New to Group

February 24, 2008

Autism is where the money is these days, with lots of research being

done, treatments developed, etc. Some of us with apraxic children have

found those treatments work for our kids, too. Others have not found

success going that route or are not interested in that route. Since

biomedical intervention can be complicated, there are a lot of posts on

those topics. If that's not your thing, just ignore those threads.

And if you don't see answers to our questions, please post! If you are

struggling with an issue, there are probably a hundred other people

here with the same problem, and probably hundreds more who have been

there and have great advice.

For my family, I have one child with global dyspraxia (apraxia) and

some auditory processing issues. When it's globabl, it affects your

other motor skills (fine, gross). His speech is great, but he has

lingering issues in the other areas. In fact, once we improved his

speech, we uncovered some of the other stuff that had been hiding in

the silence. All the issues are intertwined. And now we are starting

over with our 19 month old baby, who is showing all the same signs!

Back to square one, just like you!

What are some of the things you would like to learn about apraxia?

in NJ

>

> Hello,

>

> I joined this group because I am looking for information on apraxia.

I

> am a bit confused about all the specific autism and diet talk I've

seen

> recently. Apraxia does occur in children with a variety of other

> concerns, but some of this conversation doesn't seem to be about

> communication skills at all. Is this the norm for this group?

>

> Thanks,

> Deb

>

February 24, 2008

Welcome Deb - good advise already above - yes, can be overwhelming but

keep in mind, most of us have been in your shoes. Yes, this has become

a very meaty, savvy group of recovery worriors. That is a good thing,

really. While the late taker book is a start - I also like to point

newbies to Dr. Bock's book The New Childhood Epidemics - easy to read

and well worth your time - a broader perspective and will make all of

our chatter make sense. So the topics think today don't apply, just

may be of interest afterall.

>

> Hello,

>

> I joined this group because I am looking for information on apraxia.

I

> am a bit confused about all the specific autism and diet talk I've

seen

> recently. Apraxia does occur in children with a variety of other

> concerns, but some of this conversation doesn't seem to be about

> communication skills at all. Is this the norm for this group?

>

> Thanks,

> Deb

>

February 24, 2008

Don't get to upset or hung up about the Asperger's thing. I've read most

acedamia/Nasa/Doctors/Professors, many are in that Asperger's area. That's

ok! Many aren't social, poor eye contact, highly intelligent, that's ok!

There wasn't always someone diagnosing all these behaviors and giving them a

name/label.

Diets..no dairy/wheat, no artificial colors, preservatives, artificial

sweeteners, Feingold. There are lot of things to try and see if diet makes

any difference. I'd say to give the age of your oldest daughter for better

advice.

Tammy

new to group

Hi,

My name is and I have a husband who I believe has Asperger's

Syndrome and 3 daughters, one of which has dyslexia. Neither one has

been diagnosed (my husband is in denial), but I'm very very sure of

it. My oldest daughter is gifted and very extreme with her emotions.

I've always thought that diet might play a role in their behaviors,

but have never been sure exactly what to change. I was referred to

this group and I'm hoping someone can give me some helpful

suggestions. Are their supplements that can be taken as well?

Thanks,

March 4, 2008

Hi Rebel,

It bareas mentioning to your Rhu.It may just be some type of exzema.

Always best to check however.

Heidi M

On Tue, Mar 4, 2008 at 12:15 AM, Rebel Abadie <rebel_20012000@...>

wrote:

> Hi, I am new here. I was diag. fibromyalgia about 6 yrs ago and have

> osteo arthritis etc. I have a lupus ques. Some people have a " butterfly

> rash " on face. Should I have a test done....I have a rash,not horribly

> red but the pattern and it won't go away for months now. Not itchy but

> dry and persistent. I have aches and tenderness but that is part of

> fibromyalgia. I don't want to overreact but the rash is ugly and

> annoying and I was just wondering if it could be a symptom. Any advice

> appreciated. I look forward to chatting with all. Rebel

>

March 5, 2008

Lumps, bumps, and nodules, oh yeah! Well, maybe not.

I get nodules all sorts of places. For a while when I was first on

Enbrel, most of the nodules went away. I started Enbrel back in June

07. In the past couple of months I've been getting nodules back on my

finger joints. As far as surgery goes, depending on what the nodules

are part of they can, and will, grow back. If the nodules are a cyst

on the tendon sheath, or synovium, expect them to grow back

eventually. I also have two different types near my elbows, one on

the synovium and the other is on the lining of the ulna bone.

Sometimes nodules can be just fatty nodules under the skin.

If his nodules are big (bigger than a quarter), or painful (mine

usually don't hurt unless I bump into something, or lean on my

elbows), or and this is important, if they are impeding his range of

motion. You have to weight the pain of surgery, the likely

possibility of them growing back, vs. the good it would do him

physically and mentally if they were not there. I can see his doctors

point, if the nodules are on his tendons or ligaments, scraping them

off might damage the tissues, and that would not be good.

Welcome to the group, tell your husband he can post too, there are

guys on the list.

March 6, 2008

I would seek the opinion of either a rheumatologist or dermatologist, Rebel.

There are many reasons for facial rashes.

Not an MD

> [ ] New to group

>

> Hi, I am new here. I was diag. fibromyalgia about 6 yrs ago and have

> osteo arthritis etc. I have a lupus ques. Some people have a " butterfly

> rash " on face. Should I have a test done....I have a rash,not horribly

> red but the pattern and it won't go away for months now. Not itchy but

> dry and persistent. I have aches and tenderness but that is part of

> fibromyalgia. I don't want to overreact but the rash is ugly and

> annoying and I was just wondering if it could be a symptom. Any advice

> appreciated. I look forward to chatting with all. Rebel

March 17, 2008

> Hi Everyone,

>

> This is my first post to this group and I wanted to introduce myself.

> I'm an RN, but was forced to go on disability.

*************************************************

A warm welcome, Jan! I am also a Jan and an RN, although retired. It

sounds as though your plan regarding starting out at a low dose is

quite sensible. I wish you the very best - a halt to the progression

of your immune issues and even improvement. Although certainly no

guarantee that you will be so fortunate, I hope it will be encouraging

to you to know that neither my husband nor I suffered the sleep issues

that some do when we first started taking LDN. Please write again.

Be well,

Jan B.

March 17, 2008

--,

I'm in southern California and all the Dr.s here I've contacted who

are willing to Rx LDN, want $400.00 for the initial consult. Do any

of you know of a Dr. who doesn't charge this kind of money? I asked

a similar question on the other LDN group and the Dr. they

recommended was in this price gouging range too.

I've also received some good advice from a list member on the

ldn4cancer group.

Any advice?

Also, are benzodiazepam drugs like Xanax contraindicated for use with

LDN? If so, what other alternative medications might help with

sleep? Melatonin gave me freaky dreams. Could Ambien be used for

sleep?

Thanks,

Jan

this question on the other LDN - In

low dose naltrexone , spexl@... wrote:

>

> HI

> MAYBE YOU CAN GET A PERSCRIPTION FROM HERE. I HAVE A LIST OF

DR.'S AND

> PERSCRIPTION PLACES FOF WHERE TO GET LDN FILLED, IF YOU ARE

> INTERESTED.

>

> DENISE

>

March 17, 2008

Hi Jan,

I also have interstitial cystitis and have IBD and systemic lupus as

well (amongst other things). I was fortunate and able to get the IBD

and IC under control with diet and supplements, but started taking LDN

for lupus. I've only been on it a week, but did notice an increase in

IBD symptoms the first 2 days (which was odd considering it hadn't

been a problem in a while), but not nearly to the extent I had seen

before. Just some cramping and increase in volume. That seems better

again and I did decrease my calcium/magnesium/zinc/D supplement and

will work on dosing as I adjust to the LDN.

I started out at a little less than 2 mg because I got the 4.5 mg

capsules and it has been difficult to split up with arthritis (I'm

also drug sensitive). I can say that in the first 24 hours I noticed

a vast improvement in energy and mood. I had to miss 1 day because I

had taken Immodium due to more symptoms and did not know the two

should not be mixed. The next day I immediately reverted back to zero

energy and a depressed state from being ill so quickly. I notice that

so far my energy and mood is greatly improved, but other symptoms

remain. I'm very optimistic after only a week though and feeling

better already. Interstitial Cystitis continues to be in remission

thus far. I did have my first night of bad dreams and have had sleep

disturbances since the beginning, but still feel the improvement is

worth it thus far. I'm hoping I'll continue to adjust. The first

couple of days I felt wired, and now I feel better energy wise than I

have in almost a year.

Take care,

Cami

March 18, 2008

> >

> > HI

> > MAYBE YOU CAN GET A PERSCRIPTION FROM HERE. I HAVE A LIST OF

> DR.'S AND

> > PERSCRIPTION PLACES FOF WHERE TO GET LDN FILLED, IF YOU ARE

> > INTERESTED.

> >

> > DENISE

> >

>

I take Stilnox before bed (sleep pill) - It is not blacklisted in the

list of non-compatible drugs for LDN - It is a nonbenzodiazepine

hypnotic http://en.wikipedia.org/wiki/Stilnox and personally it help

me since a long time; well before I even heard of LDN (~2 years now)

Hope this help.

March 18, 2008

Hi Reba & welcome here. You are in the right place. I too have a 16 yr old Dx'd with Asperger/Bipolar. He also thinks he can do any thing he thinks about. When it doesn't happen is when he meltsdown. Take care,BettyReba Singleton <kajnlady1@...> wrote: Hi, I'd like to introduce myself. I'm very happy to have found your group and hope it will give me some insight on AS.My 15yo old son was just recently diagnosed AS. He has been severe ADHD all his life

but I always knew it was more than that. I've had him extensively tested and all they could come up with was a generic "central nervous system disorder". Now that he's older, he is showing more traits of AS. I'm not upset about it. In fact, I'm ecstatic that I can finally put into enough of a box that I can analyse and understand. But more than that, I feel like I might finally be able to get him the help that he needs to get through the rest of his life.He has always done the most OUTRAGEOUS things. Things that were totally age inappropriate. He's never had any cause and effect. He makes up his mind to do something and he just does it without ever thinking through the consequences.He's been in 504 and is in resource classes since 1st grade, for which I fought long and hard for (1st grade was actually his 3rd year of school). He's bored in resource classes because he's smarter than the rest of the kids but he

can't handle the stress and the ridicule in the regular classes.He's VERY smart and he's obsessed with everything Japanese and everything computer. I swear if I hear one more time that he wants to live there, I think I'll send him. lol just kidding.Well, that's my story. Thanks for letting me get it all (well some of it) out.Take care, Betty

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March 18, 2008

Hi Jan,

I'm fairly new to group. I'm an RN. Went out on disability about 3

yrs. ago d/t MS. I started on LDN 3 mg. about 3 wks. ago after reading

everything I could find. I just started on the DLPA this wk.

I had some difficulty sleeping the 1st wk. so took Benadryl. I also

have Narcolepsy so I usually sleep pretty well (not the right kind of

sleep but not much to help that). I still wake up at night but can

fall back to sleep. I haven't had any bizarre dreams, but have had dreams.

I also have Lymphocytic Colitis (was diagnosed as IBD until a biopsy

was done) and that seems to be better since the LDN.

I too have Hypothyroidism (no Hashimotos'). They say if you have one

autoimmune disease you usually have more.

Make sure you follow the recommended BBD, etc.

Good luck.

Betty

March 18, 2008

Jan,

My LLMD prescribed ldn for me, so it just cost me my reg. office

visit fee.

I take Ambien CR and since starting the ldn it seems to be working

better. I am new to ldn though, so can't give any advice. Also, I

can't take Ambien more than 2-3 nights consecutively. Melatonin

didn't help me until I tried the sublingual and then I had to go down

to a lesser mg (can't recall what it was).

from another jan

> >

> > HI

> > MAYBE YOU CAN GET A PERSCRIPTION FROM HERE. I HAVE A LIST OF

> DR.'S AND

> > PERSCRIPTION PLACES FOF WHERE TO GET LDN FILLED, IF YOU ARE

> > INTERESTED.

> >

> > DENISE

> >

>

March 20, 2008

I am a VERY slow learner, but one thing that has helped our son a great deal lately (he is 20, but is more like a 14 year old developmentally) is structure. He's not going to college right now, due to a severe depression that caused him to drop out after his freshman year. He wasn't doing anything around the house, either. We'd had enough of that. We made a list of things that he had to accomplish before he was allowed to turn on the computer for the day. It includes take a shower (with soap), go for a walk, empty the dishwasher, another chore, shave, and go to the store every other day and buy a couple of things that I need. Only after I have checked his list is he allowed to go on the computer. I don't know how much time your kids spend on the computer, but you could remove the power cords to the computers while the kids are at school and not give them back until they have completed what they need to do. I don't know what you do about television. Can you remove the cable temporarily? I don't know. This is not a huge amount of time off the computer at our house, but it has reduced the amount of nagging by about a thousand percent.LizOn Mar 20, 2008, at 10:54 AM, riverajj1 wrote:Hello I'm new to the group! I have 4 boys which two of them have been diagnose with AS. One is 10yo and the other is 5yo, our world has been turned upside down! Zach who is 10 is the worst with major meltdowns and outbursts! They are so bad to the point where he bangs his head and chews his shirt. Jakob is 5yo, we found out he had AS at 18mo when he was infected with a septic hip from a vaccination shot! We spent months with hospital trips, doctor trips, finally the last trip to Children's Hospital in Washington DC, which they rushed him in for emergency surgery. Days and months after this Jakob started showing signs of having AS like his older brother. During one of our many trips to the Kluge Center in Charlottesville VA, we took Jakob and found out he had AS. Now we are in a big battle with the school to get an IEP for Jakob since his IQ was tested to be 85. He has the meltdown and outbursts, but it looks like the school is giving us problems.Anyway just found this forum looking for answers with the outbursts, both refusing to shower or bathe, brush their teeth…It just seems to be a constant battle with everyday activities. Simple directions get ignored, cleaning up after they play, and simply doing last minute tasks to help around the house. Both Jakob and Zach seem to hate each other, always fighting. Anyone with ideas and suggestions would help my wife and I out tremendously!!

March 21, 2008

First, I would take ADHD classes, like 1-2-3- Magic (also a book and probably videos, CD's, etc)------and learn how to treat these kids like that----whether ADHD a component of their aspies or NOT, these methods can and do work.

Set rules and boundaries (make sure they 'get' them)-----------and have non-negotiables-------breaking of property, cursing, hitting, kicking, name calling, etc., are NON-NEGOTIABLES.

Mean what you say, say what you mean-------if you say, you don't go to your room and place your body inside your room by the count of 3, I am __________________(taking away your movies for rest of day------make it short, concrete, and specific!!!!---including whole body in room-otherwise, DOORWAY is their room----and there you go in another AS battle!!!!)------- then, do it!!!! That is the most important part..............these kids (like all) want to know you are going to be consistent; my son (6 with AS, too) HATES it that my husband is wishy-washy---------he and I get along better because he knows I mean what I say------------my husband tries, but I have become the strong one of the two of us (thank GOODNESS---I am the one home all the time)---------but, it is hard.

Then, be on the same page-----if you can make yourselves as a couple be the same strict, consistent, etc., that is the best------not sure humanly possible!!! Then, co-parent at all times. I suggest filling out FMLA paperwork at home, and if a huge, long tantrum ocurring, you leave and come home to help if necessary, especially if destructive, etc. But, when BOTH HOME, ALWAYS CO-PARENT--------one in charge, when you hear frustration, YOU take over, back and forth, switching as needed-----------kids won't mind this but you need to both make sure calm, cool, appropriate, quiet------------if you say anything at all, say, no more than once every 3-5 minutes----------"No matter what you say or do, I am always going to love you. Because of that, I am going to be here, keeping you safe until you calm down." From there, do NOT engage...............you MUST be there at all times for the child, other child's, and property safety--------------do not stare (they hate that)--------do NOT leave (unless relieved)---------------so not restrain, unless you must, then do that until the meltdown is over------hold in lap (smaller child), ensuring no way to bite you, wrap legs on them over their's (I am sure there are methods on GOOGLE if you do it)------------

Then, never give up-----------these kids want to know you can hang in there when they can't------------they are NOT wanting to be like this, and want to know you can control THEM when they are out of control...............that is why quiet, stable, is the top priority.

Ruthie Dolezal

From: riverajj1@...Date: Thu, 20 Mar 2008 14:54:47 +0000Subject: ( ) New to group

Hello I'm new to the group! I have 4 boys which two of them have been diagnose with AS. One is 10yo and the other is 5yo, our world has been turned upside down! Zach who is 10 is the worst with major meltdowns and outbursts! They are so bad to the point where he bangs his head and chews his shirt. Jakob is 5yo, we found out he had AS at 18mo when he was infected with a septic hip from a vaccination shot! We spent months with hospital trips, doctor trips, finally the last trip to Children's Hospital in Washington DC, which they rushed him in for emergency surgery. Days and months after this Jakob started showing signs of having AS like his older brother. During one of our many trips to the Kluge Center in Charlottesville VA, we took Jakob and found out he had AS. Now we are in a big battle with the school to get an IEP for Jakob since his IQ was tested to be 85. He has the meltdown and outbursts, but it looks like the school is giving us problems.Anyway just found this forum looking for answers with the outbursts, both refusing to shower or bathe, brush their teeth…It just seems to be a constant battle with everyday activities. Simple directions get ignored, cleaning up after they play, and simply doing last minute tasks to help around the house. Both Jakob and Zach seem to hate each other, always fighting. Anyone with ideas and suggestions would help my wife and I out tremendously!!

March 26, 2008

I did repo for 4 months and just said to myself if my son's head doesn't look the way I would like by 6.5 months, I am going to take him to be evaluated at cranial technologies and then send the results to the pediatrician and see what they have to say. The consult is free and gives you an idea of how bad it really is. I did see results with the repo but not as much as I would have liked so after my consult, I decided to band and my pediatrician wrote the script. I'm so glad I did because just after a week and a half in the band I already see more results than I did while repo. I say set a time limit on repo and reevaluate what you want to do. If you are happy, great, if not, go with your gut on it. Sybilmelissakyleclark <melissakyleclark@...> wrote: HelloI am new to the group and have a 5 month old twin son who is being recommended for banding. his situation is what they are calling moderate and we saw great results in the first month of repositioning, but he is over 17 lbs and able to wiggle out of all positioners. I am consulting our pediatrician for her opinion, but was hoping anyone else could give me any support on how they decided to band or not to band given the severity of their child's case. I am torn because I have seen improvement on it's own and he is now spending much less time on the "wrong" side of his head, but still does manage to do so while we

sleep. I wake to reposition him, but he is still preferring one side some of the time, but doing much better with staying on the side he should be on. thanks in advance for any support as this seems to be a big decision for us, although we are blessed with very healthy boys and know this is "minor" in the world of childhood problems.

Never miss a thing. Make your homepage.

March 26, 2008

I second what Sybil says, and will just add that I actually waited a

whole year (from the time we were given the " he doesn't need a

helmet " diagnosis) before banding my son, and there was very little

natural correction in that time frame. Maybe it had to do with the

severity (he has high moderate plagio), and possibly milder cases

could self-correct better than his did. One pediatrician told me

that it would round out by the time he was 3, but if I waited until

then, it would have been too late to band. So I just had to follow

my gut and go with what I felt was the best thing for my son, and

I'm so glad I did. You're right, it is a big decision, and it's

tough to think about putting your son through the banding process,

but it's so much harder on us as parents than it is on them. And

honestly, the toughest part is making the decision to do it (or

not). It gets a lot easier after that.

Good luck with your decision!

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

> Hello

> I am new to the group and have a 5 month old twin son who is being

> recommended for banding. his situation is what they are calling

> moderate and we saw great results in the first month of

repositioning,

> but he is over 17 lbs and able to wiggle out of all positioners. I

am

> consulting our pediatrician for her opinion, but was hoping anyone

else

> could give me any support on how they decided to band or not to

band

> given the severity of their child's case. I am torn because I have

seen

> improvement on it's own and he is now spending much less time on

> the " wrong " side of his head, but still does manage to do so while

we

> sleep. I wake to reposition him, but he is still preferring one

side

> some of the time, but doing much better with staying on the side

he

> should be on. thanks in advance for any support as this seems to

be a

> big decision for us, although we are blessed with very healthy

boys and

> know this is " minor " in the world of childhood problems.

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

March 27, 2008

thanks for the reply. he started at 12mm asm. and is now 9mm. so, I guess this is moderate, but do not really know. we would make the decision to do it now so the timeframe in the band is shorter and not hitting the hot weather here in Charlotte. still deciding, but leaning toward doing it. thanks again.

Re: new to group

I second what Sybil says, and will just add that I actually waited a whole year (from the time we were given the "he doesn't need a helmet" diagnosis) before banding my son, and there was very little natural correction in that time frame. Maybe it had to do with the severity (he has high moderate plagio), and possibly milder cases could self-correct better than his did. One pediatrician told me that it would round out by the time he was 3, but if I waited until then, it would have been too late to band. So I just had to follow my gut and go with what I felt was the best thing for my son, and I'm so glad I did. You're right, it is a big decision, and it's tough to think about putting your son through the banding process, but it's so much harder on us as parents than it is on them. And honestly, the toughest part is making the decision to do it (or not). It gets a lot easier after that.Good

luck with your decision!Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)Jordan-4 > Hello> I am new to the group and have a 5 month old twin son who is being > recommended for banding. his situation is what they are calling > moderate and we saw great results in the first month of repositioning, > but he is over 17 lbs and able to wiggle out of all positioners. I am > consulting our pediatrician for her opinion, but was hoping anyone else > could give me any support on how they decided to band or not to band > given the severity of their child's case. I am torn because I have seen > improvement on it's own and he is now spending much less time on > the "wrong" side of his head, but still does manage to do so while we > sleep. I

wake to reposition him, but he is still preferring one side > some of the time, but doing much better with staying on the side he > should be on. thanks in advance for any support as this seems to be a > big decision for us, although we are blessed with very healthy boys and > know this is "minor" in the world of childhood problems.> > > > > > > ------------ --------- --------- ---> Never miss a thing. Make your homepage.>

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March 27, 2008

Hi - We took my then 4 1/2 month old to CT and she was measured at 13mm asym. This is her sixth week in the band, and she will be completely finished with it on Monday. They measured her a few weeks ago, and she was already down to 6mm asym. As I've read here before, the hardest part really is deciding to go ahead and band. She adjusted to it so quickly, and the past 6 weeks have flown by. I couldn't even see the flat spot after just 2 weeks in the band. We are SO happy with my daughter's results, so don't hesitate to go for it if you are at all concerned. At four months, she probably won't even have to wear it for long:) Mollybasemomi <sfletcherc21@...> wrote: HI, my 12 week old was dianosed with torticollis and plagio at 7 weeks, we started formal PT 2 weeks ago, and have been repositioning since the 7 week point. PT for the tort is going very well, and she does lay on her flat side much less now! Her head asymetry was measured at 12mm, they recomend helmets at 10mm, that was measured at 10 weeks, i have seen improvement since 7 week point. so even if it gets better than 10 by the time she is 4 months i will prob opt for the helmet. I was just wondering if anyone else has a child with about 12mm asym, how long it took, etc....any feedback would be great, i am struggling with

this, but i think i will get over it, although i will miss summer hats and bonnets:(darcys mom

March 27, 2008

Hello. My Daughter had 14mm of asymm at the start of her band at 7mo.

She wore her band for 11 weeks and corrected down to 4mm.

Good luck and keep us updated.

Jen

(3 1/2 yrs) Hanger Band Grad

>

> HI, my 12 week old was dianosed with torticollis and plagio at 7

> weeks, we started formal PT 2 weeks ago, and have been repositioning

> since the 7 week point. PT for the tort is going very well, and she

> does lay on her flat side much less now! Her head asymetry was

> measured at 12mm, they recomend helmets at 10mm, that was measured at

> 10 weeks, i have seen improvement since 7 week point. so even if it

> gets better than 10 by the time she is 4 months i will prob opt for

> the helmet. I was just wondering if anyone else has a child with

> about 12mm asym, how long it took, etc....any feedback would be

great,

> i am struggling with this, but i think i will get over it, although i

> will miss summer hats and bonnets:(

>

> darcys mom

>

March 27, 2008

My son is 15mm and cranial technologies said 2.5 to 3 months depending on head growth. If he grows really fast could be less and if he grows slow could be slightly more. Were hoping for some major growth spurts, of course!!!basemomi <sfletcherc21@...> wrote: HI, my 12 week old was dianosed with torticollis and plagio at 7 weeks, we started formal PT 2 weeks ago, and have been repositioning since the 7 week point. PT for the tort is going very well, and she does lay on her flat side much less

now! Her head asymetry was measured at 12mm, they recomend helmets at 10mm, that was measured at 10 weeks, i have seen improvement since 7 week point. so even if it gets better than 10 by the time she is 4 months i will prob opt for the helmet. I was just wondering if anyone else has a child with about 12mm asym, how long it took, etc....any feedback would be great, i am struggling with this, but i think i will get over it, although i will miss summer hats and bonnets:(darcys mom

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March 27, 2008

Hi Darcy's Mom! Welcome to the group. I am glad to hear the treatment

for your dd's tort is going well. I am also glad you have seen

improvement with your repo efforts. Repo can be very tough to do when

you have tort to contend with as well so congratulations. I repo'ed my

dd starting at about 3.5 months old and we got great results. Youc an

see my dd's progress pics in the photos section under Before and

After/Repositioning. Her pics are labeled " S. "

Becky, repo mod

, repo grad