Re: Very frustrated and very long...

[Guest guest]

: I know you said that Ricky was on risperdal and you had to take him off because of the weight gain. I totally understand that because I was about to take Caleb off for that same reason. How did Ricky do on the Risperdal? Is there anything they could give him to counteract the weight gain? Caleb is on ADHD meds also so that helped with his weight gain. I know wellbutrin is suppose to control your appetite but I don't know at what age you can begin taking it. There has to be other meds out there to help Ricky.

autism From: pkuenstler@...Date: Tue, 22 Sep 2009 12:57:30 -0400Subject: Re: Very frustrated and very long...

It's a behavior problem caused by a psy. problem!! Pat K Re: Very frustrated and very long...

Pat,

At first the Abilify seemed to work. For about a month, it was great. Now, life is hell. We have tried so many medications, I don't know where to begin. The problem is, the Toledo Hospital kids psych unit refused to admit him because this is a behavior problem, not a psych problem. That makes me angry.

Thanks, Pat.

[Guest guest]

The highest dose we put Maddie on is Lamictal 100 mg. and Abiliy was to 50 mg. Now we have the Lamictal still at 100 mg. and the Abilify to 20 mg and I think that is going to be the lowest we take her - she still gets little temper tantrums when she doesn't get her own way, but she is able to pull herself out of them and I'm ok dealing with that - the 30 mg. sort of gave her a drugged effect.

But I don't know if what the highest dose would be - Maddie is 14 but stands 5'2"and weighs 130 pounds. I've always been told weight has some to do with the dosing too . . .

Rhonda

From: Wylie <mlwpdb@...>Subject: Re: Very frustrated and very long...autism Date: Tuesday, September 22, 2009, 12:14 PM

Thanks Rhonda. Do you or anyone here know what the highest dose of Abilify would be to start at and then work backwards? What about the Lamictal? He is on a total of 10mg of Abilify a day and 150mg of Lamictal.

[Guest guest]

The highest dose we put Maddie on is Lamictal 100 mg. and Abiliy was to 50 mg. Now we have the Lamictal still at 100 mg. and the Abilify to 20 mg and I think that is going to be the lowest we take her - she still gets little temper tantrums when she doesn't get her own way, but she is able to pull herself out of them and I'm ok dealing with that - the 30 mg. sort of gave her a drugged effect.

But I don't know if what the highest dose would be - Maddie is 14 but stands 5'2"and weighs 130 pounds. I've always been told weight has some to do with the dosing too . . .

Rhonda

From: Wylie <mlwpdb@...>Subject: Re: Very frustrated and very long...autism Date: Tuesday, September 22, 2009, 12:14 PM

Thanks Rhonda. Do you or anyone here know what the highest dose of Abilify would be to start at and then work backwards? What about the Lamictal? He is on a total of 10mg of Abilify a day and 150mg of Lamictal.

[Guest guest]

Exactly what I have been trying to get through to people!! I couldn't have said it better myself.

[Guest guest]

Exactly what I have been trying to get through to people!! I couldn't have said it better myself.

[Guest guest]

Ricky is 5'3" and about 186 pounds. I wonder if he isn't taking enough for his weight. I am meeting with the doctor and everyone he has working with him tomorrow afternoon. I am nervous, because some difficult decisions need to me made.

[Guest guest]

Ricky is 5'3" and about 186 pounds. I wonder if he isn't taking enough for his weight. I am meeting with the doctor and everyone he has working with him tomorrow afternoon. I am nervous, because some difficult decisions need to me made.

[Guest guest]

Everyone,

I just want to say a big thank you to all of you!! You all mean so much to me. I am so thankful for this group. I don't have many friends that understand what I am dealing with. Just knowing you all care and are praying for me is wonderful.

[Guest guest]

Everyone,

I just want to say a big thank you to all of you!! You all mean so much to me. I am so thankful for this group. I don't have many friends that understand what I am dealing with. Just knowing you all care and are praying for me is wonderful.

[Guest guest]

That makes me angry too. Our children's hospital admitted Karac to

the psy ward for the same problem. I guess it depends on the hospital.

I'm sure you'll find the answer; I'll pray for that. Love and blessings, Pat K

Re: Very frustrated and very long...

Pat,

At first the Abilify seemed to work. For about a month, it was great. Now, life is hell. We have tried so many medications, I don't know where to begin. The problem is, the Toledo Hospital kids psych unit refused to admit him because this is a behavior problem, not a psych problem. That makes me angry.

Thanks, Pat.

[Guest guest]

That makes me angry too. Our children's hospital admitted Karac to

the psy ward for the same problem. I guess it depends on the hospital.

I'm sure you'll find the answer; I'll pray for that. Love and blessings, Pat K

Re: Very frustrated and very long...

Pat,

At first the Abilify seemed to work. For about a month, it was great. Now, life is hell. We have tried so many medications, I don't know where to begin. The problem is, the Toledo Hospital kids psych unit refused to admit him because this is a behavior problem, not a psych problem. That makes me angry.

Thanks, Pat.

[Guest guest]

,

He is a big boy!!! did the meds make him put on the weight? Have you tried zpraxa? That has helped J with agression. Lois

Re: Very frustrated and very long...

[Guest guest]

,

He is a big boy!!! did the meds make him put on the weight? Have you tried zpraxa? That has helped J with agression. Lois

Re: Very frustrated and very long...

[Guest guest]

,

Does he have or has he had a qualified behaviorist, maybe ABA or a person that can help you with behavior? Maybe putting him in residential for awhile is the answer. Will he be able to come home (will they allow it) in the future if his behaviors are under control? My heart goes out to you.

C.

[Guest guest]

,

Does he have or has he had a qualified behaviorist, maybe ABA or a person that can help you with behavior? Maybe putting him in residential for awhile is the answer. Will he be able to come home (will they allow it) in the future if his behaviors are under control? My heart goes out to you.

C.

[Guest guest]

Pat,

I guess Ricky has been admitted too many times that the hospital don't want to mess with him anymore. I haven't had any problems in the past, for the most part, getting him admitted.

This is why we are having this team meeting. The place he is at right now dont' want him back either. I don't either, but it is comforting that there is somewhere to get help. I guess he has to seriously hurt me or worse before he will get the help we need.

[Guest guest]

Pat,

I guess Ricky has been admitted too many times that the hospital don't want to mess with him anymore. I haven't had any problems in the past, for the most part, getting him admitted.

This is why we are having this team meeting. The place he is at right now dont' want him back either. I don't either, but it is comforting that there is somewhere to get help. I guess he has to seriously hurt me or worse before he will get the help we need.

[Guest guest]

Yes he is a big boy! And yes the medicine caused the weight gain. He started on Risperdal almost 4 years ago and started out around 90 pounds. He gained 30 pounds in a couple of months. Then even after I took him off the risperdal, he still gained weight. I will see what the doctor thinks about the zpraxa.

[Guest guest]

Yes he is a big boy! And yes the medicine caused the weight gain. He started on Risperdal almost 4 years ago and started out around 90 pounds. He gained 30 pounds in a couple of months. Then even after I took him off the risperdal, he still gained weight. I will see what the doctor thinks about the zpraxa.

[Guest guest]

He has a behavioral specialist through the Lucas County board of MRDD. We have a behavior plan, but Ricky is choosing not to follow it. He will be able to be released from residential whenever I want him to be released. I am willing to listen with an open mind to figure out the best solution.

[Guest guest]

He has a behavioral specialist through the Lucas County board of MRDD. We have a behavior plan, but Ricky is choosing not to follow it. He will be able to be released from residential whenever I want him to be released. I am willing to listen with an open mind to figure out the best solution.

[Guest guest]

Agreed, not all kids do well on Abilify -- if you saw this after they increased it, I would look there first.

Behind on my eamils -- Have a blessed day

e

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Tuesday, September 22, 2009 9:41:40 AMSubject: Re: Very frustrated and very long...

honey, none of us would bash you. We of all people understand. Are you sure that the Abilify is not causing

the problem? Abilify made Karac so aggressive that we had to hospitalize him for several weeks. Anyway I

am so sorry and I prayed for you both this morning. Love and blessings, Pat K Very frustrated and very long...

Hi all,I have been very behind with the group messages because of issues with Ricky. He is, for the third time, in Rescue adjusting meds. His Abilify was increased to 5mg in am and 5mg in pm. There doesn't seem to be any other help for us anymore. Ricky went off on me and my apartment on Sunday night, all because I wouldn't buy him a cell phone for his birthday, which is today. He is 12 today. I am so sad that he isn't here. The ER wouldn't help much, other than say that he doesn't need to take up a room when he should be in jail. Juvenile detention would only book him and send him home. However, the ER told me that if I left the hospital with him, they would call the police on me, because he isn't safe. THe Childen's hospital refused to admit him because they think this is all behavioral. SO, he goes to Rescue yet again. And they even had said that if he comes back because he hit, kicked me again, they would pink slip him to

Juvenile detention. I am so beyond frustrated!! What do I do when no one seems to want to help me? I am worried that all these providers and case workers are going to look bad at me for not knowing how to handle my Autistic child. I am worried that Children's Services will open a case to investigate why I am not capable, or that his bio dad will take me back to court regarding custody. I know I will be getting treated horribly by Ricky's dad, and both my mom and his father's mother. Even though I have all the documentation to back me up, but I am afraid it won't be enough.It seems like the only option may be residential. I know I read a few posts not long ago about residential. Please forgive me for not remembering who it was regarding. I feel like I am at my last straw. His counselor released him from her services because he tells her what she wants to hear, but doesn't do what he knows is right. I am not saying he will

live in residential forever, just enough to get some round the clock help. Now, before anyone bashes me for "giving up on my child", stop and delete this message and move on. I have tried everything that I know to do and his caseworkers have told me to do. I am not giving up on my child, abandoning him, etc. I am trying to help him and I can't do that in my home right now. I have no one to take him in their home. His bio dad can't have unsupervised visitation right now. So, living with dad again isn't an option. My mom can't handle him either.Thanks for letting me vent. Please don't bash me or put me down. I am very fragile with my feelings right now. Believe me, I am not just throwing my kid away. This is the hardest decision I have ever had to do in my life. I am heartbroken.

[Guest guest]

Agreed, not all kids do well on Abilify -- if you saw this after they increased it, I would look there first.

Behind on my eamils -- Have a blessed day

e

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Tuesday, September 22, 2009 9:41:40 AMSubject: Re: Very frustrated and very long...

honey, none of us would bash you. We of all people understand. Are you sure that the Abilify is not causing

the problem? Abilify made Karac so aggressive that we had to hospitalize him for several weeks. Anyway I

am so sorry and I prayed for you both this morning. Love and blessings, Pat K Very frustrated and very long...

Hi all,I have been very behind with the group messages because of issues with Ricky. He is, for the third time, in Rescue adjusting meds. His Abilify was increased to 5mg in am and 5mg in pm. There doesn't seem to be any other help for us anymore. Ricky went off on me and my apartment on Sunday night, all because I wouldn't buy him a cell phone for his birthday, which is today. He is 12 today. I am so sad that he isn't here. The ER wouldn't help much, other than say that he doesn't need to take up a room when he should be in jail. Juvenile detention would only book him and send him home. However, the ER told me that if I left the hospital with him, they would call the police on me, because he isn't safe. THe Childen's hospital refused to admit him because they think this is all behavioral. SO, he goes to Rescue yet again. And they even had said that if he comes back because he hit, kicked me again, they would pink slip him to

Juvenile detention. I am so beyond frustrated!! What do I do when no one seems to want to help me? I am worried that all these providers and case workers are going to look bad at me for not knowing how to handle my Autistic child. I am worried that Children's Services will open a case to investigate why I am not capable, or that his bio dad will take me back to court regarding custody. I know I will be getting treated horribly by Ricky's dad, and both my mom and his father's mother. Even though I have all the documentation to back me up, but I am afraid it won't be enough.It seems like the only option may be residential. I know I read a few posts not long ago about residential. Please forgive me for not remembering who it was regarding. I feel like I am at my last straw. His counselor released him from her services because he tells her what she wants to hear, but doesn't do what he knows is right. I am not saying he will

live in residential forever, just enough to get some round the clock help. Now, before anyone bashes me for "giving up on my child", stop and delete this message and move on. I have tried everything that I know to do and his caseworkers have told me to do. I am not giving up on my child, abandoning him, etc. I am trying to help him and I can't do that in my home right now. I have no one to take him in their home. His bio dad can't have unsupervised visitation right now. So, living with dad again isn't an option. My mom can't handle him either.Thanks for letting me vent. Please don't bash me or put me down. I am very fragile with my feelings right now. Believe me, I am not just throwing my kid away. This is the hardest decision I have ever had to do in my life. I am heartbroken.

[Guest guest]

I pray you get the help you need. Love and blessings, Pat K

Re: Very frustrated and very long...

Pat,

I guess Ricky has been admitted too many times that the hospital don't want to mess with him anymore. I haven't had any problems in the past, for the most part, getting him admitted.

This is why we are having this team meeting. The place he is at right now dont' want him back either. I don't either, but it is comforting that there is somewhere to get help. I guess he has to seriously hurt me or worse before he will get the help we need.

[Guest guest]

I pray you get the help you need. Love and blessings, Pat K

Re: Very frustrated and very long...

Pat,

I guess Ricky has been admitted too many times that the hospital don't want to mess with him anymore. I haven't had any problems in the past, for the most part, getting him admitted.

This is why we are having this team meeting. The place he is at right now dont' want him back either. I don't either, but it is comforting that there is somewhere to get help. I guess he has to seriously hurt me or worse before he will get the help we need.