis if flatness persists after 6 months of age.

Yes, I think you should come outright and ask the Dr for a RX. Tell

him you are very concerned about this flatness. You hve done some

research into the AAP guidelines and possible effects. Possible

long term issues are migraines, TMJ (jaw issues), eye sight, and

chronic ear infection. Chec kthe files - print some out to take

with you. It's your right to ask. If he won't write it find one

who will. Where in Michigan are you? We have quite a few members

from Michigan. Are you going to Free Bed??

na, 2 1/2 yrs, DOC Band Grad Feb 2004

Kiersten, 7 months, DOC 1/10/06, Tort

www.thefilyaws.com

>

> Hi -

>

> My son, Charlie, is 6.5 months and has a very flat

> head. I have an appointment at the neurologist

> tomorrow so that they can take a scan of his head. My

> pediatrician has said she is not concerned with his

> head, she has admitted that he has a flat head, but

> has also said it is only a cosmetic issue, not a

> developmental issue. He doesn't have any muscular

> problems turning his head (I think you call this

> tort?) and his head isn't asymmetrical. He is just

> very flat in the back.

>

> He's a big boy - 29.5 " and 21lbs 7oz. The flatness is

> positional. (He was a caesarean baby)

>

> I am concerned even though my doctor isn't. I don't

> want him to hvae a flat head as a kid or as an adult.

> Am I within my rights to out and out request that the

> neurologist write a prescription for a DOC band?

> What wording should I use when telling my neurologist

> what I want? I wanted to bite my pediatrician when

> she said " Well, yes, he is going to have a flat head,

> but there's nothing wrong with that. " DUH, doc!

>

> I know that for cosmetic treatment there is no hope

> for my insurance to cover the treatment. I don't care

> if I have to pay out of pocket for the helmet; I just

> want my son to have a beautifully shaped, round head.

>

> I have pictures of his head that I would like to post,

> but am not sure where or how to do this. SO I posted

> them in my own website.

> http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

>

> Thanks for your suggestion. Our appointment is

> tomorrow (3/9) at 3:00 in Grand Rapids. We're having

> a head scan.

>

> Thanks Everyone!

>

> Cris in Michigan

>

> P.S. Sorry if this is a duplicate post. I tried on

> the message board and it said something about needing

> approval?

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

January 8, 2006

Hi Cris,

Welcome to the group. It's good that he doesn't have tort. Charlie

is a big boy A lot of peds think it is only cosmetic. However,

the FDA does not consider it to be cosmetic. It is an abnormality.

There is some evidence that a flat head can cause issues later. We

have some research in the files section. The AAP recommends cranial

orthosis if flatness persists after 6 months of age.

Yes, I think you should come outright and ask the Dr for a RX. Tell

him you are very concerned about this flatness. You hve done some

research into the AAP guidelines and possible effects. Possible

long term issues are migraines, TMJ (jaw issues), eye sight, and

chronic ear infection. Chec kthe files - print some out to take

with you. It's your right to ask. If he won't write it find one

who will. Where in Michigan are you? We have quite a few members

from Michigan. Are you going to Free Bed??

na, 2 1/2 yrs, DOC Band Grad Feb 2004

Kiersten, 7 months, DOC 1/10/06, Tort

www.thefilyaws.com

>

> Hi -

>

> My son, Charlie, is 6.5 months and has a very flat

> head. I have an appointment at the neurologist

> tomorrow so that they can take a scan of his head. My

> pediatrician has said she is not concerned with his

> head, she has admitted that he has a flat head, but

> has also said it is only a cosmetic issue, not a

> developmental issue. He doesn't have any muscular

> problems turning his head (I think you call this

> tort?) and his head isn't asymmetrical. He is just

> very flat in the back.

>

> He's a big boy - 29.5 " and 21lbs 7oz. The flatness is

> positional. (He was a caesarean baby)

>

> I am concerned even though my doctor isn't. I don't

> want him to hvae a flat head as a kid or as an adult.

> Am I within my rights to out and out request that the

> neurologist write a prescription for a DOC band?

> What wording should I use when telling my neurologist

> what I want? I wanted to bite my pediatrician when

> she said " Well, yes, he is going to have a flat head,

> but there's nothing wrong with that. " DUH, doc!

>

> I know that for cosmetic treatment there is no hope

> for my insurance to cover the treatment. I don't care

> if I have to pay out of pocket for the helmet; I just

> want my son to have a beautifully shaped, round head.

>

> I have pictures of his head that I would like to post,

> but am not sure where or how to do this. SO I posted

> them in my own website.

> http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

>

> Thanks for your suggestion. Our appointment is

> tomorrow (3/9) at 3:00 in Grand Rapids. We're having

> a head scan.

>

> Thanks Everyone!

>

> Cris in Michigan

>

> P.S. Sorry if this is a duplicate post. I tried on

> the message board and it said something about needing

> approval?

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

January 8, 2006

Hi Cris,

Welcome to the group. It's good that he doesn't have tort. Charlie

is a big boy A lot of peds think it is only cosmetic. However,

the FDA does not consider it to be cosmetic. It is an abnormality.

There is some evidence that a flat head can cause issues later. We

have some research in the files section. The AAP recommends cranial

orthosis if flatness persists after 6 months of age.

Yes, I think you should come outright and ask the Dr for a RX. Tell

him you are very concerned about this flatness. You hve done some

research into the AAP guidelines and possible effects. Possible

long term issues are migraines, TMJ (jaw issues), eye sight, and

chronic ear infection. Chec kthe files - print some out to take

with you. It's your right to ask. If he won't write it find one

who will. Where in Michigan are you? We have quite a few members

from Michigan. Are you going to Free Bed??

na, 2 1/2 yrs, DOC Band Grad Feb 2004

Kiersten, 7 months, DOC 1/10/06, Tort

www.thefilyaws.com

>

> Hi -

>

> My son, Charlie, is 6.5 months and has a very flat

> head. I have an appointment at the neurologist

> tomorrow so that they can take a scan of his head. My

> pediatrician has said she is not concerned with his

> head, she has admitted that he has a flat head, but

> has also said it is only a cosmetic issue, not a

> developmental issue. He doesn't have any muscular

> problems turning his head (I think you call this

> tort?) and his head isn't asymmetrical. He is just

> very flat in the back.

>

> He's a big boy - 29.5 " and 21lbs 7oz. The flatness is

> positional. (He was a caesarean baby)

>

> I am concerned even though my doctor isn't. I don't

> want him to hvae a flat head as a kid or as an adult.

> Am I within my rights to out and out request that the

> neurologist write a prescription for a DOC band?

> What wording should I use when telling my neurologist

> what I want? I wanted to bite my pediatrician when

> she said " Well, yes, he is going to have a flat head,

> but there's nothing wrong with that. " DUH, doc!

>

> I know that for cosmetic treatment there is no hope

> for my insurance to cover the treatment. I don't care

> if I have to pay out of pocket for the helmet; I just

> want my son to have a beautifully shaped, round head.

>

> I have pictures of his head that I would like to post,

> but am not sure where or how to do this. SO I posted

> them in my own website.

> http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

>

> Thanks for your suggestion. Our appointment is

> tomorrow (3/9) at 3:00 in Grand Rapids. We're having

> a head scan.

>

> Thanks Everyone!

>

> Cris in Michigan

>

> P.S. Sorry if this is a duplicate post. I tried on

> the message board and it said something about needing

> approval?

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

January 8, 2006

Hi Cris,

Welcome to the group! I just want to second everything and

have already told you. It's totally your decision wether or not

your band your son. If he were my son, I'd band him. Good luck at

your apptointment, let us know how it goes. Don't be surprised if the

neuro has the same attitude as your pediatrician.

>

> Hi -

>

> My son, Charlie, is 6.5 months and has a very flat head. I have an

> appointment at the neurologist tomorrow so that they can take a scan

> of his head. My pediatrician has said she is not concerned with his

> head, she has admitted that he has a flat head, but has also said it

> is only a cosmetic issue, not a developmental issue. He doesn't have

> any muscular problems turning his head (I think you call this tort?)

> and his head isn't asymmetrical. He is just very flat in the back.

>

> He's a big boy - 29.5 " and 21lbs 7oz. The flatness is positional.

> (He was a caesarean baby)

>

> I am concerned even though my doctor isn't. I don't want him to hvae

> a flat head as a kid or as an adult. Am I within my rights to out and

> out request that the neurologist write a prescription for a DOC band?

> What wording should I use when telling my neurologist what I want?

> I wanted to bite my pediatrician when she said " Well, yes, he is

> going to have a flat head, but there's nothing wrong with that. " DUH,

> doc!

>

> I know that for cosmetic treatment there is no hope for my insurance

> to cover the treatment. I don't care if I have to pay out of pocket

> for the helmet; I just want my son to have a beautifully shaped, round

> head.

>

> I have pictures of his head that I would like to post, but am not sure

> where or how to do this. SO I posted them in my own website.

> http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

>

> Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00

> in Grand Rapids. We're having a head scan.

>

> Thanks Everyone!

>

> Cris in Michigan

>

January 8, 2006

Hi Cris,

Welcome to the group! I just want to second everything and

have already told you. It's totally your decision wether or not

your band your son. If he were my son, I'd band him. Good luck at

your apptointment, let us know how it goes. Don't be surprised if the

neuro has the same attitude as your pediatrician.

>

> Hi -

>

> My son, Charlie, is 6.5 months and has a very flat head. I have an

> appointment at the neurologist tomorrow so that they can take a scan

> of his head. My pediatrician has said she is not concerned with his

> head, she has admitted that he has a flat head, but has also said it

> is only a cosmetic issue, not a developmental issue. He doesn't have

> any muscular problems turning his head (I think you call this tort?)

> and his head isn't asymmetrical. He is just very flat in the back.

>

> He's a big boy - 29.5 " and 21lbs 7oz. The flatness is positional.

> (He was a caesarean baby)

>

> I am concerned even though my doctor isn't. I don't want him to hvae

> a flat head as a kid or as an adult. Am I within my rights to out and

> out request that the neurologist write a prescription for a DOC band?

> What wording should I use when telling my neurologist what I want?

> I wanted to bite my pediatrician when she said " Well, yes, he is

> going to have a flat head, but there's nothing wrong with that. " DUH,

> doc!

>

> I know that for cosmetic treatment there is no hope for my insurance

> to cover the treatment. I don't care if I have to pay out of pocket

> for the helmet; I just want my son to have a beautifully shaped, round

> head.

>

> I have pictures of his head that I would like to post, but am not sure

> where or how to do this. SO I posted them in my own website.

> http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

>

> Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00

> in Grand Rapids. We're having a head scan.

>

> Thanks Everyone!

>

> Cris in Michigan

>

January 9, 2006

,

Could you point me toward the AAP guidelines recommending orthosis after 6 mos.

? It

would be useful in the Insurance battles to come . . .

Thanks,

andy

> >

> > Hi -

> >

> > My son, Charlie, is 6.5 months and has a very flat

> > head. I have an appointment at the neurologist

> > tomorrow so that they can take a scan of his head. My

> > pediatrician has said she is not concerned with his

> > head, she has admitted that he has a flat head, but

> > has also said it is only a cosmetic issue, not a

> > developmental issue. He doesn't have any muscular

> > problems turning his head (I think you call this

> > tort?) and his head isn't asymmetrical. He is just

> > very flat in the back.

> >

> > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is

> > positional. (He was a caesarean baby)

> >

> > I am concerned even though my doctor isn't. I don't

> > want him to hvae a flat head as a kid or as an adult.

> > Am I within my rights to out and out request that the

> > neurologist write a prescription for a DOC band?

> > What wording should I use when telling my neurologist

> > what I want? I wanted to bite my pediatrician when

> > she said " Well, yes, he is going to have a flat head,

> > but there's nothing wrong with that. " DUH, doc!

> >

> > I know that for cosmetic treatment there is no hope

> > for my insurance to cover the treatment. I don't care

> > if I have to pay out of pocket for the helmet; I just

> > want my son to have a beautifully shaped, round head.

> >

> > I have pictures of his head that I would like to post,

> > but am not sure where or how to do this. SO I posted

> > them in my own website.

> > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

> >

> > Thanks for your suggestion. Our appointment is

> > tomorrow (3/9) at 3:00 in Grand Rapids. We're having

> > a head scan.

> >

> > Thanks Everyone!

> >

> > Cris in Michigan

> >

> > P.S. Sorry if this is a duplicate post. I tried on

> > the message board and it said something about needing

> > approval?

> >

> > __________________________________________

> > DSL – Something to write home about.

> > Just $16.99/mo. or less.

> > dsl.

> >

>

January 9, 2006

,

Could you point me toward the AAP guidelines recommending orthosis after 6 mos.

? It

would be useful in the Insurance battles to come . . .

Thanks,

andy

> >

> > Hi -

> >

> > My son, Charlie, is 6.5 months and has a very flat

> > head. I have an appointment at the neurologist

> > tomorrow so that they can take a scan of his head. My

> > pediatrician has said she is not concerned with his

> > head, she has admitted that he has a flat head, but

> > has also said it is only a cosmetic issue, not a

> > developmental issue. He doesn't have any muscular

> > problems turning his head (I think you call this

> > tort?) and his head isn't asymmetrical. He is just

> > very flat in the back.

> >

> > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is

> > positional. (He was a caesarean baby)

> >

> > I am concerned even though my doctor isn't. I don't

> > want him to hvae a flat head as a kid or as an adult.

> > Am I within my rights to out and out request that the

> > neurologist write a prescription for a DOC band?

> > What wording should I use when telling my neurologist

> > what I want? I wanted to bite my pediatrician when

> > she said " Well, yes, he is going to have a flat head,

> > but there's nothing wrong with that. " DUH, doc!

> >

> > I know that for cosmetic treatment there is no hope

> > for my insurance to cover the treatment. I don't care

> > if I have to pay out of pocket for the helmet; I just

> > want my son to have a beautifully shaped, round head.

> >

> > I have pictures of his head that I would like to post,

> > but am not sure where or how to do this. SO I posted

> > them in my own website.

> > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

> >

> > Thanks for your suggestion. Our appointment is

> > tomorrow (3/9) at 3:00 in Grand Rapids. We're having

> > a head scan.

> >

> > Thanks Everyone!

> >

> > Cris in Michigan

> >

> > P.S. Sorry if this is a duplicate post. I tried on

> > the message board and it said something about needing

> > approval?

> >

> > __________________________________________

> > DSL – Something to write home about.

> > Just $16.99/mo. or less.

> > dsl.

> >

>

January 9, 2006

Cris,

Welcome,I also second what told you and then some. I hope

things went well today. Charlie looks like he has brachy to me and

could benefit from band treatment. The thing I want you to understand

is that this is just not cosmetic. There are associated risks that go

along with plagio such as developemental delays, ear infections, TMJ,

vision problems, feeding issues, as well as self esteem issues later

in life.I am sorry your ped. is uninformed but that is not uncommon

unfortunately.I hope that the scan today will help get you on your

way to getting Charlie the help he needs and you want. Let me know

how it went.

CAROLG

--- In Plagiocephaly , " mafiakitn " <mafiakitn@y...>

wrote:

>

> Hi -

>

> My son, Charlie, is 6.5 months and has a very flat head. I have an

> appointment at the neurologist tomorrow so that they can take a scan

> of his head. My pediatrician has said she is not concerned with his

> head, she has admitted that he has a flat head, but has also said it

> is only a cosmetic issue, not a developmental issue. He doesn't

have

> any muscular problems turning his head (I think you call this tort?)

> and his head isn't asymmetrical. He is just very flat in the

back.

>

> He's a big boy - 29.5 " and 21lbs 7oz. The flatness is positional.

> (He was a caesarean baby)

>

> I am concerned even though my doctor isn't. I don't want him to

hvae

> a flat head as a kid or as an adult. Am I within my rights to out

and

> out request that the neurologist write a prescription for a DOC

band?

> What wording should I use when telling my neurologist what I

want?

> I wanted to bite my pediatrician when she said " Well, yes, he is

> going to have a flat head, but there's nothing wrong with that. "

DUH,

> doc!

>

> I know that for cosmetic treatment there is no hope for my insurance

> to cover the treatment. I don't care if I have to pay out of pocket

> for the helmet; I just want my son to have a beautifully shaped,

round

> head.

>

> I have pictures of his head that I would like to post, but am not

sure

> where or how to do this. SO I posted them in my own website.

> http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg

>

> Thanks for your suggestion. Our appointment is tomorrow (3/9) at

3:00

> in Grand Rapids. We're having a head scan.

>

> Thanks Everyone!

>

> Cris in Michigan

>

January 9, 2006