Guest guest Posted January 23, 2006 Report Posted January 23, 2006 How are you feeling honey? Gosh we've missed you!! Love anne Quote
Guest guest Posted January 23, 2006 Report Posted January 23, 2006 Hey Dylan Im sorry I havent been here as much as I'd like to be, my mom is in the hosp so we have been going back and forth to see her,, its an hour and a half drive EACH way so it has taken up so much of my time, as visiting hours are only from 7-8 pm each nite,, Tell me what has been going on,, what are you doing for your symptoms,, let us put our heads together and see what we can do to help you hugs jax Rath <kdrath@...> wrote: Hello anne, are you talking to me Dylan? I know Iam so emotional with this med stuff but I swear thateverytime I write no one responds and it is a littleembarassing to write on a support group and thereisn't anyone who wants to support you- I am reallydepressed and feeling a lot of new painful symptomsand I just don't feel like I know who to talk to.thanks, dylan :-)--- anne <kanga2@...> wrote:> How are you feeling honey? Gosh we've missed you!!> > Love> anne__________________________________________________ Quote
Guest guest Posted January 24, 2006 Report Posted January 24, 2006 Jax- I am really sorry about your mom- my grandmother is very sick as well (she has cancer) and my mom is very busy visiting, driving, taking care of etc. my grandma as well, so I feel for you and I hope all goes well. I am feeling so achy- every joint hurts and it didn't before- I am now on procrit and I can hardly get out of bed. I didn't have many symptoms in the first 2 months and now they are on full force. I am also feeling a little depressed which is new and this pain is just really overwhelming. thanks for listening, dylan --- Jackie on <redjaxjm@...> wrote: > Hey Dylan > Im sorry I havent been here as much as I'd like to > be, my mom is in the hosp so we have been going back > and forth to see her,, its an hour and a half drive > EACH way so it has taken up so much of my time, as > visiting hours are only from 7-8 pm each nite,, > Tell me what has been going on,, what are you > doing for your symptoms,, let us put our heads > together and see what we can do to help you > hugs > jax > > Rath <kdrath@...> wrote: > Hello anne, are you talking to me Dylan? I > know I > am so emotional with this med stuff but I swear that > everytime I write no one responds and it is a little > embarassing to write on a support group and there > isn't anyone who wants to support you- I am really > depressed and feeling a lot of new painful symptoms > and I just don't feel like I know who to talk to. > thanks, dylan :-) > > --- anne <kanga2@...> wrote: > > > How are you feeling honey? Gosh we've missed > you!! > > > > Love > > anne > > > __________________________________________________ > Quote
Guest guest Posted January 24, 2006 Report Posted January 24, 2006 Hiya Eliz.... I sure hope you're feeling a bit brighter these days.... anne <kanga2@...> wrote: How are you feeling honey? Gosh we've missed you!! Love anne Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it! Quote
Guest guest Posted January 24, 2006 Report Posted January 24, 2006 Today wasnt that bad , my eyes arent hurting like they were yesterday . I just feel sick to my stomach and achey , but all in all I feel much better today. Re: Liz! Hiya Eliz.... I sure hope you're feeling a bit brighter these days.... anne <kanga2@...> wrote: How are you feeling honey? Gosh we've missed you!! Love anne Photos – Showcase holiday pictures in hardcoverPhoto Books. You design it and we’ll bind it! Quote
Guest guest Posted January 24, 2006 Report Posted January 24, 2006 Glad to see you back on the board Liz and sorry to hear youre having a hard time fighting this evil thing......hang in there, girl! --- elizabethnv1 <elizabethnv1@...> wrote: > Today wasnt that bad , my eyes arent hurting like > they were yesterday . I just feel sick to my stomach > and achey , but all in all I feel much better today. > Re: Liz! > > > > Hiya Eliz.... > > I sure hope you're feeling a bit brighter > these days.... > > anne <kanga2@...> wrote: > How are you feeling honey? Gosh we've missed > you!! > > Love > anne > > > > > ------------------------------------------------------------------------------ > Photos - Showcase holiday pictures in > hardcover > Photo Books. You design it and we'll bind it! > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > Hepatitis C/ > > Happy Posting > > > > Quote
Guest guest Posted January 24, 2006 Report Posted January 24, 2006 Thanks for understanding Dylan!!! Are you on an antidepressant? You really should be while on tx as the Interferon depletes your stores of seretonin in your brain.. its not you, its the medications,, honest!!! I know about the achy stuff,, and procrit causes that,, I just hope you wont have to use the neupo too for white cells,, THAT made me ache worse than the INF did.. I have to sit in the hot tub at least twice a day in order to function, THE ONLY time I feel free of pain is when Im in the tub,, the hot water really helps.. I dont want to keep taking pain meds but if I dont, I cant do anything.. Stay in touch hon,, and I hope you start feeling better soon,, HOW MANY MORE weeks of tx do you have? hugs jax Rath <kdrath@...> wrote: Jax- I am really sorry about your mom- my grandmotheris very sick as well (she has cancer) and my mom isvery busy visiting, driving, taking care of etc. mygrandma as well, so I feel for you and I hope all goeswell. I am feeling so achy- every joint hurts and itdidn't before- I am now on procrit and I can hardlyget out of bed. I didn't have many symptoms in thefirst 2 months and now they are on full force. I amalso feeling a little depressed which is new and thispain is just really overwhelming. thanks forlistening, dylan--- Jackie on <redjaxjm@...> wrote:> Hey Dylan> Im sorry I havent been here as much as I'd like to> be, my mom is in the hosp so we have been going back> and forth to see her,, its an hour and a half drive> EACH way so it has taken up so much of my time, as> visiting hours are only from 7-8 pm each nite,, > Tell me what has been going on,, what are you> doing for your symptoms,, let us put our heads> together and see what we can do to help you> hugs> jax> > Rath <kdrath@...> wrote:> Hello anne, are you talking to me Dylan? I> know I> am so emotional with this med stuff but I swear that> everytime I write no one responds and it is a little> embarassing to write on a support group and there> isn't anyone who wants to support you- I am really> depressed and feeling a lot of new painful symptoms> and I just don't feel like I know who to talk to.> thanks, dylan :-)> > --- anne <kanga2@...> wrote:> > > How are you feeling honey? Gosh we've missed> you!!> > > > Love> > anne> > > __________________________________________________> Quote
Guest guest Posted January 25, 2006 Report Posted January 25, 2006 Hello Jax, I just wanted to say that today was the first day of my semester and my grandmother died today- I haven't really been online so I wanted to say thank you for writing me :-) and that I got the phone call this morning and I am really sad b/c I loved my grandmother so much and I live so far away from my hometown and it was hard- very hard telling my 7 year old son- I hope all is well with you , Dylan :-( --- Jackie on <redjaxjm@...> wrote: > Thanks for understanding Dylan!!! Are you on an > antidepressant? You really should be while on tx as > the Interferon depletes your stores of seretonin in > your brain.. its not you, its the medications,, > honest!!! I know about the achy stuff,, and procrit > causes that,, I just hope you wont have to use the > neupo too for white cells,, THAT made me ache worse > than the INF did.. > I have to sit in the hot tub at least twice a day > in order to function, THE ONLY time I feel free of > pain is when Im in the tub,, the hot water really > helps.. I dont want to keep taking pain meds but if > I dont, I cant do anything.. > Stay in touch hon,, and I hope you start feeling > better soon,, HOW MANY MORE weeks of tx do you have? > hugs > jax > > Rath <kdrath@...> wrote: > Jax- I am really sorry about your mom- my > grandmother > is very sick as well (she has cancer) and my mom is > very busy visiting, driving, taking care of etc. my > grandma as well, so I feel for you and I hope all > goes > well. I am feeling so achy- every joint hurts and it > didn't before- I am now on procrit and I can hardly > get out of bed. I didn't have many symptoms in the > first 2 months and now they are on full force. I am > also feeling a little depressed which is new and > this > pain is just really overwhelming. thanks for > listening, dylan > > --- Jackie on <redjaxjm@...> wrote: > > > Hey Dylan > > Im sorry I havent been here as much as I'd like > to > > be, my mom is in the hosp so we have been going > back > > and forth to see her,, its an hour and a half > drive > > EACH way so it has taken up so much of my time, as > > visiting hours are only from 7-8 pm each nite,, > > Tell me what has been going on,, what are you > > doing for your symptoms,, let us put our heads > > together and see what we can do to help you > > hugs > > jax > > > > Rath <kdrath@...> wrote: > > Hello anne, are you talking to me Dylan? I > > know I > > am so emotional with this med stuff but I swear > that > > everytime I write no one responds and it is a > little > > embarassing to write on a support group and there > > isn't anyone who wants to support you- I am really > > depressed and feeling a lot of new painful > symptoms > > and I just don't feel like I know who to talk to. > > thanks, dylan :-) > > > > --- anne <kanga2@...> wrote: > > > > > How are you feeling honey? Gosh we've missed > > you!! > > > > > > Love > > > anne > > > > > > __________________________________________________ > > Quote
Guest guest Posted January 26, 2006 Report Posted January 26, 2006 Dylan, I am so sorry to hear of your loss. Be gentle with yourself. Love anne Re: Liz! Hello Jax, I just wanted to say that today was the first dayof my semester and my grandmother died today- Ihaven't really been online so I wanted to say thankyou for writing me :-) and that I got the phone callthis morning and I am really sad b/c I loved mygrandmother so much and I live so far away from myhometown and it was hard- very hard telling my 7 yearold son- I hope all is well with you , Dylan :-(--- Jackie on <redjaxjm@...> wrote:> Thanks for understanding Dylan!!! Are you on an> antidepressant? You really should be while on tx as> the Interferon depletes your stores of seretonin in> your brain.. its not you, its the medications,,> honest!!! I know about the achy stuff,, and procrit> causes that,, I just hope you wont have to use the> neupo too for white cells,, THAT made me ache worse> than the INF did..> I have to sit in the hot tub at least twice a day> in order to function, THE ONLY time I feel free of> pain is when Im in the tub,, the hot water really> helps.. I dont want to keep taking pain meds but if> I dont, I cant do anything.. > Stay in touch hon,, and I hope you start feeling> better soon,, HOW MANY MORE weeks of tx do you have?> hugs> jax> > Rath <kdrath@...> wrote:> Jax- I am really sorry about your mom- my> grandmother> is very sick as well (she has cancer) and my mom is> very busy visiting, driving, taking care of etc. my> grandma as well, so I feel for you and I hope all> goes> well. I am feeling so achy- every joint hurts and it> didn't before- I am now on procrit and I can hardly> get out of bed. I didn't have many symptoms in the> first 2 months and now they are on full force. I am> also feeling a little depressed which is new and> this> pain is just really overwhelming. thanks for> listening, dylan> > --- Jackie on <redjaxjm@...> wrote:> > > Hey Dylan> > Im sorry I havent been here as much as I'd like> to> > be, my mom is in the hosp so we have been going> back> > and forth to see her,, its an hour and a half> drive> > EACH way so it has taken up so much of my time, as> > visiting hours are only from 7-8 pm each nite,, > > Tell me what has been going on,, what are you> > doing for your symptoms,, let us put our heads> > together and see what we can do to help you> > hugs> > jax> > > > Rath <kdrath@...> wrote:> > Hello anne, are you talking to me Dylan? I> > know I> > am so emotional with this med stuff but I swear> that> > everytime I write no one responds and it is a> little> > embarassing to write on a support group and there> > isn't anyone who wants to support you- I am really> > depressed and feeling a lot of new painful> symptoms> > and I just don't feel like I know who to talk to.> > thanks, dylan :-)> > > > --- anne <kanga2@...> wrote:> > > > > How are you feeling honey? Gosh we've missed> > you!!> > > > > > Love> > > anne> > > > > > __________________________________________________> > Quote
Guest guest Posted January 26, 2006 Report Posted January 26, 2006 Thank you anne :-) --- anne <kanga2@...> wrote: > Dylan, > I am so sorry to hear of your loss. Be gentle with > yourself. > > Love > anne > Re: Liz! > > > Hello Jax, > I just wanted to say that today was the first > day > of my semester and my grandmother died today- I > haven't really been online so I wanted to say > thank > you for writing me :-) and that I got the phone > call > this morning and I am really sad b/c I loved my > grandmother so much and I live so far away from my > hometown and it was hard- very hard telling my 7 > year > old son- I hope all is well with you , Dylan :-( > > --- Jackie on <redjaxjm@...> wrote: > > > Thanks for understanding Dylan!!! Are you on an > > antidepressant? You really should be while on > tx as > > the Interferon depletes your stores of seretonin > in > > your brain.. its not you, its the medications,, > > honest!!! I know about the achy stuff,, and > procrit > > causes that,, I just hope you wont have to use > the > > neupo too for white cells,, THAT made me ache > worse > > than the INF did.. > > I have to sit in the hot tub at least twice a > day > > in order to function, THE ONLY time I feel free > of > > pain is when Im in the tub,, the hot water > really > > helps.. I dont want to keep taking pain meds but > if > > I dont, I cant do anything.. > > Stay in touch hon,, and I hope you start > feeling > > better soon,, HOW MANY MORE weeks of tx do you > have? > > hugs > > jax > > > > Rath <kdrath@...> wrote: > > Jax- I am really sorry about your mom- my > > grandmother > > is very sick as well (she has cancer) and my mom > is > > very busy visiting, driving, taking care of etc. > my > > grandma as well, so I feel for you and I hope > all > > goes > > well. I am feeling so achy- every joint hurts > and it > > didn't before- I am now on procrit and I can > hardly > > get out of bed. I didn't have many symptoms in > the > > first 2 months and now they are on full force. I > am > > also feeling a little depressed which is new and > > this > > pain is just really overwhelming. thanks for > > listening, dylan > > > > --- Jackie on <redjaxjm@...> wrote: > > > > > Hey Dylan > > > Im sorry I havent been here as much as I'd > like > > to > > > be, my mom is in the hosp so we have been > going > > back > > > and forth to see her,, its an hour and a half > > drive > > > EACH way so it has taken up so much of my > time, as > > > visiting hours are only from 7-8 pm each > nite,, > > > Tell me what has been going on,, what are > you > > > doing for your symptoms,, let us put our heads > > > together and see what we can do to help you > > > hugs > > > jax > > > > > > Rath <kdrath@...> wrote: > > > Hello anne, are you talking to me Dylan? > I > > > know I > > > am so emotional with this med stuff but I > swear > > that > > > everytime I write no one responds and it is a > > little > > > embarassing to write on a support group and > there > > > isn't anyone who wants to support you- I am > really > > > depressed and feeling a lot of new painful > > symptoms > > > and I just don't feel like I know who to talk > to. > > > thanks, dylan :-) > > > > > > --- anne <kanga2@...> wrote: > > > > > > > How are you feeling honey? Gosh we've > missed > > > you!! > > > > > > > > Love > > > > anne > > > > > > > > > > __________________________________________________ > > > Quote
Guest guest Posted January 26, 2006 Report Posted January 26, 2006 Im so sorry Dylan.. I know this will add to the stress that you feel.. please take care of YOU and stay right here with us.. I have no words to say that will really make you feel better but just know that we are here for you! hugs jax Rath <kdrath@...> wrote: Hello Jax, I just wanted to say that today was the first day of my semester and my grandmother died today- I haven't really been online so I wanted to say thank you for writing me :-) and that I got the phone call this morning and I am really sad b/c I loved my grandmother so much and I live so far away from my hometown and it was hard- very hard telling my 7 year old son- I hope all is well with you , Dylan :-( --- Jackie on <redjaxjm@...> wrote: > Thanks for understanding Dylan!!! Are you on an > antidepressant? You really should be while on tx as > the Interferon depletes your stores of seretonin in > your brain.. its not you, its the medications,, > honest!!! I know about the achy stuff,, and procrit > causes that,, I just hope you wont have to use the > neupo too for white cells,, THAT made me ache worse > than the INF did.. > I have to sit in the hot tub at least twice a day > in order to function, THE ONLY time I feel free of > pain is when Im in the tub,, the hot water really > helps.. I dont want to keep taking pain meds but if > I dont, I cant do anything.. > Stay in touch hon,, and I hope you start feeling > better soon,, HOW MANY MORE weeks of tx do you have? > hugs > jax > > Rath <kdrath@...> wrote: > Jax- I am really sorry about your mom- my > grandmother > is very sick as well (she has cancer) and my mom is > very busy visiting, driving, taking care of etc. my > grandma as well, so I feel for you and I hope all > goes > well. I am feeling so achy- every joint hurts and it > didn't before- I am now on procrit and I can hardly > get out of bed. I didn't have many symptoms in the > first 2 months and now they are on full force. I am > also feeling a little depressed which is new and > this > pain is just really overwhelming. thanks for > listening, dylan > > --- Jackie on <redjaxjm@...> wrote: > > > Hey Dylan > > Im sorry I havent been here as much as I'd like > to > > be, my mom is in the hosp so we have been going > back > > and forth to see her,, its an hour and a half > drive > > EACH way so it has taken up so much of my time, as > > visiting hours are only from 7-8 pm each nite,, > > Tell me what has been going on,, what are you > > doing for your symptoms,, let us put our heads > > together and see what we can do to help you > > hugs > > jax > > > > Rath <kdrath@...> wrote: > > Hello anne, are you talking to me Dylan? I > > know I > > am so emotional with this med stuff but I swear > that > > everytime I write no one responds and it is a > little > > embarassing to write on a support group and there > > isn't anyone who wants to support you- I am really > > depressed and feeling a lot of new painful > symptoms > > and I just don't feel like I know who to talk to. > > thanks, dylan :-) > > > > --- anne <kanga2@...> wrote: > > > > > How are you feeling honey? Gosh we've missed > > you!! > > > > > > Love > > > anne > > > > > > __________________________________________________ > > Quote
Guest guest Posted February 26, 2006 Report Posted February 26, 2006 I was a little surprized myself to get the lab results today and that it was my husband who pointed out the fact that they couldnt detect results under 615 . Re: I consider myself proof that herbal remedies DO help hepatitis C sufferers Guess what Jackie , my viral load is so low the test they used couldnt detect the numbers.So Daymon wants me to continue the tx for as long as I can . This treatment is aweful but it looks like I may make it to undectable if I just hang in there a little longer . Quote
Guest guest Posted February 26, 2006 Report Posted February 26, 2006 well they say that anything under 500 cannot replicate,, I have written to my cousin, will wait to hear from him,, and I will email you privately,, OH MY GOD!!! I AM SO HAPPY HON,,, I am AS HAAPPY as I was when I went undet,,, elizabethnv1 <elizabethnv1@...> wrote: I was a little surprized myself to get the lab results today and that it was my husband who pointed out the fact that they couldnt detect results under 615 . Re: I consider myself proof that herbal remedies DO help hepatitis C sufferers Guess what Jackie , my viral load is so low the test they used couldnt detect the numbers.So Daymon wants me to continue the tx for as long as I can . This treatment is aweful but it looks like I may make it to undectable if I just hang in there a little longer .Jackie Quote
Guest guest Posted February 26, 2006 Report Posted February 26, 2006 I was down to 350 vl when I was taken off tx back in 2003 , and my viral load went up into the millions after that ...So I believe personaly that with any vl , there is a danger of replication Re: I consider myself proof that herbal remedies DO help hepatitis C sufferers Guess what Jackie , my viral load is so low the test they used couldnt detect the numbers.So Daymon wants me to continue the tx for as long as I can . This treatment is aweful but it looks like I may make it to undectable if I just hang in there a little longer .Jackie Quote
Guest guest Posted February 26, 2006 Report Posted February 26, 2006 well we will THEN have to get it to zero,, or down to 2-5 iu/mlelizabethnv1 <elizabethnv1@...> wrote: I was down to 350 vl when I was taken off tx back in 2003 , and my viral load went up into the millions after that ...So I believe personaly that with any vl , there is a danger of replication Re: I consider myself proof that herbal remedies DO help hepatitis C sufferers Guess what Jackie , my viral load is so low the test they used couldnt detect the numbers.So Daymon wants me to continue the tx for as long as I can . This treatment is aweful but it looks like I may make it to undectable if I just hang in there a little longer .Jackie It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/Happy Posting Jackie Quote
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