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Hi there GF,, MY ex lives in Ok city,, and has now married a millionaire,, figures huh? Oh well, I hope she got a prenupt... cuz when the money is gone,, so will he,,, ack,,Janet <doc_jade@...> wrote: Hey Cyn, Hi ya Neighbor. My name is Janet and I live in Oklahoma. Small world huh. Welcome to our group. Love Janet"M.E. Katz" <ca_wyman@...> wrote: Hello Jax and thank you for all the information. It's amazing the amount of misinformation there is out there. I'll take the information to heart espcially about diet. I believe Brad is

hypoglycemic and I have been since I was a kid so I'm very careful about food.I don't remember what Brad's labs were and he has not had a liver biopsy yet. The last liver funtion test turned out ok. He is not on any medication to treat Hep C. We were told that he will not be able to be treated for the Hep cause he suffers from extreme depression. I have read there are some new meds out there that might be ok even if you have depression.I'm keeping my fingers crossed.I'm sooo glad you are in remission. It gives me hope!Thank you again,Cyn>> Hi Cyn> First off let me say welcome! This is a great group and you will find that you are just starting NOW to meet some of the greatest ppl on the face of this earth!> About the fatigue, YES, that IS part of hep c,, IF I dont take provigil in the morning, I will sleep around the clock and

never feel like I have gotten enough rest.. so yes,, > NO< NO< NO<< low protein is NOT good for your liver UNLESS your liver is decompensated.. The liver NEEDS good protein to do its job.. that is NOT a high protein diet, but adequate,, you need about 1 ounce of protein for every Kilo of weight you are.. One should ONLY reduce the protein when your liver is decompensated and that can only be figured out with lots of labs and a biopsy of liver tissue.. IN fact when you are on treatment, you NEED to have a protein based diet for the meds to work,, that does not mean all steak, bacon, etc,, it means low fat chicken, fish, some red meats,, cheeses, good protein shakes etc,, and lots of fresh vegies and fruits,, cut back on the starches,, white breads, white rice, white pasta, white sugars etc,Many people with HepC end up becoming diabetic too, so reducing the kinds of foods that break down into simple

sugars quickly is a good thing for BOTH hep c and diabetes!, > When I found out I had hep,, I had had it for almost 23 years and I had a lot of damage,, but I did treat and it has been in remission now 3 years!! I finished my tx in Feb 03 and Im still undetectible, so treatment does work for some people.. I was genotype 1 which is most common in the USA but is the hardest to treat... Has Brad had a biopsy to see what if any damage he has? What genotype is he? How are his labs? (alt/ast,protime,albumin, biliruben?) We suggest every one with this disease get copies of ALL labs, all biopsies, everything and keep it in a file at home..> If he is really really tired, it may be from not getting enough protein,, or it might be that his disease IS progressing,, its hard to say.. tell us more... > Welcome hon, I hope you will come by often and let us know how you are doing and ask

as many questions as you can!> hugs> jax> There are souls in this world which have the gift of finding joy everywhere and of leaving it behind them when they go." -Frederick Faber Jackie

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  • 10 months later...

Hey honey , I am not basing it on his smoking . I am basing it on the fact that I dont want to spend any extra years without him lmao

Re: Something I found

I sure wish you didn't have to face the idea of a transplant, Liz - but I am so glad that you have the team and the doctor that you do. You can know that you are in good hands. I've heard really good outcomes from others that have needed a transplant with their team. I'll be keeping my good thoughts and prayers up there for you. hugs with light, karen> > >> > > http://www.hepcmeditations.org/default.htm> > > > > > There is a free download that you can play on your media player.> > > I found this very relaxing this morning. I don't know if it works or not. But sure was > > relaxing to me.> > > Love> > > Janet> > > > > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a > smile> > >> >>

Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie

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I encourage Janet to not give up! I understand the tiredness and the daily struggle. Sometimes we feel like giving up, just don't! Feelings are neither right or wrong, they just are. Ride the wave, your feelings will change in time. mel :)Jackie on <redjaxjm@...> wrote: Thank you Janet! I just love Liz as if she were my sister and to think that she would base her survival upon her husbands smoking,, well,, ( add your own words here,,lol)Janet

<doc_jade > wrote: Uh huh, I agree with Jackie!! Besides you are such a blessing to all of us. Love JanetJackie on <redjaxjm > wrote: Liz,, you have grandchildren who need you and to base YOUR decision on whether or not Daymon stops smoking,, well honey,, you should re-think that!!! I love you and I want you around for as long as I am!!! Jackieelizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: At this point I am still debating whether to transplant or not , there is to much going on here at the moment to commit to it LOL If my husband doesn't quit smoking then I am not transplanting , I don't want to spend the rest of my life alone ( he has bad COPD) . Our children are almost grown up so it's hard to say how I am gonna feel at the time of need . Right now I am just tired , tired of the fight ...but if a new med came out that I could do then I would jump on it Re: Something I found I sure wish you didn't have to face the idea of a transplant, Liz - but I am so glad that you have the team and the doctor that you do. You can know that you are in good hands. I've heard really good outcomes from others that have needed a transplant with their team. I'll be keeping my good thoughts and prayers up there for you. hugs with light, karen> > >> > > http://www.hepcmeditations.org/default.htm> > > > > >

There is a free download that you can play on your media player.> > > I found this very relaxing this morning. I don't know if it works or not. But sure was > > relaxing to me.> > > Love> > > Janet> > > > > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a > smile> > >> >> Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie __________________________________________________

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well NONE of us want to be left behind but NO ONE has any guarantee's in life anyway,,, I hope he stops,, copd will never get better unless he does!elizabethnv1 <elizabethnv1@...> wrote: Hey honey , I am not basing it on his smoking . I am basing it on the fact that I dont want to spend any extra years without him lmao

Re: Something I found I sure wish you didn't have to face the idea of a transplant, Liz - but I am so glad that you have the team and the doctor that you do. You can know that you are in good hands. I've heard really good outcomes from others that have needed a transplant with their team. I'll be keeping my good thoughts and prayers up there for you. hugs with light, karen> > >> > > http://www.hepcmeditations.org/default.htm> > > > > > There is a free download that you can play on your media player.> > > I found this very relaxing this morning. I don't know if it works or not. But sure was > > relaxing to me.> > > Love> > > Janet> > > > > > > > > Take the ordinary

things of life, and make them your own. Do the impossible with a > smile> > >> >> Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie Jackie

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I think he is beyond help now ,,,,,he fights to breathe and it just breaks my heart ...

Re: Something I found

I sure wish you didn't have to face the idea of a transplant, Liz - but I am so glad that you have the team and the doctor that you do. You can know that you are in good hands. I've heard really good outcomes from others that have needed a transplant with their team. I'll be keeping my good thoughts and prayers up there for you. hugs with light, karen> > >> > > http://www.hepcmeditations.org/default.htm> > > > > > There is a free download that you can play on your media player.> > > I found this very relaxing this morning. I don't know if it works or not. But sure was > > relaxing to me.> > > Love> > > Janet> > > > > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a > smile> > >> >>

Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie

Jackie

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Dear Mel, Honey it is not me. It is Liz that is having trouble deciding to transplant or not. Me, well I am doing okay right now, fighting fatique as all of us do sometimes, but I am managing as best as I can. Thanks honey for the kind thoughts. Love JanetmELODEE DESTEFANO <melodeedestefano@...> wrote: I encourage Janet

to not give up! I understand the tiredness and the daily struggle. Sometimes we feel like giving up, just don't! Feelings are neither right or wrong, they just are. Ride the wave, your feelings will change in time. mel :)Jackie on <redjaxjm > wrote: Thank you Janet! I just love Liz as if she were my sister and to think that she would base her survival upon her husbands smoking,, well,, ( add your own words here,,lol)Janet <doc_jade > wrote: Uh huh, I agree with Jackie!! Besides you are such a blessing to all of us. Love JanetJackie on <redjaxjm > wrote: Liz,, you have grandchildren who need you and to base YOUR decision on whether or not Daymon stops smoking,, well honey,, you should re-think that!!! I love you and I want you around for as long as I am!!! Jackieelizabethnv1 <elizabethnv1earthlink (DOT) net> wrote: At this point I am still debating whether to transplant or not , there is to much going on here at the moment to commit to it LOL If my husband doesn't quit smoking then I am not transplanting , I don't want to spend the rest of my life alone ( he has bad COPD) . Our children are almost grown up so

it's hard to say how I am gonna feel at the time of need . Right now I am just tired , tired of the fight ...but if a new med came out that I could do then I would jump on it Re: Something I found I sure wish you didn't have to face the idea of a transplant, Liz - but I am so glad that you

have the team and the doctor that you do. You can know that you are in good hands. I've heard really good outcomes from others that have needed a transplant with their team. I'll be keeping my good thoughts and prayers up there for you. hugs with light, karen> > >> > > http://www.hepcmeditations.org/default.htm> > > > > > There is a free download that you can play on your media player.> > > I found this very relaxing this morning. I don't know if it works or not. But sure was > > relaxing to me.> > > Love> > > Janet> > > > > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a > smile> > >> >> Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie __________________________________________________

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he is NOT beyond help Liz,, but he will be if he doesnt stop now! My son has to stop smoking too as last nite the doc told him that his lungs look like a 65 year old and he is only 28! He smokes too much,, but yesterday he crashed the snow mobile at 65MPH, hit a stump and crashed and burned, lol,, he coughed up some blood so I made his wife take him to the ER., he is bruised but should be ok! But he has to stop smoking and so does Daymon,, its hard I know,, but I never regret stopping smoking my 2 1/2 packs per day 24 years ago! lol,, I have saved more than 50K in the last 24 years! lol Emphesema if caught early and if one stops smoking stops progressing,, my aunt stopped as soon as the doc told her and the pulmonary doc said it wont get any worse now that she stopped,, so its imperative that Daymon stop! I chewed the gum for 11 months or so! lol,, let me know if there is anything I can do to

help!elizabethnv1 <elizabethnv1@...> wrote: I think he is beyond help now ,,,,,he fights to breathe and it just breaks my heart ... Re: Something I found I sure wish you didn't have to face the idea of a transplant, Liz - but I am so glad that you have the team and the doctor that you do. You can know that you are in good hands. I've heard really good outcomes from others that have needed a transplant with their team. I'll be keeping my good thoughts and prayers up there for you. hugs with light, karen> > >> > > http://www.hepcmeditations.org/default.htm> > > > > > There is a free download that you can play on your media player.> > > I found this very relaxing this morning. I don't know if it works or not. But sure was > > relaxing to me.> > >

Love> > > Janet> > > > > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a > smile> > >> >> Jackie Take the ordinary things of life, and make them your own. Do the impossible with a smile Jackie Jackie Jackie

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This breaks my heart to read...I lost both parents to lung disease.

My dad left us " suddenly " at the age of 57 (when I was only 18) due

to lung cancer, and then I nursed my mother for 10 years while she

suffered from emphysema. I can't even be near smokers, and thank God

for clean indoor air laws!

Please please please do all you can to make your loved ones stop NOW.

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I applaud your post ,,, I stopped 24 years ago,,but my father is very very addicted too,, he takes off his oxygen, goes outside to smoke, then comes back in and puts his oxygen back on,, stupid stupid addiction! <marvindamartian05@...> wrote: This breaks my heart to read...I lost both parents to lung disease. My dad left us "suddenly" at the age of 57 (when I was only 18) due to lung cancer, and then I nursed my mother for 10 years while she suffered from emphysema. I can't even be near smokers, and

thank God for clean indoor air laws!Please please please do all you can to make your loved ones stop NOW.> > > >> > > > http://www.hepcmeditations.org/default.htm> > > > > > > > There is a free download that you can play on your media player.> > > > I found this very relaxing this morning. I don't know if it works or not. But sure > was > > > relaxing to me.> > > > Love> > > > Janet> > > > > > > > > > > > Take the ordinary things of life, and make them your own. Do the impossible with > a > > smile> > > >> > >> >> > > > > > > > > > Jackie > > > > > > Take the ordinary things of life, and make them your own. Do the impossible with a smile > > > > > > Jackie

> > > > > > > > > Jackie > > > > > > > Jackie>Jackie

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