RE: I Really Need Help With This One?

October 12, 2005

The HepC virus is in all of your body. Even if you get

a liver that is not infected, once they transplant it,

it will test positive for HCV if you have HCV. The

answer is YES you want it. Good luck and my prayers

are with you..Bill

--- <JustList@...> wrote:

> I need to know something,

> I am at the top of the transplant list and just

> received a call from s

> Hopkins...

> That there was a live donor and that the liver was

> infected with HEP-C, they

> wanted to know if I wanted it..

> I am sick and really want to get this over with BUT

> why would they

> transplant a liver already infected?

> Should I have taken the liver? This really has me

> worried, it caught me way

> off guard.

> Now I am second guessing my decision to turn it down

>

> Thanks for any help

>

> [Non-text portions of this message have been

> removed]

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

October 12, 2005

Plus..So what if you have to ga through treatment

again. You will be buying yourself a lot of years that

you wouldn't have without the transplant. Bill

--- billy lewis <bill0443@...> wrote:

> The HepC virus is in all of your body. Even if you

> get

> a liver that is not infected, once they transplant

> it,

> it will test positive for HCV if you have HCV. The

> answer is YES you want it. Good luck and my prayers

> are with you..Bill

>

> --- <JustList@...> wrote:

>

> > I need to know something,

> > I am at the top of the transplant list and just

> > received a call from s

> > Hopkins...

> > That there was a live donor and that the liver was

> > infected with HEP-C, they

> > wanted to know if I wanted it..

> > I am sick and really want to get this over with

> BUT

> > why would they

> > transplant a liver already infected?

> > Should I have taken the liver? This really has me

> > worried, it caught me way

> > off guard.

> > Now I am second guessing my decision to turn it

> down

> >

> > Thanks for any help

> >

> > [Non-text portions of this message have been

> > removed]

> >

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

October 12, 2005

I am undetectable for 2 years now and I have

volunteered to be a doner. HCV pos people need organs

too. I am saying a prawer for you. Keep us posted.

Bill

--- billy lewis <bill0443@...> wrote:

> The HepC virus is in all of your body. Even if you

> get

> a liver that is not infected, once they transplant

> it,

> it will test positive for HCV if you have HCV. The

> answer is YES you want it. Good luck and my prayers

> are with you..Bill

>

> --- <JustList@...> wrote:

>

> > I need to know something,

> > I am at the top of the transplant list and just

> > received a call from s

> > Hopkins...

> > That there was a live donor and that the liver was

> > infected with HEP-C, they

> > wanted to know if I wanted it..

> > I am sick and really want to get this over with

> BUT

> > why would they

> > transplant a liver already infected?

> > Should I have taken the liver? This really has me

> > worried, it caught me way

> > off guard.

> > Now I am second guessing my decision to turn it

> down

> >

> > Thanks for any help

> >

> > [Non-text portions of this message have been

> > removed]

> >

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

October 12, 2005

My understanding is that the shortage of transplantable livers, and the high

need for them for HCV patients has resulted in beginning to use livers from

infected donors to implant into other infected patients. On some levels this

makes sense. It provides some hope where none existed before. The questions

I've seen raised on this subject were the genotypes of the two, is the donor

geno a different type than yours? That would result in a dual, or more, geno

infection. What is the condition of the liver. Hopefully they aren't trying

to implant cirrhotic livers. Many with HCV have minimal liver damage.

Implantation into an infected person will result in an infected liver, even

if it weren't before. And something I'm not clear on, is HCV treatment a

reasonable thing after transplant. I understand that its done for some. I'm

not clear on the interaction between the IFN, the anti-rejection meds, and

the rejection situation itself. I admit I haven't read the reports on that.

Sally

I Really Need Help With This One?

I need to know something,

I am at the top of the transplant list and just received a call from s

Hopkins... That there was a live donor and that the liver was infected with

HEP-C, they wanted to know if I wanted it.. I am sick and really want to get

this over with BUT why would they transplant a liver already infected?

Should I have taken the liver? This really has me worried, it caught me way

off guard. Now I am second guessing my decision to turn it down

Thanks for any help

October 12, 2005

I know someone who has hep C and has had 3 liver transplants. Before

one of them, he was very ill. The doctor said he had less than 24

hours to live....so they asked him if a liver became available....and

it was in good condition....maybe no damage but it had hepatitis C,

would he take it. He said he thought the question was stupid. On one

hand, he already had hep C and the new liver would be in alot better

shape than his was, and it would save his life. For him the choice

was easy.

On the other hand, if someone has Medicaid, it only covers one

transplant and I have heard of people declining to use marginal

organs because they were afraid they wouldn't last as long.

In almost all cases the new liver will be infected if you never

cleared the Hep C....and in in some cases the virus attacks the new

liver quickly. Some of the transplant centers are now starting to

treat right before the transplant to lower the viral load. That

seems to prevent quick reinfection.

Don't feel guilty about your decision. That one wasn't meant to be

yours. I'm sure whoever got it was happy you decided to wait.

Silvia

>

> I need to know something,

> I am at the top of the transplant list and just received a call

from s

> Hopkins...

> That there was a live donor and that the liver was infected with

HEP-C, they

> wanted to know if I wanted it..

> I am sick and really want to get this over with BUT why would they

> transplant a liver already infected?

> Should I have taken the liver? This really has me worried, it

caught me way

> off guard.

> Now I am second guessing my decision to turn it down

>

> Thanks for any help

>

October 12, 2005

You can go to www.hepatitisneighborhood.com and on the

right hand side of the screen click on " ask the nurse "

.. These nurses are from the University of Alabama

Mobile Hospital, which is one of the leading Hepatitis

hospitals in the nation for liver disease, and they

could give yoou some really good insight. Bill

--- <JustList@...> wrote:

> I need to know something,

> I am at the top of the transplant list and just

> received a call from s

> Hopkins...

> That there was a live donor and that the liver was

> infected with HEP-C, they

> wanted to know if I wanted it..

> I am sick and really want to get this over with BUT

> why would they

> transplant a liver already infected?

> Should I have taken the liver? This really has me

> worried, it caught me way

> off guard.

> Now I am second guessing my decision to turn it down

>

> Thanks for any help

>

> [Non-text portions of this message have been

> removed]

>

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

October 12, 2005

I think they do transplant infected livers into people that already

have hcv. Just because it's infected doesn't make it a bad liver.

Even with a virus-free liver, there's a good chance it will get

infected, anyway.

Sounds like the decision has already been made. If so, don't beat

yourself up over about it.

Take care, .

Jane

I Really Need Help With This One?

I need to know something,

I am at the top of the transplant list and just received a call from

s

Hopkins...

That there was a live donor and that the liver was infected with

HEP-C, they

wanted to know if I wanted it..

I am sick and really want to get this over with BUT why would they

transplant a liver already infected?

Should I have taken the liver? This really has me worried, it

caught me way

off guard.

Now I am second guessing my decision to turn it down

Thanks for any help

October 12, 2005

,

Although I have hep c, my liver is in great condition. Stage 0. Sounds like a

good liver to me.

I have a friend that is awaiting transplant. And I would do anything to be a

live donor and give her a part of my liver. Like said before, and I must

agree with him. You have Hep C, just because you get a new liver doesn't mean it

will go away. It is still in your blood. A new liver will help prolong your

life. And allow you to treat the Hep C. If you are lucky and get a liver like

mine, then honey it is great. Think of the years you will have.

Chances are that after the transplant you will be encouraged to treat the Hep C.

But our prayers and best wishes are with you on what ever you do.

Love

Janet

<JustList@...> wrote:

I need to know something,

I am at the top of the transplant list and just received a call from s

Hopkins...

That there was a live donor and that the liver was infected with HEP-C, they

wanted to know if I wanted it..

I am sick and really want to get this over with BUT why would they

transplant a liver already infected?

Should I have taken the liver? This really has me worried, it caught me way

off guard.

Now I am second guessing my decision to turn it down

Thanks for any help

October 12, 2005

yes all well and good but tell me how a person with HCV can be a

live donor? I assume this person wants to donate Half his liver?

Does this person want to hasten their own death? What stage

damage is the donor liver? what even slight chance would the

donor have to survive? Did I read it right? ric

October 12, 2005

The liver is the only organ that has the ability to

rejuvinate itself. Within about 6 mos after donating

half of your liver, it will have grown back to normal

size.Common sense will tell you that a surgeon will

not transplant a damaged liver. But it is common for

HCV pos people to donate to other HCV pos people as

long as they both have the same Genotype. Bill

--- Ric <richobbs1@...> wrote:

>

> yes all well and good but tell me how a person with

> HCV can be a

> live donor? I assume this person wants to donate

> Half his liver?

> Does this person want to hasten their own death?

> What stage

> damage is the donor liver? what even slight chance

> would the

> donor have to survive? Did I read it right? ric

>

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

October 12, 2005

yes I know that and I hope doctors have common sense. But

I am talking about a person who has HCV donating half his liver.

Will that liver regenerate at the same rate or at all? Call me

stupid if you want but thats what 's e-mail said.

October 12, 2005

and here's another question. are you sure that the same genotype

is 1 of the requirements of an HCV donatable liver. I asked my

Dr. Everson about cross contamination of genotypes. I wanted to

know if it's possible to have more than 1 geno? He said yes and

he didn't think based on current knowledge that it would mean

much as it relates to the to the patient.

October 12, 2005

and just what makes you so sure that half a donated liver with

HCV will regenerate at all?

October 12, 2005

Thanks You for all your responses,

It definitely adds to my questions next Dr. visit,

it really makes me look differently at this....

I never expected a call like that,

I thought the only decision I would have to make is " We Have A Healthy Liver

That Matches You, Do You Want It " .......

WOW!!!!!!!!!!!! Was I wrong

Thanks Again

October 12, 2005

Two halves will regenerate making a whole liver. A

lizards tail grows back whenever it is shed doesn't

it.Usually when it grows bacslower in the one that

donated than it des in the one that received. I can't

believe that you had never heard if it,Try an " Ask

Jeeves search about it. It is really cool.....Bill

--- Ric <richobbs1@...> wrote:

> and just what makes you so sure that half a donated

> liver with

> HCV will regenerate at all?

>

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

October 12, 2005

The same genotype is imoirtant in order to reduce the

chances oc rejection. Damn Ric, I thought that you

were supposed to be up to date and knowledgable about

HCV.

--- Ric <richobbs1@...> wrote:

>

> and here's another question. are you sure that the

> same genotype

> is 1 of the requirements of an HCV donatable liver.

> I asked my

> Dr. Everson about cross contamination of genotypes.

> I wanted to

> know if it's possible to have more than 1 geno? He

> said yes and

> he didn't think based on current knowledge that it

> would mean

> much as it relates to the to the patient.

>

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

October 12, 2005

Whenever you go threoug a transplant, your immune

system is combketle destroyed. You don't need to

introduce another Genotype,hence another form of

virus, to attack youe boy. Bill

--- Ric <richobbs1@...> wrote:

>

> and here's another question. are you sure that the

> same genotype

> is 1 of the requirements of an HCV donatable liver.

> I asked my

> Dr. Everson about cross contamination of genotypes.

> I wanted to

> know if it's possible to have more than 1 geno? He

> said yes and

> he didn't think based on current knowledge that it

> would mean

> much as it relates to the to the patient.

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

October 12, 2005

I think were on the same page but reading a different book Mr.

. I don't want to take the time to explain to you why we

are talking about different things. re read the posts and maybe

you will see...ric

October 12, 2005

Ric, you are not stupid.. I am glad that we are having

this discussion so that maybe you will read up on it

and help others that are faced with the same Dilems.

You seem to be very concerned and involved with HepC

and a Dragon Warrior needs all the information that he

or she can get. Keep up the good work. Bill

--- Ric <richobbs1@...> wrote:

> and just what makes you so sure that half a donated

> liver with

> HCV will regenerate at all?

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

October 12, 2005

you will kindly stop telling me then that I don't know what I'm

talking about. It is very true some days I am confused. But I am

perfectly aware of the regerative properties of the liver. My

question was.....Will a diseased half liver regenerate at the

same rate as a healthy one? and will it regerate at all?

considering it would be put into a person who already has a

viral load and other health problems. remember he needed a

liver

I know they are putting cadaver HCV+ livers into transplantees.

But WHY would they have a live donor liver thats HCV+ in the

first place? I ASSume the donor is still alive??