Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Mike best of luck to you and I seriously mean it. You are experiencing what most of us have when being first diagnosed - confusion, anger, denial every emotion that you can think of and unfamiliar with the complexities of HCV the liver and all possibilities, compilations and functions. You liver does over 300 functions which keeps all your systems and organs functioning well. It is our staff of life and now it is being compromised by HCV which does effect every part of your body. For instances many of us are RF and RA+ which shows up has a positive lab test for arthritis or inflammatory process when in fact our HCV is the primary diagnosis causing positive results of these test and for many many more. Some primary care specialist's treat the patient by the positive lab results of many diseases when in fact it is our HCV causing the effects. This is throwing medicine at the secondary disease and ignoring the primary diagnosis of HCV which in turn thrives and is left unchecked. In the majority of cases it is impossible to know how, when and why we contracted HCV unless linked backed directly to the source. It is up to you to believe in your own mind what is best for you and to handle your HCV and complications. Why don't you ask for our members opinions review their replies based on there own HCV experience and their actual circumstances take a percentage of the outcome and than judge for yourself what your HCV possibilities might be for you. For instances ask if members rely on only a cat scan or even an MRI to judge if theirs livers are totally fine with no cell damage without a biopsy report of the actual liver cells. That is what this groups is here for to discuss and educate ourselves about our HCV our best course of action and what is needed short and long term our possibilities and what we may encounter in the future. We can't dispute the proven medical facts - there is no cure or vaccine for HCV at this present time and no successful undetectable treatment options for the majority long term. That is why HCV is now a Worldwide Epidemic. The natural progression of HCV is from inflammation to fibrosis to cirrhosis determined by stage and grade of the actual liver cells by biopsy usually taking about 20 years or more. For me I want to know exactly whats going on with me and my liver by medical evaluation of my biopsies by stage and grade, labs or whatever means of testing there is for me to make the best decisions for me. I want the actual facts as much actual information as possible because decisions are a life or death situation for many with HCV and definitely in my case. Having HCV is very complex an ongoing learning process for all of us and also for the medical profession. We are the long term medical case studies for our future HCV Brother's and Sister's. I wish you all the best. Take Care and God Bless Us All. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Hi Deb, Thank you for your reply. Thank you for your support. Most importantly thank you for the information about the liver and support. Actually I did an MRI scan and there is no liver damage but the heap doctor (currently have) he still insist me on having a biospy. I wish everyone in this group and people who has this deadly virus BEST OF LUCK and I hope EVERYONE GET's WELL SOON. From time to time when I have my virus blood test I will update my virus levels whenever I get new results. Take Care Mike C > > Mike best of luck to you and I seriously mean it. > > You are experiencing what most of us have when being first diagnosed - confusion, anger, denial every emotion that you can think of and unfamiliar with the complexities of HCV the liver and all possibilities, compilations and functions. > > You liver does over 300 functions which keeps all your systems and organs functioning well. It is our staff of life and now it is being compromised by HCV which does effect every part of your body. > > For instances many of us are RF and RA+ which shows up has a positive lab test for arthritis or inflammatory process when in fact our HCV is the primary diagnosis causing positive results of these test and for many many more. > > Some primary care specialist's treat the patient by the positive lab results of many diseases when in fact it is our HCV causing the effects. This is throwing medicine at the secondary disease and ignoring the primary diagnosis of HCV which in turn thrives and is left unchecked. > > In the majority of cases it is impossible to know how, when and why we contracted HCV unless linked backed directly to the source. > > It is up to you to believe in your own mind what is best for you and to handle your HCV and complications. > > Why don't you ask for our members opinions review their replies based on there own HCV experience and their actual circumstances take a percentage of the outcome and than judge for yourself what your HCV possibilities might be for you. > > For instances ask if members rely on only a cat scan or even an MRI to judge if theirs livers are totally fine with no cell damage without a biopsy report of the actual liver cells. > > That is what this groups is here for to discuss and educate ourselves about our HCV our best course of action and what is needed short and long term our possibilities and what we may encounter in the future. > > We can't dispute the proven medical facts - there is no cure or vaccine for HCV at this present time and no successful undetectable treatment options for the majority long term. > > That is why HCV is now a Worldwide Epidemic. > > The natural progression of HCV is from inflammation to fibrosis to cirrhosis determined by stage and grade of the actual liver cells by biopsy usually taking about 20 years or more. > > For me I want to know exactly whats going on with me and my liver by medical evaluation of my biopsies by stage and grade, labs or whatever means of testing there is for me to make the best decisions for me. > > I want the actual facts as much actual information as possible because decisions are a life or death situation for many with HCV and definitely in my case. > > Having HCV is very complex an ongoing learning process for all of us and also for the medical profession. > > We are the long term medical case studies for our future HCV Brother's and Sister's. > > I wish you all the best. > > Take Care and God Bless Us All. > > Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Mike c..My dragons name is Simon and I have ran him off. but he's lurking and I know it..So I am prepareing my self for battle again...My grandson has dragn posters on his walls to remind him of the enemy...Oh and Ms.. Suzie give that little bugger Spyke a hug from me..Kathy B..suzie <suzieandsandy@...> wrote: Hi Mike, I am fine thanks. Just so you know, my addy is suzieandsandy but Sandy isn't here anymore. He was my cat & I had to put him to sleep in May 2003, He was 21 years ols & I had him since he was 7 weeks old. He was a big part of my life for many years. You'll notice that I talk about Spyke a lot. He's my kitten & he's always plotting something - he wants to be the Galactic Overlord - yes, I am joking, but he gets into more mischief in one day than Sandy did in 21 years. You are the one who's going to decide how you want to treat the HCV, if at all. I've been on tx(treatment) twice & it didn't work for me but I'm going to try again as soon as I get another biopsy. My doctor won't treat without knowing exactly how my liver is doing, I think you'll find most doctors feel the same. Learn everything you can about the dragon & then make your choice. SuzieKathy Brunow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Mike c..My dragons name is Simon and I have ran him off. but he's lurking and I know it..So I am prepareing my self for battle again...My grandson has dragn posters on his walls to remind him of the enemy...Oh and Ms.. Suzie give that little bugger Spyke a hug from me..Kathy B..suzie <suzieandsandy@...> wrote: Hi Mike, I am fine thanks. Just so you know, my addy is suzieandsandy but Sandy isn't here anymore. He was my cat & I had to put him to sleep in May 2003, He was 21 years ols & I had him since he was 7 weeks old. He was a big part of my life for many years. You'll notice that I talk about Spyke a lot. He's my kitten & he's always plotting something - he wants to be the Galactic Overlord - yes, I am joking, but he gets into more mischief in one day than Sandy did in 21 years. You are the one who's going to decide how you want to treat the HCV, if at all. I've been on tx(treatment) twice & it didn't work for me but I'm going to try again as soon as I get another biopsy. My doctor won't treat without knowing exactly how my liver is doing, I think you'll find most doctors feel the same. Learn everything you can about the dragon & then make your choice. SuzieKathy Brunow Quote Link to comment Share on other sites More sharing options...
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