Guest guest Posted November 6, 2005 Report Share Posted November 6, 2005 Hi , Sorry, I've been away for a couple of days ... My 3-year old daughter's friend had plagio and tort 3 years ago, and her mom has been a huge help to me. She is the one that recommended going to see Dr. Hall, a cranial expert here in N.J. Sophie's P.T. also recommended him, as did a local Orthotist. I really like that he will manage Sophie's progress, and if she needs banding, he'll oversee the process and check the band. He measured her and will see her again in 2 months (when she's 5 months old). I think that a lot of people go directly to the banding company, but I like the idea of having an outside expert. I don't think it's required. I think that there are 2 types of experts - neurosurgeons and plastic surgeons. Anyone??? Our pediatrician would pretty much support whatever we want to do. I asked him for the script to see the specialist and he gave it to me. He doesn't recommend banding but would support us if that's the route we decide to take. Oh, sleep positioners ... we've tried everything and she usually wiggles her way out of them in the early evening. I position her with wedges before I go to sleep and she usually stays that way until the morning. (she sleeps 12 hours per night ... i owe it all to the book babywise, all my kids slept through the night quickly). Let me know if there's anything else. - > > > > > > Hello, > > > > > > My name is and I have a 2 month old daughter, Amelia, who was > > > just diagnosed with torticollis and plagiocephaly by her > > pediatrician. > > > I am going through all sorts of emotions right now--fear, sadness, > > > guilt... and I found this group. We are on a waiting list for a PT > > > evaluation so that only leads to my frustration because I want help > > > for her now. Is there anything that I should be doing while we > > wait > > > for our eval? Will they tell me at the eval. if we should pursue a > > > helmet/band? I am just starting to learn about plagiocephaly. Any > > > information that anyone can share about this whole process would be > > > great. > > > > > > Thanks so much, > > > > > > Minnesota > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2005 Report Share Posted November 6, 2005 Hi , Sorry, I've been away for a couple of days ... My 3-year old daughter's friend had plagio and tort 3 years ago, and her mom has been a huge help to me. She is the one that recommended going to see Dr. Hall, a cranial expert here in N.J. Sophie's P.T. also recommended him, as did a local Orthotist. I really like that he will manage Sophie's progress, and if she needs banding, he'll oversee the process and check the band. He measured her and will see her again in 2 months (when she's 5 months old). I think that a lot of people go directly to the banding company, but I like the idea of having an outside expert. I don't think it's required. I think that there are 2 types of experts - neurosurgeons and plastic surgeons. Anyone??? Our pediatrician would pretty much support whatever we want to do. I asked him for the script to see the specialist and he gave it to me. He doesn't recommend banding but would support us if that's the route we decide to take. Oh, sleep positioners ... we've tried everything and she usually wiggles her way out of them in the early evening. I position her with wedges before I go to sleep and she usually stays that way until the morning. (she sleeps 12 hours per night ... i owe it all to the book babywise, all my kids slept through the night quickly). Let me know if there's anything else. - > > > > > > Hello, > > > > > > My name is and I have a 2 month old daughter, Amelia, who was > > > just diagnosed with torticollis and plagiocephaly by her > > pediatrician. > > > I am going through all sorts of emotions right now--fear, sadness, > > > guilt... and I found this group. We are on a waiting list for a PT > > > evaluation so that only leads to my frustration because I want help > > > for her now. Is there anything that I should be doing while we > > wait > > > for our eval? Will they tell me at the eval. if we should pursue a > > > helmet/band? I am just starting to learn about plagiocephaly. Any > > > information that anyone can share about this whole process would be > > > great. > > > > > > Thanks so much, > > > > > > Minnesota > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Hi WQelcome to the group. You shouldnt feel out of place in this group cos a lot of them in here have had RA like myself since they were a lot younger. I was 27 when I was dx. I am sure you will find out a lot from this group. they are all so friendly Joyce paa3171 <paa3171@...> wrote: Hi, I am a 34 yr old mother of two and a wife. I also work full timein the internatl banking industry. I was diagnosed (finally!) with RA a little over a year ago and the disease has steadily progressed. I am having a hardtime finding a support group because of my age (it seems like everyone else is older and I feel out of place). I have been out of work for approx 2 wks now because of my flare up. I seem to have a pharmacy in my medicine cabinet and i go for remicade treatments which do not seem to be helping. Is there someone I could talk to? I really need all the advice I can get in regards to coping with the disease and how I can help myself. Please don't think I am a whiner I am just very frustrated and need to find some alternative ways to help myself. Thanks, Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Hi WQelcome to the group. You shouldnt feel out of place in this group cos a lot of them in here have had RA like myself since they were a lot younger. I was 27 when I was dx. I am sure you will find out a lot from this group. they are all so friendly Joyce paa3171 <paa3171@...> wrote: Hi, I am a 34 yr old mother of two and a wife. I also work full timein the internatl banking industry. I was diagnosed (finally!) with RA a little over a year ago and the disease has steadily progressed. I am having a hardtime finding a support group because of my age (it seems like everyone else is older and I feel out of place). I have been out of work for approx 2 wks now because of my flare up. I seem to have a pharmacy in my medicine cabinet and i go for remicade treatments which do not seem to be helping. Is there someone I could talk to? I really need all the advice I can get in regards to coping with the disease and how I can help myself. Please don't think I am a whiner I am just very frustrated and need to find some alternative ways to help myself. Thanks, Ruthie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Hi welcome to the group. you will be ok on here cos there is plenty to give you help and advice joyce <jasminesgrannie@...> wrote: Hi My name is Ddenise and I'm new to the group. Any info anyone wants to pass along I will take I have Rheumatoid Arthritis,Fibromyalgia, mixed connected tissue disease, & hepatitis C which all leads to auto immiune. I filed for SS. Say a pray! My husband left me guess he coulsn't handle everything. I'm looking for new friends, education, and coping skills. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Hi welcome to the group. you will be ok on here cos there is plenty to give you help and advice joyce <jasminesgrannie@...> wrote: Hi My name is Ddenise and I'm new to the group. Any info anyone wants to pass along I will take I have Rheumatoid Arthritis,Fibromyalgia, mixed connected tissue disease, & hepatitis C which all leads to auto immiune. I filed for SS. Say a pray! My husband left me guess he coulsn't handle everything. I'm looking for new friends, education, and coping skills. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Welcome Ruthie. Although I am 51, I was diagnosed while in my 20's. I know how it feels to be diagnosed with a disease though to be an " old persons " disease. RA is not an old person's disease. Unfortunately it strikes even children. We have members that range from their 20's to their 70's so I hope you feel comfortable here. I take Enbrel and mtx which helps, but swimming helps me as much as my meds. Many find relief with yoga, meditation or tai chi. We serve whine and cheese daily, so feel free to indulge. a On Nov 10, 2005, at 9:06 AM, paa3171 wrote: > Hi, I am a 34 yr old mother of two and a wife. I also work full > timein the internatl banking industry. I was diagnosed (finally!) > with RA a little over a year ago and the disease has steadily > progressed. I am having a hardtime finding a support group because of > my age (it seems like everyone else is older and I feel out of > place). I have been out of work for approx 2 wks now because of my > flare up. I seem to have a pharmacy in my medicine cabinet and i go > for remicade treatments which do not seem to be helping. Is there > someone I could talk to? I really need all the advice I can get in > regards to coping with the disease and how I can help myself. Please > don't think I am a whiner I am just very frustrated and need to find > some alternative ways to help myself. > > Thanks, > > Ruthie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Welcome Ruthie. Although I am 51, I was diagnosed while in my 20's. I know how it feels to be diagnosed with a disease though to be an " old persons " disease. RA is not an old person's disease. Unfortunately it strikes even children. We have members that range from their 20's to their 70's so I hope you feel comfortable here. I take Enbrel and mtx which helps, but swimming helps me as much as my meds. Many find relief with yoga, meditation or tai chi. We serve whine and cheese daily, so feel free to indulge. a On Nov 10, 2005, at 9:06 AM, paa3171 wrote: > Hi, I am a 34 yr old mother of two and a wife. I also work full > timein the internatl banking industry. I was diagnosed (finally!) > with RA a little over a year ago and the disease has steadily > progressed. I am having a hardtime finding a support group because of > my age (it seems like everyone else is older and I feel out of > place). I have been out of work for approx 2 wks now because of my > flare up. I seem to have a pharmacy in my medicine cabinet and i go > for remicade treatments which do not seem to be helping. Is there > someone I could talk to? I really need all the advice I can get in > regards to coping with the disease and how I can help myself. Please > don't think I am a whiner I am just very frustrated and need to find > some alternative ways to help myself. > > Thanks, > > Ruthie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Dear , This is a great group to get the support you need. I'm so sorry about your husband. I know it's no consolation, but someone who can't handle it would probably be more of a burden than a help, although I know that doesn't make it all better. I hope you can find some supportive friends to hang with, but in the meantime the people in this group are the best of the best! Their experience with pain and frustration and limitations has developed in them a sense of compassion and common sense and I have received so much comfort from them, as well as good advice. Looking forward to getting to know you. laura --- <jasminesgrannie@...> wrote: > Hi My name is Ddenise and I'm new to the group. Any > info anyone wants > to pass along I will take I have Rheumatoid > Arthritis,Fibromyalgia, > mixed connected tissue disease, & hepatitis C which > all leads to auto > immiune. I filed for SS. Say a pray! > My husband left me guess he coulsn't handle > everything. > I'm looking for new friends, education, and coping > skills. > > > > > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Dear , This is a great group to get the support you need. I'm so sorry about your husband. I know it's no consolation, but someone who can't handle it would probably be more of a burden than a help, although I know that doesn't make it all better. I hope you can find some supportive friends to hang with, but in the meantime the people in this group are the best of the best! Their experience with pain and frustration and limitations has developed in them a sense of compassion and common sense and I have received so much comfort from them, as well as good advice. Looking forward to getting to know you. laura --- <jasminesgrannie@...> wrote: > Hi My name is Ddenise and I'm new to the group. Any > info anyone wants > to pass along I will take I have Rheumatoid > Arthritis,Fibromyalgia, > mixed connected tissue disease, & hepatitis C which > all leads to auto > immiune. I filed for SS. Say a pray! > My husband left me guess he coulsn't handle > everything. > I'm looking for new friends, education, and coping > skills. > > > > > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Dear Ruthie, There is no such thing as a whiner in this group. We have every right to express our distress over a disease that causes so much pain and limitation, and you will find a sympathetic ear here. Feel free to vent fully. There are some younger people here. I am 45 and have fibromyalgia/inflammatory arthritis. Best wishes and we look forward to hearing from you. laura --- paa3171 <paa3171@...> wrote: > Hi, I am a 34 yr old mother of two and a wife. I > also work full > timein the internatl banking industry. I was > diagnosed (finally!) > with RA a little over a year ago and the disease has > steadily > progressed. I am having a hardtime finding a > support group because of > my age (it seems like everyone else is older and I > feel out of > place). I have been out of work for approx 2 wks > now because of my > flare up. I seem to have a pharmacy in my medicine > cabinet and i go > for remicade treatments which do not seem to be > helping. Is there > someone I could talk to? I really need all the > advice I can get in > regards to coping with the disease and how I can > help myself. Please > don't think I am a whiner I am just very frustrated > and need to find > some alternative ways to help myself. > > Thanks, > > Ruthie > > > > > > __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Dear Ruthie, There is no such thing as a whiner in this group. We have every right to express our distress over a disease that causes so much pain and limitation, and you will find a sympathetic ear here. Feel free to vent fully. There are some younger people here. I am 45 and have fibromyalgia/inflammatory arthritis. Best wishes and we look forward to hearing from you. laura --- paa3171 <paa3171@...> wrote: > Hi, I am a 34 yr old mother of two and a wife. I > also work full > timein the internatl banking industry. I was > diagnosed (finally!) > with RA a little over a year ago and the disease has > steadily > progressed. I am having a hardtime finding a > support group because of > my age (it seems like everyone else is older and I > feel out of > place). I have been out of work for approx 2 wks > now because of my > flare up. I seem to have a pharmacy in my medicine > cabinet and i go > for remicade treatments which do not seem to be > helping. Is there > someone I could talk to? I really need all the > advice I can get in > regards to coping with the disease and how I can > help myself. Please > don't think I am a whiner I am just very frustrated > and need to find > some alternative ways to help myself. > > Thanks, > > Ruthie > > > > > > __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 : Can you explain Fibromyalgia to me in Layman terms? I had an RF blood test done and it came back high, haven't been to the Rheumotologist yet (Dec. 5th). But, when I was getting a massage the other day the lady asked if I was diagnosed with Fibromyalgia. Of course at that time I had never heard of it before. Now I know that it is also an autoimmune disease like RA. She said that the two hard knots on my neck (one on each side) resembled Fibromyalgia. Also, if that IS what the knots were....could she have done more damage by rubbing the CRAP out of them to get them to go away? Because my neck is still not any better after a week on muscle relaxers. I know you are not a dr., just asking for your 2 cents. Thanks Bobbi > > > Hi, I am a 34 yr old mother of two and a wife. I > > also work full > > timein the internatl banking industry. I was > > diagnosed (finally!) > > with RA a little over a year ago and the disease has > > steadily > > progressed. I am having a hardtime finding a > > support group because of > > my age (it seems like everyone else is older and I > > feel out of > > place). I have been out of work for approx 2 wks > > now because of my > > flare up. I seem to have a pharmacy in my medicine > > cabinet and i go > > for remicade treatments which do not seem to be > > helping. Is there > > someone I could talk to? I really need all the > > advice I can get in > > regards to coping with the disease and how I can > > help myself. Please > > don't think I am a whiner I am just very frustrated > > and need to find > > some alternative ways to help myself. > > > > Thanks, > > > > Ruthie > > > > > > > > > > > > > > > > > __________________________________ > FareChase: Search multiple travel sites in one click. > http://farechase. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 : Can you explain Fibromyalgia to me in Layman terms? I had an RF blood test done and it came back high, haven't been to the Rheumotologist yet (Dec. 5th). But, when I was getting a massage the other day the lady asked if I was diagnosed with Fibromyalgia. Of course at that time I had never heard of it before. Now I know that it is also an autoimmune disease like RA. She said that the two hard knots on my neck (one on each side) resembled Fibromyalgia. Also, if that IS what the knots were....could she have done more damage by rubbing the CRAP out of them to get them to go away? Because my neck is still not any better after a week on muscle relaxers. I know you are not a dr., just asking for your 2 cents. Thanks Bobbi > > > Hi, I am a 34 yr old mother of two and a wife. I > > also work full > > timein the internatl banking industry. I was > > diagnosed (finally!) > > with RA a little over a year ago and the disease has > > steadily > > progressed. I am having a hardtime finding a > > support group because of > > my age (it seems like everyone else is older and I > > feel out of > > place). I have been out of work for approx 2 wks > > now because of my > > flare up. I seem to have a pharmacy in my medicine > > cabinet and i go > > for remicade treatments which do not seem to be > > helping. Is there > > someone I could talk to? I really need all the > > advice I can get in > > regards to coping with the disease and how I can > > help myself. Please > > don't think I am a whiner I am just very frustrated > > and need to find > > some alternative ways to help myself. > > > > Thanks, > > > > Ruthie > > > > > > > > > > > > > > > > > __________________________________ > FareChase: Search multiple travel sites in one click. > http://farechase. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Welcome Annie. I'm Pam, mom to two boys on the autism spectrum (15 and 9). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Jojo, Welcome to the group! We have scheduled chat twice a week, on Monday and Friday nights at 10pm EST. Can you make chat tonight? I'm not sure what timezone you are in, but I'd love to see you there. There is usually a good number of people in there, at various stages in the plagio process (baby just diagosed, just banded, banded, band grad, and repositioned, too.) The usual length of wear time is about 4 months, but that will vary with individual variables such as growth spurts, severity, etc. Sometimes with younger babies that start at the age of your baby, wear time is shorter. Have you scheduled a consultation appt. with a band/helmet facility yet? I also took a look at Ashlyn's photos, and she is precious!!! It seems like yesterday that my two little ones were that age, and they are now 1 and 3 1/2, lol! Take care, Christie (Mom to Repo'd Remy) > > hi there everyone. let me start by telling all of you how happy i am > to see that there is a place to talk to people about all this. i have > a 4 month old little girl i was told a couple weeks ago that she will > need a helmet because the back of her head is really flat. after she > was born the doc said that it should go down within the first few > days. four months later i still have my conehead. i was wondering how > long the helmets are usually on im really not looking forward to this > because she hates hates. when i put one on her shes not too happy and > isnt too shy about letting me know wbout it.as soon as the insurence > company gives us the go we will be getting it. also when do all of you > go in the chat room i have been on several times during the day and im > all alone in there lol. i will put some pics on here of my daughter > her name is ashlyn > > > jojo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Jojo, Welcome to the group! We have scheduled chat twice a week, on Monday and Friday nights at 10pm EST. Can you make chat tonight? I'm not sure what timezone you are in, but I'd love to see you there. There is usually a good number of people in there, at various stages in the plagio process (baby just diagosed, just banded, banded, band grad, and repositioned, too.) The usual length of wear time is about 4 months, but that will vary with individual variables such as growth spurts, severity, etc. Sometimes with younger babies that start at the age of your baby, wear time is shorter. Have you scheduled a consultation appt. with a band/helmet facility yet? I also took a look at Ashlyn's photos, and she is precious!!! It seems like yesterday that my two little ones were that age, and they are now 1 and 3 1/2, lol! Take care, Christie (Mom to Repo'd Remy) > > hi there everyone. let me start by telling all of you how happy i am > to see that there is a place to talk to people about all this. i have > a 4 month old little girl i was told a couple weeks ago that she will > need a helmet because the back of her head is really flat. after she > was born the doc said that it should go down within the first few > days. four months later i still have my conehead. i was wondering how > long the helmets are usually on im really not looking forward to this > because she hates hates. when i put one on her shes not too happy and > isnt too shy about letting me know wbout it.as soon as the insurence > company gives us the go we will be getting it. also when do all of you > go in the chat room i have been on several times during the day and im > all alone in there lol. i will put some pics on here of my daughter > her name is ashlyn > > > jojo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi Natasha I live in Connecticut and we went in to CT today to have the casting done for Marina--It wasn't as traumatic as I thought...She will have her 1st fitting in less than 2 weeks. I am feeling better about the band. My husband and family have been very supportive...I am a little nervous about Marina's first outing with the band, Do you have any advice on what to say to people when they ask questions?? Thanks! -- > > > > > > > > > > > > Hello, > > > > > > > > > > > > My name is and I have a 2 month old daughter, > Amelia, > > who > > > was > > > > > > just diagnosed with torticollis and plagiocephaly by her > > > > > pediatrician. > > > > > > I am going through all sorts of emotions right now-- fear, > > > sadness, > > > > > > guilt... and I found this group. We are on a waiting list > > for > > > a PT > > > > > > evaluation so that only leads to my frustration because I > > want > > > help > > > > > > for her now. Is there anything that I should be doing > > while > > > we > > > > > wait > > > > > > for our eval? Will they tell me at the eval. if we should > > > pursue a > > > > > > helmet/band? I am just starting to learn about > > plagiocephaly. > > > Any > > > > > > information that anyone can share about this whole process > > > would be > > > > > > great. > > > > > > > > > > > > Thanks so much, > > > > > > > > > > > > Minnesota > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi Natasha I live in Connecticut and we went in to CT today to have the casting done for Marina--It wasn't as traumatic as I thought...She will have her 1st fitting in less than 2 weeks. I am feeling better about the band. My husband and family have been very supportive...I am a little nervous about Marina's first outing with the band, Do you have any advice on what to say to people when they ask questions?? Thanks! -- > > > > > > > > > > > > Hello, > > > > > > > > > > > > My name is and I have a 2 month old daughter, > Amelia, > > who > > > was > > > > > > just diagnosed with torticollis and plagiocephaly by her > > > > > pediatrician. > > > > > > I am going through all sorts of emotions right now-- fear, > > > sadness, > > > > > > guilt... and I found this group. We are on a waiting list > > for > > > a PT > > > > > > evaluation so that only leads to my frustration because I > > want > > > help > > > > > > for her now. Is there anything that I should be doing > > while > > > we > > > > > wait > > > > > > for our eval? Will they tell me at the eval. if we should > > > pursue a > > > > > > helmet/band? I am just starting to learn about > > plagiocephaly. > > > Any > > > > > > information that anyone can share about this whole process > > > would be > > > > > > great. > > > > > > > > > > > > Thanks so much, > > > > > > > > > > > > Minnesota > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi jojo I'm new to the group too. My name is and I have a 5 month old daughter that had her casting today. She has a moderate case and will be in the band for 3 months..I am wondering about how my daughter will adjust to the helmet--She definately lets me know when she doesn't like something!! (tummy time and neck stretching exercises especially) Good Luck! Plagiocephaly , " jojo " <mersaities@y...> wrote: > > hi there everyone. let me start by telling all of you how happy i am > to see that there is a place to talk to people about all this. i have > a 4 month old little girl i was told a couple weeks ago that she will > need a helmet because the back of her head is really flat. after she > was born the doc said that it should go down within the first few > days. four months later i still have my conehead. i was wondering how > long the helmets are usually on im really not looking forward to this > because she hates hates. when i put one on her shes not too happy and > isnt too shy about letting me know wbout it.as soon as the insurence > company gives us the go we will be getting it. also when do all of you > go in the chat room i have been on several times during the day and im > all alone in there lol. i will put some pics on here of my daughter > her name is ashlyn > > > jojo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi jojo I'm new to the group too. My name is and I have a 5 month old daughter that had her casting today. She has a moderate case and will be in the band for 3 months..I am wondering about how my daughter will adjust to the helmet--She definately lets me know when she doesn't like something!! (tummy time and neck stretching exercises especially) Good Luck! Plagiocephaly , " jojo " <mersaities@y...> wrote: > > hi there everyone. let me start by telling all of you how happy i am > to see that there is a place to talk to people about all this. i have > a 4 month old little girl i was told a couple weeks ago that she will > need a helmet because the back of her head is really flat. after she > was born the doc said that it should go down within the first few > days. four months later i still have my conehead. i was wondering how > long the helmets are usually on im really not looking forward to this > because she hates hates. when i put one on her shes not too happy and > isnt too shy about letting me know wbout it.as soon as the insurence > company gives us the go we will be getting it. also when do all of you > go in the chat room i have been on several times during the day and im > all alone in there lol. i will put some pics on here of my daughter > her name is ashlyn > > > jojo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 In a message dated 11/18/2005 3:39:13 PM Eastern Standard Time, lahoover@... writes: How is your 15 yr old doing socially? I'm terrified with him going into middle school! My 15 year old struggled a bit through middle school socially. He was very angry and aggressive and didn't get along with a certain few peers and sometimes got into physical confrontations. Now that he is in high school, I think he has figured out the " social scene " and adapted very well to his environment. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hi Pam....just catching up on the messages been a busy week! My 13yr old def has some of the quirks his brother has but fortunatly does really well in school which was the reason we had max tested in the first place. School is a constant struggle for him socially as well and academics. Luckly we have a really good sdc teacher and the class only has 9 students...mostly with simular needs. How is your 15 yr old doing socially? I'm terrified with him going into middle school! > > Welcome Annie. I'm Pam, mom to two boys on the autism spectrum (15 and 9). > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Thats great to hear! I think middle school is terrible for anyone...my husband call it " 3 years of prison " ...Annie > > > In a message dated 11/18/2005 3:39:13 PM Eastern Standard Time, > lahoover@y... writes: > > How is your 15 yr old doing socially? I'm terrified with > him going into middle school! > > > > My 15 year old struggled a bit through middle school socially. He was very > angry and aggressive and didn't get along with a certain few peers and > sometimes got into physical confrontations. Now that he is in high school, I think > he has figured out the " social scene " and adapted very well to his > environment. Pam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Tara, I am new to the group, but not new to the problem you're having! My son, , is 7 months old now, and just starting wearing a Starband. We began noticing the flatness around 8 weeks. We tried repositioning with towels, wedges, repositional therapy, pretty much everything out there. He would just roll off or away from whatever we used. Our pediatrician recommended securing the roll to him with velcro, but I didn't like the sound of that. Good luck! Mother of , Starband wearer since 11/14/05 --- Tara Katz <tarabrian88@...> wrote: > Hi there, > > My son is 9 weeks old. One side of the back of > his head is a bit > flat and I was wondering what would be the best > device to use in his > crib. I have tried placing a towel under his > shoulder, but he slides > right off. He is already between two rolls, tightly > swaddled...but he > moves around alot anyway. > > any advice is much appreciated. > > thanks, > tara > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.