Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Carolyn Reading what you wrote about Marty not wanting to go to school and his excitement when he figured out you were not going to make him, boy can I see the look that was in his eyes, feel his pain, as I am sure it is the same as what went through! It's amazing to know they actually would have built him a timeout! I am so glad is done with that entire school district, I can see the happiness in his eyes when he goes off to school instead of fear! As far as being mainstreamed, the possiblity is a long way away, but some how I am sure our school district will not be pushing for it! Take care, Chrissy > > > Hi > > > From your descrption of Austin, he should definitely > have an > aide > > for > > > startign kindergarten in a mainstream classroom. Has he > had any > > assessments > > > done by the school ? If not, you should request that he > be > > assessed. > > > Especially, having a PDD-NOs diagnosis. if he is having > constant > > mood > > > changes and banging his head, the school needs to > provide an > aide > > to help > > > redirect him to what going on in class. the teacher > won't be > able > > to do it > > > with all her other students and you don't want him to > just stim > all > > day. If > > > he becomes disengaged when you try to teach him, then he > definitely > > needs > > > someone working with him directly. > > > Definitely contact the school and tell them you want him > assessed > > for > > > special needs supports in the classroom and an aide. > > > You might also consider either having himin a special > day class > at > > first, to > > > help him adjust to a classroom setting and then > sendinghim to > > kinder next > > > year. Or have him in kindergarten now with an aide. And > he can > > repeat kinder > > > if he needs to. > > > Hope this helps > > > > > > > > > >From: " " <Jean.Myers@m...> > > > >Reply-Autism and Aspergers Treatment > > > >Autism and Aspergers Treatment > > > >Subject: Introduction of Austin > > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > > > >My name is Myers. I am a young single mother of a > autistic > > > >child. My son Austin was diagnosed Bi-polar 1 and > Pervasive > > > >Development Disorder NOS at age 3. I knew at age 3 > months that > he > > was > > > >very different. Austin began to speak words when he was > little > over > > > >three months old. He never has stopped talking to this > day and > > > >sometimes seems like has has his own language. Austin > would have > > > >severe nightmares which I later learned were night > terrors. > Austin > > > >has been doing self stimulating exercises since he > started > walking. > > > >He jumps up and down in flails his hands and arms when > he gets > > > >excited. Austin was always very hyper but his moods > constantly > > > >changed. I enrolled him in the infant and toddlers > program at > age > > 18 > > > >months and they taught me how to brush him when he > became over > > > >stimulated. Austin was a controlled head banger. He > would bang > his > > > >head on walls and floors until he got his way. He would > throw > > objects > > > >and break all of his toys. He also became very obsessed > with the > > > >vacuum cleaner. Austin is never good with change. > Austin has > > several > > > >learning disabilities as well. He refuses to learn > colors, > letters, > > > >and numbers and becomes withdrawn if you try to teach > him. He > > doesn't > > > >engage well with other children and becomes abusive to > other > > children > > > >for no apparent reason sometimes. He is a drooler and > he is also > > > >obsessed with his private parts. Due to our recent move > to > > > >Hanover Pennsylvania, he was released from Villa > Behavioral > > > >Health Clinic where he was diagnosed with Aspergers > Syndrome. He > > > >currently does not have a psychiatrist or case worker. > Austin > will > > be > > > >5 next month and is scheduled to begin Kindergarten. I > am > afraid if > > > >he is mainstreamed in a regular public school, he will > become > more > > > >withdrawn and continue to act out and hurt people. If > you have > any > > > >insight, please help! > > > > > > > > > > > > > > > ____________________________________________________________ > _____ > > > Don't just search. Find. Check out the new MSN Search! > > > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Carolyn Reading what you wrote about Marty not wanting to go to school and his excitement when he figured out you were not going to make him, boy can I see the look that was in his eyes, feel his pain, as I am sure it is the same as what went through! It's amazing to know they actually would have built him a timeout! I am so glad is done with that entire school district, I can see the happiness in his eyes when he goes off to school instead of fear! As far as being mainstreamed, the possiblity is a long way away, but some how I am sure our school district will not be pushing for it! Take care, Chrissy > > > Hi > > > From your descrption of Austin, he should definitely > have an > aide > > for > > > startign kindergarten in a mainstream classroom. Has he > had any > > assessments > > > done by the school ? If not, you should request that he > be > > assessed. > > > Especially, having a PDD-NOs diagnosis. if he is having > constant > > mood > > > changes and banging his head, the school needs to > provide an > aide > > to help > > > redirect him to what going on in class. the teacher > won't be > able > > to do it > > > with all her other students and you don't want him to > just stim > all > > day. If > > > he becomes disengaged when you try to teach him, then he > definitely > > needs > > > someone working with him directly. > > > Definitely contact the school and tell them you want him > assessed > > for > > > special needs supports in the classroom and an aide. > > > You might also consider either having himin a special > day class > at > > first, to > > > help him adjust to a classroom setting and then > sendinghim to > > kinder next > > > year. Or have him in kindergarten now with an aide. And > he can > > repeat kinder > > > if he needs to. > > > Hope this helps > > > > > > > > > >From: " " <Jean.Myers@m...> > > > >Reply-Autism and Aspergers Treatment > > > >Autism and Aspergers Treatment > > > >Subject: Introduction of Austin > > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > > > >My name is Myers. I am a young single mother of a > autistic > > > >child. My son Austin was diagnosed Bi-polar 1 and > Pervasive > > > >Development Disorder NOS at age 3. I knew at age 3 > months that > he > > was > > > >very different. Austin began to speak words when he was > little > over > > > >three months old. He never has stopped talking to this > day and > > > >sometimes seems like has has his own language. Austin > would have > > > >severe nightmares which I later learned were night > terrors. > Austin > > > >has been doing self stimulating exercises since he > started > walking. > > > >He jumps up and down in flails his hands and arms when > he gets > > > >excited. Austin was always very hyper but his moods > constantly > > > >changed. I enrolled him in the infant and toddlers > program at > age > > 18 > > > >months and they taught me how to brush him when he > became over > > > >stimulated. Austin was a controlled head banger. He > would bang > his > > > >head on walls and floors until he got his way. He would > throw > > objects > > > >and break all of his toys. He also became very obsessed > with the > > > >vacuum cleaner. Austin is never good with change. > Austin has > > several > > > >learning disabilities as well. He refuses to learn > colors, > letters, > > > >and numbers and becomes withdrawn if you try to teach > him. He > > doesn't > > > >engage well with other children and becomes abusive to > other > > children > > > >for no apparent reason sometimes. He is a drooler and > he is also > > > >obsessed with his private parts. Due to our recent move > to > > > >Hanover Pennsylvania, he was released from Villa > Behavioral > > > >Health Clinic where he was diagnosed with Aspergers > Syndrome. He > > > >currently does not have a psychiatrist or case worker. > Austin > will > > be > > > >5 next month and is scheduled to begin Kindergarten. I > am > afraid if > > > >he is mainstreamed in a regular public school, he will > become > more > > > >withdrawn and continue to act out and hurt people. If > you have > any > > > >insight, please help! > > > > > > > > > > > > > > > ____________________________________________________________ > _____ > > > Don't just search. Find. Check out the new MSN Search! > > > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Carolyn Reading what you wrote about Marty not wanting to go to school and his excitement when he figured out you were not going to make him, boy can I see the look that was in his eyes, feel his pain, as I am sure it is the same as what went through! It's amazing to know they actually would have built him a timeout! I am so glad is done with that entire school district, I can see the happiness in his eyes when he goes off to school instead of fear! As far as being mainstreamed, the possiblity is a long way away, but some how I am sure our school district will not be pushing for it! Take care, Chrissy > > > Hi > > > From your descrption of Austin, he should definitely > have an > aide > > for > > > startign kindergarten in a mainstream classroom. Has he > had any > > assessments > > > done by the school ? If not, you should request that he > be > > assessed. > > > Especially, having a PDD-NOs diagnosis. if he is having > constant > > mood > > > changes and banging his head, the school needs to > provide an > aide > > to help > > > redirect him to what going on in class. the teacher > won't be > able > > to do it > > > with all her other students and you don't want him to > just stim > all > > day. If > > > he becomes disengaged when you try to teach him, then he > definitely > > needs > > > someone working with him directly. > > > Definitely contact the school and tell them you want him > assessed > > for > > > special needs supports in the classroom and an aide. > > > You might also consider either having himin a special > day class > at > > first, to > > > help him adjust to a classroom setting and then > sendinghim to > > kinder next > > > year. Or have him in kindergarten now with an aide. And > he can > > repeat kinder > > > if he needs to. > > > Hope this helps > > > > > > > > > >From: " " <Jean.Myers@m...> > > > >Reply-Autism and Aspergers Treatment > > > >Autism and Aspergers Treatment > > > >Subject: Introduction of Austin > > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > > > >My name is Myers. I am a young single mother of a > autistic > > > >child. My son Austin was diagnosed Bi-polar 1 and > Pervasive > > > >Development Disorder NOS at age 3. I knew at age 3 > months that > he > > was > > > >very different. Austin began to speak words when he was > little > over > > > >three months old. He never has stopped talking to this > day and > > > >sometimes seems like has has his own language. Austin > would have > > > >severe nightmares which I later learned were night > terrors. > Austin > > > >has been doing self stimulating exercises since he > started > walking. > > > >He jumps up and down in flails his hands and arms when > he gets > > > >excited. Austin was always very hyper but his moods > constantly > > > >changed. I enrolled him in the infant and toddlers > program at > age > > 18 > > > >months and they taught me how to brush him when he > became over > > > >stimulated. Austin was a controlled head banger. He > would bang > his > > > >head on walls and floors until he got his way. He would > throw > > objects > > > >and break all of his toys. He also became very obsessed > with the > > > >vacuum cleaner. Austin is never good with change. > Austin has > > several > > > >learning disabilities as well. He refuses to learn > colors, > letters, > > > >and numbers and becomes withdrawn if you try to teach > him. He > > doesn't > > > >engage well with other children and becomes abusive to > other > > children > > > >for no apparent reason sometimes. He is a drooler and > he is also > > > >obsessed with his private parts. Due to our recent move > to > > > >Hanover Pennsylvania, he was released from Villa > Behavioral > > > >Health Clinic where he was diagnosed with Aspergers > Syndrome. He > > > >currently does not have a psychiatrist or case worker. > Austin > will > > be > > > >5 next month and is scheduled to begin Kindergarten. I > am > afraid if > > > >he is mainstreamed in a regular public school, he will > become > more > > > >withdrawn and continue to act out and hurt people. If > you have > any > > > >insight, please help! > > > > > > > > > > > > > > > ____________________________________________________________ > _____ > > > Don't just search. Find. Check out the new MSN Search! > > > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Carolyn Reading what you wrote about Marty not wanting to go to school and his excitement when he figured out you were not going to make him, boy can I see the look that was in his eyes, feel his pain, as I am sure it is the same as what went through! It's amazing to know they actually would have built him a timeout! I am so glad is done with that entire school district, I can see the happiness in his eyes when he goes off to school instead of fear! As far as being mainstreamed, the possiblity is a long way away, but some how I am sure our school district will not be pushing for it! Take care, Chrissy > > > Hi > > > From your descrption of Austin, he should definitely > have an > aide > > for > > > startign kindergarten in a mainstream classroom. Has he > had any > > assessments > > > done by the school ? If not, you should request that he > be > > assessed. > > > Especially, having a PDD-NOs diagnosis. if he is having > constant > > mood > > > changes and banging his head, the school needs to > provide an > aide > > to help > > > redirect him to what going on in class. the teacher > won't be > able > > to do it > > > with all her other students and you don't want him to > just stim > all > > day. If > > > he becomes disengaged when you try to teach him, then he > definitely > > needs > > > someone working with him directly. > > > Definitely contact the school and tell them you want him > assessed > > for > > > special needs supports in the classroom and an aide. > > > You might also consider either having himin a special > day class > at > > first, to > > > help him adjust to a classroom setting and then > sendinghim to > > kinder next > > > year. Or have him in kindergarten now with an aide. And > he can > > repeat kinder > > > if he needs to. > > > Hope this helps > > > > > > > > > >From: " " <Jean.Myers@m...> > > > >Reply-Autism and Aspergers Treatment > > > >Autism and Aspergers Treatment > > > >Subject: Introduction of Austin > > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > > > >My name is Myers. I am a young single mother of a > autistic > > > >child. My son Austin was diagnosed Bi-polar 1 and > Pervasive > > > >Development Disorder NOS at age 3. I knew at age 3 > months that > he > > was > > > >very different. Austin began to speak words when he was > little > over > > > >three months old. He never has stopped talking to this > day and > > > >sometimes seems like has has his own language. Austin > would have > > > >severe nightmares which I later learned were night > terrors. > Austin > > > >has been doing self stimulating exercises since he > started > walking. > > > >He jumps up and down in flails his hands and arms when > he gets > > > >excited. Austin was always very hyper but his moods > constantly > > > >changed. I enrolled him in the infant and toddlers > program at > age > > 18 > > > >months and they taught me how to brush him when he > became over > > > >stimulated. Austin was a controlled head banger. He > would bang > his > > > >head on walls and floors until he got his way. He would > throw > > objects > > > >and break all of his toys. He also became very obsessed > with the > > > >vacuum cleaner. Austin is never good with change. > Austin has > > several > > > >learning disabilities as well. He refuses to learn > colors, > letters, > > > >and numbers and becomes withdrawn if you try to teach > him. He > > doesn't > > > >engage well with other children and becomes abusive to > other > > children > > > >for no apparent reason sometimes. He is a drooler and > he is also > > > >obsessed with his private parts. Due to our recent move > to > > > >Hanover Pennsylvania, he was released from Villa > Behavioral > > > >Health Clinic where he was diagnosed with Aspergers > Syndrome. He > > > >currently does not have a psychiatrist or case worker. > Austin > will > > be > > > >5 next month and is scheduled to begin Kindergarten. I > am > afraid if > > > >he is mainstreamed in a regular public school, he will > become > more > > > >withdrawn and continue to act out and hurt people. If > you have > any > > > >insight, please help! > > > > > > > > > > > > > > > ____________________________________________________________ > _____ > > > Don't just search. Find. Check out the new MSN Search! > > > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Wow, thats is a nightmare. I am hoping they evaluate him for a special school called Lincoln Intermediate for children with autism spectrum disorders. Until then, I have no choice. I am a single mom that also works full time and I am about to lose my job because of all of this. Its hard I am sure you know. But I am going to do whatever it takes for Austin to feel comfortable and get the education he deserves. Thanks for the heads up! *********************************************************************** The opinion expressed in this e-mail message are those of the sender alone and do not represent the position of Mercantile Bankshares Corporation or its Affiliates unless specifically so stated herein. Additionally, the information contained in this message is intended only for the persons to whom it is addressed and may contain confidential or privileged material. Copying, distributing, dissemination, reliance on, or other use of the information by persons other than the intended recipient(s) is prohibited. If you received this message in error, please notify the sender and delete the entire message from any computer. *********************************************************************** Autism and Aspergers Treatment From: csaragusa[csaragusa]@ Date: Sat, 14 Aug 2004 01:27:40 -0000 Subject: Re: Introduction of Austin Reply-Autism and Aspergers Treatment X-HDT-HopCount: 1 Hi I don't know if I have any real advice on what to do as much as what not to do. My son , started school in a regular classroom, within the first week, the school said they could not accomodate his needs, even with an aide. (I told them from the screening that he would not last in a class with 25 other kids) So their next suggestion was move him to another school with only 10 kids! Sounded a little better, however, the teacher was in her 60's very small and soft spoken. This to was an open invitation to disaster, once again with a 1 on 1 aide. I kept him home for 2 months until there was an opening in a special ed room at another school. This time with no aide. Small class about 10 students and 3 teachers. This was a NIGHTMARE, as most of the kids in the room were there for things like ADHD..., this meant suspension after suspension. Sending home was what he wanted. In the mornings he would actually tell me the time he would be home by, boy he was almost always right on! Then first grade started and they tried to refuse him re-entry and I was simply told the day before school started to keep him home. Well I work full time and this just isn't possible as a daycare was absolutely out of the question. So the next day, Myself, and a local newspaper reporter showed up for his first day of school. They suddenly had a change of heart and let him stay in school! At the time I thought I was doing the right thing for as he too deserved an education and I had to work. Now I know I was wrong, everyday he was made to stay in the quiet room, was not allowed interaction with the other kids and I would recieve a report everyday of what he did every 15 minutes (literally). This school lasted for about 3 weeks when the Principal called the POLICE to control a 6 year old child! 5 officers came storming into the prinipal's office grabbing and yelling at him! I took him out immediately and fought with every person within that school district to find him a place. After 3 months of being at home there was finally a place for him at a school about 20 miles away, that specialized in children with AS, PDD and others like that. I drilled them for 4 weeks before I would let go, I talked to ALOT of professionals about the school and even talked to bus drivers and parents. FINALLY, we foud HIS place! He is now entering the second grade, academically he excels, socially improved greatly but I think most of all he has learned a true compassion for others feelings! My point is don't let them force you into a decision, be sure you are comfortable with his placement and that you feel it is right for him. As I now feel it was bad mistakes on my behalf and a school district that had their head in an unknown place, that caused a huge amount of stress, anxiety and a feeling of school being an unsafe place to be! If at all possible keep him home until you find that spot, I think it may make a huge difference! The best of luck to you, Chrissy > > Hi > > From your descrption of Austin, he should definitely have an aide > for > > startign kindergarten in a mainstream classroom. Has he had any > assessments > > done by the school ? If not, you should request that he be > assessed. > > Especially, having a PDD-NOs diagnosis. if he is having constant > mood > > changes and banging his head, the school needs to provide an aide > to help > > redirect him to what going on in class. the teacher won't be able > to do it > > with all her other students and you don't want him to just stim all > day. If > > he becomes disengaged when you try to teach him, then he definitely > needs > > someone working with him directly. > > Definitely contact the school and tell them you want him assessed > for > > special needs supports in the classroom and an aide. > > You might also consider either having himin a special day class at > first, to > > help him adjust to a classroom setting and then sendinghim to > kinder next > > year. Or have him in kindergarten now with an aide. And he can > repeat kinder > > if he needs to. > > Hope this helps > > > > > > >From: " " <Jean.Myers@m...> > > >Reply-Autism and Aspergers Treatment > > >Autism and Aspergers Treatment > > >Subject: Introduction of Austin > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > >My name is Myers. I am a young single mother of a autistic > > >child. My son Austin was diagnosed Bi-polar 1 and Pervasive > > >Development Disorder NOS at age 3. I knew at age 3 months that he > was > > >very different. Austin began to speak words when he was little over > > >three months old. He never has stopped talking to this day and > > >sometimes seems like has has his own language. Austin would have > > >severe nightmares which I later learned were night terrors. Austin > > >has been doing self stimulating exercises since he started walking. > > >He jumps up and down in flails his hands and arms when he gets > > >excited. Austin was always very hyper but his moods constantly > > >changed. I enrolled him in the infant and toddlers program at age > 18 > > >months and they taught me how to brush him when he became over > > >stimulated. Austin was a controlled head banger. He would bang his > > >head on walls and floors until he got his way. He would throw > objects > > >and break all of his toys. He also became very obsessed with the > > >vacuum cleaner. Austin is never good with change. Austin has > several > > >learning disabilities as well. He refuses to learn colors, letters, > > >and numbers and becomes withdrawn if you try to teach him. He > doesn't > > >engage well with other children and becomes abusive to other > children > > >for no apparent reason sometimes. He is a drooler and he is also > > >obsessed with his private parts. Due to our recent move to > > >Hanover Pennsylvania, he was released from Villa Behavioral > > >Health Clinic where he was diagnosed with Aspergers Syndrome. He > > >currently does not have a psychiatrist or case worker. Austin will > be > > >5 next month and is scheduled to begin Kindergarten. I am afraid if > > >he is mainstreamed in a regular public school, he will become more > > >withdrawn and continue to act out and hurt people. If you have any > > >insight, please help! > > > > > > > > > > _________________________________________________________________ > > Don't just search. Find. Check out the new MSN Search! > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Wow, thats is a nightmare. I am hoping they evaluate him for a special school called Lincoln Intermediate for children with autism spectrum disorders. Until then, I have no choice. I am a single mom that also works full time and I am about to lose my job because of all of this. Its hard I am sure you know. But I am going to do whatever it takes for Austin to feel comfortable and get the education he deserves. Thanks for the heads up! *********************************************************************** The opinion expressed in this e-mail message are those of the sender alone and do not represent the position of Mercantile Bankshares Corporation or its Affiliates unless specifically so stated herein. Additionally, the information contained in this message is intended only for the persons to whom it is addressed and may contain confidential or privileged material. Copying, distributing, dissemination, reliance on, or other use of the information by persons other than the intended recipient(s) is prohibited. If you received this message in error, please notify the sender and delete the entire message from any computer. *********************************************************************** Autism and Aspergers Treatment From: csaragusa[csaragusa]@ Date: Sat, 14 Aug 2004 01:27:40 -0000 Subject: Re: Introduction of Austin Reply-Autism and Aspergers Treatment X-HDT-HopCount: 1 Hi I don't know if I have any real advice on what to do as much as what not to do. My son , started school in a regular classroom, within the first week, the school said they could not accomodate his needs, even with an aide. (I told them from the screening that he would not last in a class with 25 other kids) So their next suggestion was move him to another school with only 10 kids! Sounded a little better, however, the teacher was in her 60's very small and soft spoken. This to was an open invitation to disaster, once again with a 1 on 1 aide. I kept him home for 2 months until there was an opening in a special ed room at another school. This time with no aide. Small class about 10 students and 3 teachers. This was a NIGHTMARE, as most of the kids in the room were there for things like ADHD..., this meant suspension after suspension. Sending home was what he wanted. In the mornings he would actually tell me the time he would be home by, boy he was almost always right on! Then first grade started and they tried to refuse him re-entry and I was simply told the day before school started to keep him home. Well I work full time and this just isn't possible as a daycare was absolutely out of the question. So the next day, Myself, and a local newspaper reporter showed up for his first day of school. They suddenly had a change of heart and let him stay in school! At the time I thought I was doing the right thing for as he too deserved an education and I had to work. Now I know I was wrong, everyday he was made to stay in the quiet room, was not allowed interaction with the other kids and I would recieve a report everyday of what he did every 15 minutes (literally). This school lasted for about 3 weeks when the Principal called the POLICE to control a 6 year old child! 5 officers came storming into the prinipal's office grabbing and yelling at him! I took him out immediately and fought with every person within that school district to find him a place. After 3 months of being at home there was finally a place for him at a school about 20 miles away, that specialized in children with AS, PDD and others like that. I drilled them for 4 weeks before I would let go, I talked to ALOT of professionals about the school and even talked to bus drivers and parents. FINALLY, we foud HIS place! He is now entering the second grade, academically he excels, socially improved greatly but I think most of all he has learned a true compassion for others feelings! My point is don't let them force you into a decision, be sure you are comfortable with his placement and that you feel it is right for him. As I now feel it was bad mistakes on my behalf and a school district that had their head in an unknown place, that caused a huge amount of stress, anxiety and a feeling of school being an unsafe place to be! If at all possible keep him home until you find that spot, I think it may make a huge difference! The best of luck to you, Chrissy > > Hi > > From your descrption of Austin, he should definitely have an aide > for > > startign kindergarten in a mainstream classroom. Has he had any > assessments > > done by the school ? If not, you should request that he be > assessed. > > Especially, having a PDD-NOs diagnosis. if he is having constant > mood > > changes and banging his head, the school needs to provide an aide > to help > > redirect him to what going on in class. the teacher won't be able > to do it > > with all her other students and you don't want him to just stim all > day. If > > he becomes disengaged when you try to teach him, then he definitely > needs > > someone working with him directly. > > Definitely contact the school and tell them you want him assessed > for > > special needs supports in the classroom and an aide. > > You might also consider either having himin a special day class at > first, to > > help him adjust to a classroom setting and then sendinghim to > kinder next > > year. Or have him in kindergarten now with an aide. And he can > repeat kinder > > if he needs to. > > Hope this helps > > > > > > >From: " " <Jean.Myers@m...> > > >Reply-Autism and Aspergers Treatment > > >Autism and Aspergers Treatment > > >Subject: Introduction of Austin > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > >My name is Myers. I am a young single mother of a autistic > > >child. My son Austin was diagnosed Bi-polar 1 and Pervasive > > >Development Disorder NOS at age 3. I knew at age 3 months that he > was > > >very different. Austin began to speak words when he was little over > > >three months old. He never has stopped talking to this day and > > >sometimes seems like has has his own language. Austin would have > > >severe nightmares which I later learned were night terrors. Austin > > >has been doing self stimulating exercises since he started walking. > > >He jumps up and down in flails his hands and arms when he gets > > >excited. Austin was always very hyper but his moods constantly > > >changed. I enrolled him in the infant and toddlers program at age > 18 > > >months and they taught me how to brush him when he became over > > >stimulated. Austin was a controlled head banger. He would bang his > > >head on walls and floors until he got his way. He would throw > objects > > >and break all of his toys. He also became very obsessed with the > > >vacuum cleaner. Austin is never good with change. Austin has > several > > >learning disabilities as well. He refuses to learn colors, letters, > > >and numbers and becomes withdrawn if you try to teach him. He > doesn't > > >engage well with other children and becomes abusive to other > children > > >for no apparent reason sometimes. He is a drooler and he is also > > >obsessed with his private parts. Due to our recent move to > > >Hanover Pennsylvania, he was released from Villa Behavioral > > >Health Clinic where he was diagnosed with Aspergers Syndrome. He > > >currently does not have a psychiatrist or case worker. Austin will > be > > >5 next month and is scheduled to begin Kindergarten. I am afraid if > > >he is mainstreamed in a regular public school, he will become more > > >withdrawn and continue to act out and hurt people. If you have any > > >insight, please help! > > > > > > > > > > _________________________________________________________________ > > Don't just search. Find. Check out the new MSN Search! > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 No kidding on that. I have been fighting for Austin here since May, its now three weeks before school and they are just starting to listen. Its rediculous! *********************************************************************** The opinion expressed in this e-mail message are those of the sender alone and do not represent the position of Mercantile Bankshares Corporation or its Affiliates unless specifically so stated herein. Additionally, the information contained in this message is intended only for the persons to whom it is addressed and may contain confidential or privileged material. Copying, distributing, dissemination, reliance on, or other use of the information by persons other than the intended recipient(s) is prohibited. If you received this message in error, please notify the sender and delete the entire message from any computer. *********************************************************************** Autism and Aspergers Treatment From: Sharon[sshari25]@ Date: Sat, 14 Aug 2004 13:37:26 -0000 Subject: Re: Introduction of Austin Reply-Autism and Aspergers Treatment X-HDT-HopCount: 1 I am in philly and I know that here we also have special programs for kids that are HFA/AS. It is a trial program geared at getting them to the point they need to be to be mainstreamed. Also, whenever you feel as if the school is not providing what you need, contact your local elected officials. I had to do this for my son. I contacted the govenor and within 1 week,the classroom I just mentioned that I had been told did not exist, magically appeared and I had my new IEP within another week of that, and my son was placed within three weeks of the initial email. PA seems to only respond when they have to. Sharon > Thank you so much for your support. I am working on getting a PSS worker, > (wrap around couch) that is trained in Asbergers Syndrome and Mood Disorders. > It looks promising... with his diagnosis, his insurance is willing to pay for > one. YEAH!! > ********************************************************************* ** > The opinion expressed in this e-mail message are those of the sender > alone and do not represent the position of Mercantile Bankshares > Corporation or its Affiliates unless specifically so stated herein. > Additionally, the information contained in this message is intended > only for the persons to whom it is addressed and may contain > confidential or privileged material. Copying, distributing, > dissemination, reliance on, or other use of the information by persons > other than the intended recipient(s) is prohibited. If you received > this message in error, please notify the sender and delete the entire > message from any computer. > ********************************************************************* ** > > > > Autism and Aspergers Treatment > bcc: > From: A.Bullock[discus_ab]@hotmail.com > Date: Thu, 12 Aug 2004 13:00:02 -0700 > Subject: RE: Re: Introduction of Austin > Reply-Autism and Aspergers Treatment > X-HDT-HopCount: 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 No kidding on that. I have been fighting for Austin here since May, its now three weeks before school and they are just starting to listen. Its rediculous! *********************************************************************** The opinion expressed in this e-mail message are those of the sender alone and do not represent the position of Mercantile Bankshares Corporation or its Affiliates unless specifically so stated herein. Additionally, the information contained in this message is intended only for the persons to whom it is addressed and may contain confidential or privileged material. Copying, distributing, dissemination, reliance on, or other use of the information by persons other than the intended recipient(s) is prohibited. If you received this message in error, please notify the sender and delete the entire message from any computer. *********************************************************************** Autism and Aspergers Treatment From: Sharon[sshari25]@ Date: Sat, 14 Aug 2004 13:37:26 -0000 Subject: Re: Introduction of Austin Reply-Autism and Aspergers Treatment X-HDT-HopCount: 1 I am in philly and I know that here we also have special programs for kids that are HFA/AS. It is a trial program geared at getting them to the point they need to be to be mainstreamed. Also, whenever you feel as if the school is not providing what you need, contact your local elected officials. I had to do this for my son. I contacted the govenor and within 1 week,the classroom I just mentioned that I had been told did not exist, magically appeared and I had my new IEP within another week of that, and my son was placed within three weeks of the initial email. PA seems to only respond when they have to. Sharon > Thank you so much for your support. I am working on getting a PSS worker, > (wrap around couch) that is trained in Asbergers Syndrome and Mood Disorders. > It looks promising... with his diagnosis, his insurance is willing to pay for > one. YEAH!! > ********************************************************************* ** > The opinion expressed in this e-mail message are those of the sender > alone and do not represent the position of Mercantile Bankshares > Corporation or its Affiliates unless specifically so stated herein. > Additionally, the information contained in this message is intended > only for the persons to whom it is addressed and may contain > confidential or privileged material. Copying, distributing, > dissemination, reliance on, or other use of the information by persons > other than the intended recipient(s) is prohibited. If you received > this message in error, please notify the sender and delete the entire > message from any computer. > ********************************************************************* ** > > > > Autism and Aspergers Treatment > bcc: > From: A.Bullock[discus_ab]@hotmail.com > Date: Thu, 12 Aug 2004 13:00:02 -0700 > Subject: RE: Re: Introduction of Austin > Reply-Autism and Aspergers Treatment > X-HDT-HopCount: 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 I will definitely keep everything you said in mind. Thanks for your ideas! *********************************************************************** The opinion expressed in this e-mail message are those of the sender alone and do not represent the position of Mercantile Bankshares Corporation or its Affiliates unless specifically so stated herein. Additionally, the information contained in this message is intended only for the persons to whom it is addressed and may contain confidential or privileged material. Copying, distributing, dissemination, reliance on, or other use of the information by persons other than the intended recipient(s) is prohibited. If you received this message in error, please notify the sender and delete the entire message from any computer. *********************************************************************** Autism and Aspergers Treatment From: Carol.Sadler[sadlerpc]@prodigy.net Date: Sat, 14 Aug 2004 12:08:07 -0400 Subject: Re: Introduction of Austin Reply-Autism and Aspergers Treatment X-HDT-HopCount: 1 I've not followed this entire thread, but I can certainly say as an Advocate, I LOVE to hear that a parent has been told that a school can't accommodate their child. That gives advocates and attorneys ammunition to go over them for private placement at public expense, because if the school system can't, I certainly can find an appropriate placement. I would be looking for a great private school who can meet the needs of your autistic child, and then look for an advocate or attorney to walk you through the process. Oh, get their statement on tape recording in a meeting, or try to get it in writing. Ask for PWN (Prior Written Notice) why they can't take your child or accommodate his needs (make a request in writing for PWN). Take a family witness into a meeting with you so they can verify what you were told. You'd just be amazed at the mistakes schools will make even on tape, then when a parent hires an advocate/attorney, they try to back paddle and can come up with the most amazing placements.................. Keep in mind, children are entitled to appropriate placements in LRE and in their HOME school as well.......... Carol Sadler Special Education Consultant/Advocate sadlerpc@... www.IEPadvocate4You.com Moderator: GA-ChildrensNetwork/ I've not followed this entire thread, but I can certainly say as an Advocate, I LOVE to hear that a parent has been told that a school can't accommodate their child. That gives advocates and attorneys ammunition to go over them for private placement at public expense, because if the school system can't, I certainly can find an appropriate placement. I would be looking for a great private school who can meet the needs of your autistic child, and then look for an advocate or attorney to walk you through the process. Oh, get their statement on tape recording in a meeting, or try to get it in writing. Ask for PWN (Prior Written Notice) why they can't take your child or accommodate his needs (make a request in writing for PWN). Take a family witness into a meeting with you so they can verify what you were told. You'd just be amazed at the mistakes schools will make even on tape, then when a parent hires an advocate/attorney, they try to back paddle and can come up with the most amazing placements.................. Keep in mind, children are entitled to appropriate placements in LRE and in their HOME school as well.......... Carol SadlerSpecial Education Consultant/Advocatesadlerpc@...www.IEPadvocate4You.com Moderator: GA-ChildrensNetwork/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 I will definitely keep everything you said in mind. Thanks for your ideas! *********************************************************************** The opinion expressed in this e-mail message are those of the sender alone and do not represent the position of Mercantile Bankshares Corporation or its Affiliates unless specifically so stated herein. Additionally, the information contained in this message is intended only for the persons to whom it is addressed and may contain confidential or privileged material. Copying, distributing, dissemination, reliance on, or other use of the information by persons other than the intended recipient(s) is prohibited. If you received this message in error, please notify the sender and delete the entire message from any computer. *********************************************************************** Autism and Aspergers Treatment From: Carol.Sadler[sadlerpc]@prodigy.net Date: Sat, 14 Aug 2004 12:08:07 -0400 Subject: Re: Introduction of Austin Reply-Autism and Aspergers Treatment X-HDT-HopCount: 1 I've not followed this entire thread, but I can certainly say as an Advocate, I LOVE to hear that a parent has been told that a school can't accommodate their child. That gives advocates and attorneys ammunition to go over them for private placement at public expense, because if the school system can't, I certainly can find an appropriate placement. I would be looking for a great private school who can meet the needs of your autistic child, and then look for an advocate or attorney to walk you through the process. Oh, get their statement on tape recording in a meeting, or try to get it in writing. Ask for PWN (Prior Written Notice) why they can't take your child or accommodate his needs (make a request in writing for PWN). Take a family witness into a meeting with you so they can verify what you were told. You'd just be amazed at the mistakes schools will make even on tape, then when a parent hires an advocate/attorney, they try to back paddle and can come up with the most amazing placements.................. Keep in mind, children are entitled to appropriate placements in LRE and in their HOME school as well.......... Carol Sadler Special Education Consultant/Advocate sadlerpc@... www.IEPadvocate4You.com Moderator: GA-ChildrensNetwork/ I've not followed this entire thread, but I can certainly say as an Advocate, I LOVE to hear that a parent has been told that a school can't accommodate their child. That gives advocates and attorneys ammunition to go over them for private placement at public expense, because if the school system can't, I certainly can find an appropriate placement. I would be looking for a great private school who can meet the needs of your autistic child, and then look for an advocate or attorney to walk you through the process. Oh, get their statement on tape recording in a meeting, or try to get it in writing. Ask for PWN (Prior Written Notice) why they can't take your child or accommodate his needs (make a request in writing for PWN). Take a family witness into a meeting with you so they can verify what you were told. You'd just be amazed at the mistakes schools will make even on tape, then when a parent hires an advocate/attorney, they try to back paddle and can come up with the most amazing placements.................. Keep in mind, children are entitled to appropriate placements in LRE and in their HOME school as well.......... Carol SadlerSpecial Education Consultant/Advocatesadlerpc@...www.IEPadvocate4You.com Moderator: GA-ChildrensNetwork/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi I definitely agree with Chrissy. Getting your son in the best placement for him is the most important thing. And a special day school may be it. Try to take a look at what available in your area as well as what in the home school. Angels > Hi > I don't know if I have any real advice on what to do as much as > what not to do. My son , started school in a regular > classroom, within the first week, the school said they could not > accomodate his needs, even with an aide. (I told them from the > screening that he would not last in a class with 25 other kids) So > their next suggestion was move him to another school with only 10 > kids! Sounded a little better, however, the teacher was in her 60's > very small and soft spoken. This to was an open invitation to > disaster, once again with a 1 on 1 aide. I kept him home for 2 > months until there was an opening in a special ed room at another > school. This time with no aide. Small class about 10 students and > 3 teachers. This was a NIGHTMARE, as most of the kids in the room > were there for things like ADHD..., this meant suspension after > suspension. Sending home was what he wanted. In the mornings > he would actually tell me the time he would be home by, boy he was > almost always right on! Then first grade started and they tried to > refuse him re-entry and I was simply told the day before school > started to keep him home. Well I work full time and this just isn't > possible as a daycare was absolutely out of the question. So the > next day, Myself, and a local newspaper reporter showed up for > his first day of school. They suddenly had a change of heart and > let him stay in school! At the time I thought I was doing the right > thing for as he too deserved an education and I had to work. > Now I know I was wrong, everyday he was made to stay in the quiet > room, was not allowed interaction with the other kids and I would > recieve a report everyday of what he did every 15 minutes > (literally). This school lasted for about 3 weeks when the > Principal called the POLICE to control a 6 year old child! 5 > officers came storming into the prinipal's office grabbing and > yelling at him! I took him out immediately and fought with every > person within that school district to find him a place. After 3 > months of being at home there was finally a place for him at a > school about 20 miles away, that specialized in children with AS, > PDD and others like that. I drilled them for 4 weeks before I would > let go, I talked to ALOT of professionals about the school and > even talked to bus drivers and parents. FINALLY, we foud HIS > place! He is now entering the second grade, academically he excels, > socially improved greatly but I think most of all he has learned a > true compassion for others feelings! > My point is don't let them force you into a decision, be sure you > are comfortable with his placement and that you feel it is right for > him. As I now feel it was bad mistakes on my behalf and a school > district that had their head in an unknown place, that caused > a huge amount of stress, anxiety and a feeling of school being an > unsafe place to be! If at all possible keep him home until you find > that spot, I think it may make a huge difference! > The best of luck to you, > Chrissy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi Chrissy, Yes, that was really something wasn't it. I don't think they knew what they were doing then. They just thought Marty was "being bad," and they were going to make him good. But what I saw was a mixed up little boy who became very upset with noises and flashing lights and sounds. For awhile he would have a seizure every time I opened my mouth. You know how a mother talks when the kids are running around and I was say this or that, and bam Marty would go on the floor in a seizure. It was the tone of my voice that did it, so I lowered it and that solved the problem. And Marty cannot stand a lot of people around him. I think he worries he may have a seizure in front of them and he does not want to. He cannot talk but he just stares into my eyes with a frown, and I tell him it is o.k., but pretty much we stay away from crowds and noise. We do go to church on Sunday nights but it is a small group and he is very comfortable with the people there and seems to enjoy it a lot. When we quit using his wheelchair and started walking him in he was really excited to show off to them how well he was walking. So we don't use sit anymore unless it is a really long walk. Progress sure takes struggle but I don't think it can be avoided. The Bible says, "Be ye not weary in well doing for you shall reap your reward if you faint not." I live by that, and many others. "Trust in the Lord with all your heart, lean not towards your own understanding, in all your ways acknowledge Him, and He shall direct your paths." That one is Prov, 3: 5,6, not sure where the other one is right now, I just live it. haha Love to you all, Carolyn Introduction of Austin> > > >Date: Thu, 12 Aug 2004 15:37:12 -0000> > > >> > > >My name is Myers. I am a young single mother of a> autistic> > > >child. My son Austin was diagnosed Bi-polar 1 and> Pervasive> > > >Development Disorder NOS at age 3. I knew at age 3> months that> he> > was> > > >very different. Austin began to speak words when he was> little> over> > > >three months old. He never has stopped talking to this> day and> > > >sometimes seems like has has his own language. Austin> would have> > > >severe nightmares which I later learned were night> terrors.> Austin> > > >has been doing self stimulating exercises since he> started> walking.> > > >He jumps up and down in flails his hands and arms when> he gets> > > >excited. Austin was always very hyper but his moods> constantly> > > >changed. I enrolled him in the infant and toddlers> program at> age> > 18> > > >months and they taught me how to brush him when he> became over> > > >stimulated. Austin was a controlled head banger. He> would bang> his> > > >head on walls and floors until he got his way. He would> throw> > objects> > > >and break all of his toys. He also became very obsessed> with the> > > >vacuum cleaner. Austin is never good with change.> Austin has> > several> > > >learning disabilities as well. He refuses to learn> colors,> letters,> > > >and numbers and becomes withdrawn if you try to teach> him. He> > doesn't> > > >engage well with other children and becomes abusive to> other> > children> > > >for no apparent reason sometimes. He is a drooler and> he is also> > > >obsessed with his private parts. Due to our recent move> to> > > >Hanover Pennsylvania, he was released from Villa > Behavioral> > > >Health Clinic where he was diagnosed with Aspergers> Syndrome. He> > > >currently does not have a psychiatrist or case worker.> Austin> will> > be> > > >5 next month and is scheduled to begin Kindergarten. I> am> afraid if> > > >he is mainstreamed in a regular public school, he will> become> more> > > >withdrawn and continue to act out and hurt people. If> you have> any> > > >insight, please help!> > > >> > > >> > >> > >> ____________________________________________________________> _____> > > Don't just search. Find. Check out the new MSN Search!> > >> http://search.msn.click-url.com/go/onm00200636ave/direct/01/> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi Carolyn, I can feel the frustration you must have felt back then. As still today the world is filled with ignorance on the subject, then it must have been so much worse. Has anyone ever said Marty has Sensory problems? As for all the things you described is exactly what experiences? Lights, loud noises and crowds. They say it's all Sensory issues? Does Marty recieve any services like OT? Maybe something like that could be helpful for him? I know with the class he is in, has a red light set up, its a big traffice light that changes from green to yellow to red according to the noise volume (I want one for home) they also give him headsets to wear which is helpful. When we take places with crowds we always go on those " off " days and he takes a headset to muffle out some sounds, I always lead the way so I can take the least traveled route. Sometimes that is the most helpful thing I can do for him. His father always wonders how I know what to avoid, as I tell him I am constantly scanning the scene. If I see a smaill child that is fussy, stay away, see a groups of teenagers rough housing, stay away, I am just always looking and thinking what is going to cause the most anxiety and then I go another way. Take care, Chrissy > Hi Chrissy, > > Yes, that was really something wasn't it. I don't think > they knew what they were doing then. They just thought Marty > was " being bad, " and they were going to make him good. But > what I saw was a mixed up little boy who became very upset > with noises and flashing lights and sounds. For awhile he > would have a seizure every time I opened my mouth. You know > how a mother talks when the kids are running around and I > was say this or that, and bam Marty would go on the floor in > a seizure. It was the tone of my voice that did it, so I > lowered it and that solved the problem. > > And Marty cannot stand a lot of people around him. I > think he worries he may have a seizure in front of them and > he does not want to. He cannot talk but he just stares into > my eyes with a frown, and I tell him it is o.k., but pretty > much we stay away from crowds and noise. We do go to church > on Sunday nights but it is a small group and he is very > comfortable with the people there and seems to enjoy it a > lot. > > When we quit using his wheelchair and started walking > him in he was really excited to show off to them how well he > was walking. So we don't use sit anymore unless it is a > really long walk. > > Progress sure takes struggle but I don't think it can be > avoided. The Bible says, " Be ye not weary in well doing for > you shall reap your reward if you faint not. " I live by > that, and many others. " Trust in the Lord with all your > heart, lean not towards your own understanding, in all your > ways acknowledge Him, and He shall direct your paths. " That > one is Prov, 3: 5,6, not sure where the other one is right > now, I just live it. haha > > Love to you all, > Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi Carolyn, I can feel the frustration you must have felt back then. As still today the world is filled with ignorance on the subject, then it must have been so much worse. Has anyone ever said Marty has Sensory problems? As for all the things you described is exactly what experiences? Lights, loud noises and crowds. They say it's all Sensory issues? Does Marty recieve any services like OT? Maybe something like that could be helpful for him? I know with the class he is in, has a red light set up, its a big traffice light that changes from green to yellow to red according to the noise volume (I want one for home) they also give him headsets to wear which is helpful. When we take places with crowds we always go on those " off " days and he takes a headset to muffle out some sounds, I always lead the way so I can take the least traveled route. Sometimes that is the most helpful thing I can do for him. His father always wonders how I know what to avoid, as I tell him I am constantly scanning the scene. If I see a smaill child that is fussy, stay away, see a groups of teenagers rough housing, stay away, I am just always looking and thinking what is going to cause the most anxiety and then I go another way. Take care, Chrissy > Hi Chrissy, > > Yes, that was really something wasn't it. I don't think > they knew what they were doing then. They just thought Marty > was " being bad, " and they were going to make him good. But > what I saw was a mixed up little boy who became very upset > with noises and flashing lights and sounds. For awhile he > would have a seizure every time I opened my mouth. You know > how a mother talks when the kids are running around and I > was say this or that, and bam Marty would go on the floor in > a seizure. It was the tone of my voice that did it, so I > lowered it and that solved the problem. > > And Marty cannot stand a lot of people around him. I > think he worries he may have a seizure in front of them and > he does not want to. He cannot talk but he just stares into > my eyes with a frown, and I tell him it is o.k., but pretty > much we stay away from crowds and noise. We do go to church > on Sunday nights but it is a small group and he is very > comfortable with the people there and seems to enjoy it a > lot. > > When we quit using his wheelchair and started walking > him in he was really excited to show off to them how well he > was walking. So we don't use sit anymore unless it is a > really long walk. > > Progress sure takes struggle but I don't think it can be > avoided. The Bible says, " Be ye not weary in well doing for > you shall reap your reward if you faint not. " I live by > that, and many others. " Trust in the Lord with all your > heart, lean not towards your own understanding, in all your > ways acknowledge Him, and He shall direct your paths. " That > one is Prov, 3: 5,6, not sure where the other one is right > now, I just live it. haha > > Love to you all, > Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Somthing you might want to try is contact an advocate for kids, they will give you alot of helpful information, including a book on the laws for special education. Read it, so that you are prepared to understand what it is Austin is entitled to. This may be helpful in getting what you know Austin needs. Just keep in mind things like how Austin does in small groups, being touched by someone, if he sometimes just needsquiet time. Then look for the setting that is going to best met his needs. Some kids I have learned that if they just have a quiet room to go into as soon as they are feeling overwhelmed is enough. My sweet needed a whole lot more then that. Go with your heart, not with what someone who does not know Austin says! I understand fully the situation of being a single parent and wish their was some magical advise that I could give to you to helpwith that side of the problem! For me I was " kindof " a single parent (whole other discussion board there) going through this but I was lucky enough to go through a Mental Health Agency that could come into the home and watch while I was working. They also provided with 1-on-1 aide in preschool, day camp and school everytime I found him a new setting. I hope you get something helpful from some of this. Take care and the best of luck to you & Austin! Chrissy > Wow, thats is a nightmare. I am hoping they evaluate him for a special school > called Lincoln Intermediate for children with autism spectrum disorders. Until > then, I have no choice. I am a single mom that also works full time and I am > about to lose my job because of all of this. Its hard I am sure you know. But > I am going to do whatever it takes for Austin to feel comfortable and get the > education he deserves. Thanks for the heads up! > ********************************************************************* ** > The opinion expressed in this e-mail message are those of the sender > alone and do not represent the position of Mercantile Bankshares > Corporation or its Affiliates unless specifically so stated herein. > Additionally, the information contained in this message is intended > only for the persons to whom it is addressed and may contain > confidential or privileged material. Copying, distributing, > dissemination, reliance on, or other use of the information by persons > other than the intended recipient(s) is prohibited. If you received > this message in error, please notify the sender and delete the entire > message from any computer. > ********************************************************************* ** > > > > Autism and Aspergers Treatment > From: csaragusa[csaragusa]@ > Date: Sat, 14 Aug 2004 01:27:40 -0000 > Subject: Re: Introduction of Austin > Reply-Autism and Aspergers Treatment > X-HDT-HopCount: 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi Chrissy, Yes, there has been an awful lot of frustration in my life with Marty I must say. Just day to day trying to do what is best for him all the time, and never really KNOWING what that is other than giving him a steady and consistent home life and my love and care. No he has never had OT, is that Occupational Therapy or something else? They looked at his hands once because they are all twisted now, he can't straighten his fingers out and can only use his pointer fingers and his thumbs, and one of his ankles is getting really getting rigid and swollen now too and I am thinking of taking him to the doctor for it. I took him last year when I first noticed the swelling but he said it was from the way he sits. Hmmmm. It is hard to take care of a disabled child, and that is the truth. And right now I am frustrated with my mother. It is kind of the same thing, caregiving. Mom is 86 years old now and can barely walk on her own, and I take her to the store, etc., have to put her wheelchair into the trunk. Well the other day we had a fight, we have always fought. My brother Dick died in January after a lengthy illness caused by his drinking, he died of cirrhosis. Well I had taken mom out to the cemetery to see about his marker, etc. and on the way home she was saying this, "I really miss Dick, he was the oooooooonly one who ever helped me, da, da, da," Well there I was HELPING her at that very moment. She got so mad at me she told me I had been a "pain in the butt" since the day I was born. I kid you not. A 63 year old woman being yelled at by her 86 year old mom, me driving who knows how fast on the freeway. I don't even remember getting home, it is a wonder I didn't have a heart attack my heart started beating so fast in defense of myself. Then she reminded me of what a bad kid I was as a teenager. That was 50 years ago! Aaaaaaaaaaaaaaa! So I took her home, didn't even take her to the store. I was too mad by then, and she felt the same. So since then I have been feeling guilty wondering if she got anybody to take her. She has no husband, my father, because he died 37 years ago, her oldest son died from cancer in '91, her second son died in Jan., and her third son had his colon taken out not long ago, and is not in that good of shape and so can't help her. I am pretty healthy, and I am aaaaaaaaaall she has, and yet I am not good enough! You see, I am not a SON. Well thank you for letting me vent. Felt GOOD! haha. I am feeling kind of beat from having a root canal yesterday. It went well, but the tooth had been infected for awhile so I am fighting that whole thing off. I was on antibiotic for it in early July but couldn't do the dental work then, had to wait until after my daughter had her new baby as I was on call to take her to the hospital. So this morning I have to go and pick the kids up in about an hour and take them to swimming lessons. I signed them up for the last session of the summer, so don't want them to miss it. We are all going, Tara, , Sierra and the new baby Lucas. Should be fun, if I don't pass out! haha May God give me strength! And He always does. Love and prayers to you all, for God's strength to fill your lives also. Carolyn Re: Introduction of Austin Hi Carolyn,I can feel the frustration you must have felt back then. As still today the world is filled with ignorance on the subject, then it must have been so much worse.Has anyone ever said Marty has Sensory problems? As for all the things you described is exactly what experiences? Lights, loud noises and crowds. They say it's all Sensory issues? Does Marty recieve any services like OT? Maybe something like that could be helpful for him?I know with the class he is in, has a red light set up, its a big traffice light that changes from green to yellow to red according to the noise volume (I want one for home) they also give him headsets to wear which is helpful. When we take places with crowds we always go on those "off" days and he takes a headset to muffle out some sounds, I always lead the way so I can take the least traveled route. Sometimes that is the most helpful thing I can do for him. His father always wonders how I know what to avoid, as I tell him I am constantly scanning the scene. If I see a smaill child that is fussy, stay away, see a groups of teenagers rough housing, stay away, I am just always looking and thinking what is going to cause the most anxiety and then I go another way. Take care,Chrissy> Hi Chrissy,> > Yes, that was really something wasn't it. I don't think> they knew what they were doing then. They just thought Marty> was "being bad," and they were going to make him good. But> what I saw was a mixed up little boy who became very upset> with noises and flashing lights and sounds. For awhile he> would have a seizure every time I opened my mouth. You know> how a mother talks when the kids are running around and I> was say this or that, and bam Marty would go on the floor in> a seizure. It was the tone of my voice that did it, so I> lowered it and that solved the problem.> > And Marty cannot stand a lot of people around him. I> think he worries he may have a seizure in front of them and> he does not want to. He cannot talk but he just stares into> my eyes with a frown, and I tell him it is o.k., but pretty> much we stay away from crowds and noise. We do go to church> on Sunday nights but it is a small group and he is very> comfortable with the people there and seems to enjoy it a> lot.> > When we quit using his wheelchair and started walking> him in he was really excited to show off to them how well he> was walking. So we don't use sit anymore unless it is a> really long walk.> > Progress sure takes struggle but I don't think it can be> avoided. The Bible says, "Be ye not weary in well doing for> you shall reap your reward if you faint not." I live by> that, and many others. "Trust in the Lord with all your> heart, lean not towards your own understanding, in all your> ways acknowledge Him, and He shall direct your paths." That> one is Prov, 3: 5,6, not sure where the other one is right> now, I just live it. haha> > Love to you all,> Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 The nice things about mainstreaming in a regular classroom is they learn " normal social skills " . If your child has a full time aid then it makes the transition work better. If your child is a slow learner and very young 5 yo then 2 years might be needed. Don't worry about that until next spring. Autistic kids can learn fast and some learn slow. Some have to do it when they want to then they take off. If the classroom is very large request one on one time in the " special room " . We have a special ed room and also a room that provides help to all children. There they get a quieter time to work on their work with an aide. We are lucky to have a small school. But there sure were a lot of babies born in 1997/1998!! PS. Don't be afraid to have your child reevaluated when he/she is 6. It odd that a 3yo would be labeled bipolar. Some adults aren't labeled that til later in life. I'm not an expert though. > My name is Myers. I am a young single mother of a autistic > child. My son Austin was diagnosed Bi-polar 1 and Pervasive > Development Disorder NOS at age 3. I knew at age 3 months that he was > very different. Austin began to speak words when he was little over > three months old. He never has stopped talking to this day and > sometimes seems like has has his own language. Austin would have > severe nightmares which I later learned were night terrors. Austin > has been doing self stimulating exercises since he started walking. > He jumps up and down in flails his hands and arms when he gets > excited. Austin was always very hyper but his moods constantly > changed. I enrolled him in the infant and toddlers program at age 18 > months and they taught me how to brush him when he became over > stimulated. Austin was a controlled head banger. He would bang his > head on walls and floors until he got his way. He would throw objects > and break all of his toys. He also became very obsessed with the > vacuum cleaner. Austin is never good with change. Austin has several > learning disabilities as well. He refuses to learn colors, letters, > and numbers and becomes withdrawn if you try to teach him. He doesn't > engage well with other children and becomes abusive to other children > for no apparent reason sometimes. He is a drooler and he is also > obsessed with his private parts. Due to our recent move to > Hanover Pennsylvania, he was released from Villa Behavioral > Health Clinic where he was diagnosed with Aspergers Syndrome. He > currently does not have a psychiatrist or case worker. Austin will be > 5 next month and is scheduled to begin Kindergarten. I am afraid if > he is mainstreamed in a regular public school, he will become more > withdrawn and continue to act out and hurt people. If you have any > insight, please help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 I was told that insurance will not pay for anything that is covered under the schools federal budget. ie. speech, occupational therapy and other OT tools. Anyone else had the same? julia > Hi > Could you tell me what a PSS worker is ? That's great i fyou can get your > insurance to pay for anything. I have not been successful getting mine to > pay for anything related to my son's diagnosis. Would the PSS worker be for > school or at home. If school, are they a school employee ? If not you might > have problems with the school allowing them in. Someone trained in Asperger > Syndrome and Mood Disorders would be great. > > Angels > > > >From: Jean.Myers@m... > >Reply-Autism and Aspergers Treatment > >Autism and Aspergers Treatment > >Subject: RE: Re: Introduction of Austin > >Date: Thu, 12 Aug 2004 16:15 -0400 > > > >Thank you so much for your support. I am working on getting a PSS worker, > >(wrap around couch) that is trained in Asbergers Syndrome and Mood > >Disorders. > >It looks promising... with his diagnosis, his insurance is willing to pay > >for > >one. YEAH!! > >********************************************************************* ** > >The opinion expressed in this e-mail message are those of the sender > >alone and do not represent the position of Mercantile Bankshares > >Corporation or its Affiliates unless specifically so stated herein. > >Additionally, the information contained in this message is intended > >only for the persons to whom it is addressed and may contain > >confidential or privileged material. Copying, distributing, > >dissemination, reliance on, or other use of the information by persons > >other than the intended recipient(s) is prohibited. If you received > >this message in error, please notify the sender and delete the entire > >message from any computer. > >********************************************************************* ** > > > > > >Autism and Aspergers Treatment > >bcc: > >From: A.Bullock[discus_ab]@hotmail.com > >Date: Thu, 12 Aug 2004 13:00:02 -0700 > >Subject: RE: Re: Introduction of Austin > >Reply-Autism and Aspergers Treatment > >X-HDT-HopCount: 1 > > _________________________________________________________________ > FREE pop-up blocking with the new MSN Toolbar – get it now! > http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 That is horrible what you and your son had to go through for an education. Bravo to you for marching on. julia > > > Hi > > > From your descrption of Austin, he should definitely have an > aide > > for > > > startign kindergarten in a mainstream classroom. Has he had any > > assessments > > > done by the school ? If not, you should request that he be > > assessed. > > > Especially, having a PDD-NOs diagnosis. if he is having constant > > mood > > > changes and banging his head, the school needs to provide an > aide > > to help > > > redirect him to what going on in class. the teacher won't be > able > > to do it > > > with all her other students and you don't want him to just stim > all > > day. If > > > he becomes disengaged when you try to teach him, then he > definitely > > needs > > > someone working with him directly. > > > Definitely contact the school and tell them you want him > assessed > > for > > > special needs supports in the classroom and an aide. > > > You might also consider either having himin a special day class > at > > first, to > > > help him adjust to a classroom setting and then sendinghim to > > kinder next > > > year. Or have him in kindergarten now with an aide. And he can > > repeat kinder > > > if he needs to. > > > Hope this helps > > > > > > > > > >From: " " <Jean.Myers@m...> > > > >Reply-Autism and Aspergers Treatment > > > >Autism and Aspergers Treatment > > > >Subject: Introduction of Austin > > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > > > >My name is Myers. I am a young single mother of a autistic > > > >child. My son Austin was diagnosed Bi-polar 1 and Pervasive > > > >Development Disorder NOS at age 3. I knew at age 3 months that > he > > was > > > >very different. Austin began to speak words when he was little > over > > > >three months old. He never has stopped talking to this day and > > > >sometimes seems like has has his own language. Austin would have > > > >severe nightmares which I later learned were night terrors. > Austin > > > >has been doing self stimulating exercises since he started > walking. > > > >He jumps up and down in flails his hands and arms when he gets > > > >excited. Austin was always very hyper but his moods constantly > > > >changed. I enrolled him in the infant and toddlers program at > age > > 18 > > > >months and they taught me how to brush him when he became over > > > >stimulated. Austin was a controlled head banger. He would bang > his > > > >head on walls and floors until he got his way. He would throw > > objects > > > >and break all of his toys. He also became very obsessed with the > > > >vacuum cleaner. Austin is never good with change. Austin has > > several > > > >learning disabilities as well. He refuses to learn colors, > letters, > > > >and numbers and becomes withdrawn if you try to teach him. He > > doesn't > > > >engage well with other children and becomes abusive to other > > children > > > >for no apparent reason sometimes. He is a drooler and he is also > > > >obsessed with his private parts. Due to our recent move to > > > >Hanover Pennsylvania, he was released from Villa > Behavioral > > > >Health Clinic where he was diagnosed with Aspergers Syndrome. He > > > >currently does not have a psychiatrist or case worker. Austin > will > > be > > > >5 next month and is scheduled to begin Kindergarten. I am > afraid if > > > >he is mainstreamed in a regular public school, he will become > more > > > >withdrawn and continue to act out and hurt people. If you have > any > > > >insight, please help! > > > > > > > > > > > > > > _________________________________________________________________ > > > Don't just search. Find. Check out the new MSN Search! > > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 But I have to admit, without those experiences I may not have realized the importance of the situation he was in. It was a crash course in dealing with a special ed system. Chrissy > > > > Hi > > > > From your descrption of Austin, he should definitely have an > > aide > > > for > > > > startign kindergarten in a mainstream classroom. Has he had any > > > assessments > > > > done by the school ? If not, you should request that he be > > > assessed. > > > > Especially, having a PDD-NOs diagnosis. if he is having > constant > > > mood > > > > changes and banging his head, the school needs to provide an > > aide > > > to help > > > > redirect him to what going on in class. the teacher won't be > > able > > > to do it > > > > with all her other students and you don't want him to just stim > > all > > > day. If > > > > he becomes disengaged when you try to teach him, then he > > definitely > > > needs > > > > someone working with him directly. > > > > Definitely contact the school and tell them you want him > > assessed > > > for > > > > special needs supports in the classroom and an aide. > > > > You might also consider either having himin a special day class > > at > > > first, to > > > > help him adjust to a classroom setting and then sendinghim to > > > kinder next > > > > year. Or have him in kindergarten now with an aide. And he can > > > repeat kinder > > > > if he needs to. > > > > Hope this helps > > > > > > > > > > > > >From: " " <Jean.Myers@m...> > > > > >Reply-Autism and Aspergers Treatment > > > > >Autism and Aspergers Treatment > > > > >Subject: Introduction of Austin > > > > >Date: Thu, 12 Aug 2004 15:37:12 -0000 > > > > > > > > > >My name is Myers. I am a young single mother of a autistic > > > > >child. My son Austin was diagnosed Bi-polar 1 and Pervasive > > > > >Development Disorder NOS at age 3. I knew at age 3 months that > > he > > > was > > > > >very different. Austin began to speak words when he was little > > over > > > > >three months old. He never has stopped talking to this day and > > > > >sometimes seems like has has his own language. Austin would > have > > > > >severe nightmares which I later learned were night terrors. > > Austin > > > > >has been doing self stimulating exercises since he started > > walking. > > > > >He jumps up and down in flails his hands and arms when he gets > > > > >excited. Austin was always very hyper but his moods constantly > > > > >changed. I enrolled him in the infant and toddlers program at > > age > > > 18 > > > > >months and they taught me how to brush him when he became over > > > > >stimulated. Austin was a controlled head banger. He would bang > > his > > > > >head on walls and floors until he got his way. He would throw > > > objects > > > > >and break all of his toys. He also became very obsessed with > the > > > > >vacuum cleaner. Austin is never good with change. Austin has > > > several > > > > >learning disabilities as well. He refuses to learn colors, > > letters, > > > > >and numbers and becomes withdrawn if you try to teach him. He > > > doesn't > > > > >engage well with other children and becomes abusive to other > > > children > > > > >for no apparent reason sometimes. He is a drooler and he is > also > > > > >obsessed with his private parts. Due to our recent move to > > > > >Hanover Pennsylvania, he was released from Villa > > Behavioral > > > > >Health Clinic where he was diagnosed with Aspergers Syndrome. > He > > > > >currently does not have a psychiatrist or case worker. Austin > > will > > > be > > > > >5 next month and is scheduled to begin Kindergarten. I am > > afraid if > > > > >he is mainstreamed in a regular public school, he will become > > more > > > > >withdrawn and continue to act out and hurt people. If you have > > any > > > > >insight, please help! > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > > > > Don't just search. Find. Check out the new MSN Search! > > > > http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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