Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 Yes, that is correct, at least in Mark's case. The treatment is to suppress the autoantibodies that are attacking the body. The down side is that you also suppress the good cells as well, however, if you take the big picture into consideration, not treating serious autoimmune diseases can result in life-threatening complications.....so, in the long run you hope that the outcome will be a better picture of health overall. Again, I may be incorrect on the reasoning behind Adam's situation but I can tell you that this is what they are doing with our situation. I have to be really honest...I DON " T LIKE IT!!!!! It has made Mark's life really difficult, but on the positive side...without treatment we would be in a much different place. Mark has responded to treatment after 18 months and things are finally getting quiet with his vasculitis. We hope to be off of this treatment by August 2002...at which time we hope that his T-cells will " catch up " to at least the place that they were before treatment. Mark will be adrenal insufficient for 2-3 years, so they say....meaning that if he breaks a bone, gets a serious infection or has surgery he will have to have a stress dose of steroids. He has to have them now due to this. IVIG will be lifelong. Autumn (Mark Cd5-Cd19 PID and ) Quote Link to comment Share on other sites More sharing options...
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