Re: Iron shot Injury--hiatus from TX

[Guest guest]

Dear Gav, I feel so sorry for you, but I know this doesn't help. Know that I had many of the same feelings, and without support from my family I would have quite TX at about week 8. I don't know what the effects of injecting iron into the nerve can be either. I feel helpless to assist you. Just know there is someone here who cares, has had some of the same experiences, and come out the other side still alive. I hope you have told your doctor in very clear terms how you feel. If you do he/she may take the decision out of your hands. The TX messed with my mind big time, and I was in no condition to make big decisions for myself. You can rely on family to help, but your doctor has the obligation to do what is best for you. Please talk to the doctor. Healing thoughts and love coming your way... Eat well, sleep well, be well!Z King

<gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to

contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Oh man Gav, I wish I could have been there for you. Bless your heart. keep us updated hon. Love JanetZ King <gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad

enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are

dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!! hugs jaxZ King <gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I

have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill

me.Gav__________________________________________________

[Guest guest]

Things may seem hopeless right now but ya gotta hang in there . Treatment is rough , but the side effects can be managed . You should ask for zophran for the nausea , it works real well . And the dizzy spells can be from low wbc or low rbc which can be treated also . And ambien or restoril will help you with sleep . Your doc can also adjust your riba dose so that your brain fog will decrease . I hope you were given something for your pain , having a shot hit a nerve is painful and can take quite a while to recover from .

Iron shot Injury--hiatus from TX

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

I must be slipping up , lol I totaly forgot about the iron overload that can happen with us hep patients . Iron overload can damage the heart , kidneys and liver so you have brought up a very good point Jackie ...

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Gav,

I felt compelled to write to you , although we have never chatted before. I want to first of all tell you that I so very sorry for this awful thing that has happened to you - and while being on treatment. I too did treatment, I am geno 1b and I had a horrible time, and that is putting it nicely. I do believe I had every side affect possible, and then some. There were days that I literally crawled to the bathroom, because I was either to weak to walk or nauseated and or both. I can remember waking up in the middle of the night, on nights that I actually could sleep, and screaming in pain from the persistent body aches. At least a 1000 times I wanted to quit and then some, and I lived alone with no family around. However, I had my on line friends and they allowed me to call, even if it was in the middle of the night, and they talked me through it each and every time and to this day, I know that if it hadn't been for them, I wouldn't have stuck with it.

So - what I am trying to say - is if you need someone to talk to , I am always here, you can call me, I have free long distance and I will call you right back.

I know how hard it is, although I haven't had the experience of the nurses neglect - I do realize and can comprehend your pain and fear. If you can stick with it - it is so worth it. If for some reason the Hep came back to haunt me - would I do it again?? In a heart beat- only because they way I felt once I had riddent the dragon.

If your blood work is not up to par and Doc says you have to quit, than you must - but if you just feel the need to give up - call some of us first okay.

You can email me davies@... and I will give you my number.

Otherwise know that we are all here, and I will be praying for you...

Love, Hugs and Prayers

Marie

-- Iron shot Injury--hiatus from TX

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Why thank you mam!!! hehe,, I just got the "willies" when she said she was getting IRON shots,, OMG!!!elizabethnv1 <elizabethnv1@...> wrote: I must be slipping up , lol I totaly forgot about the iron overload that can happen with us hep patients . Iron overload can damage the heart , kidneys and liver so you have brought up a very good point Jackie ... Re: Iron shot Injury--hiatus from TX Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron

is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!! hugs jaxZ King <gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about

mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

I think I am starting to suffer from the effects of the riba , haha I booked a hotel room for this weekend last night and dont remember doing it AT ALL . I think I am shrinking my brain with all this treatment ,lol

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

now why would you book a hotel room?? lol,, maybe to get some sleep without all the kids?? love you honey,, I hope you are gonna be ok!elizabethnv1 <elizabethnv1@...> wrote: I think I am starting to suffer from the effects of the riba , haha I booked a hotel room for this weekend last night and dont remember doing it AT ALL . I think I am shrinking my brain with all this treatment ,lol Re: Iron shot Injury--hiatus from TX Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the

back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc

was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!! hugs jaxZ King <gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo

fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Its our 10yr anniversary this weekend and I want to go to Disneyland for the day ,lol I am about ready to throw in the towel with treatment . I cant seem to get my insurance to give me anything for nausea .

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Liz, Liz, Liz,, you cant throw in the towel when you are responding love!!! Drink gingerale, its good for nausea.. and ask your doc for some suppositories for nausea, they can get you those real cheaply!! and they work!! love you hon meelizabethnv1 <elizabethnv1@...> wrote: Its our 10yr anniversary this weekend and I want to go to Disneyland for the day ,lol I am about ready to throw in the towel with treatment . I cant seem to get my insurance to give me anything for nausea . Re: Iron shot Injury--hiatus from TX Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,,

lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!! hugs jaxZ King <gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My

coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Geez Gav, that's terrible. Is the pain any better today?

[Guest guest]

I saw the hepatologist yesterday and he wouldnt give me anything , he said I have to get it from my primary . He was a pr*ck ( sorry folks about the language ) who didnt even listen to my lungs or palpate my abdomin . He walked in looked at my labs said to go off procrit then left , I fired my last GI for treating me like that . So I refuse to see this guy again , my Dr is dr Gish not some god complex new doc

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Liz Dear - never give up or in to this nasty Dragon. Jackie is right about the suppositories, and they are very cheap. I am taking phenagran suppositories right now, I also have the pills.

I know it is tough, and I can't count the times I wanted to quit due to side affects. There were many days that I literally crawled to the bathroom because I was so weak and nauseated that I couldn't walk.

Hang in there Girl....

If you need someone to talk to - I am always here...

Love, Hugs and Prayers

Marie

-- Re: Iron shot Injury--hiatus from TX

Liz, Liz, Liz,, you cant throw in the towel when you are responding love!!! Drink gingerale, its good for nausea.. and ask your doc for some suppositories for nausea, they can get you those real cheaply!! and they work!!

love you hon

meelizabethnv1 <elizabethnv1@...> wrote:

Its our 10yr anniversary this weekend and I want to go to Disneyland for the day ,lol I am about ready to throw in the towel with treatment . I cant seem to get my insurance to give me anything for nausea .

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

I have no problem with continuing treatment , its the stress it is causing in my marrage that I worry about . And if I have to pick between him and the meds , he is gonna win hands down . lol

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

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Liz,

I am sorry to hear that it is causing problems in your marriage, I know that the treatment can be quite hard for our loved ones to endure or understand. Sometimes it helps if he or she will take the time to make themselves as knowledgeable as possible so that they can have a better understanding as to what you are going through. I don't know how much of a caretaker he is for you, but I have been a caretaker for a cancer patient, and I remember how difficult it was for me, especially when it is someone you love. Caretakers go through their own set of emotions and sometimes it helps for them to have someone to talk to you. I eventually went to counseling, but not until after the worst part was over, although I wished I would have gone while it was going on. I definitely could have used the support and to have an outsiders opinion. Do you think he would be up for something like that? He has to understand this disease and how important it is for you to give your body the fighting chance it deserves - you deserve...

Does that make sense?

Hope some of this helps

Love, Hugs, and prayers

Marie

-- Re: Iron shot Injury--hiatus from TX

I have no problem with continuing treatment , its the stress it is causing in my marrage that I worry about . And if I have to pick between him and the meds , he is gonna win hands down . lol

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

I'm so sorry your are having all these challenges . From your post I can feel you are very frustrated, and you should be. Many Drs treat patients very badly, and your description of your visit shows one Dr at his worst! Sharing here can help, but what you need is a doctor with a loving heart. Someone here may know a great GI near you. I hope we can post some suggestioins for you! In another post, you say something that I consider very noble. "If you have to choose between husband and meds, the choice is easy." I want to tell you that you don't have to choose. Your husband surely knows how special you are. How could he not? Just tell him you need his help. You need not try to be Super Girl. Tell your family and friends you want thier help. You can in a very short time have more help, support, and encouragement than you want or need. Find one good doctor. That doctor will know other

good doctors. This is very imiportant for you. Make it a priority. (Reading this, I want to just erase it and start again... I don't usually give such strong advise, nor express my opinions so forcefully... but it seems you may need it.) Chin up! Great stuff coming your way! If you are down, please ask for help. This gives friends and family a chance to be helpful, and we all know how good it feels to help someone. Warm hugs, Eat well, sleep well, be happy!elizabethnv1 <elizabethnv1@...> wrote: I saw the hepatologist yesterday and he wouldnt give me anything , he said I have to get it from my primary . He was a pr*ck ( sorry folks about the language

) who didnt even listen to my lungs or palpate my abdomin . He walked in looked at my labs said to go off procrit then left , I fired my last GI for treating me like that . So I refuse to see this guy again , my Dr is dr Gish not some god complex new doc Re: Iron shot Injury--hiatus from TX Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they

giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!! hugs jaxZ King <gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was

out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

My husband has been wonderful , he has gone through treatment with me before . This is the 4 time for me and each time he was great . But this time he is feeling neglected( I do nothing but watch tv ,lol) and says we need more alone time together or it could cause a problem in the future . The doc that I saw was someone filling in for that day , normally I see another doc who is fantastic . I have ran the gamut with 8 GI's here in las vegas and none could help me . I see a doc who flies into town once a month only from San Fransisco and normally I go to the clinic and am cared for by a wonderful nurse practioner who knows his stuff . I had to see the doc cause of all my problems lately but he sure didnt help me much ,lol . I am not stopping the treatment , but I am going to have to keep myself from getting any sicker . I have kids that need me to function also ...thank you for your kindness and concern . Not being alone in this fight has helped me so much , without my friends support I would have given up a long time ago .. ty ty ty for being here , all of you !

Re: Iron shot Injury--hiatus from TX

Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!!

hugs

jaxZ King <gavriella_rachel@...> wrote:

I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________

[Guest guest]

Now this post sounds more like the I've grown accustomed to. Glad to hear you have a good Doctor, and what sounds like GREAT support. Perhaps your husband should get some kind of medal! Stick with anyone through this 4 times. Perhaps Sainthood! You and he are very lucky to have found each other in this big, yet small world. And there is no need to thank me for being here. I have nothing else to do most days. I come here in hope of being useful. So thank YOU, for letting me feel useful. Hugs for everyone! Eat well, sleep well, be happy!elizabethnv1 <elizabethnv1@...> wrote: My husband has been wonderful , he has gone

through treatment with me before . This is the 4 time for me and each time he was great . But this time he is feeling neglected( I do nothing but watch tv ,lol) and says we need more alone time together or it could cause a problem in the future . The doc that I saw was someone filling in for that day , normally I see another doc who is fantastic . I have ran the gamut with 8 GI's here in las vegas and none could help me . I see a doc who flies into town once a month only from San Fransisco and normally I go to the clinic and am cared for by a wonderful nurse practioner who knows his stuff . I had to see the doc cause of all my problems lately but he sure didnt help me much ,lol . I am not stopping the treatment , but I am going to have to keep myself from getting any sicker . I have kids that need me to function also ...thank you for your kindness and concern . Not being alone in this fight has helped me so much , without my friends support I would have given up a long

time ago .. ty ty ty for being here , all of you ! Re: Iron shot Injury--hiatus from TX Oh Gav,, it sounds like you are having such a hard time right now.. Man, I would be pretty upset with the nurse who did that to you,, didnt she check the back splash to make sure she wasnt near an artery or other blood vessel? I would think that by doing that, it might have given her the time to see that she was hurting you... Im so sorry, this is really a drag!!! my next question of course is why are you getting Iron shots? IS your Ferritin Level low or are they giving them to you based on your 9.9 hemoglobin?? MAKE them test your ferritin level if they have not,, lemme tell you why... Iron is very damaging

to our livers and can make treatment totally ineffective... now just because your hemoglobin is low,, does NOT mean that your ferritin level is low,, my hemoglobin dropped to 7.0!!!! and my ferritin level was 717 !!!! and having Iron pumped into me at that time would have caused my tx to fail and probably would have killed me... I hear you say that you feel like you are dying,, so PLEASE make sure your ferritin level is what is low before you let ANYONE give you more iron... MY insurance company suggested iron for me when my doc was trying to get me procrit for the anemia... had we done that, I would have died... PLEASE make them check it ,, you NEVER want to take Iron unless the ferritin is low,, only then,, has nothing to do with the hemoglobin as you can see... IM worried about you now!!! hugs jaxZ King <gavriella_rachel@...> wrote: I've been put on hiatus on TX for 1-1/2 weeks. Myhemoglobin dropped to 9.9. So Saturday morning I wentto the drs. to get my iron shot. The nurse never didone before and she pierced the nerve in my hip. Byevening I was rushed to the emergency room--my rightleg was numb and the muscles around the spine startedto inflame. Now I have to watch out for any fever oruncontrolable bowels/incontinence. If this happens,the nurse may have hit the nerve that affects thosetwo fuctions.It's bad enough I feel like sh*t and like I'm dyingfrom the TX, but now to have this happen. I spent therest of the weekend crying. The pain is so bad, Ican't lay down to sleep. I'm only 14 weeks intotreatment and I'm physically and mentally tapped out.Family was out of town and I had no way to contactanyone. And with all of this, I"m still going to workdaily. My coworkers don't know a thing about mysituation--only the

boss.I have the feeling I'm not going to make it throughthe treatment. I'm constantly dizzy, brain fog, brainsparking, nausea, bronchiorestriction, lack of sleep,etc. Can't eat because of the nausea, which is reallymessing up my strength. I feel like the TX is going toburn me out or kill me.Gav__________________________________________________