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Re: Lorri 504

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Lorri,

I just finished helping fold newsletters at the Jr. High where my oldest son

attends and next year will attend. I casual mentioned to my oldest sons

counselor about and a need for an 504 or IEP. I asked her when I should

start and how to go about it.

She said the first thing to do is go back to the elementary school and tell

them you want a SST meeting. Remember my 504 is a " handshake 504 " because I

know the teachers so well its worked for us............At this meeting there

would be 's 6th grade teacher, elementary school physiologist.......I'll

also bring a letter from 's physiologist, an RSP teacher from the Jr.

high would come with the Jr. High counselor. We would all sit down and

discuss 's issues and at that meeting we would decide what would work

best for IEP or 504. She encouraged me to start the process in January

as it takes time to set up the meetings.

Well thought I 'd pass it on.

Someone passed on a great sight called slaw.com It has alot of info

on IEP and 504..............I need to start researching but this looks like a

great place to start.

le

11, Selective Antibody Def., IVIG for 4 years, every 3 weeks.

Syringomyelia

6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids

removed, septic hip since IVIG 0 surgery needed!

Trailing off IVIG 6/28/01... Biopsy of throat and Nasal endoscopy 10/24/01

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le,

Thanks so much! If you only new how much I needed to hear this. I came

home to Report card today and even though we have a 504 plan( made up

between the nurse and myself and then given to the teacher) and on that plan

we discuss absences she was still graded down due to her being absent 15

times during the first reporting period. I came down stairs to send the

principal a message to let her know how upset I was and there in front of my

eyes was your note. I asked her to schedule a SST meeting and she said it

wasn't necessary. I have sent a message to the principal at the JR High and

to the Superintendent. I can't stand the feeling of a run around. Thanks

again for your knowledge.

Lorri

Re: Lorri 504

> Lorri,

> I just finished helping fold newsletters at the Jr. High where my oldest

son

> attends and next year will attend. I casual mentioned to my oldest

sons

> counselor about and a need for an 504 or IEP. I asked her when I

should

> start and how to go about it.

> She said the first thing to do is go back to the elementary school and

tell

> them you want a SST meeting. Remember my 504 is a " handshake 504 "

because I

> know the teachers so well its worked for us............At this meeting

there

> would be 's 6th grade teacher, elementary school

physiologist.......I'll

> also bring a letter from 's physiologist, an RSP teacher from the Jr.

> high would come with the Jr. High counselor. We would all sit down and

> discuss 's issues and at that meeting we would decide what would work

> best for IEP or 504. She encouraged me to start the process in

January

> as it takes time to set up the meetings.

> Well thought I 'd pass it on.

> Someone passed on a great sight called slaw.com It has alot of

info

> on IEP and 504..............I need to start researching but this looks

like a

> great place to start.

>

> le

> 11, Selective Antibody Def., IVIG for 4 years, every 3 weeks.

> Syringomyelia

> 6 surgeries in two years before being diagnosed: 4 sinus, tonsil and

adenoids

> removed, septic hip since IVIG 0 surgery needed!

> Trailing off IVIG 6/28/01... Biopsy of throat and Nasal endoscopy

10/24/01

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

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In a message dated 12/14/01 6:22:37 PM Pacific Standard Time,

LLKRAFT@... writes:

> I have sent a message to the principal at the JR. High

Lorri,

Find out who her Jr. High school counselor will be, and make an appointment

now to discuss this with her/him. 's future counselor was very helpful

today and encouraged me to get things started. She also said I need to get

my 504 on file and not the " handshake " one I have.

Ddid you check out the wrightslaw.com site? Very informative. Well, it

looks like we will be walking thru this together, lets keep in touch!!

le

11, Selective Antibody Def., IVIG for 4 years, every 3 weeks.

Syringomyelia

6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids

removed, septic hip since IVIG 0 surgery needed!

Trailing off IVIG 6/28/01... Biopsy of throat and Nasal endoscopy 10/24/01

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