At the end of my rope

[Guest guest]

I'm new to the group and my kids are still young, but I was given Prozac as a

teenager and

it made me incredibly edgy. I've always bee short tempered. I now take Paxil and

can't get

over how mellow I've become. I have much more energy and am more focused as

well. I

didn't take any medication growing up (also have OCD).

Something's not working for her. I feel for both you and her.

>

> Ok, I have to get this off my chest and out in the open. I'm going

> crazy. My 10 yr daughter is currently on 72mg of Concerta for ADHD

> and 75mg of zoloft for anxiety. She goes next month for extensive

> testing for learning disabilities, OCD, bi-polar, extent of ADHD &

> anxiety, etc..

>

> Last month she was upped from 50 to 75 mg zoloft. But it seems her

> fits of rage have gotten way out of hand. She keeps threatening to

> run away. We were up at 2 this morning with her trying to convince

> her to go to bed and not run away. She mixed up something to make it

> look like puke. She lied and said she threw up (she was wanting to

> sleep in our room). Her fits of rage aren't your normal " pitching a

> fit " sort of thing either. They can get pretty nasty. And then like

> a light switch comes on and a halo appears over her head. She is

> very, very impulsive and doesn't think about the outcome before she

> does something. She lies about absolutely EVERYTHING. She steals.

> I hesitate when she goes to a friend's house. I watch her like a

> hawk in the store, in fear that something will go in her pocket. I

> just don't know what else to do. I'm at the end of my rope. She has

> a normal life. Nothing tramatic has ever happened to her. We are a

> fairly normal family. This may have been the wrong place to post

> this but I had to get it off my chest.

>

> (Could it be the zoloft causing the more rage?)

>

>

>

[Guest guest]

Hi ,

I have a daughter(10) with the same diagnosis of ocd and bipolar. I can totally

relate to your frustration. It sounds like your doing the right thing having her

extensively evaluated!

Zoloft definitely can make bipolar worse. If she does have bipolar she will need

to have her mood stabilized , than later try to add the meds for ocd and

anxiety.

Hang in there!

Hugs

Judy

[Guest guest]

, if the rage seems worse since last month then I would

suspect the Zoloft. Has she tried any other SSRIs? If she was OK on

the 50mg Zoloft, she might need to up the dosage slower (cut

pills?). Or try another SSRI. Sometimes the initial increase of

behaviors or OCD will pass but if they're dangerous (to anyone), just

intolerable, then you might call the doctor and see about backing

back down to the 50mg to see if they ease up.

If her OCD doesn't seem to be the... " main " problem right now, maybe

they need to target the bipolar or ADHD first?

Very quick thoughts,

>

> Ok, I have to get this off my chest and out in the open. I'm going

> crazy. My 10 yr daughter is currently on 72mg of Concerta for ADHD

> and 75mg of zoloft for anxiety. She goes next month for extensive

> testing for learning disabilities, OCD, bi-polar, extent of ADHD &

> anxiety, etc..

>

> Last month she was upped from 50 to 75 mg zoloft. But it seems her

> fits of rage have gotten way out of hand. She keeps threatening to

> run away. We were up at 2 this morning with her trying to convince

> her to go to bed and not run away. She mixed up something to make

it

> look like puke. She lied and said she threw up (she was wanting to

> sleep in our room). Her fits of rage aren't your normal " pitching

a

> fit " sort of thing either. They can get pretty nasty. And then

like

> a light switch comes on and a halo appears over her head. She is

> very, very impulsive and doesn't think about the outcome before she

> does something. She lies about absolutely EVERYTHING. She

steals.

> I hesitate when she goes to a friend's house. I watch her like a

> hawk in the store, in fear that something will go in her pocket. I

> just don't know what else to do. I'm at the end of my rope. She

has

> a normal life. Nothing tramatic has ever happened to her. We are

a

> fairly normal family. This may have been the wrong place to post

> this but I had to get it off my chest.

>

> (Could it be the zoloft causing the more rage?)

>

>

>

[Guest guest]

Hi Stepahnie,

We experienced increase in rage, agitation, and verbal and physical

aggression - poss. drug induced hypomania, with high dose of ssri

(celexa). Our son, 16yr(LD,OCD,Bipolar(?)???, reported feeling

unable to contain himself. We have a mood stabilizer on board now,

Epival/Depikote and he is much better. ADHD and Bipolar can look the

same, much in common. Wonder about the Concerta also, is that a

stimulent?, that might contribute to any manic stuff....

Good that you have your appointment to sort it out. I would try

reducing the ssri- slowly!, this helped us even before the mood

stabilizer added. Insist on doing something about it NOW with your

doctor, tell them this is not working for your family.

Hang in there! I know how frustrating, exhausting and " out of your

mind " this can make you feel!!!

Barb

>

> Ok, I have to get this off my chest and out in the open. I'm going

> crazy. My 10 yr daughter is currently on 72mg of Concerta for ADHD

> and 75mg of zoloft for anxiety. She goes next month for extensive

> testing for learning disabilities, OCD, bi-polar, extent of ADHD &

> anxiety, etc..

>

> Last month she was upped from 50 to 75 mg zoloft. But it seems her

> fits of rage have gotten way out of hand. She keeps threatening to

> run away. We were up at 2 this morning with her trying to convince

> her to go to bed and not run away. She mixed up something to make

it

> look like puke. She lied and said she threw up (she was wanting to

> sleep in our room). Her fits of rage aren't your normal " pitching

a

> fit " sort of thing either. They can get pretty nasty. And then

like

> a light switch comes on and a halo appears over her head. She is

> very, very impulsive and doesn't think about the outcome before she

> does something. She lies about absolutely EVERYTHING. She

steals.

> I hesitate when she goes to a friend's house. I watch her like a

> hawk in the store, in fear that something will go in her pocket. I

> just don't know what else to do. I'm at the end of my rope. She

has

> a normal life. Nothing tramatic has ever happened to her. We are

a

> fairly normal family. This may have been the wrong place to post

> this but I had to get it off my chest.

>

> (Could it be the zoloft causing the more rage?)

>

>

>

[Guest guest]

Zoloft can definitely make bipolar (the mania) worse. Ask my husband! Right

now, I think my step-son is being misdiagnosed as only ADHD, when I think he is

bipolar. He has symptoms similar to your daughter's. His mom wants to put him

in a boys home, but we are fighting in court to get a second psych opinion. His

meds have never been changed and his mom (who has custody) refuses to get a

second opinion!

Laurie

b7s7john1 <b7s7john1@...> wrote:

Ok, I have to get this off my chest and out in the open. I'm going

crazy. My 10 yr daughter is currently on 72mg of Concerta for ADHD

and 75mg of zoloft for anxiety. She goes next month for extensive

testing for learning disabilities, OCD, bi-polar, extent of ADHD &

anxiety, etc..

Last month she was upped from 50 to 75 mg zoloft. But it seems her

fits of rage have gotten way out of hand. She keeps threatening to

run away. We were up at 2 this morning with her trying to convince

her to go to bed and not run away. She mixed up something to make it

look like puke. She lied and said she threw up (she was wanting to

sleep in our room). Her fits of rage aren't your normal " pitching a

fit " sort of thing either. They can get pretty nasty. And then like

a light switch comes on and a halo appears over her head. She is

very, very impulsive and doesn't think about the outcome before she

does something. She lies about absolutely EVERYTHING. She steals.

I hesitate when she goes to a friend's house. I watch her like a

hawk in the store, in fear that something will go in her pocket. I

just don't know what else to do. I'm at the end of my rope. She has

a normal life. Nothing tramatic has ever happened to her. We are a

fairly normal family. This may have been the wrong place to post

this but I had to get it off my chest.

(Could it be the zoloft causing the more rage?)

Our list archives, bookmarks, files, and chat feature may be accessed at:

/ .

Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar

Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.

(http://massgeneral.org/pediatricpsych/staff/geller.html ),Aureen Pinto Wagner,

Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are

Birkhan, Castle, Joye, Kathy Mac, Gail Pesses, and Kathy

. Subscription issues or suggestions may be addressed to Louis Harkins,

list owner, at louisharkins@... , louisharkins@... ,

louisharkins@... .

[Guest guest]

---, def. the zoloft could be doing this.

Our DD (8) kept having her prozac increased, it made her look

and act like a " crazy person " , which she is not at all. Its amazing

how these drugs can change personalities.

Let us know how she is doing when she is off. Our kids both become

manic when on SSRI's, though they are not bi polar when off the meds.

its weird.

Good luck, you arent alone.

Kathy

In , " b7s7john1 " <b7s7john1@...>

wrote:

>

> We had our appointment today and it went good. The dr. knew it was

> time to take her off the zoloft. In the end we decided to try

> Prozac. She is concerned that she may be on too high of a dose of

> the Concerta. But she didn't want to change that at the same

time.

> And she wanted to get her through the evaluation before changing

that

> one. My daughter has been on the 72mg of Concerta for over a year

> and a half so that's not a new thing.

>

> Thanks so much for all the insight. It helps so much knowing I'm

not

> in this race alone.

>

>

>

>

>

> >

> > Ok, I have to get this off my chest and out in the open. I'm

going

> > crazy. My 10 yr daughter is currently on 72mg of Concerta for

ADHD

> > and 75mg of zoloft for anxiety. She goes next month for

extensive

> > testing for learning disabilities, OCD, bi-polar, extent of ADHD

&

> > anxiety, etc..

> >

> > Last month she was upped from 50 to 75 mg zoloft. But it seems

her

> > fits of rage have gotten way out of hand. She keeps threatening

to

> > run away. We were up at 2 this morning with her trying to

convince

> > her to go to bed and not run away. She mixed up something to

make

> it

> > look like puke. She lied and said she threw up (she was wanting

to

> > sleep in our room). Her fits of rage aren't your

normal " pitching

> a

> > fit " sort of thing either. They can get pretty nasty. And then

> like

> > a light switch comes on and a halo appears over her head. She is

> > very, very impulsive and doesn't think about the outcome before

she

> > does something. She lies about absolutely EVERYTHING. She

> steals.

> > I hesitate when she goes to a friend's house. I watch her like a

> > hawk in the store, in fear that something will go in her pocket.

I

> > just don't know what else to do. I'm at the end of my rope. She

> has

> > a normal life. Nothing tramatic has ever happened to her. We

are

> a

> > fairly normal family. This may have been the wrong place to post

> > this but I had to get it off my chest.

> >

> > (Could it be the zoloft causing the more rage?)

> >

> >

> >

>

[Guest guest]

we were told that too. In fact, my dd has a tentative diagnosis as bipolar. I

have bipolar, and she has bipolar on her dad's side too.

Laurie

barb <barbnesrallah@...> wrote:

Hi ,

I am not a doctor, but was told by the hospital pharmacist that

prozak is activating for someone who is bipolar/tendencies. Just

wanted to pass that on. It is all individual though.

Barb

>

>

> Hi . Watch carefully with the Prozac. My daughter did well

on

> Zoloft, up to 200 mg, until it stopped working for her. We switched

to Prozac and

> she became manic. She had a really tough time with Prozac. She was

then

> switched to Paxil, but the mania continued. Eventually she was

diagnosed Bipolar

> NOS and it took a good 6 months to get her somewhat stable again.

Being that

> Zoloft did not work well for your daughter, I would watch carefully

with the

> Prozac. I hope it goes well for her. Good luck. Kim

>

> In a message dated 7/17/2007 8:55:20 P.M. Central Daylight Time,

> b7s7john1@... writes:

>

> We had our appointment today and it went good. The dr. knew it was

> time to take her off the zoloft. In the end we decided to try

> Prozac. She is concerned that she may be on too high of a dose of

> the Concerta. But she didn't want to change that at the same time.

> And she wanted to get her through the evaluation before changing

that

> one. My daughter has been on the 72mg of Concerta for over a year

> and a half so that's not a new thing.

>

> Thanks so much for all the insight. It helps so much knowing I'm

not

> in this race alone.

>

>

>

>

>

>

>

>

>

> ************************************** Get a sneak peek of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

>

[Guest guest]

we were told that too. In fact, my dd has a tentative diagnosis as bipolar. I

have bipolar, and she has bipolar on her dad's side too.

Laurie

barb <barbnesrallah@...> wrote:

Hi ,

I am not a doctor, but was told by the hospital pharmacist that

prozak is activating for someone who is bipolar/tendencies. Just

wanted to pass that on. It is all individual though.

Barb

>

>

> Hi . Watch carefully with the Prozac. My daughter did well

on

> Zoloft, up to 200 mg, until it stopped working for her. We switched

to Prozac and

> she became manic. She had a really tough time with Prozac. She was

then

> switched to Paxil, but the mania continued. Eventually she was

diagnosed Bipolar

> NOS and it took a good 6 months to get her somewhat stable again.

Being that

> Zoloft did not work well for your daughter, I would watch carefully

with the

> Prozac. I hope it goes well for her. Good luck. Kim

>

> In a message dated 7/17/2007 8:55:20 P.M. Central Daylight Time,

> b7s7john1@... writes:

>

> We had our appointment today and it went good. The dr. knew it was

> time to take her off the zoloft. In the end we decided to try

> Prozac. She is concerned that she may be on too high of a dose of

> the Concerta. But she didn't want to change that at the same time.

> And she wanted to get her through the evaluation before changing

that

> one. My daughter has been on the 72mg of Concerta for over a year

> and a half so that's not a new thing.

>

> Thanks so much for all the insight. It helps so much knowing I'm

not

> in this race alone.

>

>

>

>

>

>

>

>

>

> ************************************** Get a sneak peek of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

>

[Guest guest]

Hi all. I really need to vent here today. I have had one of the most horrible days today. My son Ricky decided to slam all the doors in our house and eventually put a hole in his bedroom closet door. We rent, so taking off the doors isn't an option. He got really different, face had a blank look on it and threatened to hurt us, then he wanted to kill us. Thankfully he couldn't get to the kitchen knives and we don't keep any kind of guns in the house.

It all started this morning at 7am, when he refused to clean up after messing and wetting him self during the night. He kept saying he didn't know how to clean up and that I needed to help him. He can do it himself. He just came home from respite where he cleans himself up. Then he started to scream and meltdown and slamming doors, hitting the window in his bathroom and bedroom. He came at me and my husband (stepfather). He then threatened to kill both of us. He started to come at us, so we called the cops. They can get him calmed down. Well, they sent 3 cops, and they were in my living room before 7am.

They didn't do anything other than make sure he cleaned up and got dressed and then I had to drive him to school cause he missed the bus. This is almost an everyday thing, except for the police. I am at my last nerve. He can't get into residential because the placement wants too much money and the state of ohio won't come up with the rest, at least as of right now. He is hooked up with every possible service and we have done lots of therapy, speech, OT, sensory, horseback riding, Parent CHild Interaction Therapy.

I am gonna look into that new treatment, that has been talked about on here, just cant think of it right now. I am so depresessed right now, i could almost care less anymore. Nothing I have tried has worked, no matter how patient and consistent i have been.

thanks if you read this far.

[Guest guest]

My son was on abilify and his behavior went out of controll. His Phyciatrist

said that in some kids it helps with the anger and the other half of kids it

makes their anger ten times worse. So he is no longer on the Abilify. He takes

Vyvanse now and he is pretty mellow and dont have the bad anger spells, and he

also takes Serequel, and clonodine. His Dr. is at Childrens Hospital in Columbus

bec. there is no one here that deals with Autism, and other behavior problems.

>

> Hi all.  I really need to vent here today.  I have had one of the most

horrible days today.  My son Ricky decided to slam all the doors in our house

and eventually put a hole in his bedroom closet door.  We rent, so taking off

the doors isn't an option.  He got really different, face had a blank look on it

and threatened to hurt us, then he wanted to kill us.  Thankfully he couldn't

get to the kitchen knives and we don't keep any kind of guns in the house.

>

> It all started this morning at 7am, when he refused to clean up after messing

and wetting him self during the night.  He kept saying he didn't know how to

clean up and that I needed to help him.  He can do it himself.  He just came

home from respite where he cleans himself up.  Then he started to scream and

meltdown and slamming doors, hitting the window in his bathroom and bedroom.  He

came at me and my husband (stepfather).  He then threatened to kill both of us. 

He started to come at us, so we called the cops.  They can get him calmed down. 

Well, they sent 3 cops, and they were in my living room before 7am. 

>

> They didn't do anything other than make sure he cleaned up and got dressed and

then I had to drive him to school cause he missed the bus.  This is almost an

everyday thing, except for the police.  I am at my last nerve.  He can't get

into residential because the placement wants too much money and the state of

ohio won't come up with the rest, at least as of right now.  He is hooked up

with every possible service and we have done lots of therapy, speech, OT,

sensory, horseback riding, Parent CHild Interaction Therapy.

>

> I am gonna look into that new treatment, that has been talked about on here,

just cant think of it right now.  I am so depresessed right now, i could almost

care less anymore.  Nothing I have tried has worked, no matter how patient and

consistent i have been.

>

> thanks if you read this far.

>

>

>

[Guest guest]

I know this is rough on you ...and I know you are afriad. Does he get embarresed? Could some of the intensity this morning be related to that? Again I know this is a really tough situation, and I so don't want to make 'light' of it --- I just wonder if embarresment ever plays a part in the intensity?

Just thinking....I will pray for you tonight M!

e

[Guest guest]

---

I am so sorry to hear about your son:( I know we are going through the same thing with our daughter Maddie - this has been going on since January. I definitely know what you are feeling. I will keep you in my prayers and hopefully as more people become aware, services will become more available to all the kids that need it.

Rhonda

>> Hi all. I really need to vent here today. I have had one of the most horrible days today. My son Ricky decided to slam all the doors in our house and eventually put a hole in his bedroom closet door. We rent, so taking off the doors isn't an option. He got really different, face had a blank look on it and threatened to hurt us, then he wanted to kill us. Thankfully he couldn't get to the kitchen knives and we don't keep any kind of guns in the house.> > It all started this morning at 7am, when he refused to clean up after messing and wetting him self during the night. He kept saying he didn't know how to clean

up and that I needed to help him. He can do it himself. He just came home from respite where he cleans himself up. Then he started to scream and meltdown and slamming doors, hitting the window in his bathroom and bedroom. He came at me and my husband (stepfather) . He then threatened to kill both of us. He started to come at us, so we called the cops. They can get him calmed down. Well, they sent 3 cops, and they were in my living room before 7am. > > They didn't do anything other than make sure he cleaned up and got dressed and then I had to drive him to school cause he missed the bus. This is almost an everyday thing, except for the police. I am at my last nerve. He can't get into residential because the placement wants too much money and the state of ohio won't come up with the rest, at least as of right now. He is hooked up with every possible service and we

have done lots of therapy, speech, OT, sensory, horseback riding, Parent CHild Interaction Therapy.> > I am gonna look into that new treatment, that has been talked about on here, just cant think of it right now. I am so depresessed right now, i could almost care less anymore. Nothing I have tried has worked, no matter how patient and consistent i have been.> > thanks if you read this far.> > >

[Guest guest]

---

I am so sorry to hear about your son:( I know we are going through the same thing with our daughter Maddie - this has been going on since January. I definitely know what you are feeling. I will keep you in my prayers and hopefully as more people become aware, services will become more available to all the kids that need it.

Rhonda

>> Hi all. I really need to vent here today. I have had one of the most horrible days today. My son Ricky decided to slam all the doors in our house and eventually put a hole in his bedroom closet door. We rent, so taking off the doors isn't an option. He got really different, face had a blank look on it and threatened to hurt us, then he wanted to kill us. Thankfully he couldn't get to the kitchen knives and we don't keep any kind of guns in the house.> > It all started this morning at 7am, when he refused to clean up after messing and wetting him self during the night. He kept saying he didn't know how to clean

up and that I needed to help him. He can do it himself. He just came home from respite where he cleans himself up. Then he started to scream and meltdown and slamming doors, hitting the window in his bathroom and bedroom. He came at me and my husband (stepfather) . He then threatened to kill both of us. He started to come at us, so we called the cops. They can get him calmed down. Well, they sent 3 cops, and they were in my living room before 7am. > > They didn't do anything other than make sure he cleaned up and got dressed and then I had to drive him to school cause he missed the bus. This is almost an everyday thing, except for the police. I am at my last nerve. He can't get into residential because the placement wants too much money and the state of ohio won't come up with the rest, at least as of right now. He is hooked up with every possible service and we

have done lots of therapy, speech, OT, sensory, horseback riding, Parent CHild Interaction Therapy.> > I am gonna look into that new treatment, that has been talked about on here, just cant think of it right now. I am so depresessed right now, i could almost care less anymore. Nothing I have tried has worked, no matter how patient and consistent i have been.> > thanks if you read this far.> > >

[Guest guest]

He never seems to be embarrassed. He wasn't even embarrassed when the police were here. I was, cause of the smell, and the fact that I felt totally incompetent as a mother, who couldn't get here child to take a bath. The thing that baffles me is that he didn't have accidents or behave this way when he was at respite this week. But he will at home. I know he obviously feels more comfortable doing this at home, which I guess if he is going to do this, better done at home.

Thanks for the prayers.

[Guest guest]

Rhonda,

I just don't understand why the services are not available to help our kids, before they become adults. I worry about Ricky's future, what kind of care, supervision he will need. Luckilly he has an IO waiver that will be more help to us when Ricky is an adult than now as a 12 year old.

I hope Maddie is doing alright. What do you do that helps Maddie during times like this? What do you for yourself to help get through rough times? I slept from around 6:30p til 11p this evening. Now, while still tired, I am wired now. I guess that is what depression does, at least for me.

Thanks,

[Guest guest]

If the Abilify was helping, why did they add the other meds? When did the aggression start? It's all behavioral?? Excuse my one bad word, "That's crap"!! Now I feel better. LOL, LOL, Love and blessings, Pat K

Re: At the end of my rope

Pat,

Ricky started Abilify in July 2009. Lamictal was started in April or May 2009 and Zoloft was started in Sept or Oct 2009. The hospital here won't admit him to kids unit, cause it's all behavioral, according to the docs and the crisis center usually won't admit him anymore for the same reason. I am so frustrated!! I am so glad that you understand what I am going through. I do appreciate your knowledge and experiences, cause it does really help me see that things won't always be this hard.

[Guest guest]

If the Abilify was helping, why did they add the other meds? When did the aggression start? It's all behavioral?? Excuse my one bad word, "That's crap"!! Now I feel better. LOL, LOL, Love and blessings, Pat K

Re: At the end of my rope

Pat,

Ricky started Abilify in July 2009. Lamictal was started in April or May 2009 and Zoloft was started in Sept or Oct 2009. The hospital here won't admit him to kids unit, cause it's all behavioral, according to the docs and the crisis center usually won't admit him anymore for the same reason. I am so frustrated!! I am so glad that you understand what I am going through. I do appreciate your knowledge and experiences, cause it does really help me see that things won't always be this hard.

[Guest guest]

Unfortunately nothing seems to help calm Maddie down except being put by herself. It seems the more I try to give her ways to calm herself (sensory, etc) - the more the rage comes. We just try to keep her safe. We totall re-did her bedroom - she has 2 rooms now. One where she has her sensory/therapy stuff, tv, video games/dvd player, swing, etc. But in her bedroom we put nothing except the bed in there and anything that could be a danger to her we have removed or re-did. When she goes into rages we try to redirect her to her room (I use reverse physcology to get her there)- the only thing I have to worry about is she will pound the wall/floor so hard that she bruises herself (oh and put holes in her wall - just keeps fixing them).. I just sit outside her room listening to her rant and rave for

hours. She will eventually calm down and then come out crying saying she is soo sorry - sigh:( If I can't get her to her room then I'm in trouble because she will destroy everything in sight. The kids know when she starts, to grab the games systems, laptop, anything breakable and try to put somewhere that she can't get and I try to run interference for everythinig - but that can be so exhuasting considering she can go on for hours.

As far as me getting through it - I'm an emotional eater and so unfortunately I eat. I am diabetic and a kidney transplant recipient so that isn't very good for me.

My husband works two jobs (I had to quit mine because of Maddie's needs). So he isn't around to help alot. I know I'm at my witts end also. I just keep praying we can find a place for her soon. She went to respite last week to give me a break and it was so nice - but of course to come right back to everything I'm ready for another break. If it was just me, I don' think it would upset me so much. But we have 3 other kids and I said I don't really feel our homelife any more is good for them with her screamig and throwing fits like that.

What makes me so sad is up until January of this year, Maddie was probably one of the happiest, laid back people I know. I just can't understand what happened to make such a drastic change (although everyone tells me it's puberty - she got her first period that month.)

Sorry to rant and rave. I know I have some friends who try to understand, but then they will say oh, I know exactly how you feel. My son, buddy got mad because we took his phone an he wouldn't talk to us for the rest of the evening. I'm thinking yeah, you really understand - real temper tantrum there. So it's good to talk to people that "know" what I'm feeling and aren't quick to blame us.

Thanks!

Rhonda

From: Wylie <mlwpdb@...>Subject: Re: Re: At the end of my ropeautism Date: Friday, November 20, 2009, 11:58 PM

Rhonda,

I just don't understand why the services are not available to help our kids, before they become adults. I worry about Ricky's future, what kind of care, supervision he will need. Luckilly he has an IO waiver that will be more help to us when Ricky is an adult than now as a 12 year old.

I hope Maddie is doing alright. What do you do that helps Maddie during times like this? What do you for yourself to help get through rough times? I slept from around 6:30p til 11p this evening. Now, while still tired, I am wired now. I guess that is what depression does, at least for me.

Thanks,

[Guest guest]

Unfortunately nothing seems to help calm Maddie down except being put by herself. It seems the more I try to give her ways to calm herself (sensory, etc) - the more the rage comes. We just try to keep her safe. We totall re-did her bedroom - she has 2 rooms now. One where she has her sensory/therapy stuff, tv, video games/dvd player, swing, etc. But in her bedroom we put nothing except the bed in there and anything that could be a danger to her we have removed or re-did. When she goes into rages we try to redirect her to her room (I use reverse physcology to get her there)- the only thing I have to worry about is she will pound the wall/floor so hard that she bruises herself (oh and put holes in her wall - just keeps fixing them).. I just sit outside her room listening to her rant and rave for

hours. She will eventually calm down and then come out crying saying she is soo sorry - sigh:( If I can't get her to her room then I'm in trouble because she will destroy everything in sight. The kids know when she starts, to grab the games systems, laptop, anything breakable and try to put somewhere that she can't get and I try to run interference for everythinig - but that can be so exhuasting considering she can go on for hours.

As far as me getting through it - I'm an emotional eater and so unfortunately I eat. I am diabetic and a kidney transplant recipient so that isn't very good for me.

My husband works two jobs (I had to quit mine because of Maddie's needs). So he isn't around to help alot. I know I'm at my witts end also. I just keep praying we can find a place for her soon. She went to respite last week to give me a break and it was so nice - but of course to come right back to everything I'm ready for another break. If it was just me, I don' think it would upset me so much. But we have 3 other kids and I said I don't really feel our homelife any more is good for them with her screamig and throwing fits like that.

What makes me so sad is up until January of this year, Maddie was probably one of the happiest, laid back people I know. I just can't understand what happened to make such a drastic change (although everyone tells me it's puberty - she got her first period that month.)

Sorry to rant and rave. I know I have some friends who try to understand, but then they will say oh, I know exactly how you feel. My son, buddy got mad because we took his phone an he wouldn't talk to us for the rest of the evening. I'm thinking yeah, you really understand - real temper tantrum there. So it's good to talk to people that "know" what I'm feeling and aren't quick to blame us.

Thanks!

Rhonda

From: Wylie <mlwpdb@...>Subject: Re: Re: At the end of my ropeautism Date: Friday, November 20, 2009, 11:58 PM

Rhonda,

I just don't understand why the services are not available to help our kids, before they become adults. I worry about Ricky's future, what kind of care, supervision he will need. Luckilly he has an IO waiver that will be more help to us when Ricky is an adult than now as a 12 year old.

I hope Maddie is doing alright. What do you do that helps Maddie during times like this? What do you for yourself to help get through rough times? I slept from around 6:30p til 11p this evening. Now, while still tired, I am wired now. I guess that is what depression does, at least for me.

Thanks,

[Guest guest]

The Abilify was added after the Lamictal was added. Abilify replaced the Risperdal. Will Abilify work by itself? The Zoloft was added to help reduce his anxiety he was having about school.

Your "bad" word was mild to what I have said lately, lol. The reason, I think, everyone says its just behavioral,, not psychiatric, is because he can calm down once he is at the crisis center or hospital and he never gives either place any trouble while there. No place wants to admit him for anything, and I feel like there is no where to turn for help. We have exhausted every avenue. I am very seriously considering moving to a much bigger city in Ohio, and I thought Toledo was big, to see if there is any better help. We can't leave Ohio, cause he will lose his IO waiver. It stinks!!

[Guest guest]

The Abilify was added after the Lamictal was added. Abilify replaced the Risperdal. Will Abilify work by itself? The Zoloft was added to help reduce his anxiety he was having about school.

Your "bad" word was mild to what I have said lately, lol. The reason, I think, everyone says its just behavioral,, not psychiatric, is because he can calm down once he is at the crisis center or hospital and he never gives either place any trouble while there. No place wants to admit him for anything, and I feel like there is no where to turn for help. We have exhausted every avenue. I am very seriously considering moving to a much bigger city in Ohio, and I thought Toledo was big, to see if there is any better help. We can't leave Ohio, cause he will lose his IO waiver. It stinks!!

[Guest guest]

Oh, I forgot to answer this one...the aggression started gradually since he was about 3. He was much smaller then and I could control it then. Now he is as tall as me (I am 5'3" and he is 5'2") and I just can't handle restraining him anymore.

[Guest guest]

Oh, I forgot to answer this one...the aggression started gradually since he was about 3. He was much smaller then and I could control it then. Now he is as tall as me (I am 5'3" and he is 5'2") and I just can't handle restraining him anymore.

[Guest guest]

Karac is about 5'11 and weighs 182; I wouldn't attempt to restrain him. I keep my distance and if he doesn't go upstairs or outside on his own, I suggest that he do that. It has been over a year since Karac has attacked me, but I stay on the alert. Love and blessings, Pat K

Re: At the end of my rope

Oh, I forgot to answer this one...the aggression started gradually since he was about 3. He was much smaller then and I could control it then. Now he is as tall as me (I am 5'3" and he is 5'2") and I just can't handle restraining him anymore.

[Guest guest]

Karac is about 5'11 and weighs 182; I wouldn't attempt to restrain him. I keep my distance and if he doesn't go upstairs or outside on his own, I suggest that he do that. It has been over a year since Karac has attacked me, but I stay on the alert. Love and blessings, Pat K

Re: At the end of my rope

Oh, I forgot to answer this one...the aggression started gradually since he was about 3. He was much smaller then and I could control it then. Now he is as tall as me (I am 5'3" and he is 5'2") and I just can't handle restraining him anymore.