Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Pattie - what site listed this? I have never heard of SDS as one of the 70 or so PID's? Can you send the link to the information? Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory Integration Disorder, Diabetes Insipidus, colonic inertia) http://maceyh.home.att.net / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Pattie - what site listed this? I have never heard of SDS as one of the 70 or so PID's? Can you send the link to the information? Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory Integration Disorder, Diabetes Insipidus, colonic inertia) http://maceyh.home.att.net / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 let me go back in and find it-- it was listed with Kostmans, congenital neutropenias, etc... I had never seen it before, either... my computer froze up and I had to restart and I lost that page.. I'll find it in a sec pattie. Re: I'm an Idiot Pattie - what site listed this? I have never heard of SDS as one of the 70 or so PID's? Can you send the link to the information? Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory Integration Disorder, Diabetes Insipidus, colonic inertia) http://maceyh.home.att.net / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 let me go back in and find it-- it was listed with Kostmans, congenital neutropenias, etc... I had never seen it before, either... my computer froze up and I had to restart and I lost that page.. I'll find it in a sec pattie. Re: I'm an Idiot Pattie - what site listed this? I have never heard of SDS as one of the 70 or so PID's? Can you send the link to the information? Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory Integration Disorder, Diabetes Insipidus, colonic inertia) http://maceyh.home.att.net / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I had searched under Shwachamn Diamond Syndrome and went about 3 or 4 pages into it and clicked on a link that said " Primary Immune Deficiency " and then listed Kostmanns and Congenital neutropenias (SDS is a cengenital neutropenia like Kostmanns) now I cannot find it again! if i do, i will send the link.... pattie Re: I'm an Idiot Pattie - what site listed this? I have never heard of SDS as one of the 70 or so PID's? Can you send the link to the information? Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory Integration Disorder, Diabetes Insipidus, colonic inertia) http://maceyh.home.att.net / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 I had searched under Shwachamn Diamond Syndrome and went about 3 or 4 pages into it and clicked on a link that said " Primary Immune Deficiency " and then listed Kostmanns and Congenital neutropenias (SDS is a cengenital neutropenia like Kostmanns) now I cannot find it again! if i do, i will send the link.... pattie Re: I'm an Idiot Pattie - what site listed this? I have never heard of SDS as one of the 70 or so PID's? Can you send the link to the information? Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory Integration Disorder, Diabetes Insipidus, colonic inertia) http://maceyh.home.att.net / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 What's SDS? Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) I'm an Idiot Okay-- so I'm a bit slow on the uptake..... surfing the web tonight, I came across a site that listed SDS as a Primary Immune Deficiency. It just hit me... (<bing> the light bulb went off> not only is it a bone marrow failure syndrome, but a PID..... a BIG <DUH> for Pattie. So I have two kids with a PID...one has two PIDs.... thanks for listening-- you all know how life is at times.. the light bulb goes off and shocks you a bit..... I never thought of it THAT way before.... Pattie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 What's SDS? Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) I'm an Idiot Okay-- so I'm a bit slow on the uptake..... surfing the web tonight, I came across a site that listed SDS as a Primary Immune Deficiency. It just hit me... (<bing> the light bulb went off> not only is it a bone marrow failure syndrome, but a PID..... a BIG <DUH> for Pattie. So I have two kids with a PID...one has two PIDs.... thanks for listening-- you all know how life is at times.. the light bulb goes off and shocks you a bit..... I never thought of it THAT way before.... Pattie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Shwachman-Diamond Syndrome for more info, go to www.shwachmandiamondamerica.org :0) Pattie I'm an Idiot Okay-- so I'm a bit slow on the uptake..... surfing the web tonight, I came across a site that listed SDS as a Primary Immune Deficiency. It just hit me... (<bing> the light bulb went off> not only is it a bone marrow failure syndrome, but a PID..... a BIG <DUH> for Pattie. So I have two kids with a PID...one has two PIDs.... thanks for listening-- you all know how life is at times.. the light bulb goes off and shocks you a bit..... I never thought of it THAT way before.... Pattie Quote Link to comment Share on other sites More sharing options...
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