Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Pete, good on you! You said: "I had been brewing ancient Chinese herbal formulas for about 5 years before I started treatment, at which point I set herbs aside. I think the herbs helped me respond to treatment. But I've never tried cordyceps, partly because it's expensive and also because I've not heard it touted as a hep c treatment. Other than that, it does look intriging, even if it is a fungus that grows from the head of an insect! Got to hand it to those Chinese for originality." There was a time when people were much closer to nature. One of the liver enhancing herbs I take today was also known to the native American indian. Commonly called Milk Thistle, Silybum was first recommended to me by the daughter of a woman living on the Oregon coast who said she had cured herself of HBV and HCV with it. But since coming to China I've learned that it is the combination of several herbs that enhance the desired properties and decrease undesirable ones. This is an art and science, that requires knowledge of not only the plants, but where they were grown, and many other variables. When you say you were "brewing" herbal formulas, I hope that you are well versed in herbal medicines, or were following instructions given you by a master of the art. About Dong Cong Xia Cao or cordyceps, I know they are expensive, but every doctor I spoke to about them told me only to take the most expensive ones from the most trusted source. This because there are many sources, the best being from the mountains in Tibet. Since they are very remote, gathering there is difficult, and there is only a limited supply. They are more commonly prescribed for treating athsma, or lung problems, but are revered for their effect on the entire body. Yeah! The Chinese are quite original. And being the longest surviving culture on Earth doesn't happen by accident. My best to all, Eat well, sleep well, be well!brain_child846 <peter_tocco@...> wrote: > Jody, and everyone! Do I read the news realease correctly? It seems this drug will be given in addition to Interferon, and perhaps with Rib. This will, if successful, will increase the efficacy of the treatment. So we should have a better than 50/50 chance, if everything goes well, but may still have the side effects from the Interferon, plus any side effects this new drug may have. Writing this, I feel like a wet blanket. Someone point out why I'm wrong. Please!! from what I know, which isn't much, this new drug will be used in combination with existing drugs as stated, but probably at lower doses and for shorter terms. I think they are still determining these details. Imagine, a lot of people could tolerate a grueling treatment if the term was a few months rather than a year, and knowing their chances of success were high. Kudos to medical science, when it works!I noticed you are taking cordyceps. http://www.chinesenaturalherbs.com/herbsmonth/month_cordyceps.htmI had been brewing ancient Chinese herbal formulas for about 5 years before I started treatment, at which point I set herbs aside. I think the herbs helped me respond to treatment. But I've never tried cordyceps, partly because it's expensive and also because I've not heard it touted as a hep c treatment. Other than that, it does look intriging, even if it is a fungus that grows from the head of an insect! Got to hand it to those Chinese for originality.PeteIt's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 The protease inhibitors are in phase III clincal trials right now , which means they are available to some locations already . The trick is finding a doctor associated with a research site . But if not hopefully next year the meds will become widely available as long as all goes well in the clinicals . Re: Hep C Protease Inhibitor: Waging War on Hepatitis C Dear ListGreetings to all. Upon joining this list, after a groups search on the topic, I opened my first post to read, and it was this one -- wow. Very hopeful. Does anyone have an idea when this medicine will be fine-tuned enough for regular people like me?I just posted a bio in the files, and I'll post it here as an introduction:<< My diagnosis of HCV-1 (if I remember the g-type correctly) was in 97 when rejected for life insurance. I've probably had it at least 30 years. Been married 25 years (same man) and have 7 children and two dogs (GSD freak here). Had a biopsy years ago, and every so often I get a viral load count -- it's climbing. I have flu-like aches and pains and am too thin, and some bone loss (according to dental Xray) but basically normal. I have an old prescript for Interferon but am afraid to start it and have been hiding from MDs. Wanted to hear of others experience with the stuff. Maybe I should try holding out until something better comes? I feel like I'm wearing out slowly ...can't afford to get any lower! Oh, all children and husband are fine -- tested neg for it -- thank God. >>I'm not sure I can keep up with all the emails, but I'll try. I've been out of the Hep C loop too long -- nothing sounded promising last time I looked around. When I first was diagnosed, the MDs made it sound like I was a goner for the diagnosis alone. I didn't want to hear that, for sure, so ignored them. Later, the MDs seemed to know more and weren't as dour. That first year after diagnosis was a bummer -- I don't want to live in fear like that. I worry less now because it seemed like there wasn't any point to it, but ignoring all info on it doesn't seem wise either. Time to weigh risks with the experienced!I might try some herbal potion from a friend in the UK that seems harmless enough (on my dogs and her horses anyway!) until I decide what to do. She swears by it for nearly every other malady, human and animal, and wants me to give it a try for HCV. I'm not a big alternative meds person, but I'm not a med person in general! I essentially trust Western Medicine, primarily, but I know it has limits and cautions. God blessGinny==========================================================> > elizabethnv1 <elizabethnv1@...> wrote:> > Hep C Protease Inhibitor: Waging War on Hepatitis> > C> > > > FEBRUARY 21, 2006> > > > News Analysis> > By Carey> > Businessweek.com> > > > By sleuthing out how the virus disarms the immune> > system, scientists > > could be closing in on a cure. Vertex> > Pharmaceuticals has taken the > > lead> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Homegirl ! LOL I am from the LA area , although I live in las vegas now . Jackie is there not far from you Re: Hep C Protease Inhibitor: Waging War on Hepatitis C >> Dear List> > Greetings to all. Oops, forgot to say I'm in the city of Los Angeles, a native even :)God blessGinny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 , who has protease inhibitors in phase three trials. I can't find anything on that. Vertex Pharmaceuticals finished phase II, but has not recieved FDA approval for phase III. http://www.vrtx.com/Pressreleases2006/pr020706.html The only other study I can find is also in phase II, and it is this one by Schering-Plough http://www.clinicaltrials.gov/ct/show/NCT00160251?order=2 which has FDA Fast Track approval. I follow this stuff pretty closely, so if I missed something please help me find it. Eat well, sleep well, be well!elizabethnv1 <elizabethnv1@...> wrote: The protease inhibitors are in phase III clincal trials right now , which means they are available to some locations already . The trick is finding a doctor associated with a research site . But if not hopefully next year the meds will become widely available as long as all goes well in the clinicals . Re: Hep C Protease Inhibitor: Waging War on Hepatitis C Dear ListGreetings to all. Upon joining this list, after a groups search on the topic, I opened my first post to read, and it was this one -- wow. Very hopeful. Does anyone have an idea when this medicine will be fine-tuned enough for regular people like me?I just posted a bio in the files, and I'll post it here as an introduction:<< My diagnosis of HCV-1 (if I remember the g-type correctly) was in 97 when rejected for life insurance. I've probably had it at least 30 years. Been married 25 years (same man) and have 7 children and two dogs (GSD freak here). Had a biopsy years ago, and every so often I get a viral load count -- it's climbing. I have flu-like aches and pains and am too thin, and some bone loss (according to dental Xray) but basically normal. I have an old prescript for Interferon but am afraid to start it and have been hiding from MDs. Wanted to hear of others experience with the stuff. Maybe I should try holding out until something better comes? I feel like I'm wearing out slowly ...can't afford to get any lower! Oh, all children and husband are fine -- tested neg for it -- thank God. >>I'm not sure I can keep up with all the emails, but I'll try. I've been out of the Hep C loop too long -- nothing sounded promising last time I looked around. When I first was diagnosed, the MDs made it sound like I was a goner for the diagnosis alone. I didn't want to hear that, for sure, so ignored them. Later, the MDs seemed to know more and weren't as dour. That first year after diagnosis was a bummer -- I don't want to live in fear like that. I worry less now because it seemed like there wasn't any point to it, but ignoring all info on it doesn't seem wise either. Time to weigh risks with the experienced!I might try some herbal potion from a friend in the UK that seems harmless enough (on my dogs and her horses anyway!) until I decide what to do. She swears by it for nearly every other malady, human and animal, and wants me to give it a try for HCV. I'm not a big alternative meds person, but I'm not a med person in general! I essentially trust Western Medicine, primarily, but I know it has limits and cautions. God blessGinny==========================================================> > elizabethnv1 <elizabethnv1@...> wrote:> > Hep C Protease Inhibitor: Waging War on Hepatitis> > C> > > > FEBRUARY 21, 2006> > > > News Analysis> > By Carey> > Businessweek.com> > > > By sleuthing out how the virus disarms the immune> > system, scientists > > could be closing in on a cure. Vertex> > Pharmaceuticals has taken the > > lead> > > Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I know that my doctor at University of California San Fransisco is using them .Although not formaly in phase III the meds are being used by the doctors who have access Re: Hep C Protease Inhibitor: Waging War on Hepatitis C Dear ListGreetings to all. Upon joining this list, after a groups search on the topic, I opened my first post to read, and it was this one -- wow. Very hopeful. Does anyone have an idea when this medicine will be fine-tuned enough for regular people like me?I just posted a bio in the files, and I'll post it here as an introduction:<< My diagnosis of HCV-1 (if I remember the g-type correctly) was in 97 when rejected for life insurance. I've probably had it at least 30 years. Been married 25 years (same man) and have 7 children and two dogs (GSD freak here). Had a biopsy years ago, and every so often I get a viral load count -- it's climbing. I have flu-like aches and pains and am too thin, and some bone loss (according to dental Xray) but basically normal. I have an old prescript for Interferon but am afraid to start it and have been hiding from MDs. Wanted to hear of others experience with the stuff. Maybe I should try holding out until something better comes? I feel like I'm wearing out slowly ...can't afford to get any lower! Oh, all children and husband are fine -- tested neg for it -- thank God. >>I'm not sure I can keep up with all the emails, but I'll try. I've been out of the Hep C loop too long -- nothing sounded promising last time I looked around. When I first was diagnosed, the MDs made it sound like I was a goner for the diagnosis alone. I didn't want to hear that, for sure, so ignored them. Later, the MDs seemed to know more and weren't as dour. That first year after diagnosis was a bummer -- I don't want to live in fear like that. I worry less now because it seemed like there wasn't any point to it, but ignoring all info on it doesn't seem wise either. Time to weigh risks with the experienced!I might try some herbal potion from a friend in the UK that seems harmless enough (on my dogs and her horses anyway!) until I decide what to do. She swears by it for nearly every other malady, human and animal, and wants me to give it a try for HCV. I'm not a big alternative meds person, but I'm not a med person in general! I essentially trust Western Medicine, primarily, but I know it has limits and cautions. God blessGinny==========================================================> > elizabethnv1 <elizabethnv1@...> wrote:> > Hep C Protease Inhibitor: Waging War on Hepatitis> > C> > > > FEBRUARY 21, 2006> > > > News Analysis> > By Carey> > Businessweek.com> > > > By sleuthing out how the virus disarms the immune> > system, scientists > > could be closing in on a cure. Vertex> > Pharmaceuticals has taken the > > lead> > > Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I was born in Bellflower and grew up in the Paramount and Norwalk areas . I worked as a paramedic there in downtown LA , and in east LA . I still go to California almost once a month to see my mom and sisters . I used to do some partying there in Woodland Hills but that was way back in the 80's ,lol Re: Hep C Protease Inhibitor: Waging War on Hepatitis C> Hey! Not so far. What part of LA were you in before? I'm in Woodland Hills (west SF Valley). Hi to Jackie whereever you are!God blessGinny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I suppose other countries could and are working on protease inhibitors to fight HCV. But most people won't travel to foreign countries to be in a trial. This would require living abroad for most of a year, and returning for post treatment lab works. One thing I did not mention before. Vertex has had this drug for a number of years. They first tried it as a treatment for cancer. When it failed they decided to try it on other illnesses. Before volunteering for this treatment, you might want to find out what went wrong with the cancer studies.Ginny <htucker178@...> wrote: >> , who has protease inhibitors in phase three trials. I can't find anything on that. Vertex Pharmaceuticals finished phase II, but has not recieved FDA approval for phase III. http://www.vrtx.com/Pressreleases2006/pr020706.html The only other study I can find is also in phase II, and it is this one by Schering-Plough http://www.clinicaltrials.gov/ct/show/NCT00160251?order=2 which has FDA Fast Track approval. I follow this stuff pretty closely, so if I missed something please help me find it.> Chris> Eat well, sleep well, be well!> > Hi ChrisAre there other countries in other phases of study where it might be more available or the studies more accelerated? I suppose it's patented or something. Just a thoughtGod blessGinnyIt's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I had my first child back when I was 18 and that was in 1977, I kept having babies until 1992 when I had my last . I am supposed to go to Long Beach on March 3rd if your gonna be around I would love to meet for coffee or lunch ? Re: Hep C Protease Inhibitor: Waging War on Hepatitis C >> I was born in Bellflower and grew up in the Paramount and Norwalk areas . I worked as a paramedic there in downtown LA , and in east LA . I still go to California almost once a month to see my mom and sisters . I used to do some partying there in Woodland Hills but that was way back in the 80's ,lol> ----- Original Message ----- > LOL You must be younger than I am, or had your children later because I was married with children in the 1980s. If you're ever here again, look me up.God blessGinny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 My email is elizabethnv1@... and there is no way on earth I am taking my kids , hahaha they drive me nuts on long trips Re: Hep C Protease Inhibitor: Waging War on Hepatitis C >> I had my first child back when I was 18 and that was in 1977, I kept having babies until 1992 when I had my last . I am supposed to go to Long Beach on March 3rd if your gonna be around I would love to meet for coffee or lunch ?PS my email is htucker178 or dogmamom @ aol.comThe list isn't showing them. I'm on no mail, read at the siteG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I will let you know for sure when I come down that way .....goodnight for now , I have to get up at 5am to get the highschoolers off to school .. Re: Hep C Protease Inhibitor: Waging War on Hepatitis C >> I had my first child back when I was 18 and that was in 1977, I kept having babies until 1992 when I had my last . I am supposed to go to Long Beach on March 3rd if your gonna be around I would love to meet for coffee or lunch ?> ----- Original Message ----- > That would be great! How many kids are you bringing? Will tentatively mark the calendar. Near the LB Aquarium maybe since that's all I know there?Ginny -- resetting comp for sure now...hung in there too type this Quote Link to comment Share on other sites More sharing options...
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