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Hi Bonnie,

Welcome to the group! I just wanted to second everything Carol has

already told you. Keep us posted.

>

> Hi. I am new to the group. My son, Wesley, is 6 months old and

he just

> got the Starband on 1/3/06. We have had to make several return

visits for

> adjustments. I feel so stupid. I did not realize there was this

support group.

> I wish I had found this before he got his Starband. I didn't

realize there

> were so many different kinds of devises.

>

> Has anyone been to Valentine & Co. in Richmond, Virginia?. I

did not

> see them listed on the list. I was told they are the only ones in

Richmond

> that do this. I am really surprised since this is such a big city.

We even

> have Medical College of Virginia that is very well known.

>

> Also, my health insurance (Southern Health) had denied the claim

saying that

> it is just cosmetic. The tips on the website for filing an appeal

were very

> helpful. It is going to be $1,500, and I had to pay $750 upfront

when they

> did the cast. I have my fingers crossed it will be appealed.

>

> Thanks so much ---- Bonnie

>

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Hi Bonnie,

Welcome to the group! I just wanted to second everything Carol has

already told you. Keep us posted.

>

> Hi. I am new to the group. My son, Wesley, is 6 months old and

he just

> got the Starband on 1/3/06. We have had to make several return

visits for

> adjustments. I feel so stupid. I did not realize there was this

support group.

> I wish I had found this before he got his Starband. I didn't

realize there

> were so many different kinds of devises.

>

> Has anyone been to Valentine & Co. in Richmond, Virginia?. I

did not

> see them listed on the list. I was told they are the only ones in

Richmond

> that do this. I am really surprised since this is such a big city.

We even

> have Medical College of Virginia that is very well known.

>

> Also, my health insurance (Southern Health) had denied the claim

saying that

> it is just cosmetic. The tips on the website for filing an appeal

were very

> helpful. It is going to be $1,500, and I had to pay $750 upfront

when they

> did the cast. I have my fingers crossed it will be appealed.

>

> Thanks so much ---- Bonnie

>

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Hi Bonnie,

Welcome to the group. I used to live in Richmond about 10 years

ago :) Anyway it's not uncommon for there to be only one option in

town - even bigger towns.

Kiersten, 8 months, DOC Band 1/10/06, Tort

na, 2 1/2 yrs, DOC Grad Feb 04, Tort Resolved

www.thefilyaws.com

>

> Hi. I am new to the group. My son, Wesley, is 6 months old and

he just

> got the Starband on 1/3/06. We have had to make several return

visits for

> adjustments. I feel so stupid. I did not realize there was this

support group.

> I wish I had found this before he got his Starband. I didn't

realize there

> were so many different kinds of devises.

>

> Has anyone been to Valentine & Co. in Richmond, Virginia?. I

did not

> see them listed on the list. I was told they are the only ones in

Richmond

> that do this. I am really surprised since this is such a big

city. We even

> have Medical College of Virginia that is very well known.

>

> Also, my health insurance (Southern Health) had denied the claim

saying that

> it is just cosmetic. The tips on the website for filing an appeal

were very

> helpful. It is going to be $1,500, and I had to pay $750 upfront

when they

> did the cast. I have my fingers crossed it will be appealed.

>

> Thanks so much ---- Bonnie

>

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Hi Bonnie,

Welcome to the group. I used to live in Richmond about 10 years

ago :) Anyway it's not uncommon for there to be only one option in

town - even bigger towns.

Kiersten, 8 months, DOC Band 1/10/06, Tort

na, 2 1/2 yrs, DOC Grad Feb 04, Tort Resolved

www.thefilyaws.com

>

> Hi. I am new to the group. My son, Wesley, is 6 months old and

he just

> got the Starband on 1/3/06. We have had to make several return

visits for

> adjustments. I feel so stupid. I did not realize there was this

support group.

> I wish I had found this before he got his Starband. I didn't

realize there

> were so many different kinds of devises.

>

> Has anyone been to Valentine & Co. in Richmond, Virginia?. I

did not

> see them listed on the list. I was told they are the only ones in

Richmond

> that do this. I am really surprised since this is such a big

city. We even

> have Medical College of Virginia that is very well known.

>

> Also, my health insurance (Southern Health) had denied the claim

saying that

> it is just cosmetic. The tips on the website for filing an appeal

were very

> helpful. It is going to be $1,500, and I had to pay $750 upfront

when they

> did the cast. I have my fingers crossed it will be appealed.

>

> Thanks so much ---- Bonnie

>

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Welcome to the group! It's great to hear that Enbrel is working so well for

you. Are you still taking MTX?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] New to group

> Hello all,

> I have just found this group and registered.

> I am 62 and was diagnosed with RA, 2 yrs ago.

> My doctor put me on Methotrexate and Etodolac.

> I was in remission for about 6 months, then the flares came back

> in full force. I was having debilitating flares about every 2 wks.

> My doctor put me on Enbrel, and I haven't had a flare for about

> 2 1/2 months. I still suffer from some fatigue, but I am able to

> work and have my life back. I am grateful to find this website

> because there do not seem to be any support groups for RA in my city.

> It is good to have contact with others who understand.

>

> Thank you for being there.

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-Thank you for the welcome. Yes I do take MTX with

Enbrel. Doctor has reduced the amount of MTX a bit,

and may reduce even more at some point.

Dianne

-- In , " "

<Matsumura_Clan@m...> wrote:

>

> Welcome to the group! It's great to hear that Enbrel is working so

well for

> you. Are you still taking MTX?

>

>

>

> Not an MD

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] New to group

>

>

> > Hello all,

> > I have just found this group and registered.

> > I am 62 and was diagnosed with RA, 2 yrs ago.

> > My doctor put me on Methotrexate and Etodolac.

> > I was in remission for about 6 months, then the flares came back

> > in full force. I was having debilitating flares about every 2

wks.

> > My doctor put me on Enbrel, and I haven't had a flare for about

> > 2 1/2 months. I still suffer from some fatigue, but I am able to

> > work and have my life back. I am grateful to find this website

> > because there do not seem to be any support groups for RA in my

city.

> > It is good to have contact with others who understand.

> >

> > Thank you for being there.

>

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In a message dated 1/19/2006 1:47:25 PM Eastern Standard Time,

vonita4@... writes:

Hello All, This is my first post as I'm new to the group. I have 4

boys and my 6 year old has been diagnosed with Aspergers. He's the

3rd to the last child. We've been aware of his situation since he was

3 and everyday is still a learning process for us. My son is and has

always been fascinated by movies. He started with Barney which is

harmless. At the age of 3 he knew how to operate the dvd player so

he's very independent in that area. He loves Disney movies and he

memorizes lines in the movies. He can tell you which actors play in

different movies. He's such a blessing. Now that he's 6 he still

watches disney movies but now he likes action movies and he imitates

the fighting/kicking scene. I'm thinking of enrolling him in a karate

class. Well now the problem is that he's threatening to punch

teachers and other classmates. He's enrolled in public school and he

is that only autistic child in his class. So the teachers have

notified me that his behavior is disrupting the other classmates.

He's not social so he doesn't have friends. He basically plays by

himself on the playground. I recently had a meeting with a few of his

teachers and I was very disappointed in their lack of interest in his

education. My son is in the 1st grade and can read at a 4th grade

level. One teacher told me that when he reads he doesn't understand

what he's reading. I let her know that he understands when I ask him.

I suggested that maybe they can rephrase a question when asking him

and they basically told me that it's too time consuming. I'm so

disappointed in his school system. Everyday my child comes home with

a note about disruptive behavior. When I dropped him off at school

last week I noticed there was a partition that separated him from the

rest of the class. I was never notified of this and I had no idea how

long it was there. During the meeting we had with his teachers, they

informed me that they placed it there because his behavior was

distracting the other children. On one day his eraser came off his

pencil and he had a very bad day. I felt so angry with this staff.

They can't understand how upsetting this one thing can be to my son.

I really wish I could afford to stay home and homeschool my son but I

can't financially. Every morning when I get him dressed to go to

school he tells me that he doesn't want to go and it's been happening

more frequently. It's a struggle for me as his mother. I want to

protect him from the world. I let him stay home yesterday. It's so

hard because I want him to stay home rather than go to school. Any

advice on how to handle this? We only have 1 elementary school in our

district so transferring him to another school isn't an option.

Vonita

Hi Vonita,

They need to get educated. You should go to wrightslaw.com and start

learning about the process and your rights.

First, when a child's behavior is interfering with his education or the

education of others, they need to do a " functional behavior assessment. " My

computer is in the hospital so I don't have my links handy, however you can put

that in any search engine and find out about how they work.

He needs an IEP and people need to get involved with helping him learn how

to behave appropriately and more importantly, how to make friends and be a

friend. All of these skills are vital to growing up to be independent.

Another

thing is that you will have to be the one who pushes these folks to learn

about AS and about ways of educating them. I would vigorously advocate for

them to attend local conferences, find books or video's and loan them to the

teachers (Tony Attwood has a great video on AS, for instance). I would find

out

where your sped services come from - for example here in Ohio we have

" serrc's " which are regional centers of information and education about sped

needs.

They should be helpful in providing information to you and to the school.

Also, try to find a therapist or advocate or doctor in your area who can help

you advocate and bring in information as well. Being a small school is no

excuse for not providing an appropriate education. You will just have to do a

lot of pushing to get it to happen.

Roxanna

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Thanks Roxanna. I see that I have a huge road ahead of me and I know

that my son's education is most important to me and I don't feel as

if the teachers feel the same way. Everyday he's coming home with

referrals to the principal's office related to his behavior. They are

telling me things like his behavior is frightening the other

children. He " growled " in class yesterday. A 6 year old boy growling

in class is scaring the other students. I get so mad at this school.

He's the only autistic child in his classroom and his behavior

definitely stands out from the others. They make a point of telling

me this almost daily. Right now I'm considering homeschooling him.

I'm just so fed up. I have a lot of research to do and I never ever

thought that the school didn't have my son's best interest in mind,

until now.

Vonita

Re: ( ) New to group

In a message dated 1/19/2006 1:47:25 PM Eastern Standard Time,

vonita4@... writes:

Hello All, This is my first post as I'm new to the group. I have 4

boys and my 6 year old has been diagnosed with Aspergers. He's the

3rd to the last child. We've been aware of his situation since he

was

3 and everyday is still a learning process for us. My son is and has

always been fascinated by movies. He started with Barney which is

harmless. At the age of 3 he knew how to operate the dvd player so

he's very independent in that area. He loves Disney movies and he

memorizes lines in the movies. He can tell you which actors play in

different movies. He's such a blessing. Now that he's 6 he still

watches disney movies but now he likes action movies and he imitates

the fighting/kicking scene. I'm thinking of enrolling him in a

karate

class. Well now the problem is that he's threatening to punch

teachers and other classmates. He's enrolled in public school and he

is that only autistic child in his class. So the teachers have

notified me that his behavior is disrupting the other classmates.

He's not social so he doesn't have friends. He basically plays by

himself on the playground. I recently had a meeting with a few of

his

teachers and I was very disappointed in their lack of interest in

his

education. My son is in the 1st grade and can read at a 4th grade

level. One teacher told me that when he reads he doesn't understand

what he's reading. I let her know that he understands when I ask

him.

I suggested that maybe they can rephrase a question when asking him

and they basically told me that it's too time consuming. I'm so

disappointed in his school system. Everyday my child comes home with

a note about disruptive behavior. When I dropped him off at school

last week I noticed there was a partition that separated him from

the

rest of the class. I was never notified of this and I had no idea

how

long it was there. During the meeting we had with his teachers, they

informed me that they placed it there because his behavior was

distracting the other children. On one day his eraser came off his

pencil and he had a very bad day. I felt so angry with this staff.

They can't understand how upsetting this one thing can be to my son.

I really wish I could afford to stay home and homeschool my son but

I

can't financially. Every morning when I get him dressed to go to

school he tells me that he doesn't want to go and it's been

happening

more frequently. It's a struggle for me as his mother. I want to

protect him from the world. I let him stay home yesterday. It's so

hard because I want him to stay home rather than go to school. Any

advice on how to handle this? We only have 1 elementary school in

our

district so transferring him to another school isn't an option.

Vonita

Hi Vonita,

They need to get educated. You should go to wrightslaw.com and

start

learning about the process and your rights.

First, when a child's behavior is interfering with his education or

the

education of others, they need to do a " functional behavior

assessment. " My

computer is in the hospital so I don't have my links handy, however

you can put

that in any search engine and find out about how they work.

He needs an IEP and people need to get involved with helping him

learn how

to behave appropriately and more importantly, how to make friends and

be a

friend. All of these skills are vital to growing up to be

independent. Another

thing is that you will have to be the one who pushes these folks to

learn

about AS and about ways of educating them. I would vigorously

advocate for

them to attend local conferences, find books or video's and loan

them to the

teachers (Tony Attwood has a great video on AS, for instance). I

would find out

where your sped services come from - for example here in Ohio we

have

" serrc's " which are regional centers of information and education

about sped needs.

They should be helpful in providing information to you and to the

school.

Also, try to find a therapist or advocate or doctor in your area who

can help

you advocate and bring in information as well. Being a small school

is no

excuse for not providing an appropriate education. You will just

have to do a

lot of pushing to get it to happen.

Roxanna

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On Wed, 2006-01-25 at 11:13, vonitabjn wrote:

> Thanks Roxanna. I see that I have a huge road ahead of me and I know

> that my son's education is most important to me and I don't feel as

> if the teachers feel the same way. Everyday he's coming home with

> referrals to the principal's office related to his behavior. They are

> telling me things like his behavior is frightening the other

> children. He " growled " in class yesterday. A 6 year old boy growling

> in class is scaring the other students. I get so mad at this school.

> He's the only autistic child in his classroom and his behavior

> definitely stands out from the others. They make a point of telling

> me this almost daily. Right now I'm considering homeschooling him.

> I'm just so fed up. I have a lot of research to do and I never ever

> thought that the school didn't have my son's best interest in mind,

> until now.

** There is a really good Aspie homeschooling list if you are interested

in that. I have been homeschooling mine and I've noticed that his

behaviors are so much easier to manage.

** **

>

> ______________________________________________________________________

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Thanks I'm interested.

Vonita

> > Thanks Roxanna. I see that I have a huge road ahead of me and I

know

> > that my son's education is most important to me and I don't feel

as

> > if the teachers feel the same way. Everyday he's coming home with

> > referrals to the principal's office related to his behavior. They

are

> > telling me things like his behavior is frightening the other

> > children. He " growled " in class yesterday. A 6 year old boy

growling

> > in class is scaring the other students. I get so mad at this

school.

> > He's the only autistic child in his classroom and his behavior

> > definitely stands out from the others. They make a point of

telling

> > me this almost daily. Right now I'm considering homeschooling

him.

> > I'm just so fed up. I have a lot of research to do and I never

ever

> > thought that the school didn't have my son's best interest in

mind,

> > until now.

>

> ** There is a really good Aspie homeschooling list if you are

interested

> in that. I have been homeschooling mine and I've noticed that his

> behaviors are so much easier to manage.

>

> ** **

> >

> >

______________________________________________________________________

>

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Thanks I'm interested.

Vonita

> > Thanks Roxanna. I see that I have a huge road ahead of me and I

know

> > that my son's education is most important to me and I don't feel

as

> > if the teachers feel the same way. Everyday he's coming home with

> > referrals to the principal's office related to his behavior. They

are

> > telling me things like his behavior is frightening the other

> > children. He " growled " in class yesterday. A 6 year old boy

growling

> > in class is scaring the other students. I get so mad at this

school.

> > He's the only autistic child in his classroom and his behavior

> > definitely stands out from the others. They make a point of

telling

> > me this almost daily. Right now I'm considering homeschooling

him.

> > I'm just so fed up. I have a lot of research to do and I never

ever

> > thought that the school didn't have my son's best interest in

mind,

> > until now.

>

> ** There is a really good Aspie homeschooling list if you are

interested

> in that. I have been homeschooling mine and I've noticed that his

> behaviors are so much easier to manage.

>

> ** **

> >

> >

______________________________________________________________________

>

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On Thu, 2006-01-26 at 14:05, vonitabjn wrote:

> Thanks I'm interested.

** The name of the group is asyoulikeit

It's a great group with a lot of really cool people! I highly recommend

it.

My Aspie does so well, I know he'd have been lost in the cracks at

public school. Here at home he learns at his own pace AND does things at

levels way faster then they could accomidate at public schools. Plus I

have the added help of having therapies that I can schedule during the

day instead of after school. He's doing wonderfully and I highly

recommend homeschooling to parents who feel up to it. It's a challenge

but in certain areas homeschooling is just SO much better! Here in Texas

its great!

** **

>

> ______________________________________________________________________

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In a message dated 1/26/2006 1:55:59 PM Eastern Standard Time,

vonita4@... writes:

Thanks Roxanna. I see that I have a huge road ahead of me and I know

that my son's education is most important to me and I don't feel as

if the teachers feel the same way. Everyday he's coming home with

referrals to the principal's office related to his behavior. They are

telling me things like his behavior is frightening the other

children. He " growled " in class yesterday. A 6 year old boy growling

in class is scaring the other students. I get so mad at this school.

He's the only autistic child in his classroom and his behavior

definitely stands out from the others. They make a point of telling

me this almost daily. Right now I'm considering homeschooling him.

I'm just so fed up. I have a lot of research to do and I never ever

thought that the school didn't have my son's best interest in mind,

until now.

I remember the moment I realized that the school didn't have my child's best

interest at heart. Ack! It is hard not to get jaded by the process but try

to remember that there are people in places who can be helpful and who want

to help. But there are also people who don't understand or who hate to

change the way things have always been done.

As for his growling scaring other kids, I doubt it. These are kids who

watch tv. lol. They probably all know how to stomp bad guys in video games as

well without flinching. But it probably wouldn't hurt to do some kind of

information sharing with the class about autism and how this affects behaviors.

Y

ou could write a mini story about your son to share with his classmates that

explains his autism and behaviors to them so that they are not scared by

anything. You could also end the story by suggesting ways that they can help.

It might clue the teacher in as well. lol.

Roxanna ô¿ö

Autism Happens

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  • 3 weeks later...

>

> My question for this group is this, does any one or has any one tried

> a no drug treatment for thier child? We are currently on a diet that

> has helped signifigantly [although was a huge shock to 's

> emotional system] but the Docs keep suggesting medical drug

> treatment.

Tammy,

Why are they suggesting drug treatment? I mean, for what symptoms? Are

they symptoms that interfere with his learning ability? Social skills?

Aggression? Are they symptoms you (or he) have not been able to manage?

I would ask yourself those questions before you put him on any drug

treatment.

Theresa

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In a message dated 2/21/2006 3:05:50 PM Eastern Standard Time,

jessejames_outlaw2000@... writes:

Essentially they want to " slow down " his thought process, remedialize

him. I do not want him treated as though he is ADHD, which is how

they want to treat him, with drugs. He is not agressive, he can be

easily agrivated, but only lashes by shutting down, not by actions.

My techniques with jesse have been in visual recognition, get him to

look at me, rather than through me, and he's very responsive, but he

manipultes them into thinking they can't get that from him.

It sounds like the school personnel want you to use ritalin, is that it?

I personally would not discuss medication with school employees. They can

discuss any behaviors with me and I will discuss it with my son's doctor. But

they aren't qualified to recommend medication at all. If you prefer not to

use medication and would like them to use behavior strategies to get him to

interact, then they need to do that.

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

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> Tammy,

> Why are they suggesting drug treatment? I mean, for what symptoms?

Are

> they symptoms that interfere with his learning ability? Social

skills?

> Aggression? Are they symptoms you (or he) have not been able to

manage?

> I would ask yourself those questions before you put him on any drug

> treatment.

>

> Theresa

>

Essentially they want to " slow down " his thought process, remedialize

him. I do not want him treated as though he is ADHD, which is how

they want to treat him, with drugs. He is not agressive, he can be

easily agrivated, but only lashes by shutting down, not by actions.

My techniques with jesse have been in visual recognition, get him to

look at me, rather than through me, and he's very responsive, but he

manipultes them into thinking they can't get that from him.

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Hi, Tammy, I am new to the group also. I am a mobile

therapist/behavior specialist who wors with AS children. My one

client,was on a gluten-free diet, but now his mom concentrates on no

red dyes and added sugars. His parents do not want him on meds

because he becomes very aggressive. He is doing wonderfully without

any kind of meds. He does have his days thougth. Another client of

mine who has RAD has just started vision therapy. It sounds wonderful

and is very interesting on how the sections of the brain work.

Miranda

>

> Hi, My name is Tammy - I am new to this group and my 7 year old was

> reciently diagnosed AS [but not after ADD/ADHD and high functioning

> Autism]. He is a wonderful smart child, with a very on the surface

> caring nature [on the outside]. He's very clever though, and has

> learned the art of manipulation. He is one of 5 children at home,

and

> would qualify as a middle child so so speak. He is in the 1st

grade,

> in SP ED, has OT twice a week as well as Speech Therapy.

> My question for this group is this, does any one or has any one

tried

> a no drug treatment for thier child? We are currently on a diet

that

> has helped signifigantly [although was a huge shock to 's

> emotional system] but the Docs keep suggesting medical drug

> treatment. Also has any one used or tried vision therapy, I have a

> consultation scheduled for next week.

>

> I am reading through the archives [slowly] and hope to learn a lot

> here.

>

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Hi, Tammy, I am new to the group also. I am a mobile

therapist/behavior specialist who wors with AS children. My one

client,was on a gluten-free diet, but now his mom concentrates on no

red dyes and added sugars. His parents do not want him on meds

because he becomes very aggressive. He is doing wonderfully without

any kind of meds. He does have his days thougth. Another client of

mine who has RAD has just started vision therapy. It sounds wonderful

and is very interesting on how the sections of the brain work.

Miranda

>

> Hi, My name is Tammy - I am new to this group and my 7 year old was

> reciently diagnosed AS [but not after ADD/ADHD and high functioning

> Autism]. He is a wonderful smart child, with a very on the surface

> caring nature [on the outside]. He's very clever though, and has

> learned the art of manipulation. He is one of 5 children at home,

and

> would qualify as a middle child so so speak. He is in the 1st

grade,

> in SP ED, has OT twice a week as well as Speech Therapy.

> My question for this group is this, does any one or has any one

tried

> a no drug treatment for thier child? We are currently on a diet

that

> has helped signifigantly [although was a huge shock to 's

> emotional system] but the Docs keep suggesting medical drug

> treatment. Also has any one used or tried vision therapy, I have a

> consultation scheduled for next week.

>

> I am reading through the archives [slowly] and hope to learn a lot

> here.

>

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Hi there,

I am sorry to hear that your daughter has this disease. I have RA for

almost 5 years....I use to be a weight lifter and even at first I kept

going but after awhile the pain and fatigue took over me. I did quit

all my sport activities...However each and everyone of us are

different. Some are more effected than others. I think your daughter

needs a good long talk with a rheumatologist. Maybe you can even go

with her. My own personal opinion would be to tell her that you respect

her choices and that no matter what she decides to do that you will be

there for her. Having positive family support is very very important

and not everybody has that. ( I am lucky enough to have lots of family

support).

But at 21 I am sure she thinks she can make all the right choices for

herself........This is a very stubborn disease and when it decides that

our bodies can't do no then our bodies hurt so bad that we can't. All I

suggest is a good rheumatologist and lots of support. You sound like

you love your daughter very much and so she is very lucky!

If you have any questions pls feel free to ask.

Corinne

wrote:

> Hi everyone:

>

> My daughter, who just turned 21, has been diagnosed with RA. She is a

> college student on an athletic scholarship for softball and has had

> pain for over a year but it was treated as sports injuries until just

> recently. She is very physically fit, not overweight and usually very

> active.

>

> She is not doing well, she is extremely fatigued, having trouble with

> her classes, in a lot of pain, right now she has a lot of pain and

> swelling in her hands and wrists. She wakes up very swollen and in a

> lot of pain most mornings.

>

> Of course, she does not want to give up softball, she is on the dean's

> list but has gotten two " F's " this semester and is having trouble

> keeping up with her activities and classes. She is on several

> university task forces and very busy.

>

> Right now she is on Relafen, she was on something else, began with

> an " N " for a few weeks but that affected her vision.

>

> And, she is away, the rheumatologist is here, hard to get her home, I

> am torn between dragging her home or letting her work it out herself,

> because, after all, she is 21 and doesn't need me to take care of her

> any longer. The only reason I know she is not doing well is her

> roommate told me.

>

> Does anyone have any ideas that I can pass on to her to try to help her

> out? I have been reading everything I can find online but I find most

> of the information confusing and sometimes even contradictory.

>

>

>

>

>

>

>

>

>

>

>

>

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In a message dated 2/23/2006 10:28:25 PM Central Standard Time,

Corinne@... writes:

I

> am torn between dragging her home or letting her work it out herself,

> because, after all, she is 21 and doesn't need me to take care of her

> any longer. The only reason I know she is not doing well is her

> roommate told me.

>

> Does anyone have any ideas that I can pass on to her to try to help her

> out? I have been reading everything I can find online but I find most

> of the information confusing and sometimes even contradictory.

>

Dear ,

Sorry to hear your daughter was doagnosed with RA so young. My best advice

to you is have her sit down with a Rheumatologist To discuss her options and

treatment. Maybe even go with her if it will help. Let her know you love her

and respect her independance, but are there for her no matter what.

Unfortunately, RA is a very stubborn, and sometimes very agressive disease to

deal

with. The earlier the treatment, the better. Let her know that she dosent have

to quit her lifestyle, maybe just make some small adjustments. HUGS hope i

could be some help.

from PA

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>

>

>

>

> In a message dated 2/23/2006 10:28:25 PM Central Standard Time,

> Corinne@... writes:

>

> I

> > am torn between dragging her home or letting her work it out

herself,

> > because, after all, she is 21 and doesn't need me to take care

of her

> > any longer. The only reason I know she is not doing well is her

> > roommate told me.

> >

> > Does anyone have any ideas that I can pass on to her to try to

help her

> > out? I have been reading everything I can find online but I

find most

> > of the information confusing and sometimes even contradictory.

> >

>

>

>Dear

Perhaps your daughter should have a rheumatologist near her campus

that would work with the one at home. She can't be " dragged home "

with every flare but school health services might not be the best

Dr. for her,

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Sounds like your daughter has an incredible will power: mind over matter.

Although I am much older than she, she reminds me of myself in that respect, I

never complain and keep going until I crash. Truth is, your daughter will know

when it is time to stop. Don't make that decision for her, deep down, she might

hold a bit of a grudge, I know, I would because I have to live life on my terms.

Hang in there.

sasupbin <sasupbin@...> wrote:

>

>

>

>

> In a message dated 2/23/2006 10:28:25 PM Central Standard Time,

> Corinne@... writes:

>

> I

> > am torn between dragging her home or letting her work it out

herself,

> > because, after all, she is 21 and doesn't need me to take care

of her

> > any longer. The only reason I know she is not doing well is her

> > roommate told me.

> >

> > Does anyone have any ideas that I can pass on to her to try to

help her

> > out? I have been reading everything I can find online but I

find most

> > of the information confusing and sometimes even contradictory.

> >

>

>

>Dear

Perhaps your daughter should have a rheumatologist near her campus

that would work with the one at home. She can't be " dragged home "

with every flare but school health services might not be the best

Dr. for her,

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  • 2 weeks later...
Guest guest

>

> Hi

> I just joined today and I need some support. After 25 years on my

job

> and a supervisor for 18 of them I am being demoted and moved to

> another dept. mostly because my illness has caused me to be out

of

> work a lot. I kept struggling to keep up but just couldn't always

> pull it off. I have RA and just started treatment with an RA doc

who

> has me on MTX. Two years ago it was iritis that led to cataracts

that

> led to a vitrectomy. My boss, needless to say, thinks I just use

my

> illness as an excuse for not doing my job. I feel so depressed

and

> alone. I live alone and must support myself. Last month I fell

and

> cut my leg so bad I almost removed a 6 inch chunk of the leg. It

was

> repaired and I was on crutches and out of work for 2 and i/2

weeks. I

> guess that was the last straw for the boss. He told me this week

that

> I'm out.

> That's all for now. I'm just at a loss.

> MA

>

MA....Most people start to get better relief after the first year,

although it is far from normal, it should get better. Tell your Dr

about your problem at work. You might want to check out the

Americans with Disabilities Act. Search it online. You may be

protected by law against demotion, or any other action by your

employer because of your illness. Check out the forum for RA at

arthritis.org (Arthritis Foundation).

Dale

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Guest guest

The first thing to do is familarize yourself with the Americams With

Disabilities Act! It has many provisions to protect you and your job. I

learned the hard way, I got laid off when I was 46 and working as a manager.

I got demoted, demeaned, and deserted (laid off) after 20 years. When I had

been laid off, the ADA specified that the employer, under certain

conditions, absolutely had to spend a maximum of $25,000 to 'accomodate' for

each disabled employee, if they wanted to. Now there are more avenues for

you, so start doing your homework, recognise your depression (if you donn't

have it now, you'll have it soon), and look for an ADA-familiar lawyer. I

wish you luck, I know how hard it can be.

Dennis

[ ] new to group

> Hi

> I just joined today and I need some support. After 25 years on my job

> and a supervisor for 18 of them I am being demoted and moved to

> another dept. mostly because my illness has caused me to be out of

> work a lot. I kept struggling to keep up but just couldn't always

> pull it off. I have RA and just started treatment with an RA doc who

> has me on MTX. Two years ago it was iritis that led to cataracts that

> led to a vitrectomy. My boss, needless to say, thinks I just use my

> illness as an excuse for not doing my job. I feel so depressed and

> alone. I live alone and must support myself. Last month I fell and

> cut my leg so bad I almost removed a 6 inch chunk of the leg. It was

> repaired and I was on crutches and out of work for 2 and i/2 weeks. I

> guess that was the last straw for the boss. He told me this week that

> I'm out.

> That's all for now. I'm just at a loss.

> MA

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