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Re: Home infusions

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Kim - so glad to hear that it went well. Did you have a good nurse? Did she

know the protocol to follow and do vitals

as often as she should?

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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Ursula,

I am not sure who this message is directed to, but if not me, I would

like to jump in. How often should vitals be taken when infusions are done

at home. My nurse is great with and has established quite a

friendship with him, but she doesn't take vitals very often. I have noticed

less and less every time. I am not sure she even took his blood pressure at

all last time. At Children's, it seemed liked they did it every 15 min at

the beginning and then maybe every half hour - something like that.

Kim - Mom to (Possible Hyper IGM)

Re: Home infusions

> Kim - so glad to hear that it went well. Did you have a good nurse? Did

she know the protocol to follow and do vitals

> as often as she should?

>

> Ursula Holleman

> Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

> inertia)

> http://maceyh.home.att.net

>

> /

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

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The nurse (home and hospital) takes them every 15 minutes for one hour, then

every 30 minutes for one hour and then

every hour for the last 2. Usual infusion runs 4 to 5 hrs. Vitals include

heart rate, respirations, blood pressure,

temperature and asking her if she's in any pain (if she's not asleep from the

pre-meds).

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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Belinda - I'm sorry to hear she had a bad time of it. I

saw the previous message but have been in clinicals and

at the NNICU all week. Hopefully the summer months will

be good to her and maybe her response next fall will be

stronger to the challenge.

--

Ursula Holleman

Macey's mom (6 yr. old with CVID,

asthma, sinus

disease, GERD, kidney reflux,

Sensory Integration

Disorder, Diabetes Insipidus)

http://home.att.net/~maceyh/

PedPI

D

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