Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 Donna...... TOTALLY!! Even today (what one day after dx??) I was feeling those same exact things!! Right up until I got the email from the guidance councilor of the school and he was telling me what an accurate diagnosis this was for my son...and this man has known him since he was 6!! Good days, bad days, strange days, "normal" days, good behavior, bad behavior, strange behavior and normal behavior...its all part of both having this disorder AND being a kid. You are not alone at all, normal quirky kids is what they are...it just has a name!! Do you ever.. ..have one of those moments, where even for a few minutes, you stop and think 'maybe my child's not on the spectrum? maybe he's just quirky? have I done something wrong by labelling him and putting him 'in the system? Will this come back to haunt him later at all?' Or am I just having a weird moment? I look at him, and right now he's wanting me to spin with him, his little fingers are flapping, and everything today has to be on his 'plan,' as in we have to play with him how he wants us to play, he's eating one of his favorite 8 foods, and he's totally happy staying home instead of going to Lent service in the kids' area. Clearly, there are issues...but what if he's just quirky? Last week was really bad, up through Monday, in fact. Yesterday and today, not much going on other than things like the above..and some temper tantrums, inappropriate anger for little things. Am I alone feeling like this? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 here here! too was having those doubts this morning as I was walking DS to preschool. I totally think of that at least once a day! I agree with this statement: Good days, bad days, strange days, " normal " days, good behavior, bad behavior, strange behavior and normal behavior...its all part of both having this disorder AND being a kid. I guess we can pray for good days, live through the bad days, and do whatever we can to intervene and help our child work towards " normalcy " whatever that is! D. Marie Ralstin- University of Oregon Graduate Teaching Fellow, Department of Sociology Native American Event Coordinator, Office of Admissions 717 PLC Hall Eugene, Oregon 97403 541-346-5071 dralstin@... http://gladstone.uoregon.edu/~dralstin/ Not everything that can be counted counts and not everything that counts can be counted. -Albert Einstein Letting a maximum number of views be heard regularly is not just a nice philosophical notion. It is the best way any society has yet discovered to detect maladjustments quickly, to correct injustices, and to discover new ways to meet our continuing stream of novel problems that rise in a changing environment. -Ben Bagdikian When a well-packaged web of lies has been sold gradually to the masses over generations, the truth will seem utterly preposterous and its speaker a raving lunatic. - Dresden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 I think about it every day. I think "What if Cameron is completely normal- he's just a normal 4 year old boy and I am just "seeing" these things because I have done so much research, or I'm seeing it because I want an explanation" I'm told all the time by my mom that Cameron is just a normal boy, that the things he does is part of being a boy, that is how boys are "programmed". And I feel like I'm just looking for something to stick my kid with. What if I do all this and get the labels and Cameron grows up and really IS just a normal person. What am I doing? Yeah... I think it all the time. Anne -- Do you ever.. ..have one of those moments, where even for a few minutes, you stop and think 'maybe my child's not on the spectrum? maybe he's just quirky? have I done something wrong by labelling him and putting him 'in the system? Will this come back to haunt him later at all?' Or am I just having a weird moment? I look at him, and right now he's wanting me to spin with him, his little fingers are flapping, and everything today has to be on his 'plan,' as in we have to play with him how he wants us to play, he's eating one of his favorite 8 foods, and he's totally happy staying home instead of going to Lent service in the kids' area. Clearly, there are issues...but what if he's just quirky? Last week was really bad, up through Monday, in fact. Yesterday and today, not much going on other than things like the above..and some temper tantrums, inappropriate anger for little things. Am I alone feeling like this? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Hi /Oregon! I live in Oregon too, in Springfield, next to Eugene and the U of O. Where are you? We also have another member in Oregon, Marie I think, she is a graduate student at the U of O, not far from me. Well the thought that comes to my head is that can't an autistic child ALSO have a lot of normal behaviors too? I have a grandson I take care of and he is kind of quirky, but I would not want to label him with anything. For example he likes to talk to strangers, a LOT, and is very very picky about the food he eats. When he was younger, he is 4 now, if a cookie had a CRACK in it he would REFUSE to eat it. I mean he would have screaming fits rather than eat it, I had to get him another cookie! Lots of things like that. I just attribute it to his own unique personality. And I have another grandson who is also rather odd in a different way. He is very bright and reserved, cannot talk to me on the phone at all, if his dad makes him he gets very upset and stutters as though his thoughts won't come to him fast enough to get the words out. He is 6 and can read at a 4th grade level already, devours books with great understanding it appears. I don't see him as often as the 4 year old and have tried to get close to him, but it has not been easy. Anyway both he and his sister, and the two I take care of are VERY different in how they behave. For example the older girl who is 8 now, has NO sense of humor. All four of them stayed with me over Christmas, and she is so serious it kind of scares a person. I got her a princess and pauper Barbie doll, just like I did her cousin, and she told me she HATED Barbie dolls and was going to give it to the FREE toy give away at their church! On the other hand, the other cousin, the one I care for, went to the mom who had gotten her a gift, and thanked her in exact detail for every little item. It was an art project, and she really went into detail. And she absolutely LOVED the princess and pauper Barbie dolls I gave her, gave them each the movie too. I have found that kids are funny any way you look at them, all are different, and are very fun and interesting. Well love to you all and best wishes with all your challenges, got to go and get my little guy from play school and he is going to be mighty upset because we cannot go to Goodwill, on account of I have to go and pick my 86 year old mom up and take her to the store. His mom is off this week, so will take him home. Carolyn in Oregon Do you ever.. Count me in! More days than not. Oregon I think about it every day. I think "What if Cameron is completely normal- he's just a normal 4 year old boy and I am just "seeing" these things because I have done so much research, or I'm seeing it because I want an explanation" I'm told all the time by my mom that Cameron is just a normal boy, that the things he does is part of being a boy, that is how boys are "programmed". And I feel like I'm just looking for something to stick my kid with. What if I do all this and get the labels and Cameron grows up and really IS just a normal person. What am I doing? Yeah... I think it all the time. Anne ..have one of those moments, where even for a few minutes, you stop and think 'maybe my child's not on the spectrum? maybe he's just quirky? have I done something wrong by labelling him and putting him 'in the system? Will this come back to haunt him later at all?' Or am I just having a weird moment? I look at him, and right now he's wanting me to spin with him, his little fingers are flapping, and everything today has to be on his 'plan,' as in we have to play with him how he wants us to play, he's eating one of his favorite 8 foods, and he's totally happy staying home instead of going to Lent service in the kids' area. Clearly, there are issues...but what if he's just quirky? Last week was really bad, up through Monday, in fact. Yesterday and today, not much going on other than things like the above..and some temper tantrums, inappropriate anger for little things. Am I alone feeling like this? Donna Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.