Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Hello again, First I want to say thank you, especially to Maralee, Stacey, and Rabecca. Today has been rough and seeing your responses and welcome notes, well at least now I'm crying tears of happiness! I live in the Hudson Valley area of New York so GA is a difficult commute but your group sounds great. I will look for something like that here. I also contacted a new Psychiatrist that was highly recommended. She wants to review all the testing thats been done and have us fill out more questionairres on Lee's early childhood. In some ways I think 'uhhgg, starting from nothing again' but on the other hand I feel his care has been so mishandled by his doctors so far that a fresh review will be helpful. Lee is a great kid and like you said, Rabecca, I view many of his " problems " as strengths. He is funny and kind and has real determination with academic subjects. Monday we go to see the old psychiatrist (couldnt get an appt. with the new MD until later) to review the blood test results and discuss her HORRIBLE communication approach with us - right down to getting this blood test done. When the hosp. wanted to change Lee's meds I called her to check on her thoughts and she said the hospital MD's were the experts and we should trust them. Now that Lee is home she says she wont be his doctor because Lithium is not safe. But I called her on Monday to ask for a script. for the necessary blood work and got the runaround until today (friday). I went in to get the script. and it says he should skip his am Lithium dose on the day of the test which means we cant get the test done until tomorrow (sat.) when it was supposed to get done wed. I think she could have told me about the am dose issue on the phone so I wouldnt have had this problem!! Arrrgggghhhh!!! Thank you for letting me rant. My friends here are wonderful but they have no clue what this is like and ask questions like " Lee is so smart, cant you explain to him that the other kids are just joking? " etc. To have people out there who know and understand is Priceless. Tory Quote Link to comment Share on other sites More sharing options...
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