Dawn & Mackenzie

January 15, 2002

Hi Ursula,

I mentioned it to our GI and he didn't know what I was talking about either. We

are dealing with a military hospital so they always seem to have weird terms for

things. Has anyone ever had this test?

I don't think that one of them was pneumovax? I'm going to have to call the

doctor today so I will ask, I know there was TB and Measles. She had no

response at all so this week they repeated them in higher doses yesterday

morning and still no response. We go back in for readings on Wednesday and

Thursday. Her IGM & IGA were minutely low but the doctor said really when you

account for how small she is, they are probably ok. Yet she continues to get

sick all the time. It's very aggravating.

I was emptying her potty chair last night and noticed blood in her stools, I

wonder if she is reacting to the shots. She doesn't eat anything, she's just on

Neocate formula. We are having a lot of problems with antibiotics because of

her GI problems. We were using Rocephin injections whenever she needed them but

last month she reacted to the Rocephin and had bloody stools so I'm not sure

what we are going to use now.

I really hope they can give me some answers soon. I hate not knowing. It is

just bugging me that it all seemed to go downhill after her 6 month shots.

Dawn,

Mom to

Dakota, 9, thankfully healthy, , 6, eosinophilic gastroenteritis, asthma,

GERD and Mackenzie, 2, eosinophilic colitis, thrombocytopenia, and investigating

immune deficiency

Dawn - welcome to the group. Sorry for the confusion, I've just never heard an

antibody test referred to by that term.

I'm sorry to hear that Mackenzie has responded so poorly. Was one of the tests

for pneumovax? That is the pneumococcal

vaccination and levels are drawn to see if a patient responds. Again, welcome

and feel free to jump in and ask any

questions you may have.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

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