Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 I have always heard 3 is the time to start. Our dentist actually has a 10 year old son with DS! She said for some reason kids with DS are less prone to cavities but more prone to periodontal problems. Then there's the orthodontia question . Eli HATES brushing his teeth, and I have to wrestle with him and use all my strength to get a toothbrush in there! Our speech/oral motor therapist suggested an electric toothbrush -- more fun, more stimulation. love debbi mom to Logan (6) Eli (DS) and Milo (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Wow! Sounds like a talented MD! Was her tooth bothering her?? Sara --On Thursday, May 17, 2001, 11:23 AM -0600 " Tiernan, Kay M " <kay.tiernan@...> wrote: > Forgot to mention that I got in to see a dentist at the last minute > this morning. She did have a little cavity. I had to hold her down, > another held her head and another assisted the Dentist while he very > quickly put a little filling in. He was very good and quick. Glad I got > her in! > > Kay Tiernan- Mom to , , -ds-25 mos. old > > > http://DSyndrome.com/Multiples > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 My daughter enjoys the dentist also!! I really need to get her in for a cleaning, just need to find another dentist. :-( She does have a cavity that seems to be getting worse, but I don't dare to get it filled, I KNOW she won't stand for it. And if I try, I'll never get her back to the dentist. Ugh. Penny-------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away. " --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 I wish! Skylar is terrified of the dentist and it is a screamfest evertime we have to take her. The dentist is great, very patient and talks very pleasantly to her. But Skylar is still frightened. I keep hoping that one day she will just sit there and have her teeth checked. It gives me hope to know that your kids enjoy tbe dentist. Maybe someday Sky will as well. Tracey Penny wrote: > > > My daughter enjoys the dentist also!! > > I really need to get her in for a cleaning, just need to find another > dentist. :-( > > She does have a cavity that seems to be getting worse, but I don't > dare to get it filled, I KNOW she won't stand for it. > > And if I try, I'll never get her back to the dentist. > > Ugh. > > Penny > -------------------------------------------------------- > " Just remember this: Plenty of Horsepower, No Traction " - R. S. on > > " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. > Let him step to the music he hears, however measured or far away. " > --Henry Thoreau > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Tracey - We did a LOT of prep work before jacqui's initial visit to the dentist. We read 'Barney goes to the Dentist " about a gazillion times, and brought the book with us on the first visit. Luckily the dental technician followed the procedure in the book almost to a T, so Jacqui was able to follow along. We were very lucky! Penny-------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away. " --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Have you evert tried to get a video or something about the dentist, a book even, so she can look at the pictures to prepare her. Hannah would watch a episode of " Playschool " on t.v, and she just loved the dentist part, and would try to act it out for hours, woth her big sisters help. so, sitting on the chair, putting sunglasses on and getting teeth counted yesterday was somply great, though she didn't want the chair to go back much. so next time, i will tell the dentist to put the chair back a bit before she sits on it. bye cheryl Re: Dentist I wish! Skylar is terrified of the dentist and it is a screamfest evertime we have to take her. The dentist is great, very patient and talks very pleasantly to her. But Skylar is still frightened. I keep hoping that one day she will just sit there and have her teeth checked. It gives me hope to know that your kids enjoy tbe dentist. Maybe someday Sky will as well. Tracey Penny wrote: > > > My daughter enjoys the dentist also!! > > I really need to get her in for a cleaning, just need to find another > dentist. :-( > > She does have a cavity that seems to be getting worse, but I don't > dare to get it filled, I KNOW she won't stand for it. > > And if I try, I'll never get her back to the dentist. > > Ugh. > > Penny > -------------------------------------------------------- > " Just remember this: Plenty of Horsepower, No Traction " - R. S. on > > " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. > Let him step to the music he hears, however measured or far away. " > --Henry Thoreau > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 You relise that in real tricky situations, if your child's teeth get to the stage of aching and they refuse dental treatment, there is the alternative of a general anaesthetic. i would only consider it if the child got to a desperate point though, as to put them through a hospital stay could be a horrible thing, but it is an option. I am a dental nurse, so we have done lots of kids, and not just autistic kids, but 2 year olds, as mummy's just don't realise how important a toothbrush is, they bring them in with a mouth full of abcesed teeth, what are you to do, you cannot leave them in pain!!!, Also, after my dentist visit yesterday with the kids, there is a good form of stannous flouride out that is pleasant to taste, and if you have no flouride in the water is an excellent thing to put on kids back teeth from an early age. It is made by Colgate, and it called Gel-Cam. It is about 13 dollars a bottle, but one bottle will do forever. I started to used it last night on Hannah, on her 6 year old molars, as they are adult teeth, and i also put it on the other two as well. Just apply a little bit with a cotton bud. if you are unable when they are awake, try and do it when they are asleep, haha, lots of fun, but anything is better than trying to make them sit through a filling. hope this info is useful to someone. Cheryl -----Original Message-----From: Penny [mailto:nospam@...]Sent: Thursday, 16 August 2001 3:17 AMAutism_in_Girls Subject: RE: Dentist My daughter enjoys the dentist also!! I really need to get her in for a cleaning, just need to find another dentist. :-( She does have a cavity that seems to be getting worse, but I don't dare to get it filled, I KNOW she won't stand for it. And if I try, I'll never get her back to the dentist. Ugh. Penny--------------------------------------------------------"Just remember this: Plenty of Horsepower, No Traction" - R. S. on"If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away."--Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 I will try to find a video, that is a great idea. We did read books to her and she would even open wide and let us count her teeth. We would explain what the dentist would be doing. We would practise with her and her sister and at home all would be fine. Even in the van on the way there I will ask her " where are we going " and she will reply " to the dentist. yeah! " until it is time to go down the hall into the room. That is when she gets scared and starts to whimper. She too doesn't like it when the chair goes back. I will have try what you are going to try and ask them to put it back before she gets in. We will go over it a hundred times with her before she goes and she will tell you what will happen and that she knows it doesn't hurt, but as soon as she goes to that room it freaks her out. I will look for a video before her next visit. Do you know the names of any good ones? Thanks Tracey Mark Sommerfeld wrote: > Have you evert tried to get a video or something about the dentist, a > book > even, so she can look at the pictures to prepare her. Hannah would > watch a > episode of " Playschool " on t.v, and she just loved the dentist part, > and > would try to act it out for hours, woth her big sisters help. so, > sitting on > the chair, putting sunglasses on and getting teeth counted yesterday > was > somply great, though she didn't want the chair to go back much. so > next > time, i will tell the dentist to put the chair back a bit before she > sits on > it. bye cheryl > > Re: Dentist > > > I wish! Skylar is terrified of the dentist and it is a screamfest > evertime we have to take her. The dentist is great, very patient and > talks very pleasantly to her. But Skylar is still frightened. I keep > > hoping that one day she will just sit there and have her teeth > checked. > It gives me hope to know that your kids enjoy tbe dentist. Maybe > someday Sky will as well. > > Tracey > Penny wrote: > > > > > > > My daughter enjoys the dentist also!! > > > > I really need to get her in for a cleaning, just need to find > another > > dentist. :-( > > > > She does have a cavity that seems to be getting worse, but I don't > > dare to get it filled, I KNOW she won't stand for it. > > > > And if I try, I'll never get her back to the dentist. > > > > Ugh. > > > > Penny > > -------------------------------------------------------- > > " Just remember this: Plenty of Horsepower, No Traction " - R. S. > on > > > > " If a man does not keep pace with his companions, perhaps it is > because he > hears a different drummer. > > Let him step to the music he hears, however measured or far away. " > > --Henry Thoreau > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 Not off hand. i guess i could ask at my place of work, and see if they have any, or names at least. i work for the public system, so they are the ones who go around and do school visits, so they have to have the latest of things to show the kids, so they may have names of videos. Maybe try the internet, you just never know!!!! cheryl Re: Dentist > > > I wish! Skylar is terrified of the dentist and it is a screamfest > evertime we have to take her. The dentist is great, very patient and > talks very pleasantly to her. But Skylar is still frightened. I keep > > hoping that one day she will just sit there and have her teeth > checked. > It gives me hope to know that your kids enjoy tbe dentist. Maybe > someday Sky will as well. > > Tracey > Penny wrote: > > > > > > > My daughter enjoys the dentist also!! > > > > I really need to get her in for a cleaning, just need to find > another > > dentist. :-( > > > > She does have a cavity that seems to be getting worse, but I don't > > dare to get it filled, I KNOW she won't stand for it. > > > > And if I try, I'll never get her back to the dentist. > > > > Ugh. > > > > Penny > > -------------------------------------------------------- > > " Just remember this: Plenty of Horsepower, No Traction " - R. S. > on > > > > " If a man does not keep pace with his companions, perhaps it is > because he > hears a different drummer. > > Let him step to the music he hears, however measured or far away. " > > --Henry Thoreau > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2001 Report Share Posted August 15, 2001 I will check the internet. If you do find any names that would be great. Thanks Cheryl Tracey Mark Sommerfeld wrote: > Not off hand. i guess i could ask at my place of work, and see if they > have > any, or names at least. i work for the public system, so they are the > ones > who go around and do school visits, so they have to have the latest of > > things to show the kids, so they may have names of videos. Maybe try > the > internet, you just never know!!!! cheryl > > Re: Dentist > > > > > > I wish! Skylar is terrified of the dentist and it is a screamfest > > evertime we have to take her. The dentist is great, very patient > and > > talks very pleasantly to her. But Skylar is still frightened. I > keep > > > > hoping that one day she will just sit there and have her teeth > > checked. > > It gives me hope to know that your kids enjoy tbe dentist. Maybe > > someday Sky will as well. > > > > Tracey > > Penny wrote: > > > > > > > > > > > My daughter enjoys the dentist also!! > > > > > > I really need to get her in for a cleaning, just need to find > > another > > > dentist. :-( > > > > > > She does have a cavity that seems to be getting worse, but I don't > > > > dare to get it filled, I KNOW she won't stand for it. > > > > > > And if I try, I'll never get her back to the dentist. > > > > > > Ugh. > > > > > > Penny > > > -------------------------------------------------------- > > > " Just remember this: Plenty of Horsepower, No Traction " - R. S. > > on > > > > > > " If a man does not keep pace with his companions, perhaps it is > > because he > > hears a different drummer. > > > Let him step to the music he hears, however measured or far away. " > > > > --Henry Thoreau > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 I went to Tufts with Abbie and she did very well a couple of weeks ago. They told me to bring her back in three months to get her used to the procedure. The doctors were wonderful and she was scared but they calmed her down with praise and a good atmosphere. Re: Dentist > > > > > > > > > I wish! Skylar is terrified of the dentist and it > > is a screamfest > > > evertime we have to take her. The dentist is > > great, very patient and > > > talks very pleasantly to her. But Skylar is still > > frightened. I keep > > > > > > hoping that one day she will just sit there and > > have her teeth > > > checked. > > > It gives me hope to know that your kids enjoy tbe > > dentist. Maybe > > > someday Sky will as well. > > > > > > Tracey > > > Penny wrote: > > > > > > > > > > > > > > > My daughter enjoys the dentist also!! > > > > > > > > I really need to get her in for a cleaning, just > > need to find > > > another > > > > dentist. :-( > > > > > > > > She does have a cavity that seems to be getting > > worse, but I don't > > > > dare to get it filled, I KNOW she won't stand > > for it. > > > > > > > > And if I try, I'll never get her back to the > > dentist. > > > > > > > > Ugh. > > > > > > > > Penny > > > > > > > -------------------------------------------------------- > > > > " Just remember this: Plenty of Horsepower, No > > Traction " - R. S. > > > on > > > > > > > > " If a man does not keep pace with his > > companions, perhaps it is > > > because he > > > hears a different drummer. > > > > Let him step to the music he hears, however > > measured or far away. " > > > > --Henry Thoreau > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 In a message dated 6/17/02 6:30:53 PM Pacific Daylight Time, writes: > . > We just got back from the dentist; he did such a great job and even > had his first x-rays taken. His teeth looked better thanks to the Sonicare > > toothbrush we've been using. It's expensive but really does the trick for > keeping his teeth cleaner. Our next hurdle is wisdom teeth.......but the > dentist said it can wait at least a year. That's great, Bev, although I can't say the same about ....unfortunately, because of his large tongue and low muscle tone, his bottom jaw is ALWAYS open, therefore, the dentist says not enough saliva remains in the mouth to clean out any bacteria.....so, it doesn't matter how good we brush his teeth, because of this, he will always be prone to decay......in fact, when we went to the dentist last week, he had a lot more cavities than last time because of this......a back molar is in decay also! And this is a kid who has NO SWEETS and drinks NO SODAS!!! Can you imagine how much worse off he'd be if he did? They will have to knock him out for xrays, fillings, teeth pulling and cleaning. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 we just went to a new dentist for nathan a couple weeks ago, He was awesome prioritizes in special needs kids and adults, and thank god he is young soooo will be around for a long time, lol. seemed to like him and the dentist lifted him right up on the chair(big muscles lol) since as usual nathan refused, and we talked him through the papoose board but if nathan couldnt tolerate it in the least he would easily use a sedative as he has many pts with special needs. tolerated very well just got nervous everytime the nurse walked around (probably keopt thinking she was going to get something for his ears, poor little guy) He has another molar coming out soon, severe bruxism(grinding of the teeth) moderate gingivitis(cant figure this one out brushes his teeth several times a day) learned how to and that nathan actually likes his teeth to be flossed we just use those dinoflossers or sword flosser, go figure, huh, and that he has a class 3 overbite which is ok and is often better for kids like nathan when it comes to eating and talking. when we go back in 6months in december (this dentis is ouver an hour away but closer than iowa city) and then we will try his first dental xrays check for cavitities and for his personal dental record too and while he is under as we both figure he can tolerate the teeth cleaning and checks but more invasive stuff as fillings etc will need to be sedated. He was very good, i got lucky when i found him UIHC wasnt returning my phone calls and nobody local would take him. God had plans for this meeting im guessing. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 we just went to a new dentist for nathan a couple weeks ago, He was awesome prioritizes in special needs kids and adults, and thank god he is young soooo will be around for a long time, lol. seemed to like him and the dentist lifted him right up on the chair(big muscles lol) since as usual nathan refused, and we talked him through the papoose board but if nathan couldnt tolerate it in the least he would easily use a sedative as he has many pts with special needs. tolerated very well just got nervous everytime the nurse walked around (probably keopt thinking she was going to get something for his ears, poor little guy) He has another molar coming out soon, severe bruxism(grinding of the teeth) moderate gingivitis(cant figure this one out brushes his teeth several times a day) learned how to and that nathan actually likes his teeth to be flossed we just use those dinoflossers or sword flosser, go figure, huh, and that he has a class 3 overbite which is ok and is often better for kids like nathan when it comes to eating and talking. when we go back in 6months in december (this dentis is ouver an hour away but closer than iowa city) and then we will try his first dental xrays check for cavitities and for his personal dental record too and while he is under as we both figure he can tolerate the teeth cleaning and checks but more invasive stuff as fillings etc will need to be sedated. He was very good, i got lucky when i found him UIHC wasnt returning my phone calls and nobody local would take him. God had plans for this meeting im guessing. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Dear a, First of all, happy birthday to your mother! I don't have an answer about your prednisone and teeth question, but if you have a good pharmacist I find they often have the best information. Good luck! And if you don't mind, let me know what you find out. I am on prednisone too and figure it is doing a lot of damage...I know it already has effected my bone density after only a few months. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 a--He sounds like an understanding kind of guy. Did he have any ideas to help you out? What about trying fluoride either over the counter or prescription? Some medications do cause dry mouth--then your teeth are not bathed in saliva and they will be more prone to cavities and sensitivity---then the fluoride can help keep them from demineralizing. Did you try sensodyne and denquil toothpaste for the cold/hot foods?--they help a little but you have to use them for awhile before there are any benefits. Good luck -- & Mark >From: a <pjohnson@...> >Reply-Stillsdisease > " 'Stillsdisease ' " <Stillsdisease > >Subject: Dentist >Date: Tue, 8 Oct 2002 12:51:04 -0500 > >I had a very interesting dental appointment yesterday. I went in because >for the past year I have been having a problem with my teeth being >sensitive >to certain foods. Mainly cold foods such as ice cream but I also can't eat >salads or certain fruit. My teeth just ache and not just where the food >touched either. I can eat ice cream and it not start until after I'm >finished and all my teeth just throb. I've tried the toothpaste made just >for that problem but nothing has helped. This is a new dentist (right in >the bldg., where I work, plus my boss goes to him) so I had to go through >my >entire medical history with him. While discussing the medications I am on, >he had a theory that maybe my problem with my teeth is not just a >sensitivity issue, but maybe my teeth would hurt more, if not all the time, >if it weren't for the pain medication I am on. Maybe the medication is >masking the pain in my teeth until the cold foods make it worse. Does that >make sense to any of you? I understood exactly what he was saying, but >I've >just never heard of anyone's teeth hurting. By the way, Saturday my sister >had a birthday party for my mother who turned 79 yesterday. My mother >swears that prednisone ruined her teeth. She was only on it for a year but >she say's it still made her teeth brittle. Can prednisone cause damage >like >that in only a year's time? > > > > > >a , Administrative Assistant >Faribault Foods, Inc. >3380 Piper Jaffray Tower >222 South 9th Street >Minneapolis, MN 55402 > >Tele: 612-333-6461 >Fax: 612-342-2908 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 a & , I fully understand the " tooth issue " as a result of prednisone. As a matter of fact, I posed this question to the group not too long ago (does prednisone affect teeth), and most of the people here have the same problem. Although there is no medical " evidence " that prednisone changes tooth structure, it HAS caused allot of us to either have our teeth crack, shatter, become very sensitive, etc. I don't have any answers as to what can/will help. I also, have tried various toothpastes aimed for sensitive teeth, but have gotten nowhere. with love, Chris greywolf70@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 a, funny you should mention the cold intolerance! I've been having the same thing. It's very uncomfortable because all of a sudden the whole mouth screams in pain. It's not an immediate response either. I've just been to the dentist this last month. All my life up until now, I've only sustained 3 cavities. This year after being on methylprednisolone for a year, I " sprung " up with 4 new cavities and have to have sealant put on yet for protection. My dentist didn't exactly say that this was prednisone-related, but he didn't seem surprised by it either. We're waiting to see if once all the dental work is done whether the sensitivity will go away or at least diminish. Thinking about it myself, it could be the jaw bone itself that is the source of discomfort. After all, steroids destroy normal bone tissue. It may be that our jawbones are now another casualty of this stupid Stills! Glad to know I'm not alone in experiencing this, but isn't it frustrating! I feel it and I'm on a 50 mcg Duragesic patch and oxycodone for break-through pain. This pain doesn't seem to be much effected by the pain meds though. I used to chew ice and Popsicle's most of my life. Friends also thought it was amazing I could do that. Maybe my jawbone isn't as strong anymore and more porous so the nerve endings are exposed more. I'll try to keep you up to date on what I find out, and would appreciate it if you find out something too! Not that this is a " biggie " on our list of aches, pains and out-of-the-blue strange symptoms, but a little more comforting that it may have a mutual cause within our group. Take care, (aka Jools or Juls) (lilac_rose@... ) Dentist I had a very interesting dental appointment yesterday. I went in because for the past year I have been having a problem with my teeth being sensitive to certain foods. Mainly cold foods such as ice cream but I also can't eat salads or certain fruit. My teeth just ache and not just where the food touched either. I can eat ice cream and it not start until after I'm finished and all my teeth just throb. I've tried the toothpaste made just for that problem but nothing has helped. This is a new dentist (right in the bldg., where I work, plus my boss goes to him) so I had to go through my entire medical history with him. While discussing the medications I am on, he had a theory that maybe my problem with my teeth is not just a sensitivity issue, but maybe my teeth would hurt more, if not all the time, if it weren't for the pain medication I am on. Maybe the medication is masking the pain in my teeth until the cold foods make it worse. Does that make sense to any of you? I understood exactly what he was saying, but I've just never heard of anyone's teeth hurting. By the way, Saturday my sister had a birthday party for my mother who turned 79 yesterday. My mother swears that prednisone ruined her teeth. She was only on it for a year but she say's it still made her teeth brittle. Can prednisone cause damage like that in only a year's time? a , Administrative Assistant Faribault Foods, Inc. 3380 Piper Jaffray Tower 222 South 9th Street Minneapolis, MN 55402 Tele: 612-333-6461 Fax: 612-342-2908 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 Dear Thanks for the support! I think this whole medicine thing is getting to me! What helps with pain causes new problems; other things don't help, etc. I'm stressed about it today! have a good day, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 , What you are saying about the jaw bone actually may have truth to it. I for one have arthritis in my jaw from the Stills. It could be that the stiffness, inflammation, etc. do have a large impact on the jaw structure which could influence the teeth. Of course, I may be 100% wrong! Love, leslie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2002 Report Share Posted October 10, 2002 In a message dated 10/8/02 8:39:45 PM Eastern Daylight Time, greywolf70@... writes: > a & , > > I fully understand the " tooth issue " as a result of prednisone. As a > matter of fact, I posed this question to the group not too long ago (does > prednisone affect teeth), and most of the people here have the same > problem. Although there is no medical " evidence " that prednisone changes > tooth structure, it HAS caused allot of us to either have our teeth crack, > shatter, become very sensitive, etc. > > I don't have any answers as to what can/will help. I also, have tried > various toothpastes aimed for sensitive teeth, but have gotten nowhere. > > with love, > Chris > > I have the same problem with my teeth. I use a toothpaste called Enamelon. It is no longer made, but you can find it on ebay periodically. I have stacks of it at home with hopes that I never run out. I don't know what I'll do if I do. It's wonderful stuff and is the only thing that's ever helped. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 I had a similar experience with my daughter, Sierra, she is 11 now (pdd/nos). She has to go to the hospital for almost all dental procedures. She will allow them to clean her teeth but it is a HUGE process and takes forever. Last week we had an incident at school. She attends Parsons Elementary in Suwannee. She came home from school unable to get off the buss without assistance because her kneww was VERY swollen. I saw a note in her bag from the teacher that said this: "Sierra had a bad day in school today. She screamed most of the morning and refused to complete her work. Please speak with her (thats my favorite part of the note) Before dismissal today, Sierra bumped into the wall with her left Knee". I never got a phone call. But Sierra was unable to work and had to be taken to CHOA in duluth. After 4 hours of fighting with her for xrays and having to carry her in and out of the car. The nurse suggessted we go to Egelston to have her sedated for xrays since she had fluid surrounding her knee cap. Needless to say we spent 8 long hours the next day at egelston and had to give her liquid valium (which she spit EVERYWHERE) to get xrays. Nothing is broken but she is in a knee brace to keep her leg straight and we do have to go to an orthopedic next week. I am not sure how she "bumped her knee" so hard into a wall to have possibly damaged some cartiledge and may possibly need an MRi (good luck with that). And why did she ask me to "speak with her" what am I supposed to say?? The first day I met this teacher I was already very frustrated because after moving to Norcross and going to Meadowcreek, which would have been her home school, they said she would be going to Elementary. I went there and enrolled her. So when I went there on orientation day...they informed me they had been moved to Parsons (thanks for the phone call about that). Then I met the teacher. She has taught special ed before, but never Autistic children. So I give her as much information as I can about Sierra. I filled out all the paperwork to have her records brought from e County Schools, I gave them a copy of her current IEP. And I also told her that SIerras behavior has changed some since she gets emotional very easily and is about to turn 12 and VERY close to puberty. Everytime she has an outburst or a "bad day" at school I get notes that I should "speak with her"...I dont understand. Sorry for yapping...I needed to vent, Thanks for reading Shelby mother of Sierra <tylerhaley01@...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 That's OK. Vent away. That is what I did. Sorry to hear about her knee. I would be so mad. I would have to "talk" to the teacher much like she wants you to talk to your daughter. It kills me the special ed teachers that haven't dealt with autistic children. Tyler's teacher last year was that way. Every time he had a day where he wasn't in a good mood they would call because they thought he was getting sick and would want me to come and get him. After the third time is as many weeks I told them "OK Now he is just on to you. He knows when he acts this way Mommie comes to get him. Don't call me unless he has a fever or is throwing up." They always thought he was getting sick because one day he was having a bad day and they took him to the sensory room to swing to calm him down. After a few minutes of swinging he threw up. First of all it was probably from the swinging and second of all there have been times when he would throw up because he was so upset. He didn't throw up any more after I picked him up so it was something along those lines. So, anyway, after that day they thought if he was having a bad day then he must be sick. Ugh. The things we have to go through. -- Re: Dentist I had a similar experience with my daughter, Sierra, she is 11 now (pdd/nos). She has to go to the hospital for almost all dental procedures. She will allow them to clean her teeth but it is a HUGE process and takes forever. Last week we had an incident at school. She attends Parsons Elementary in Suwannee. She came home from school unable to get off the buss without assistance because her kneww was VERY swollen. I saw a note in her bag from the teacher that said this: "Sierra had a bad day in school today. She screamed most of the morning and refused to complete her work. Please speak with her (thats my favorite part of the note) Before dismissal today, Sierra bumped into the wall with her left Knee". I never got a phone call. But Sierra was unable to work and had to be taken to CHOA in duluth. After 4 hours of fighting with her for xrays and having to carry her in and out of the car. The nurse suggessted we go to Egelston to have her sedated for xrays since she had fluid surrounding her knee cap. Needless to say we spent 8 long hours the next day at egelston and had to give her liquid valium (which she spit EVERYWHERE) to get xrays. Nothing is broken but she is in a knee brace to keep her leg straight and we do have to go to an orthopedic next week. I am not sure how she "bumped her knee" so hard into a wall to have possibly damaged some cartiledge and may possibly need an MRi (good luck with that). And why did she ask me to "speak with her" what am I supposed to say?? The first day I met this teacher I was already very frustrated because after moving to Norcross and going to Meadowcreek, which would have been her home school, they said she would be going to Elementary. I went there and enrolled her. So when I went there on orientation day...they informed me they had been moved to Parsons (thanks for the phone call about that). Then I met the teacher. She has taught special ed before, but never Autistic children. So I give her as much information as I can about Sierra. I filled out all the paperwork to have her records brought from e County Schools, I gave them a copy of her current IEP. And I also told her that SIerras behavior has changed some since she gets emotional very easily and is about to turn 12 and VERY close to puberty. Everytime she has an outburst or a "bad day" at school I get notes that I should "speak with her"...I dont understand. Sorry for yapping...I needed to vent, Thanks for reading Shelby mother of Sierra <tylerhaley01@...> wrote: Well, I took Tyler to the dentist today. It was an experience. We weren't even there 20 minutes. We were in the waiting room long enough to get the paper work filled out and then they called us back. He got upset just when he saw the chair and we weren't even in the door good. He kept saying "Momma's car. Go bye-bye!" I sat in the chair to hold him while the dentist looked at his teeth. I had to hold him against me and I could feel his little heart pounding. She tried to look in his mouth but he wouldn't let her. She looked with the little mirror thing and said that she didn't see any cavities but with it being his first visit ever they wanted to x-ray him. Yeah, right. As soon as she got the tab in his mouth (after prying open his teeth) he would spit it back out. She finally said that we would just have to go to an office in Lilburn where they can sedate him if necessary. She put on the referral form that he spit out the x-ray slide and was kicking (which he was). She said "Now this is going to sound bad. I don't want you to think that he kicked me because he didn't. I just want them to be prepared since he was kicking. I don't want you to think badly of that remark." I told her that I didn't and I would rather her be honest so that the next dentist could be prepared. So that is how our first dentist visit went. She was very nice and patient with him, though. He even got a little toy bug that he has clung to ever since. So, to end this, I would just like to take a moment to thank the CDC, IOM and all the vaccine manufacturers for making a simple thing like a dental check up and cleaning into such an ordeal. My son has to be sedated just to have his teeth cleaned thanks to these kind folks. Let's give them a big round of applause, shall we?JERKS!!!!!!!!!!!!!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Infection risk. Sorry I should have been more clear. None of the kids are very anxious...oddly enough. Dayna S Fladhammer Sent from T-Mobil MDA Re: dentist Dayna - premedicate for infection risk or anxiety? Ursula dentist Hi everyone! I'm wondering if anyone can share their experience with me about dentists. All three kid are going in for a check up, and I believe Kate has a cavity. Does anyone premedicate? What do you use? I seem to remember a discussion along these lines a few year ago. Charlie has seen a dentist, but Kate and Tom never have. Charlie only had an exam, and didn't need anything. Any ideas? Thanks so much! Dayna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Thanks, . I actually thought of that last night - the possible reward-dentist connection. I'm going to try suggesting this and see if he thinks this might " sweeten the pot " in helping him fight. I don't know though. We actually did this with a hair cut a while back (fear of scissors cutting him). The dentist fear seems pretty well settled in him - not the actual dentist but his utensils. The reward suggestion is certain worth a try though. Oh, and did I mention - his side of the car is the right side - LOL. This has been like forever. In a message dated 12/19/2005 10:38:12 PM Eastern Standard Time, cjoye16@... writes: I don't know how receptive your son might be to some of these ideas, but maybe with his help, you could turn the exposure into a sort of game, with a cool reward if he accomplishes the goal he sets for himself. in Southeastern PA Quote Link to comment Share on other sites More sharing options...
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