Venting

[Guest guest]

There is no fighting policies in school, no matter whose fault it is. I feel your frustration. Sandy

Venting

Hi,I have not participated in this group much lately except to read some of the posts off and on, Annie probably will remember me I'm the other person from Albuquerque. I am mom to a wonderful, frustrating, brilliant Autistic son named that is 14 yo. Anyways-Schools are so hard to deal with!! I am so sick of them!! They allowed my son to be bullied until he struck back and he gets put on an in school suspension!! I told the school (which I have so supported the administration for 3 years now) I disagreed with punishing the one getting bullied and the one that was hurt prior to the fight by being hit in the head by the other boy's binder the same way the brat bullying my son was. They won. I wrote a letter stating my position and sent it to the state dept of special ed, the supertindent of schools, the head of special head as well as to the principal once again stating my disagreement with the treatment my son received-by the way did I mention his arm was in a cast at the time-and asked for an apology. I let them know a few days ago I have an attorney retained (over so much more than this)and today I receive a certified letter from the principal discounting my concern over this and saying she hoped we could all work together on his FBA and BIP we are doing next Wed. I hate that Barbie doll want to be so much, she gets away with letting my son get hurt and does her usual sickly sweet smile at me at all the addendums we have been doing. The schools here are so awful, the only small self contained classroom that is available is ED-my son is NOT ED he is Autistic! My son has a 140 plus IQ and is brilliant in so many different areas, he fails to do some menial thing like push his chair in during class and he has to eat lunch staring at the wall in front of his desk,are they stupid they make an autistic child be by himself for 30 min for an entire week? He knows how to be by himself he needs to learn to socialize, to watch and learn peer norms, proper peer language. They fail to provide education for his giftedness, or a teacher smart enough to converse with him on his level. That thinks because he is gifted in areas he doesn't need help when he asks for it in grammer and tells him to read it again. Get a clue woman..he doesn't get Grammer!! They want to keep him in ED for High School next year continueing to send the message to my beautiful son that he is emotionally disturbed-he isn't, he is autistic and needs a small classroom for the majority of his classes-somewhere to call home at school. That way he can venture out with the NTs for 3 classes and know he has the safety of HIS classroom to come back to. He doesn't need to be with the kids who visit the detention center he needs to be with other awkward different teens that don't quite fit the "norm". Why do I have to retain atorneys, file law suits, yell , scream, go to 20 of their meetings? Why can't they just provide a safe enviroment, protect him and teach him? There is one like him but so different at the same time in every 150 kids out there! What happens to the ones whose moms don't know IEP laws, who are intimidated by THEM, whose family's don't have the money or time for other therapies and have to rely on just the schools. I will sue the schools, I will fight the administrators, I will fight to change the status quo in public education and I will help change things for those coming up. Thank-you for letting me rant, I really needed it! Tough week!Dana-the very proud mother of a 14 yo Autistic person, a beautiful 25 yo teacher of autistic kindergartners, and Talia a 24 yo young woman out to change the world as we know it.

[Guest guest]

Problem is that bullies are usually so good at being sneaky teachers don't tend to see what they're up to until the victim gets mad enough to strike back. Good kids aren't so sneaky, so they do something which gets them caught. If he fought back, chances are excellent the bully will leave him alone now. That happens to a lot of boys. It sounds like you are doing everything right, even though you shouldn't have to. Good luck!Dana <dsherrera@...> wrote: Hi, I have not participated in this group much lately except

to read some of the posts off and on, Annie probably will remember me I'm the other person from Albuquerque. I am mom to a wonderful, frustrating, brilliant Autistic son named that is 14 yo. Anyways-Schools are so hard to deal with!! I am so sick of them!! They allowed my son to be bullied until he struck back and he gets put on an in school suspension!! I told the school (which I have so supported the administration for 3 years now) I disagreed with punishing the one getting bullied and the one that was hurt prior to the fight by being hit in the head by the other boy's binder the same way the brat bullying my son was. They won. I wrote a letter stating my position and sent it to the state dept of special ed, the supertindent of schools, the head of special head as well as to the principal once again stating my disagreement with the treatment my son received-by the way did I mention his arm was

in a cast at the time-and asked for an apology. I let them know a few days ago I have an attorney retained (over so much more than this)and today I receive a certified letter from the principal discounting my concern over this and saying she hoped we could all work together on his FBA and BIP we are doing next Wed. I hate that Barbie doll want to be so much, she gets away with letting my son get hurt and does her usual sickly sweet smile at me at all the addendums we have been doing. The schools here are so awful, the only small self contained classroom that is available is ED-my son is NOT ED he is Autistic! My son has a 140 plus IQ and is brilliant in so many different areas, he fails to do some menial thing like push his chair in during class and he has to eat lunch staring at the wall in front of his desk,are they stupid they make an autistic child be by himself for 30 min for an entire week? He

knows how to be by himself he needs to learn to socialize, to watch and learn peer norms, proper peer language. They fail to provide education for his giftedness, or a teacher smart enough to converse with him on his level. That thinks because he is gifted in areas he doesn't need help when he asks for it in grammer and tells him to read it again. Get a clue woman..he doesn't get Grammer!! They want to keep him in ED for High School next year continueing to send the message to my beautiful son that he is emotionally disturbed-he isn't, he is autistic and needs a small classroom for the majority of his classes- somewhere to call home at school. That way he can venture out with the NTs for 3 classes and know he has the safety of HIS classroom to come back to. He doesn't need to be with the kids who visit the detention center he needs to be with other awkward different teens that don't quite fit the

"norm". Why do I have to retain atorneys, file law suits, yell , scream, go to 20 of their meetings? Why can't they just provide a safe enviroment, protect him and teach him? There is one like him but so different at the same time in every 150 kids out there! What happens to the ones whose moms don't know IEP laws, who are intimidated by THEM, whose family's don't have the money or time for other therapies and have to rely on just the schools. I will sue the schools, I will fight the administrators, I will fight to change the status quo in public education and I will help change things for those coming up. Thank-you for letting me rant, I really needed it! Tough week! Dana-the very proud mother of a 14 yo Autistic person, a beautiful 25 yo teacher of autistic kindergartners, and Talia a 24 yo young woman out to change the world as we know it. 732.274.4374 (Work)732.691.1443 (Cell)509.562.8383 (fax)

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

We have a 14 yo son with Aspergers and I know where you are coming

from on this. Bless your heart for standing up for your son because

he deserves to be treated fairly in terms of his disability.

We have been though the same sorts of things with our public school

system. Suspension was like a reward to our son because he just

wanted to get away from the whole scene. He hated school and never

wanted to go back. It shouldn't have to be this way if everyone

(staff, students, and parents)where more educated and understanding

about Aspergers syndrome. The other issue is of course the schools

budget. With the VA budget crisis things have really gone down hill

as far as staffing and training. Also the teachers are spending so

much time on SOL prep and testing that a lot slips by them.

Often the staff don't even know what is happening during incidents of

aggression or bullying. IDEA is often a big flop instead of a FAPE.

Least Restrictive Environment turns into program to isolate and

segregate our socially needy children,and along with this the parents

can end up isolated as well and labeled as trouble makers because

they advocate for a better environment, training, and services.

You can tell I am on a rant as well but it is very frustrating.

We did think about getting a lawyer involved as well but instead we

accepted an alternative placement for our son to a private school

that has a wonderful environment for children on the spectrum.

Our son is now doing ok academically and is slowly progressing

socially too. He is developmentally delayed and it will take time

before he is socially able to fit in. The public school still does

not have a program that would be understanding and tolerant of his

needs so I am praying to God that he does not have to go back unless

they are ready and he is ready.

I have a question for you. Has your special ed IEP team ever

suggested an alternative placement? You might take that escape rout

if it is available. Our sons private school expense is covered by the

county planning team. Talk to your legal counsel about it and see

what they think. Also you might talk to a Autism Advocacy group about

it.

There are agencies out there that do understand and will help,

believe it or not. The trick is to find one that is not in bed with

the LEA.

I know of some in VA but I am not sure where you are from.

Contact me off list if you want.

>

> Hi,

> I have not participated in this group much lately except to read

> some of the posts off and on, Annie probably will remember me I'm

> the other person from Albuquerque. I am mom to a wonderful,

> frustrating, brilliant Autistic son named that is 14 yo.

> Anyways-Schools are so hard to deal with!! I am so sick of them!!

> They allowed my son to be bullied until he struck back and he gets

> put on an in school suspension!! I told the school (which I have

so

> supported the administration for 3 years now) I disagreed with

> punishing the one getting bullied and the one that was hurt prior

to

> the fight by being hit in the head by the other boy's binder the

> same way the brat bullying my son was. They won. I wrote a letter

> stating my position and sent it to the state dept of special ed,

the

> superintend of schools, the head of special head as well as to the

> principal once again stating my disagreement with the treatment my

> son received-by the way did I mention his arm was in a cast at the

> time-and asked for an apology. I let them know a few days ago I

> have an attorney retained (over so much more than this)and today I

> receive a certified letter from the principal discounting my

concern

> over this and saying she hoped we could all work together on his

FBA

> and BIP we are doing next Wed. I hate that Barbie doll want to be

> so much, she gets away with letting my son get hurt and does her

> usual sickly sweet smile at me at all the addendums we have been

> doing. The schools here are so awful, the only small self

contained

> classroom that is available is ED-my son is NOT ED he is Autistic!

> My son has a 140 plus IQ and is brilliant in so many different

> areas, he fails to do some menial thing like push his chair in

> during class and he has to eat lunch staring at the wall in front

of

> his desk,are they stupid they make an autistic child be by himself

> for 30 min for an entire week? He knows how to be by himself he

> needs to learn to socialize, to watch and learn peer norms, proper

> peer language. They fail to provide education for his giftedness,

> or a teacher smart enough to converse with him on his level. That

> thinks because he is gifted in areas he doesn't need help when he

> asks for it in grammer and tells him to read it again. Get a clue

> woman..he doesn't get Grammer!! They want to keep him in ED for

> High School next year continueing to send the message to my

> beautiful son that he is emotionally disturbed-he isn't, he is

> autistic and needs a small classroom for the majority of his

classes-

> somewhere to call home at school. That way he can venture out with

> the NTs for 3 classes and know he has the safety of HIS classroom

to

> come back to. He doesn't need to be with the kids who visit the

> detention center he needs to be with other awkward different teens

> that don't quite fit the " norm " . Why do I have to retain atorneys,

> file law suits, yell , scream, go to 20 of their meetings? Why

> can't they just provide a safe enviroment, protect him and teach

> him? There is one like him but so different at the same time in

> every 150 kids out there! What happens to the ones whose moms

don't

> know IEP laws, who are intimidated by THEM, whose family's don't

> have the money or time for other therapies and have to rely on just

> the schools. I will sue the schools, I will fight the

> administrators, I will fight to change the status quo in public

> education and I will help change things for those coming up.

> Thank-you for letting me rant, I really needed it! Tough week!

> Dana-the very proud mother of a 14 yo Autistic person,

> a beautiful 25 yo teacher of autistic kindergartners, and Talia a

24

> yo young woman out to change the world as we know it.

>

[Guest guest]

Dear Dana,

As a mother of a 20 year old Asperger's woman (Michele) I have spent many times just venting about things. The frustrations are undeniable and I'm sure anyone out there who has experienced some of the things we have gets that. Once you're done venting though, don't forget to follow through. I don't know your situation so I can't recommend litigation for you, however, I really would try to sit down with the school (not alone) and see what they have to say. Then if it does go to litigation the court system deems that you have tried all means necessary to solve the problem before it went that far. I know this from experience. If the school brings up that your child is "disturbing other students" or gives you the other kids as a reason why they won't comprimise, be sure and let them know that the least restrictive environment

(LRE) for your child is not based on the needs of other students. It's based on the needs of your son. Don't know if any of this helps...good luck.

Dana from Washington State

Venting

Hi,I have not participated in this group much lately except to read some of the posts off and on, Annie probably will remember me I'm the other person from Albuquerque. I am mom to a wonderful, frustrating, brilliant Autistic son named that is 14 yo. Anyways-Schools are so hard to deal with!! I am so sick of them!! They allowed my son to be bullied until he struck back and he gets put on an in school suspension!! I told the school (which I have so supported the administration for 3 years now) I disagreed with punishing the one getting bullied and the one that was hurt prior to the fight by being hit in the head by the other boy's binder the same way the brat bullying my son was. They won. I wrote a letter stating my position and sent it to the state dept of special ed, the supertindent of schools, the head of special head as well as to the principal once again stating my disagreement with

the treatment my son received-by the way did I mention his arm was in a cast at the time-and asked for an apology. I let them know a few days ago I have an attorney retained (over so much more than this)and today I receive a certified letter from the principal discounting my concern over this and saying she hoped we could all work together on his FBA and BIP we are doing next Wed. I hate that Barbie doll want to be so much, she gets away with letting my son get hurt and does her usual sickly sweet smile at me at all the addendums we have been doing. The schools here are so awful, the only small self contained classroom that is available is ED-my son is NOT ED he is Autistic! My son has a 140 plus IQ and is brilliant in so many different areas, he fails to do some menial thing like push his chair in during class and he has to eat lunch staring at the wall in front of his desk,are they stupid they

make an autistic child be by himself for 30 min for an entire week? He knows how to be by himself he needs to learn to socialize, to watch and learn peer norms, proper peer language. They fail to provide education for his giftedness, or a teacher smart enough to converse with him on his level. That thinks because he is gifted in areas he doesn't need help when he asks for it in grammer and tells him to read it again. Get a clue woman..he doesn't get Grammer!! They want to keep him in ED for High School next year continueing to send the message to my beautiful son that he is emotionally disturbed-he isn't, he is autistic and needs a small classroom for the majority of his classes-somewhere to call home at school. That way he can venture out with the NTs for 3 classes and know he has the safety of HIS classroom to come back to. He doesn't need to be with the kids who visit the detention center he

needs to be with other awkward different teens that don't quite fit the "norm". Why do I have to retain atorneys, file law suits, yell , scream, go to 20 of their meetings? Why can't they just provide a safe enviroment, protect him and teach him? There is one like him but so different at the same time in every 150 kids out there! What happens to the ones whose moms don't know IEP laws, who are intimidated by THEM, whose family's don't have the money or time for other therapies and have to rely on just the schools. I will sue the schools, I will fight the administrators, I will fight to change the status quo in public education and I will help change things for those coming up. Thank-you for letting me rant, I really needed it! Tough week!Dana-the very proud mother of a 14 yo Autistic person, a beautiful 25 yo teacher of autistic kindergartners, and Talia a 24 yo young woman out to

change the world as we know it.

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Sorry to hear about your troubles. My AS daughter is now 15 & she spent several years in an EBD room because they had no other place for her. When I would ask about Autism eligibility, I would be told that was the same as OHI. I continued to persist, & I finally got a wonderful teacher when she wa in 8th grade who helpd me out tremendously & got her classified correctly under the Autism umbrella. She is in the 10th grade now, in full inclusion with support, and is doing better each year. I still have plenty of idiotic & ignorant teachers that continue to be stupid. I have been extremely fortunate for Lizzie's 9th & 10th grade years to have a simply wonderful IEP teacher/case manager that will fight for her kids like a momma bear protecting her cubs. Keep on fighting for what tyou know your child is due under the law because if you don't, no one else will. KEEP STRONG & KNOW THERE ARE THOSE OF US OUT

THERE WHO ARE ROOTING FOR YOU!!!!!!!Dana <dsherrera@...> wrote: Hi,I have not participated in this group much lately except to read some of the posts off and on, Annie probably will remember me I'm the other person from Albuquerque. I am mom to a wonderful, frustrating, brilliant Autistic son named that is 14 yo. Anyways-Schools are so hard to deal with!! I am so sick of them!! They allowed my son to be bullied until he struck back and he gets put on an in school suspension!! I told the school (which I have so

supported the administration for 3 years now) I disagreed with punishing the one getting bullied and the one that was hurt prior to the fight by being hit in the head by the other boy's binder the same way the brat bullying my son was. They won. I wrote a letter stating my position and sent it to the state dept of special ed, the supertindent of schools, the head of special head as well as to the principal once again stating my disagreement with the treatment my son received-by the way did I mention his arm was in a cast at the time-and asked for an apology. I let them know a few days ago I have an attorney retained (over so much more than this)and today I receive a certified letter from the principal discounting my concern over this and saying she hoped we could all work together on his FBA and BIP we are doing next Wed. I hate that Barbie doll want to be so much, she gets away with letting my son get hurt and does

her usual sickly sweet smile at me at all the addendums we have been doing. The schools here are so awful, the only small self contained classroom that is available is ED-my son is NOT ED he is Autistic! My son has a 140 plus IQ and is brilliant in so many different areas, he fails to do some menial thing like push his chair in during class and he has to eat lunch staring at the wall in front of his desk,are they stupid they make an autistic child be by himself for 30 min for an entire week? He knows how to be by himself he needs to learn to socialize, to watch and learn peer norms, proper peer language. They fail to provide education for his giftedness, or a teacher smart enough to converse with him on his level. That thinks because he is gifted in areas he doesn't need help when he asks for it in grammer and tells him to read it again. Get a clue woman..he doesn't get Grammer!! They want to keep him in ED for

High School next year continueing to send the message to my beautiful son that he is emotionally disturbed-he isn't, he is autistic and needs a small classroom for the majority of his classes-somewhere to call home at school. That way he can venture out with the NTs for 3 classes and know he has the safety of HIS classroom to come back to. He doesn't need to be with the kids who visit the detention center he needs to be with other awkward different teens that don't quite fit the "norm". Why do I have to retain atorneys, file law suits, yell , scream, go to 20 of their meetings? Why can't they just provide a safe enviroment, protect him and teach him? There is one like him but so different at the same time in every 150 kids out there! What happens to the ones whose moms don't know IEP laws, who are intimidated by THEM, whose family's don't have the money or time for other therapies and have to rely on just the

schools. I will sue the schools, I will fight the administrators, I will fight to change the status quo in public education and I will help change things for those coming up. Thank-you for letting me rant, I really needed it! Tough week!Dana-the very proud mother of a 14 yo Autistic person, a beautiful 25 yo teacher of autistic kindergartners, and Talia a 24 yo young woman out to change the world as we know it.

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.

[Guest guest]

I am so fortunate to have had good support from 's school personnel, since he was diagnosed with Aspergers 2 1/2 years ago. If only his Mother had pulled her head out of the sand when he was in K and let them or someone test him. In 1st grade they did some test without her full consent and came up with ODD. What is EBD room and OHI? Is their a list of lingo abbreviations that are used with Autism that I could hang up and refer to as needed? Thanks! Doris M in OK Byington <froggienoodle@...> wrote: Sorry to hear about your troubles. My AS daughter is now 15 & she spent several years in an EBD room because they had no other place for her. When I would ask about Autism eligibility, I would be told that was the same as OHI. I continued to persist, & I finally got a wonderful teacher when she wa in 8th grade who helpd me out tremendously & got her classified correctly under the Autism umbrella. She is in the 10th grade now, in full inclusion with support, and is doing better each year. I still have plenty of idiotic & ignorant teachers that continue to be stupid. I have been extremely fortunate for Lizzie's 9th & 10th grade years to have a simply wonderful IEP teacher/case manager that will fight for her kids like a momma bear protecting her cubs. Keep on fighting for what tyou know your child is due under the law

because if you don't, no one else will. KEEP STRONG & KNOW THERE ARE THOSE OF US OUT THERE WHO ARE ROOTING FOR YOU!!!!!!!Dana <dsherrerahotmail> wrote: Hi,I have not participated in this group much lately except to read some of the posts off and on, Annie probably will remember me I'm the other person from Albuquerque. I am mom to a wonderful, frustrating, brilliant Autistic son named that is 14 yo. Anyways-Schools are so hard to deal with!! I am so sick of them!! They allowed my son to be bullied until he struck back and he gets put on an in school suspension!! I told the school (which I have so supported the administration for 3 years now) I disagreed with punishing the one getting bullied and the one that was hurt prior to the fight by being hit in the head by the other boy's binder the

same way the brat bullying my son was. They won. I wrote a letter stating my position and sent it to the state dept of special ed, the supertindent of schools, the head of special head as well as to the principal once again stating my disagreement with the treatment my son received-by the way did I mention his arm was in a cast at the time-and asked for an apology. I let them know a few days ago I have an attorney retained (over so much more than this)and today I receive a certified letter from the principal discounting my concern over this and saying she hoped we could all work together on his FBA and BIP we are doing next Wed. I hate that Barbie doll want to be so much, she gets away with letting my son get hurt and does her usual sickly sweet smile at me at all the addendums we have been doing. The schools here are so awful, the only small self contained classroom that is available is ED-my son is NOT ED he is

Autistic! My son has a 140 plus IQ and is brilliant in so many different areas, he fails to do some menial thing like push his chair in during class and he has to eat lunch staring at the wall in front of his desk,are they stupid they make an autistic child be by himself for 30 min for an entire week? He knows how to be by himself he needs to learn to socialize, to watch and learn peer norms, proper peer language. They fail to provide education for his giftedness, or a teacher smart enough to converse with him on his level. That thinks because he is gifted in areas he doesn't need help when he asks for it in grammer and tells him to read it again. Get a clue woman..he doesn't get Grammer!! They want to keep him in ED for High School next year continueing to send the message to my beautiful son that he is emotionally disturbed-he isn't, he is autistic and needs a small classroom for the majority of his

classes-somewhere to call home at school. That way he can venture out with the NTs for 3 classes and know he has the safety of HIS classroom to come back to. He doesn't need to be with the kids who visit the detention center he needs to be with other awkward different teens that don't quite fit the "norm". Why do I have to retain atorneys, file law suits, yell , scream, go to 20 of their meetings? Why can't they just provide a safe enviroment, protect him and teach him? There is one like him but so different at the same time in every 150 kids out there! What happens to the ones whose moms don't know IEP laws, who are intimidated by THEM, whose family's don't have the money or time for other therapies and have to rely on just the schools. I will sue the schools, I will fight the administrators, I will fight to change the status quo in public education and I will help change things for those coming up. Thank-you for

letting me rant, I really needed it! Tough week!Dana-the very proud mother of a 14 yo Autistic person, a beautiful 25 yo teacher of autistic kindergartners, and Talia a 24 yo young woman out to change the world as we know it. Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games.

Luggage? GPS? Comic books?

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[Guest guest]

Dana,

I think you're doing fine. This is not an easy road, and you're entitled to get upset!

Francine

In a message dated 9/30/2007 11:06:48 A.M. Eastern Daylight Time, dsherrera@... writes:

Thanks for all your support, I was at wits end that night! The school system here is pretty bad but since I have obtained legal representation they are trying harder, its too bad it has to come to that to get the schools to do what they are supposed to. For the person who suggested alterate placement, there just isn't one I find acceptable in our community. We have 1 school aimed specifically at these kiddos but I don't see how that teaches them to function in the NT world. I have just had a hard few months with my sons diagnosis changing from Aspie to Autism due to testing that was done and interpreted by a counselor and psychiatrist I trust. I have a hard time emotionally with the different label for some bizarre reason, even though I have known it all the time. My sons latest greatest "labels" are now Autism, ADHD, ODD, Depression , and Anxiety. For the person who asked about the ED and OHI, I do beleive there is a file with all the initials explained, but ED is Emotional Disturbed and OHI is other Health Impaired thus the ADHD. I love you all for the support I received over this and I think its probablly time for mom to get some couseling as well to deal with the changes.Dana

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[Guest guest]

Thanks for all your support, I was at wits end that night! The school

system here is pretty bad but since I have obtained legal

representation they are trying harder, its too bad it has to come to

that to get the schools to do what they are supposed to. For the

person who suggested alterate placement, there just isn't one I find

acceptable in our community. We have 1 school aimed specifically at

these kiddos but I don't see how that teaches them to function in the

NT world. I have just had a hard few months with my sons diagnosis

changing from Aspie to Autism due to testing that was done and

interpreted by a counselor and psychiatrist I trust. I have a hard

time emotionally with the different label for some bizarre reason,

even though I have known it all the time. My sons latest

greatest " labels " are now Autism, ADHD, ODD, Depression , and

Anxiety. For the person who asked about the ED and OHI, I do beleive

there is a file with all the initials explained, but ED is Emotional

Disturbed and OHI is other Health Impaired thus the ADHD. I love you

all for the support I received over this and I think its probablly

time for mom to get some couseling as well to deal with the changes.

Dana

[Guest guest]

Thanks Dana! I used GOOGLE and found several excellent sites with Autism related abbreviations. Thanks again! Doris M in OKDana <dsherrera@...> wrote: Thanks for all your support, I was at wits end that night! The school system here is pretty bad but since I have obtained legal representation they are trying harder, its too bad it has to come to that to get the schools to do what they are supposed to. For the person who suggested

alterate placement, there just isn't one I find acceptable in our community. We have 1 school aimed specifically at these kiddos but I don't see how that teaches them to function in the NT world. I have just had a hard few months with my sons diagnosis changing from Aspie to Autism due to testing that was done and interpreted by a counselor and psychiatrist I trust. I have a hard time emotionally with the different label for some bizarre reason, even though I have known it all the time. My sons latest greatest "labels" are now Autism, ADHD, ODD, Depression , and Anxiety. For the person who asked about the ED and OHI, I do beleive there is a file with all the initials explained, but ED is Emotional Disturbed and OHI is other Health Impaired thus the ADHD. I love you all for the support I received over this and I think its probablly time for mom to get some couseling as well to deal with the

changes.Dana

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[Guest guest]

> What is EBD room and OHI? Is their a list of lingo abbreviations

that are used with Autism that I could hang up and refer to as needed?

>

> Thanks!

>

OHI is Other Health Impaired...in NH at least, kids with autism had

that identification code before Autism became its own code...and often

kids with ADHD and/or other medical issues had an OHI code.

EBD...might mean Emotionally Behaviorly Disabled, or something similar,

I think.

Judy

[Guest guest]

> What is EBD room and OHI? Is their a list of lingo abbreviations

that are used with Autism that I could hang up and refer to as needed?

>

> Thanks!

>

OHI is Other Health Impaired...in NH at least, kids with autism had

that identification code before Autism became its own code...and often

kids with ADHD and/or other medical issues had an OHI code.

EBD...might mean Emotionally Behaviorly Disabled, or something similar,

I think.

Judy

[Guest guest]

I have this one beat. One of my moms in the special needs scout troop that i have has an aspergers child and they would put her child in the bathroom as a timeout. She could not figure out why he was always getting sick.My boys were in a Special ed class and because of the higher maintenance ones they got to watch movies all day while the teachers fed and changed diapers on the other children. They learned the Land before time series by heart. That is why I now homeschool my 3 special needs kids. TEresa j vickie <blackfoot124@...> wrote: ugh schools can be such pains in the ass. sorry they are giving you a rough time.they should provide him with a better room why cant they put him in like resource room but not cuz he needs etra help for learning but the home thing you were referring to .let him go out for all the classes he is doing well in .teachers and principles and the like do not understand autistics and i feel that there shouldnt be any special ed teachers and then teachers they all should have the training for both cuz well look at the kids who are not diagnosed that are struggling in school if they knew how to teeach them they could break it down to where they can learn it they also would be able to recognise it and help the ones who are dx it.. I am glad you are fighting your son is def worth the fight . Vickie WwW.SparkleTags.Com Venting Hi,I have not participated in this group much

lately except to read some of the posts off and on, Annie probably will remember me I'm the other person from Albuquerque. I am mom to a wonderful, frustrating, brilliant Autistic son named that is 14 yo. Anyways-Schools are so hard to deal with!! I am so sick of them!! They allowed my son to be bullied until he struck back and he gets put on an in school suspension!! I told the school (which I have so supported the administration for 3 years now) I disagreed with punishing the one getting bullied and the one that was hurt prior to the fight by being hit in the head by the other boy's binder the same way the brat bullying my son was. They won. I wrote a letter stating my position and sent it to the state dept of special ed, the supertindent of schools, the head of special head as well as to the principal once again stating my disagreement with the treatment my son received-by the way did I mention his arm was in

a cast at the time-and asked for an apology. I let them know a few days ago I have an attorney retained (over so much more than this)and today I receive a certified letter from the principal discounting my concern over this and saying she hoped we could all work together on his FBA and BIP we are doing next Wed. I hate that Barbie doll want to be so much, she gets away with letting my son get hurt and does her usual sickly sweet smile at me at all the addendums we have been doing. The schools here are so awful, the only small self contained classroom that is available is ED-my son is NOT ED he is Autistic! My son has a 140 plus IQ and is brilliant in so many different areas, he fails to do some menial thing like push his chair in during class and he has to eat lunch staring at the wall in front of his desk,are they stupid they make an autistic child be by himself for 30 min for an entire week? He knows how to be by

himself he needs to learn to socialize, to watch and learn peer norms, proper peer language. They fail to provide education for his giftedness, or a teacher smart enough to converse with him on his level. That thinks because he is gifted in areas he doesn't need help when he asks for it in grammer and tells him to read it again. Get a clue woman..he doesn't get Grammer!! They want to keep him in ED for High School next year continueing to send the message to my beautiful son that he is emotionally disturbed-he isn't, he is autistic and needs a small classroom for the majority of his classes-somewhere to call home at school. That way he can venture out with the NTs for 3 classes and know he has the safety of HIS classroom to come back to. He doesn't need to be with the kids who visit the detention center he needs to be with other awkward different teens that don't quite fit the "norm". Why do I have to retain atorneys,

file law suits, yell , scream, go to 20 of their meetings? Why can't they just provide a safe enviroment, protect him and teach him? There is one like him but so different at the same time in every 150 kids out there! What happens to the ones whose moms don't know IEP laws, who are intimidated by THEM, whose family's don't have the money or time for other therapies and have to rely on just the schools. I will sue the schools, I will fight the administrators, I will fight to change the status quo in public education and I will help change things for those coming up. Thank-you for letting me rant, I really needed it! Tough week!Dana-the very proud mother of a 14 yo Autistic person, a beautiful 25 yo teacher of autistic kindergartners, and Talia a 24 yo young woman out to change the world as we know it. oneSearch: Finally, mobile search that gives answers, not web links. n Special needs Scouts Unit #2250 102 Meadowridge Drive Lynchburg, VA 24503 jtjulian2003@... 434-825-3425 cell 434-384-0320 home http://jtjulian2003.tripod.com/Scouting is for ALL!!

Check out the hottest 2008 models today at Autos.

[Guest guest]

Hi Diane, how long have you been taking methotrexate and how much? I

am taking 20mg for the past six weeks; going up in a week to 25mg. Is

hair loss common? Do you have to shave your head?I am starting to

feel nauseated now but other than that, I don't think it is doing

anything! Take care, hope your hair comes back soon! Libby

>

> ,

> Look behind a door, on a door knob for the cain..lol

>

> I am glad you had a great day with the kids..make memories with

them.

>

> Don't worry what we look like..the pool sounded great  I am losing

my hair again, thanks to methotrexate..oh well...

>

> bald but alive..

>

>

> Diane..42

>

>

>

>

>

>

>

>

>  thank God I had a great day yesterday and was able to be a fun

mom for a day for the kids sake.

>

>  I was also kinda embarrased with all the extra weight I put in

since January with the pred at the pool but I said aww Hell Im here

and im alive and im going to have fun!! a no body has to look at my

piggy legs if they dont want

>

> to. LOL. SO got that bathing suit on and had fun with my kids. The

water felt great on my body. 

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Diane, how long have you been taking methotrexate and how much? I

am taking 20mg for the past six weeks; going up in a week to 25mg. Is

hair loss common? Do you have to shave your head?I am starting to

feel nauseated now but other than that, I don't think it is doing

anything! Take care, hope your hair comes back soon! Libby

>

> ,

> Look behind a door, on a door knob for the cain..lol

>

> I am glad you had a great day with the kids..make memories with

them.

>

> Don't worry what we look like..the pool sounded great  I am losing

my hair again, thanks to methotrexate..oh well...

>

> bald but alive..

>

>

> Diane..42

>

>

>

>

>

>

>

>

>  thank God I had a great day yesterday and was able to be a fun

mom for a day for the kids sake.

>

>  I was also kinda embarrased with all the extra weight I put in

since January with the pred at the pool but I said aww Hell Im here

and im alive and im going to have fun!! a no body has to look at my

piggy legs if they dont want

>

> to. LOL. SO got that bathing suit on and had fun with my kids. The

water felt great on my body. 

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Sharon, I hope you are getting some relief. It's not fair to feel so

bad all the time. I can fully understand you worrying about your

niece and nephew. My sister has just been through a divorce and her

daughter is 17 and I worry about them both. Kids are resilient and

hopefully they will come through it ok. All you can do is be there

for them, if possible. But make sure you look after yourself!

Glad to hear you had a good day . I bet your kids loved it!

Unfortunately you probably pay for it the next day! But you have to

enjoy the good days when you can. Just try not to overdo it, I guess.

I don't reckon I will have a good day again until I have my hip

replaced!! Well take care and I hope you both feel better real soon.

Libby.

>

>

>  How are you today? I had a great day yesterday with little pain

took the kids swimming and went food shopping with their help. Boy

even on good days doing things like just those made me so tired I had

to go to bed right after dinner at 8 pm I was exhusted! Well today is

nice cooller weather and my hip hurts my knees are swallon and I have

the hand lip and tounge thing going numb again. WEIRD!!! I lost my

cain and dont know where it is and thats frustrating me I really need

it.  So Im venting today but thank God I had a great day yesterday

and was able to be a fun mom for a day for the kids sake. I miss that

old run around have fun with lots of energy mom. I mean I did with

some energy yesterday but nothing like it use to be. I was also kinda

embarrased with all the extra weight I put in since January with the

pred at the pool but I said aww Hell Im here and im alive and im

going to have fun!! a no body has to look at my piggy legs if they

dont want

> to. LOL. SO got that bathing suit on and had fun with my kids. The

water felt great on my body.

> Sharron hope you gets some relief soon. My hands hurtting real bad

from typing so im going to go. Hang in there all you Stills buddies!

Ann Fultz

>

>

>

> venting

>

>

> Hi Everyone! Well I am having a really crappy day (I guess thats

bad

> when its only 6 am). I am stuck in the sitting position and cant

get

> out of this chair. I wanted to see my nephews today they are my

> sweetys! London is 3 and Roman is 8 months. My tailbone is really

bad.

> I feel like I always have a flare. I am pretty scared. It hurts to

> stand or sit or lay down. I cant win. I can barely lift my arm to

> type. My brother has 2 kids and is going thru a divorce. I am so

> worried about my neice, Kylie 7 and nephew y 3. tells me

> not to worry because stress is bad for me, but I cant help it. I am

> gonna try to get out of this chair and lay down before gets

up.

> Love Sharon

>

>

>

>

>

>

>

[Guest guest]

Sharon, I hope you are getting some relief. It's not fair to feel so

bad all the time. I can fully understand you worrying about your

niece and nephew. My sister has just been through a divorce and her

daughter is 17 and I worry about them both. Kids are resilient and

hopefully they will come through it ok. All you can do is be there

for them, if possible. But make sure you look after yourself!

Glad to hear you had a good day . I bet your kids loved it!

Unfortunately you probably pay for it the next day! But you have to

enjoy the good days when you can. Just try not to overdo it, I guess.

I don't reckon I will have a good day again until I have my hip

replaced!! Well take care and I hope you both feel better real soon.

Libby.

>

>

>  How are you today? I had a great day yesterday with little pain

took the kids swimming and went food shopping with their help. Boy

even on good days doing things like just those made me so tired I had

to go to bed right after dinner at 8 pm I was exhusted! Well today is

nice cooller weather and my hip hurts my knees are swallon and I have

the hand lip and tounge thing going numb again. WEIRD!!! I lost my

cain and dont know where it is and thats frustrating me I really need

it.  So Im venting today but thank God I had a great day yesterday

and was able to be a fun mom for a day for the kids sake. I miss that

old run around have fun with lots of energy mom. I mean I did with

some energy yesterday but nothing like it use to be. I was also kinda

embarrased with all the extra weight I put in since January with the

pred at the pool but I said aww Hell Im here and im alive and im

going to have fun!! a no body has to look at my piggy legs if they

dont want

> to. LOL. SO got that bathing suit on and had fun with my kids. The

water felt great on my body.

> Sharron hope you gets some relief soon. My hands hurtting real bad

from typing so im going to go. Hang in there all you Stills buddies!

Ann Fultz

>

>

>

> venting

>

>

> Hi Everyone! Well I am having a really crappy day (I guess thats

bad

> when its only 6 am). I am stuck in the sitting position and cant

get

> out of this chair. I wanted to see my nephews today they are my

> sweetys! London is 3 and Roman is 8 months. My tailbone is really

bad.

> I feel like I always have a flare. I am pretty scared. It hurts to

> stand or sit or lay down. I cant win. I can barely lift my arm to

> type. My brother has 2 kids and is going thru a divorce. I am so

> worried about my neice, Kylie 7 and nephew y 3. tells me

> not to worry because stress is bad for me, but I cant help it. I am

> gonna try to get out of this chair and lay down before gets

up.

> Love Sharon

>

>

>

>

>

>

>

[Guest guest]

Hi Libby,

My Dr. put me on the methotrexate in November of '07 I started with 22mg and

 they started weaning me slowly off..I was down to 10 mg when I had a big

flare up again..this past May..3x in the hospital..

nooooooow I am on 2400 mg of ibuprofin..48mg of medrol, 1 shot of kineret, 2

lasix, toprol, omega,

sliding scale of insulin novolox (spelling?), a shot of lantis at night,

toprol, lipitor, vitamin D + calcium,

1 folic acid every day,2 stomach pill (cant think of the name)..and I probably

am missing something lol

everyday...it takes me all day to take this crap...but I am feeling better...

I do not feel nauseaus because maybe of the stomach pills..not sure..in Nov.

when I started the methotrexate, the Dr. said I wont feel the affects till 4

weeks or so...after 2 weeks my hair started coming out slowly...it still

is...and no I dont have to shave my head..it is just, 'feathery' feeling and

real thin..I really dont care anymore..i should, but as long as I feel better

and can move I feel lucky..It could be alot worse..when I was in

the hospital last month feeling so sick and in so much pain I thought about my

parents and brother

and how they were in this pain...and I am sure worse...but they knew they were

going to die..and that is the only thing that

keeps me going during these flare ups...I am NOT going to die..unless the

pneumonia I got from

it gets me, but I am trying to stay away from sick people as much as

possible..If I go to the stores and

hear someone sneeze or cough, guess who is holding her breath until she passes

them, or i wipe the cart with the sani wipes they

have at the door...just little precautions....yikes, look at me ramble!! sorry..

Libby, dont think of the nausea...but if it gets bad, ask your dr. for something

for it..

Take care,

Diane.42

Hi Diane, how long have you been taking methotrexate and how much?

 I am taking 20mg for the past six weeks; going up in a week to 25mg. Is 

hair loss common? Do you have to shave your head?I am starting to

feel nauseated now but other than that, I don't think it is doing

anything! Take care, hope your hair comes back soon! Libby

[Guest guest]

Here is what I felt like writing on the MDA's web site, but didn't.

++++++++++++++++++++

SHAME SHAME SHAME

MDA shows more unconscionable behavior in stealing food from babies. You work

for CITIZENS, not corporations. Call off your dogs, leave real farmers alone or

just roll-over and show us the tatoo that says, " Monsanto. "

+++++++++++++++++++++

Please don't use this - but laugh and enjoy the image privately.

[Guest guest]

I love it!!!!

>

> Here is what I felt like writing on the MDA's web site, but didn't.

> ++++++++++++++++++++

> SHAME SHAME SHAME

>

> MDA shows more unconscionable behavior in stealing food from babies.

You work for CITIZENS, not corporations. Call off your dogs, leave real

farmers alone or just roll-over and show us the tatoo that says,

" Monsanto. "

> +++++++++++++++++++++

> Please don't use this - but laugh and enjoy the image privately.

>

[Guest guest]

Here's another perspective: All MDA is doing, when you really come down to it,

is trying to justify their governmental budget, by showing how tough they are

protecting us from those bad farmers.

[Guest guest]

I feel absolutely sick when I think about how much of our tax dollars have

been wasted by the mda with all this milk non-sense. Did you see the cost

analysis by Gumpert? Infuriating.