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They should be alright. I live in Indonesia and mine are organge and blue

too.

rheumatic new to the group

Hi: new to the group...diagnosed with RA last Oct...I have been on

the antibiotic therapy since Feb 1st...my blood work has returned to

normal (sed rate, c reactive protein)...was taking mobic 1.5 mg a

day but my kydney function was showing up abnormal so I have been

off NSAIDs since the beginning of April...have been on Dr.

Mercola's " No Grain " diet since Aug...I have been on Minocin 100mg

2x daily MWF (the green pelletelized capsules)...due to an insurance

matter, I ordered Minocin from the Wyeth in Bangkok, Thailand...my

order arrived today in a Wyeth sealed box...however the capsules are

orange/blue...anybody out there familiar with the orange/blue

capsules...thanks, Micky

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Mickey, Is there powder inside these orange and blue capsules or pellets?

I live in Canada and get the orange and blue Lederle/Wyeth-Ayerst powder

filled capsules.

They have worked very well for me.

Carol/Piney

rheumatic new to the group

> Hi: new to the group...diagnosed with RA last Oct...I have been on

> the antibiotic therapy since Feb 1st...my blood work has returned to

> normal (sed rate, c reactive protein)...was taking mobic 1.5 mg a

> day but my kydney function was showing up abnormal so I have been

> off NSAIDs since the beginning of April...have been on Dr.

> Mercola's " No Grain " diet since Aug...I have been on Minocin 100mg

> 2x daily MWF (the green pelletelized capsules)...due to an insurance

> matter, I ordered Minocin from the Wyeth in Bangkok, Thailand...my

> order arrived today in a Wyeth sealed box...however the capsules are

> orange/blue...anybody out there familiar with the orange/blue

> capsules...thanks, Micky

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

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Hi Micky,

I have been using the same capsules for almost 2 years now and have had good

results with them.

Regards,

Dee

rheumatic new to the group

> Hi: new to the group...diagnosed with RA last Oct...I have been on

> the antibiotic therapy since Feb 1st...my blood work has returned to

> normal (sed rate, c reactive protein)...was taking mobic 1.5 mg a

> day but my kydney function was showing up abnormal so I have been

> off NSAIDs since the beginning of April...have been on Dr.

> Mercola's " No Grain " diet since Aug...I have been on Minocin 100mg

> 2x daily MWF (the green pelletelized capsules)...due to an insurance

> matter, I ordered Minocin from the Wyeth in Bangkok, Thailand...my

> order arrived today in a Wyeth sealed box...however the capsules are

> orange/blue...anybody out there familiar with the orange/blue

> capsules...thanks, Micky

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

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Welcome, Sue! Sorry that you've had a lot of RA excitement lately. I

hope that things calm down very soon.

Hope you like it here, and I'm looking forward to learning more about

you.

[ ] New to the group

> Hi to all - I'm new to the group this week. I was diagnosed with RA

> 7 years ago. It was under control with NSAIDS, then -2's until

> about 7 months ago when it started becoming " active and aggressive "

> according to my rheumatologist. I started on Enbrel at that time,

> along with prednisone, ultram, and a few other meds. My greatest

> struggle since that time has also been with elevated liver enzymes

> (found to be 5x normal back in November) which the docs finally

> determined was from a toxic reaction to Vioxx - not a common side

> effect but one that leads me to encourage everyone taking it to be

> VERY compliant with their labs. Between the process of trying to

> bring those enzymes down to avoid a biopsy and the recurrent flares

> which keep me on prednisone, I decided it was time to seek out some

> extra support. :-) I work full time, am married and have two

> children ages 19 and 17. 'Tis nice to have found this group!

>

> Sue

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Welcome Sue, and everyone else who has joined that I have forgotten.

We are always sorry for the reason you have found the group but are

glad you are with us. and a are the greatest moderators in

the world and have a done of useful information when you need it. I

also cannot express in words how special all of the members are. You

will not find a more empathetic and supportive bunch of people

anywhere who know exactly what you are going through. Again, welcome.

Hugs,

Alan

--- In , " swintz85044 " <swintz85044@y...>

wrote:

> Hi to all - I'm new to the group this week. I was diagnosed with

RA

> 7 years ago. It was under control with NSAIDS, then -2's until

> about 7 months ago when it started becoming " active and aggressive "

> according to my rheumatologist. I started on Enbrel at that time,

> along with prednisone, ultram, and a few other meds. My greatest

> struggle since that time has also been with elevated liver enzymes

> (found to be 5x normal back in November) which the docs finally

> determined was from a toxic reaction to Vioxx - not a common side

> effect but one that leads me to encourage everyone taking it to be

> VERY compliant with their labs. Between the process of trying to

> bring those enzymes down to avoid a biopsy and the recurrent flares

> which keep me on prednisone, I decided it was time to seek out some

> extra support. :-) I work full time, am married and have two

> children ages 19 and 17. 'Tis nice to have found this group!

>

> Sue

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  • 2 weeks later...
Guest guest

Hi Dash: You definitely need to keep the helmet on 23 hours a day! I think the sweating will subside in about a week or so. Kurt never sweat much in his, but we live in a cool climate. Just be sure to dress him cooler than you normally would. You can also take the helmet off a few times a day and dry his head and the helmet, but then put it right back on. Welcome!

Kim

mom to Kurt (STARbanded 5/8/03)dashsadiku <dashsadiku@...> wrote:

Hello everyone,My name is Dash and my son 's name is Adam. He is 5 months old and we just got his helmet two days ago. I'm not sure what type of helmet it is so I can't share that info yet. I have a few question or concerns that I would like to share through and I hope that you can help. First, he really sweats in his helmet beads of sweat come down his face and it worries me that his head might be too hot. Is there anything you can do about this? I called the university of Michigan (he got the helmet there) and they said some parents use a powder but he did not know what type of powder it was. (lot of help he was). Also 23 hours of wear time seems excessive to me; do you all really keep the helmets on that long? DashDetroit Michigan

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Hello Dash & welcome to our group!!

We have another U of M helmet wearer in our group. As other replies said, the sweat should and will significantly decrease over the next week or so once his body temp adjusts to this new helmet on top of his head. He'll still sweat probably, but nowhere near as much as the first several days.

And yes, 23 hrs a day, evry day is VERY important. Definitely follow that time schedule to achieve optimum & fastest correction. Good luck, keep us posted.

Debbie Abby's mom DOCGrad

Grand Rapids, MIdashsadiku <dashsadiku@...> wrote:

Hello everyone,My name is Dash and my son 's name is Adam. He is 5 months old and we just got his helmet two days ago. I'm not sure what type of helmet it is so I can't share that info yet. I have a few question or concerns that I would like to share through and I hope that you can help. First, he really sweats in his helmet beads of sweat come down his face and it worries me that his head might be too hot. Is there anything you can do about this? I called the university of Michigan (he got the helmet there) and they said some parents use a powder but he did not know what type of powder it was. (lot of help he was). Also 23 hours of wear time seems excessive to me; do you all really keep the helmets on that long? DashDetroit Michigan

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Hi Dash,

Welcome! Yes, as Kim said, Adam needs to wear the helmet all day. My son

is in a passive helmet (I believe the U of M one is also, is that correct?)

and our orthotist said that the biggest reason for constant wear is because

the helmet relies soley on growth for correction. Since we have no idea

when the growth is occurring, the helmet needs to stay on.

I hope the sweating goes away soon for your hot little guy!

~Tara

Mom to , 9 months and crawling!

local helmet - 5/6/03

Indiana

Date: Thu, 12 Jun 2003 06:13:49 -0700 (PDT)

From: Kim Freudenberg <km_freud@...>

Subject: Re: new to the group

Hi Dash: You definitely need to keep the helmet on 23 hours a day! I think

the sweating will subside in about a week or so. Kurt never sweat much in

his, but we live in a cool climate. Just be sure to dress him cooler than

you normally would. You can also take the helmet off a few times a day and

dry his head and the helmet, but then put it right back on. Welcome!

Kim

mom to Kurt (STARbanded 5/8/03)

dashsadiku <dashsadiku@...> wrote:

Hello everyone,

My name is Dash and my son 's name is Adam. He is 5 months

old and we just got his helmet two days ago. I'm not sure what

type of helmet it is so I can't share that info yet. I have a few

question or concerns that I would like to share through and I

hope that you can help. First, he really sweats in his helmet

beads of sweat come down his face and it worries me that his

head might be too hot. Is there anything you can do about this? I

called the university of Michigan (he got the helmet there) and

they said some parents use a powder but he did not know what

type of powder it was. (lot of help he was). Also 23 hours of

wear time seems excessive to me; do you all really keep the

helmets on that long?

Dash

Detroit Michigan

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  • 1 month later...
Guest guest

Welcome to the group. That is great you are getting your

darling daughter banded at such an early age. You will see great

results. Please let us know how the casting goes. Good luck and

welcome again!!

Take care,

Randi

mom to Drew 7.5 months DOC graduate on July 21

> HI everyone,

> I am new to the group and I thought I would just let everyone know

> a little bit about myself and my family. My name is my

> husbands name is and our precious baby girl is .

> was born on February 4, 2003. My delivery was great! She

> was born a healthy seven pounds 19 inches. Everything was going

> smoothly until my sister who is a nurse practioner at Children's

> Hospital, Los Angeles noticed s head being a little flat.

> She noticed this when Becca was about 3 months. She told me to

keep

> an eye on it and let my pediatrician know at Beccas 4 month well

> child visit. Well I saw my sister again before s well child

> visit and she seemed quite concerned. She made us an appointment

> with the cheif of nuerosurgery at Children's. We saw him a few

days

> before Beccas well child visit. He diagnosed her with a slight

case

> of torticollis and a significant positional plagiocephely. He

> referred us to cranial therapies in Burbank. I called CT the next

> day and they were booked solid for the next month. So we made an

> appointment.

> A couple days later we saw Becca's pediatrician. He didn't seem

to

> think her head looked that bad, but he told us if that was the way

> we wanted to go he supported the idea of getting her the headband.

> HE also referred us to Valley Children's(which is closer to us) for

> pysical therapy for her torticollis.

> So we have been doing physical therapy for a few weeks now and it

> is going great. She will be molded for her DOCheadband this

> Thursday July 17. We will be driving to Burbank for her treatment

> which will be about a four hour drive. We are very fortunate that

> my sister lives in Burbank, and that she noticed 's head.

If

> it wasn't for her 's treatment probably would not be staring

> this soon, if even at all. will be almost 6 months when

she

> gets her band.

> - (Becca's mom 5 months starts treatment soon)

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Welcome to the group !!!

Congratulations on being such a wonderful mom!! Thanks to your

sister-nurse practitioners are a wonderful source of healthcare and

hats off to her for picking up on Becca's plagio!!! Your daughter is

so young- she will get excellent correction. I sympathize with you

and your drive, my son and I spend three hours one way in the car

getting to his treatment. It will be well worth it. Just think when

it is all over you will feel like you have a ton of free time- it

just about kicks the entire day for us!!

Cheryl

mom to Cody(six months old)

DOCbanded 7/09/03

> HI everyone,

> I am new to the group and I thought I would just let everyone know

> a little bit about myself and my family. My name is my

> husbands name is and our precious baby girl is .

> was born on February 4, 2003. My delivery was great! She

> was born a healthy seven pounds 19 inches. Everything was going

> smoothly until my sister who is a nurse practioner at Children's

> Hospital, Los Angeles noticed s head being a little flat.

> She noticed this when Becca was about 3 months. She told me to

keep

> an eye on it and let my pediatrician know at Beccas 4 month well

> child visit. Well I saw my sister again before s well child

> visit and she seemed quite concerned. She made us an appointment

> with the cheif of nuerosurgery at Children's. We saw him a few

days

> before Beccas well child visit. He diagnosed her with a slight

case

> of torticollis and a significant positional plagiocephely. He

> referred us to cranial therapies in Burbank. I called CT the next

> day and they were booked solid for the next month. So we made an

> appointment.

> A couple days later we saw Becca's pediatrician. He didn't seem

to

> think her head looked that bad, but he told us if that was the way

> we wanted to go he supported the idea of getting her the headband.

> HE also referred us to Valley Children's(which is closer to us) for

> pysical therapy for her torticollis.

> So we have been doing physical therapy for a few weeks now and it

> is going great. She will be molded for her DOCheadband this

> Thursday July 17. We will be driving to Burbank for her treatment

> which will be about a four hour drive. We are very fortunate that

> my sister lives in Burbank, and that she noticed 's head.

If

> it wasn't for her 's treatment probably would not be staring

> this soon, if even at all. will be almost 6 months when

she

> gets her band.

> - (Becca's mom 5 months starts treatment soon)

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Hi and welcome!

Sounds like you're right on track with the early treatment and

management of 's plagio. That's very important and you will

undoubtedly see great results from the early intervention.

I also have a relative in the medical field who noticed Collin's

plagio early on; unfortunately, I couldn't convince my Pediatrician

of that, until 4 months! We achieved great success with agressive

repositioning until 6 months and finally got the band at 7 months.

Good luck to and I'll see you on the Board:) Glad you joined -

Rhonda

Mom to Collin - DOC Banded 4/30/03 at 7 mos.

http://www.collingillespie.com

> HI everyone,

> I am new to the group and I thought I would just let everyone know

> a little bit about myself and my family. My name is my

> husbands name is and our precious baby girl is .

> was born on February 4, 2003. My delivery was great! She

> was born a healthy seven pounds 19 inches. Everything was going

> smoothly until my sister who is a nurse practioner at Children's

> Hospital, Los Angeles noticed s head being a little flat.

> She noticed this when Becca was about 3 months. She told me to

keep

> an eye on it and let my pediatrician know at Beccas 4 month well

> child visit. Well I saw my sister again before s well child

> visit and she seemed quite concerned. She made us an appointment

> with the cheif of nuerosurgery at Children's. We saw him a few

days

> before Beccas well child visit. He diagnosed her with a slight

case

> of torticollis and a significant positional plagiocephely. He

> referred us to cranial therapies in Burbank. I called CT the next

> day and they were booked solid for the next month. So we made an

> appointment.

> A couple days later we saw Becca's pediatrician. He didn't seem

to

> think her head looked that bad, but he told us if that was the way

> we wanted to go he supported the idea of getting her the headband.

> HE also referred us to Valley Children's(which is closer to us) for

> pysical therapy for her torticollis.

> So we have been doing physical therapy for a few weeks now and it

> is going great. She will be molded for her DOCheadband this

> Thursday July 17. We will be driving to Burbank for her treatment

> which will be about a four hour drive. We are very fortunate that

> my sister lives in Burbank, and that she noticed 's head.

If

> it wasn't for her 's treatment probably would not be staring

> this soon, if even at all. will be almost 6 months when

she

> gets her band.

> - (Becca's mom 5 months starts treatment soon)

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Welcome to the group. At six months should receive wonderful correction! I'm so happy your sister noticed the plagio. Please keep us updated on 's physical therapy and when she is casted. Angie and Jenna(STARband grad 1/21/03) New to the group HI everyone,I am new to the group and I thought I would just let everyone know a little bit about myself and my family. My name is my husbands name is and our precious baby girl is . was born on February 4, 2003. My delivery was great! She was born a healthy seven pounds 19 inches. Everything was going smoothly until my sister who is a nurse practioner at Children's Hospital, Los Angeles noticed s head being a little flat. She noticed this when Becca was about 3 months. She told me to keep an eye on it and let my pediatrician know at Beccas 4 month well child visit. Well I saw my sister again before s well child visit and she seemed quite concerned. She made us an appointment with the cheif of nuerosurgery at Children's. We saw him a few days before Beccas well child visit. He diagnosed her with a slight case of torticollis and a significant positional plagiocephely. He referred us to cranial therapies in Burbank. I called CT the next day and they were booked solid for the next month. So we made an appointment.A couple days later we saw Becca's pediatrician. He didn't seem to think her head looked that bad, but he told us if that was the way we wanted to go he supported the idea of getting her the headband. HE also referred us to Valley Children's(which is closer to us) for pysical therapy for her torticollis. So we have been doing physical therapy for a few weeks now and it is going great. She will be molded for her DOCheadband this Thursday July 17. We will be driving to Burbank for her treatment which will be about a four hour drive. We are very fortunate that my sister lives in Burbank, and that she noticed 's head. If it wasn't for her 's treatment probably would not be staring this soon, if even at all. will be almost 6 months when she gets her band.- (Becca's mom 5 months starts treatment soon)For more plagio info

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Hi

My son Noah he's 5 years old (AS) . It took us a year to see someone and

have him diagnosed. I don't think you'll find anyone who will see him right

away.

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,

Welcome to our group! Our kids have been diagnosed in a variety of ways. Mine

was

dx'd by a psychiatrist who specializes in PDD and autism. It was confirmed by a

neuropsychologist. (Not that I felt in need of confirmation. We were just having

neuropsych testing done anyway.) Some people's kids were diagnosed by a

developmental pediatrician. Anyway, those are just a few suggestions.

Liz

CASPER64@... wrote:

> Hi I am new to the group, not even sure where to begin, I am a 25 year old

> mother with a 3 1/2 year son, my son has had a speech promblem since 18 months

> or so they say, I got him retested last week at Kennedy and They are saying he

> might be midly autisc, I was talking to a friend of mine who son has aspergers

> and sound just like my son, I live in maryland and I wanted to know are there

> resources out there to get my son dignosed with this, I can't wait a month or

> longer for Kennedy Kreiger to contact me, I wanted to get him tested or

> looked at as soon as possiable HELP!!!!

>

>

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> Hi I am new to the group, not even sure where to begin, I am a 25

year old

> mother with a 3 1/2 year son, my son has had a speech promblem

since 18 months

> or so they say, I got him retested last week at Kennedy and They

are saying he

> might be midly autisc, I was talking to a friend of mine who son

has aspergers

> and sound just like my son, I live in maryland and I wanted to know

are there

> resources out there to get my son dignosed with this, I can't wait

a month or

> longer for Kennedy Kreiger to contact me, I wanted to get him

tested or

> looked at as soon as possiable HELP!!!!

>

>

>

,

Unfortunately, waiting comes with the territory. Welcome to the

group though.

Kathy

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>

, I can't wait

> a month or

> > longer for Kennedy Kreiger to contact me, I wanted to get him

> tested or

> > looked at as soon as possiable HELP!!!!

> >

> >

> >

>

>

> ,

> Unfortunately, waiting comes with the territory. Welcome to the

> group though.

> Kathy

*************...I was just going to say the same thing, in our case

it has taken over two years just to get a " rule out AS " dx, although

we have been going through some form of testing from age 6 mths!!

Many of the professionals that I have had contact with don't like to

dx AS until children are ages 8 to 10 either. And yes, welcome to the

group, it is quite informative.

*****************

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I was talking to a friend of mine who son has aspergers

> and sound just like my son, I live in maryland and I wanted to know

are there

> resources out there to get my son dignosed with this, I can't wait

a month or

> longer for Kennedy Kreiger to contact me, I wanted to get him

tested or

> looked at as soon as possiable HELP!!!!

>

>

>

Did they run tests? And what exactly are you waiting on? If your son

exhibits delays in speech, motor skills, social, selfhelp, etc then

go to the school to have him tested for special ed prek. Sadly ALL

testing seems to take months. So take a HUGE breath and try to calm

down. Easier ssaid than done I know. Look for ways to get services as

quickly as possible. Schools normally offer speech, OT and PT. Some

areas seem better at getting help in the areas of social. Meanwhile

I'd let Kennedy Kreiger do their testing. Schools are not normally

known for doing the best testing when it comes to the PDD spectrum.

IMO!

Best wishes, a

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Welcome, Toni!

That's a very tough work schedule. If your physician won't help you to

get your hours reduced or suggest something different for your pain, I

would recommend looking for a new rheumatologist.

[ ] New to the group

> Hello,

> I am new. My name is Toni and I am 38 yo with RA, OA and Fibro. I

was

> diagnosised a year ago. I am currently on Arava, Bextra, Folic acid

and vitamins.

> I was on Methotrexate for a month but I had tons of side effects and

he took

> me off. I had nausea, diarrhea, dizziness, sore throat, cough and

chest pain.

>

> I go to see my Rheummy tomorrow and I wonder what he is going to do

this

> time. I'm in terrible pain and the heat here in Texas is making me

feel so bad.

> I need some sort of relief. My doc won't reduce or limit my work

hours and I

> have been working 9-12 hrs a day, sometimes 6 days a week. All of

which is

> standing, bending, lifting.

>

> Any suggestions would be greatly appreciated.

>

> Toni in Texas

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Hi Toni. Why won't your doctor limit your work? Has he given you a

reason?

Is there some way you can just work 40 hours without loosing your job?

If you doctor won't help you, I agree with . Get a new doctor!

Good luck with your appointment tomorrow.

a

On Monday, July 14, 2003, at 09:00 PM, aclavern33@... wrote:

> From: aclavern33@...

> Date: Mon Jul 14, 2003 9:00:51 PM US/Eastern

>

> Subject: [ ] New to the group

> Reply-

>

> Hello,

> I am new. My name is Toni and I am 38 yo with RA, OA and Fibro. I was

> diagnosised a year ago. I am currently on Arava, Bextra, Folic acid

> and vitamins.

> I was on Methotrexate for a month but I had tons of side effects and

> he took

> me off. I had nausea, diarrhea, dizziness, sore throat, cough and

> chest pain.

>

> I go to see my Rheummy tomorrow and I wonder what he is going to do

> this

> time. I'm in terrible pain and the heat here in Texas is making me

> feel so bad.

> I need some sort of relief. My doc won't reduce or limit my work

> hours and I

> have been working 9-12 hrs a day, sometimes 6 days a week. All of

> which is

> standing, bending, lifting.

>

> Any suggestions would be greatly appreciated.

>

> Toni in Texas

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In a message dated 7/15/03 9:49:52 AM Eastern Daylight Time, CASPER64@...

writes:

> yes, my son was tested twice thoug infants & toddlers and child find, which

> show many decripices in there finding, Needless to say I wasn't happy with

> the results, so I took him to Kennedy Krieger, Now to be reffered to CARD in

> which I have no idea what that is?

>

What about the results from child find did you not like? What was wrong with

Kennedy Krieger?

Roxanna

ò¿ò

It makes sense to go up the molehill

dressed for the mountain

Nan, the Wiser

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yes, my son was tested twice thoug infants & toddlers and child find, which show

many decripices in there finding, Needless to say I wasn't happy with the

results, so I took him to Kennedy Krieger, Now to be reffered to CARD in which I

have no idea what that is?

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yes, my son was tested twice thoug infants & toddlers and child find, which show

many decripices in there finding, Needless to say I wasn't happy with the

results, so I took him to Kennedy Krieger, Now to be reffered to CARD in which I

have no idea what that is?

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they said his speech is delayed and that his potty trained which he not and a

few other thing they said he did but he doesn't, I have an appoint with the GP

next tues and kennedy wants to send him to a place called CARD. In like 2 months

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In a message dated 7/20/2003 1:23:42 PM Pacific Daylight Time,

t_burrell@... writes:

> Hi my name is Terri and I am new to the group

> Hi Terry and welcome to the group. I am , Crabby some days, nice

> others. < grin> My story is below my name so perhaps it will give you some

> information and hope.

> Hang in there it can get a lot better with the antibiotics. What are you

> ill with? Looking forward to hearing more from you

Ann Pritchard

" Deep in the center of our beings

is an infinite wealth of love "

<A

HREF= " http://www.rheumatic.org/medhist.htm " >http://www.rheumatic.org/medhist.htm\

</A> < latest published work.

<A

HREF= " http://groups.msn.com/TyroMedia/pictures " >http://groups.msn.com/TyroMedia/\

pictures</A> < latest photos

<A HREF= " http://melungeon_music.tripod.com/melungeonmusic/ " >Melungeon Music</A>

< 's Web Site

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Hi Terri,

Here is our list of doctors who have prescribed the therapy - from memory

Dr. Hagglund is probably the most experienced and also has an office

in Oklahoma City:

J. Calvin M.D., (IM-RHU – 1984)

Springer Clinic,

Tulsa, Oklahoma. 74136

P: 918-497-3003 or is it 918-481-5100

Mutch, PA

ABC Medical Clinic

1508 South Virginia

Atoka, OK 74525

P: 580-889-3355

E. Hagglund, M.D. (GP – 1965) (oral and IV),

1818 W. Lindsey Suite C100

Norman OK 73069.

P: 405-329-4457

also Oklahoma City,

P: 405-844-0010

> Hi my name is Terri and I am new to the group. Have not started ap

> yet am looking for a Dr. in the Tulsa, Oklahma or Oklahma City area

> if anyone has any good info I sure would appreciate it.

> Thank you

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