Re: Re: bellybutton rubbing

[Guest guest]

Charolette,

I called the company for the fish oils like you suggested, they are mailing me a sample (4-6 weeks). They said a natural food store in my town sells it and has samples too. I am going to go down there (maybe tomorrow, we just had another snow storm last night).

Is it cost effective to order them online or is it usually cheaper in the stores. The site said shipping is free over $20 I think.

Do you know if their orange flavor is an artificle flavoring?

Did you take him off gluten and casin also?

We found Caleb does react when on vanillin (which is hidden in weird places).

We don't like the local natural food store but they are the only ones that carry sundrops and other good stuff we use.

thankyou,

JaneJANE MAJEWSKI <janemajewski@...> wrote:

Thankyou so much for this information. I think I just wrote another email question about this before reading yours.

I am going to go to those sites and look into this.

Janedesigns <scottdesigns@...> wrote:

The important components of fish oil are EPA and DHA. The difference between the fish and flax is that the fish oil starts out having the EPA/DHA and the body has to convert the flax oil to EPA/DHA.

My son's psychiatrist has him on 1000EPA's 700DHA's a day for anxiety and depression prevention. There are 2 brands which are known for their quality and purity, Coromega is orange flavor with no fishy taste and can be easier to get into kids.

www.coromega.com

www.nordicnaturals.com

-Charlotte

Re: Re: bellybutton rubbing

This is going to sound terrible but I don't know if it is irritated or aroused?

The geneticist saw him last week. When I told her he stimmed there she said she could see that cause his nipples were pronounced. I don't know how to explain it except that it kind of looks like when a girl begins puberty only smaller.

I did not think you were making light of it. We find ourselves constantly confused by different things with Caleb. Sensory integration issues are new to me. He is terrified of car washes like to a point where he acts like someone is trying to kill him. We don't even suggest it any more. He won't let me cut his hair or nails. He used to let me when he was sleeping but now even that wakes him up. He is afraid to go on anything that moves or makes noises. Sometimes he hears noises that we don't. Sometimes he thinks places move that don't. He was terrified the time we brought the car to get a tire fixed. He thought the garage was like a car wash we think. I took him on a short ferry ride across the Connecticut River; he was absolutely out of control with fear. Things that my other children found enjoyable I have to think about before doing. If I did not know how safe his life has been; I would think he has post traumatic stress order or something.

I thought these were common autistic behaviors, maybe I'm wrong?

Anyway, yes as soon as the OT tells me what is up; I will let you know.

JaneSara Woosley <sjwoosley@...> wrote:

That's terrible that he does it so much his skin getsirritated. I wasn't trying to make light of it! I'dbe interested to know what you find out . . .Sara --- JANE MAJEWSKI <janemajewski@...> wrote:> > I don't know if kids grow out of it. When my husband> was talking to his boss about some symptoms Caleb> has that might make him autistic, he told her about> the nipples. She said, "really, my girlfriend's son> (who is about the same age and developing normally)> just asked his mother last week if he could cut off> his nipples. His mother was mortified until he> replied, "I don't need them anymore I am getting> bigger" . . . . .he used to rub his too but he> stopped.> > The professionals tell me it is a "stim" things to> calm

him down or bring stimulation to him if his> body is not getting enough stimulation. > > We are still waiting for the OT to do evaluations so> we do not know.> > I am praying he out grows it, it makes his nipples> puffy because of it. I worry someone will think> weird things too. Fortunately he does it at every> doctors appointment because he is nervous there. But> it is hard explaining it to people. I used to buy> onesie t-shirts (shirts with snaps under his diaper)> so he could not get them. Now he is a size 5 and> they don't make them. It drives me nuts. > I want him to stop but I am told that if I stop one> stim behavior without fixing the reason he is doing> it that another behavior will start. I dread it> being something worse like picking or biting> himself, so I 've decided to ignore it until we meet> with the

OT.> > Jane> Sara Woosley <sjwoosley@...> wrote:> LOL - I'm glad she doesn't rub her nipples! Being a> girl, people would really wonder about my family,> wouldn't they?> > Is this something kids just grow out of? I guess> it's> not a big deal but it seems kind of weird to me. > It's> really no different from thumb-sucking, I guess.> > Sara > --- JANE MAJEWSKI <janemajewski@...>> wrote:> > > my son rubs his nipples. usually when he is> nervous> > or over stimulated or tired.> > jane> > > > <Luvourlives@...> wrote:> > > > That is interesting. I haven't heard of rubbing> that> > particular > > area, but I think it is similar to other self> > soothing techniques > > like rubbing

ones hair.> > > > > > > > > > > Do any of your children rub their bellybutton> for> > > calming? My 2 year old dd does this. Is there> > any> > > significance to this or is it just one of those> > > things? Whenever she's upset, she HAS to rub> her> > > bellybutton or she gets more upset.> > > > > > This sounds silly but I don't know anyone else> > whose> > > child does this - or maybe I do but how do you> > ask?> > > > > > Thanks,> > > Sara > > > > > > > > > > > > __________________________________

> > > Do you ? > > > - Find what you need with new> enhanced> > search.> > > http://info.mail./mail_250> > > > > > > > > >

[Guest guest]

Jane,

I would get the sample from the natural food store as you may never see it through the company lol. Unfortunately, the Coromega DOES have vanillin in it but that is the only artificial ingredient. You may want to weigh the value of actually being able to get it into him (because of the flavor) against the severity of his reaction to the vanillin. My son did not have an issue with the vanillin although as a practice I buy all natural vanilla for baking.

Unless your child can swallow a pill, the coromega is the least offensive fish oil available, no fishy taste or burps. The Nordic Naturals liquid smells nasty but since my son has no sense of smell he can get it down!

As for the GF/CF diet, we did do it for about 2 months and saw nothing other than a reduction in belly aches. It was REALLY expensive and I had to drive 45 minutes every week just to get his food. After 2 months I added the wheat back in to see what would happen, again no change. I tried however to add dairy back in but the stomach aches returned, so we left milk out of the picture. Behaviorally speaking there was no change on or off the diet, but I know others who have had more success. Mostly with young non-verbal PDD kids.

-Charlotte

Re: Re: bellybutton rubbing

This is going to sound terrible but I don't know if it is irritated or aroused?

The geneticist saw him last week. When I told her he stimmed there she said she could see that cause his nipples were pronounced. I don't know how to explain it except that it kind of looks like when a girl begins puberty only smaller.

I did not think you were making light of it. We find ourselves constantly confused by different things with Caleb. Sensory integration issues are new to me. He is terrified of car washes like to a point where he acts like someone is trying to kill him. We don't even suggest it any more. He won't let me cut his hair or nails. He used to let me when he was sleeping but now even that wakes him up. He is afraid to go on anything that moves or makes noises. Sometimes he hears noises that we don't. Sometimes he thinks places move that don't. He was terrified the time we brought the car to get a tire fixed. He thought the garage was like a car wash we think. I took him on a short ferry ride across the Connecticut River; he was absolutely out of control with fear. Things that my other children found enjoyable I have to think about before doing. If I did not know how safe his life has been; I would think he has post traumatic stress order or something.

I thought these were common autistic behaviors, maybe I'm wrong?

Anyway, yes as soon as the OT tells me what is up; I will let you know.

JaneSara Woosley <sjwoosley@...> wrote:

That's terrible that he does it so much his skin getsirritated. I wasn't trying to make light of it! I'dbe interested to know what you find out . . .Sara --- JANE MAJEWSKI <janemajewski@...> wrote:> > I don't know if kids grow out of it. When my husband> was talking to his boss about some symptoms Caleb> has that might make him autistic, he told her about> the nipples. She said, "really, my girlfriend's son> (who is about the same age and developing normally)> just asked his mother last week if he could cut off> his nipples. His mother was mortified until he> replied, "I don't need them anymore I am getting> bigger" . . . . .he used to rub his too but he> stopped.> > The professionals tell me it is a "stim" things to> calm him down or bring stimulation to him if his> body is not getting enough stimulation. > > We are still waiting for the OT to do evaluations so> we do not know.> > I am praying he out grows it, it makes his nipples> puffy because of it. I worry someone will think> weird things too. Fortunately he does it at every> doctors appointment because he is nervous there. But> it is hard explaining it to people. I used to buy> onesie t-shirts (shirts with snaps under his diaper)> so he could not get them. Now he is a size 5 and> they don't make them. It drives me nuts. > I want him to stop but I am told that if I stop one> stim behavior without fixing the reason he is doing> it that another behavior will start. I dread it> being something worse like picking or biting> himself, so I 've decided to ignore it until we meet> with the OT.> > Jane> Sara Woosley <sjwoosley@...> wrote:> LOL - I'm glad she doesn't rub her nipples! Being a> girl, people would really wonder about my family,> wouldn't they?> > Is this something kids just grow out of? I guess> it's> not a big deal but it seems kind of weird to me. > It's> really no different from thumb-sucking, I guess.> > Sara > --- JANE MAJEWSKI <janemajewski@...>> wrote:> > > my son rubs his nipples. usually when he is> nervous> > or over stimulated or tired.> > jane> > > > <Luvourlives@...> wrote:> > > > That is interesting. I haven't heard of rubbing> that> > particular > > area, but I think it is similar to other self> > soothing techniques > > like rubbing ones hair.> > > > > > > > > > > Do any of your children rub their bellybutton> for> > > calming? My 2 year old dd does this. Is there> > any> > > significance to this or is it just one of those> > > things? Whenever she's upset, she HAS to rub> her> > > bellybutton or she gets more upset.> > > > > > This sounds silly but I don't know anyone else> > whose> > > child does this - or maybe I do but how do you> > ask?> > > > > > Thanks,> > > Sara > > > > > > > > > > > > __________________________________ > > > Do you ? > > > - Find what you need with new> enhanced> > search.> > > http://info.mail./mail_250> > > > > > > > > >