Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 In a message dated 9/24/2002 4:46:18 PM Eastern Standard Time, mfroof@... writes: > <<Milk restriction is an ABSOLUTE imperative to the treatment of autism. > Anyone managing this illness without restricting milk is deceiving > themselves. Complete elimination of sugar, juice, soda, french fries and > wheat (pasta, bagels, cereal, pretzels, etc) is a close second. >> > My son eats and drinks all these things. I somehow missed the original post to this, but I was wondering what I could expect if I tried to take these things away. My son does not have a weight problem and these foods are all he'll eat. He really doesn't have any bad behaviors and he doesn't take any meds. Maybe my son can eat these things without any problems. Take care, Judy, mom to , 10, DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Restrict MILK products?? I never thought of it....and the reason is.....what? Can you give me the web-site that speaks of this? Years ago, a physician told me Montyman was Celiac, but we found out last hospital stay that he isnt, only wheat intollerant. But,....sugar, juice, soda, FRENCH FRIES???....ARUGHHHH,....I'm with you, Margaret....what CAN these kid's eat? ALTHO Montyman LOVES zuchinni soup!...but I do thicken it with milk. ??? By the way, thanks everyone for your response to the toilet ....I can see that I am not alone on THAT one! LOL!!....wish MM would 'bend over and touch his toes' while sitting...but he wont. And he cant push himself back on the seat any further....and we cant put in concrete floors, we are in a raised house....im interested in the contour mats, tho I am not shure what they are...??? The splash guards helped lots when he was small....not now! It's the collection of the urine at the base of the toilet, running down the rim, that is my biggest problem....IF I dont stand there and 'aim' it for him, we get into trouble real quick. Other than that, I am SOOO proud of how well he is doing toileting!!! I thought a handicapped toilet would do better, I thought they were larger, and longer, but dont know where to find one....??anyone know?? Donna, Montyman's Mom, who is in the path of ISADORE now. bummer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 In a message dated 9/24/02 5:16:14 PM Pacific Daylight Time, dan_canale@... writes: << One of the most frustrating things for me as a parent of a kid with ASD and DS is trying to decide what therapies/diets to try. We have gone through periods of intensive floor time, but we have now switched to an ABA/discrete trail approach. We have tried goofy things that people swore by (for example, cranial sacral therapy), and also intensive vitamin cures. Right now we are sticking with ABA/discrete trail but we were just told by an autism expert to consider a TEACHH based school for Luca. Yikes... It's a bit overwhelming at times.... >> Dan, I agree that it is hard to find the right program. But we have to remember each kid is different and what works for one , doesn't always work for all, or maybe ANYONE else. LOL Heck, what works for one one day, may not even work the next day for the same kid. We tried Teachh with Seth for 3 1/2 years. Worked well for 2 1/2 of it. We switched teachers and it didn't work at all for the next year. We actually had regression. I guess you can't just go by the program, but have to consider who is teaching it, is more important maybe. It's a quest for each of us, individually, to find what works best for our kids. I would think that living downstate you would have more options open to you. Maybe a combination of programs would work better? Gail :-) Gail-Mom to Seth 6 ds/asd/pica, jo 10 the gymnast, 11 the pianist, 25 beautiful but a pain, Jen 26 the wallet breaker, Grandma to Errick 6 ALL boy and wife to , my hero. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2002 Report Share Posted September 26, 2002 In a message dated 9/24/02 8:16:15 PM Eastern Daylight Time, dan_canale@... writes: > We have gone through periods of intensive floor > time, but we have now switched to an ABA/discrete > trail approach. We have tried goofy things that people > swore by (for example, cranial sacral therapy), and > also intensive vitamin cures. Right now we are > sticking with ABA/discrete trail but we were just told > by an autism expert to consider a TEACHH based school > for Luca. Yikes... It's a bit overwhelming at > times.... > > I agree Dan, that it can be overwhelming. You just have to listen, learn, read and make a decision based on your knowledge of your child. We started with Maddie by going to sensory integration therapy every week.....I saw that it made sense for her.....;-) Then we did Floortime, and I saw HUGE results, however they took quite some time to surface; patience truly is a virtue. It was suggested that we do AIT (auditory training) and I met with the specialist, discussed the procedure and purposes, and decided it wasn't for Maddie......now she gets ABA, with Floortime thrown in. We use a picture system designed for her (sort of PECS and TEACCH mixed together)....I think you have to mold a program for each individual child. For instance, we still use sign with Maddie too, but not intensively. If you see a result, however small, I say hop on it!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Hi alll, If anyone hears from Dan let us know ok? I know this wil be rather stressfull for him. We have Sue2 being watched over so now we have to cover Dan. By the way, the boyfriend comes in tomorrow so I may disappear for a week or two, course if a ring magically appears I will let you know!!! See you all soon! G.otfM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Hi , we shall do that. Usually he IM's with us pretty regular so I think he will let us know when he is back. We just keep saying prayers for Sue and hopes she gets better. Oh and goodie for your visit, let us know. Melt From: <cynthia@...> > > If anyone hears from Dan let us know ok? > > By the way, the boyfriend comes in tomorrow so I may disappear for a week > or two, course if a ring magically appears I will let you know!!! > > See you all soon! > > G.otfM. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hello Sweetheart!!! I am so sorry you all are going through so much. I can't even be fresh to you right now. You and yuor wife, your whole family are in my prayers. Please take care of yourself and each other. Right now you are really going to need each other to soothe and be strong. Be safe, take your meds and know that you are loved. But don't expect me to be nice to you when you get back!! Big smooch on the nose!!! G.otF.M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 Dan, it was just wonderful to see you up and writing tonight. I miss you friend! Thank you for the great advice on gold balm also. I know that it is a favorite with a lot of people. You keep that attitude!!!! I can learn from you! When I get down, kick my butt and keep me in line handsome! I am thrilled for you Dan, sincerely! Lots of hugs my friend. Love,Sue #2 -- acid reflux and stuff Hi Gang Here is what the Old Curmudgeon thinks causes him to get a sour tummy with the pills and stuff. I sometimes goof and take my medicine(s) and swill em down with coffee, or maybe just a little bit of water and a lot of coffee. BAD THING for da tummy me thinks. I sure do get along a heck of a lot better if I take the medicine with a BIG ole glass of water and kinda hold back on da coffee till a little later. I also get along really good with a glass of milk, me thinks it might help coat da tummy a little bit. Arron and Sue2, I agree on the bag balm, works great. But I kinda have a fondness for that medicated Gold Bond lotion now days. Sometimes you can also get some straight 100% lanolin from the pharmisist too. A little bit of that goes a long way for sure. Learned that trick from a buddy from West Virginia that makes his own soap, and NO it aint LYE soap either. The old rascal makes all kinds of neat soap and I like his oatmeal soap really well. Lets see now. I am a week and a half prednisone free. I have not kicked the bucket yet, nor do I feel like I should either. Have been taking for the most part only one 200mg celebrex pill a day instead of two like have been for nearly a year. So am crusing here at my weekly MTX, a folic acid pill a day, and a celebrex, and the old make ya go pee pill. (sometimes think need a more powerful one of those, when the old legs tend to swell up). Have not dipped into the all powerful (dope) pain pills for some time now, have been knocking the pains that still happen out with the arthritis strenth tylenol, and have been fairly lucky and getting by with anywhere from one pill to maybe 3 a day. (lots better than the max 6). I have been trying to keep up with everyones post and see how they are doing. And jelous of Tom's new LOVE. I can picture him now, cruising down the road, going to coffee, with Mimi riding on the back of the Segway. Damn what a sight that would be. Dan BS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Dan..that is a good one. The only thing that I thought of that was ethical that might drive her crazy was this....Have people froma all over the world send her a quick note that says this ...Those who bring joy to others cannot keep it from themselves.......Now this is just a nice positive statement which most kind hearted people agree with....it does Not mention dog so she will have no idea where or why this is happening. Ha Ha Ha I also thought osf sending her chocolates....but she is so vile that the sight of her might make me have to up my meds!! Anyway..this silliness is annoying and I must really find a way to contain my little fat Rosie...she is adorable!! LIZ NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Howdy, Hello to, a somewhat frozen " Yank " , from a " Bell " . I just want you to know that your sense of humor is a breath of fresh air, to me, these days. I would love to know more about your fight with this Dragon, as well as yourself. I have feeling you can bring an insight to this whole thing we call, " being with an illness " , that might just get me off my " pity pot " . Thank You, Sunshine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Where is SB???I see it is pacific time...is it up near British Columbia?? Maybe if we go to Las Vegas we can organize a fishing day...I would think there is some fishing to do..besides the casinos??Hope you are well!!Liz in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Thanks Dan, Last summer I remember I got a sharp shooting pain in the top of my foot and it got all red and then, wallah, the next day it was gone! I just find it hard to believe that all of a sudden I have nerve pain shooting into my foot from my back. I would swear if the xray had not been fine, that my foot is broken. Oh well, the dragon sure likes to play with us at times. It must be that. Just did not want to take a chance that it was broke. Keep peckin!! Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -------Original Message------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Hi , I " met " after we both saw Dr. McCandless for our sons. I can confirm her efforts to help her son. I thought I had done a lot for my son but she made me look like a beginner. I do know children that have done worse with the DAN Protocol but I know more that have done better with some of the treatments. I know one child that seemed almost healed but then regressed horribly and ended up worse than before the DAN doctor started. Our children are so different. Different triggers and different damage but similar manifestations. Finding the cause is a real help and whatever doctor is best at that is a great beginning for a family. My son with severely elevated measles and rubella titers looks different than 's son. I can't actually heal my son until I can get rid of the measles so I need a doctor that is the best for this---Wakefield, Bradstreet--whoever--DAN or not. B12 was good, supplements were mostly a mess--even with all the big and expensive tests. Diet has been a so-so success, enzymes were very good. I could go on and on. I am so happy for those children and their families that are doing so well. My heart also goes out to those that have tried most everything with little or less results. Their hope being raised at every new treatment try, only to be crushed with another failure. Recovery comes in many " faces " . I think most of us can find success with the small things and hope for future but we also experience the exhaustion of constant research and experimentation. Hang in there !!! Your son is lucky to have you as his mom!! Theresa > Dear , > > I am very happy that your daughter is doing much better following the DAN > protocol. Please keep in mind that every child may be affected differently, > there is not one answer for everyone. > > We have done GFCF for 2 years, SCD, B12 shots, DMSA, ABA, TTFD, probiotiocs, > EFAs, DMG, enzymes, BIOSET, ST, OT, 6+ DAN doctors, Gazillion supplements > and vitamins, and a host of other things and still have not seen any > progress. Others have simply put their kids in a PPCD program or took out > milk from their diet and their kids have made significant progress. > > I don't want to discourage anyone but at the same time, it is unrealistic to > simplify the plight of others who have not found their magic pill yet. > > > Re: Digest Number 1780 > > > > > > I must confess that I don't always scroll through every day and read every > > single article, but wanted to take the time to send a message today about > > the series Channel 2 Houston is doing on Autism. If you watched the 4pm > > news Thursday, you saw my family on the " recovering with DAN " spot. What > is > > important to note is that they did an incredible job of editing that piece > > to show what is really happening for our family with the DAN protocol, but > > it doesn't show the dedication, time, patience, and cost involved. That > > would simply be too much. > > > > The reason I feel we have had such good results with the DAN protocol are > > that we have read EVERYTHING we could get our hands on, we've traveled to > > meet the doctors and hear the researchers give their case studies (I did a > > lot of that before I put on methyl b-12 and DMSA chelation), we've > > been gf/cf for almost 3 years, our entire household is gf/cf, not just our > > son, and we work together as a team in therapies, homework, communication, > > household running, etc. > > > > It is a tremendous process, but if you saw the piece and saw my son hug me > > and say, " mommy I love you, " and you want that, too, AND you are willing > to > > do whatever it takes, then do the DAN protocol. Not just pieces of it. > > ALL of it, and get a GOOD DAN! doctor that believes in the protocol and > have > > patience to allow things time to work. Most importantly, have faith, and > > put it all in the hands that are big enough to carry the load. > > > > My prayer is that other families will have recovery like we have with our > > son. He was never " severe, " but he just wasn't here with us. His speech > > was 2.5 year level at age 5, and he had SID's, stimming, etc. He's with > us > > now! > > > > We are planning an autism conference with Dr. Volpe to be held at our > > church, League City United Methodist Church, on April 10th from 1:30-6. > > There will be no cost for this event, but in January, I'll send out > notices > > so you can call and reserve tickets to hear our family's story, and hear > the > > newest up to date DAN! data from Dr. Volpe. We are also looking for one > > more person that would be willing to speak. > > > > My husband will be doing an overview of the rise of autism with stats, > > studies, charts, videos and all. I'll be sharing our recovery story of > > , and Dr. Volpe will be there to answer questions. I'd like to > have > > one more speaker to possibly talk about getting insurance help, different > > therapies, or something along those lines. If you read this and have a > > suggestion, please email me at lsantos@m... > > > > Oh, p.s. If you were one of the people I referred to as " a bunch of kooks > > and nut eating weirdoes, " before I believed the theories on vaccine > damage, > > thank you for paving the way for us to remove the thimerosol from my son's > > system. It's parents who began this that we owe the recovery of our son. > > Thank you from the bottom of a very grateful heart. > > > > With love and belief, > > Fellow kook and nut eating weirdo, > > > > P. Santos > > 281 332 1339 > > www.marykay.com/lsantos > > Cadillac Unit December 2004 > > www.laurasantos.com > > > > > > > > > > Texas Autism Advocacy > > > > > > Unlocking Autism > > www.UnlockingAutism.org > > > > Autism-Awareness-Action > > Worldwide internet group for parents who have a > > child with AUTISM. > > > > SeekingJoyinDisability - Prayer support for those touched by Disability: > > SeekingJoyinDisability/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Hi , I " met " after we both saw Dr. McCandless for our sons. I can confirm her efforts to help her son. I thought I had done a lot for my son but she made me look like a beginner. I do know children that have done worse with the DAN Protocol but I know more that have done better with some of the treatments. I know one child that seemed almost healed but then regressed horribly and ended up worse than before the DAN doctor started. Our children are so different. Different triggers and different damage but similar manifestations. Finding the cause is a real help and whatever doctor is best at that is a great beginning for a family. My son with severely elevated measles and rubella titers looks different than 's son. I can't actually heal my son until I can get rid of the measles so I need a doctor that is the best for this---Wakefield, Bradstreet--whoever--DAN or not. B12 was good, supplements were mostly a mess--even with all the big and expensive tests. Diet has been a so-so success, enzymes were very good. I could go on and on. I am so happy for those children and their families that are doing so well. My heart also goes out to those that have tried most everything with little or less results. Their hope being raised at every new treatment try, only to be crushed with another failure. Recovery comes in many " faces " . I think most of us can find success with the small things and hope for future but we also experience the exhaustion of constant research and experimentation. Hang in there !!! Your son is lucky to have you as his mom!! Theresa > Dear , > > I am very happy that your daughter is doing much better following the DAN > protocol. Please keep in mind that every child may be affected differently, > there is not one answer for everyone. > > We have done GFCF for 2 years, SCD, B12 shots, DMSA, ABA, TTFD, probiotiocs, > EFAs, DMG, enzymes, BIOSET, ST, OT, 6+ DAN doctors, Gazillion supplements > and vitamins, and a host of other things and still have not seen any > progress. Others have simply put their kids in a PPCD program or took out > milk from their diet and their kids have made significant progress. > > I don't want to discourage anyone but at the same time, it is unrealistic to > simplify the plight of others who have not found their magic pill yet. > > > Re: Digest Number 1780 > > > > > > I must confess that I don't always scroll through every day and read every > > single article, but wanted to take the time to send a message today about > > the series Channel 2 Houston is doing on Autism. If you watched the 4pm > > news Thursday, you saw my family on the " recovering with DAN " spot. What > is > > important to note is that they did an incredible job of editing that piece > > to show what is really happening for our family with the DAN protocol, but > > it doesn't show the dedication, time, patience, and cost involved. That > > would simply be too much. > > > > The reason I feel we have had such good results with the DAN protocol are > > that we have read EVERYTHING we could get our hands on, we've traveled to > > meet the doctors and hear the researchers give their case studies (I did a > > lot of that before I put on methyl b-12 and DMSA chelation), we've > > been gf/cf for almost 3 years, our entire household is gf/cf, not just our > > son, and we work together as a team in therapies, homework, communication, > > household running, etc. > > > > It is a tremendous process, but if you saw the piece and saw my son hug me > > and say, " mommy I love you, " and you want that, too, AND you are willing > to > > do whatever it takes, then do the DAN protocol. Not just pieces of it. > > ALL of it, and get a GOOD DAN! doctor that believes in the protocol and > have > > patience to allow things time to work. Most importantly, have faith, and > > put it all in the hands that are big enough to carry the load. > > > > My prayer is that other families will have recovery like we have with our > > son. He was never " severe, " but he just wasn't here with us. His speech > > was 2.5 year level at age 5, and he had SID's, stimming, etc. He's with > us > > now! > > > > We are planning an autism conference with Dr. Volpe to be held at our > > church, League City United Methodist Church, on April 10th from 1:30-6. > > There will be no cost for this event, but in January, I'll send out > notices > > so you can call and reserve tickets to hear our family's story, and hear > the > > newest up to date DAN! data from Dr. Volpe. We are also looking for one > > more person that would be willing to speak. > > > > My husband will be doing an overview of the rise of autism with stats, > > studies, charts, videos and all. I'll be sharing our recovery story of > > , and Dr. Volpe will be there to answer questions. I'd like to > have > > one more speaker to possibly talk about getting insurance help, different > > therapies, or something along those lines. If you read this and have a > > suggestion, please email me at lsantos@m... > > > > Oh, p.s. If you were one of the people I referred to as " a bunch of kooks > > and nut eating weirdoes, " before I believed the theories on vaccine > damage, > > thank you for paving the way for us to remove the thimerosol from my son's > > system. It's parents who began this that we owe the recovery of our son. > > Thank you from the bottom of a very grateful heart. > > > > With love and belief, > > Fellow kook and nut eating weirdo, > > > > P. Santos > > 281 332 1339 > > www.marykay.com/lsantos > > Cadillac Unit December 2004 > > www.laurasantos.com > > > > > > > > > > Texas Autism Advocacy > > > > > > Unlocking Autism > > www.UnlockingAutism.org > > > > Autism-Awareness-Action > > Worldwide internet group for parents who have a > > child with AUTISM. > > > > SeekingJoyinDisability - Prayer support for those touched by Disability: > > SeekingJoyinDisability/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Have you tried anti-virals? On Nov 12, 2004, at 10:13 PM, Theresa Madore wrote: > > > Hi , > > I " met " after we both saw Dr. McCandless for our sons. I can > confirm her efforts to help her son. I thought I had done a lot for > my son but she made me look like a beginner. I do know children > that have done worse with the DAN Protocol but I know more that have > done better with some of the treatments. I know one child that > seemed almost healed but then regressed horribly and ended up worse > than before the DAN doctor started. > > Our children are so different. Different triggers and different > damage but similar manifestations. Finding the cause is a real help > and whatever doctor is best at that is a great beginning for a > family. My son with severely elevated measles and rubella titers > looks different than 's son. I can't actually heal my son until > I can get rid of the measles so I need a doctor that is the best for > this---Wakefield, Bradstreet--whoever--DAN or not. B12 was good, > supplements were mostly a mess--even with all the big and expensive > tests. Diet has been a so-so success, enzymes were very good. I > could go on and on. > > I am so happy for those children and their families that are doing > so well. My heart also goes out to those that have tried most > everything with little or less results. Their hope being raised at > every new treatment try, only to be crushed with another failure. > > Recovery comes in many " faces " . I think most of us can find success > with the small things and hope for future but we also experience the > exhaustion of constant research and experimentation. > > Hang in there !!! Your son is lucky to have you as his mom!! > > Theresa > > > > >> Dear , >> >> I am very happy that your daughter is doing much better following > the DAN >> protocol. Please keep in mind that every child may be affected > differently, >> there is not one answer for everyone. >> >> We have done GFCF for 2 years, SCD, B12 shots, DMSA, ABA, TTFD, > probiotiocs, >> EFAs, DMG, enzymes, BIOSET, ST, OT, 6+ DAN doctors, Gazillion > supplements >> and vitamins, and a host of other things and still have not seen > any >> progress. Others have simply put their kids in a PPCD program or > took out >> milk from their diet and their kids have made significant progress. >> >> I don't want to discourage anyone but at the same time, it is > unrealistic to >> simplify the plight of others who have not found their magic pill > yet. >> >> >> Re: Digest Number 1780 >> >> >>> >>> I must confess that I don't always scroll through every day and > read every >>> single article, but wanted to take the time to send a message > today about >>> the series Channel 2 Houston is doing on Autism. If you watched > the 4pm >>> news Thursday, you saw my family on the " recovering with DAN " > spot. What >> is >>> important to note is that they did an incredible job of editing > that piece >>> to show what is really happening for our family with the DAN > protocol, but >>> it doesn't show the dedication, time, patience, and cost > involved. That >>> would simply be too much. >>> >>> The reason I feel we have had such good results with the DAN > protocol are >>> that we have read EVERYTHING we could get our hands on, we've > traveled to >>> meet the doctors and hear the researchers give their case > studies (I did a >>> lot of that before I put on methyl b-12 and DMSA > chelation), we've >>> been gf/cf for almost 3 years, our entire household is gf/cf, > not just our >>> son, and we work together as a team in therapies, homework, > communication, >>> household running, etc. >>> >>> It is a tremendous process, but if you saw the piece and saw my > son hug me >>> and say, " mommy I love you, " and you want that, too, AND you > are willing >> to >>> do whatever it takes, then do the DAN protocol. Not just > pieces of it. >>> ALL of it, and get a GOOD DAN! doctor that believes in the > protocol and >> have >>> patience to allow things time to work. Most importantly, have > faith, and >>> put it all in the hands that are big enough to carry the load. >>> >>> My prayer is that other families will have recovery like we have > with our >>> son. He was never " severe, " but he just wasn't here with us. > His speech >>> was 2.5 year level at age 5, and he had SID's, stimming, etc. > He's with >> us >>> now! >>> >>> We are planning an autism conference with Dr. Volpe to be held > at our >>> church, League City United Methodist Church, on April 10th from > 1:30-6. >>> There will be no cost for this event, but in January, I'll send > out >> notices >>> so you can call and reserve tickets to hear our family's story, > and hear >> the >>> newest up to date DAN! data from Dr. Volpe. We are also looking > for one >>> more person that would be willing to speak. >>> >>> My husband will be doing an overview of the rise of autism with > stats, >>> studies, charts, videos and all. I'll be sharing our recovery > story of >>> , and Dr. Volpe will be there to answer questions. I'd > like to >> have >>> one more speaker to possibly talk about getting insurance help, > different >>> therapies, or something along those lines. If you read this and > have a >>> suggestion, please email me at lsantos@m... >>> >>> Oh, p.s. If you were one of the people I referred to as " a > bunch of kooks >>> and nut eating weirdoes, " before I believed the theories on > vaccine >> damage, >>> thank you for paving the way for us to remove the thimerosol > from my son's >>> system. It's parents who began this that we owe the recovery of > our son. >>> Thank you from the bottom of a very grateful heart. >>> >>> With love and belief, >>> Fellow kook and nut eating weirdo, >>> >>> P. Santos >>> 281 332 1339 >>> www.marykay.com/lsantos >>> Cadillac Unit December 2004 >>> www.laurasantos.com >>> >>> >>> >>> >>> Texas Autism Advocacy >>> >>> >>> Unlocking Autism >>> www.UnlockingAutism.org >>> >>> Autism-Awareness-Action >>> Worldwide internet group for parents who have a >>> child with AUTISM. >>> >>> SeekingJoyinDisability - Prayer support for those touched by > Disability: >>> SeekingJoyinDisability/ >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Have you tried anti-virals? On Nov 12, 2004, at 10:13 PM, Theresa Madore wrote: > > > Hi , > > I " met " after we both saw Dr. McCandless for our sons. I can > confirm her efforts to help her son. I thought I had done a lot for > my son but she made me look like a beginner. I do know children > that have done worse with the DAN Protocol but I know more that have > done better with some of the treatments. I know one child that > seemed almost healed but then regressed horribly and ended up worse > than before the DAN doctor started. > > Our children are so different. Different triggers and different > damage but similar manifestations. Finding the cause is a real help > and whatever doctor is best at that is a great beginning for a > family. My son with severely elevated measles and rubella titers > looks different than 's son. I can't actually heal my son until > I can get rid of the measles so I need a doctor that is the best for > this---Wakefield, Bradstreet--whoever--DAN or not. B12 was good, > supplements were mostly a mess--even with all the big and expensive > tests. Diet has been a so-so success, enzymes were very good. I > could go on and on. > > I am so happy for those children and their families that are doing > so well. My heart also goes out to those that have tried most > everything with little or less results. Their hope being raised at > every new treatment try, only to be crushed with another failure. > > Recovery comes in many " faces " . I think most of us can find success > with the small things and hope for future but we also experience the > exhaustion of constant research and experimentation. > > Hang in there !!! Your son is lucky to have you as his mom!! > > Theresa > > > > >> Dear , >> >> I am very happy that your daughter is doing much better following > the DAN >> protocol. Please keep in mind that every child may be affected > differently, >> there is not one answer for everyone. >> >> We have done GFCF for 2 years, SCD, B12 shots, DMSA, ABA, TTFD, > probiotiocs, >> EFAs, DMG, enzymes, BIOSET, ST, OT, 6+ DAN doctors, Gazillion > supplements >> and vitamins, and a host of other things and still have not seen > any >> progress. Others have simply put their kids in a PPCD program or > took out >> milk from their diet and their kids have made significant progress. >> >> I don't want to discourage anyone but at the same time, it is > unrealistic to >> simplify the plight of others who have not found their magic pill > yet. >> >> >> Re: Digest Number 1780 >> >> >>> >>> I must confess that I don't always scroll through every day and > read every >>> single article, but wanted to take the time to send a message > today about >>> the series Channel 2 Houston is doing on Autism. If you watched > the 4pm >>> news Thursday, you saw my family on the " recovering with DAN " > spot. What >> is >>> important to note is that they did an incredible job of editing > that piece >>> to show what is really happening for our family with the DAN > protocol, but >>> it doesn't show the dedication, time, patience, and cost > involved. That >>> would simply be too much. >>> >>> The reason I feel we have had such good results with the DAN > protocol are >>> that we have read EVERYTHING we could get our hands on, we've > traveled to >>> meet the doctors and hear the researchers give their case > studies (I did a >>> lot of that before I put on methyl b-12 and DMSA > chelation), we've >>> been gf/cf for almost 3 years, our entire household is gf/cf, > not just our >>> son, and we work together as a team in therapies, homework, > communication, >>> household running, etc. >>> >>> It is a tremendous process, but if you saw the piece and saw my > son hug me >>> and say, " mommy I love you, " and you want that, too, AND you > are willing >> to >>> do whatever it takes, then do the DAN protocol. Not just > pieces of it. >>> ALL of it, and get a GOOD DAN! doctor that believes in the > protocol and >> have >>> patience to allow things time to work. Most importantly, have > faith, and >>> put it all in the hands that are big enough to carry the load. >>> >>> My prayer is that other families will have recovery like we have > with our >>> son. He was never " severe, " but he just wasn't here with us. > His speech >>> was 2.5 year level at age 5, and he had SID's, stimming, etc. > He's with >> us >>> now! >>> >>> We are planning an autism conference with Dr. Volpe to be held > at our >>> church, League City United Methodist Church, on April 10th from > 1:30-6. >>> There will be no cost for this event, but in January, I'll send > out >> notices >>> so you can call and reserve tickets to hear our family's story, > and hear >> the >>> newest up to date DAN! data from Dr. Volpe. We are also looking > for one >>> more person that would be willing to speak. >>> >>> My husband will be doing an overview of the rise of autism with > stats, >>> studies, charts, videos and all. I'll be sharing our recovery > story of >>> , and Dr. Volpe will be there to answer questions. I'd > like to >> have >>> one more speaker to possibly talk about getting insurance help, > different >>> therapies, or something along those lines. If you read this and > have a >>> suggestion, please email me at lsantos@m... >>> >>> Oh, p.s. If you were one of the people I referred to as " a > bunch of kooks >>> and nut eating weirdoes, " before I believed the theories on > vaccine >> damage, >>> thank you for paving the way for us to remove the thimerosol > from my son's >>> system. It's parents who began this that we owe the recovery of > our son. >>> Thank you from the bottom of a very grateful heart. >>> >>> With love and belief, >>> Fellow kook and nut eating weirdo, >>> >>> P. Santos >>> 281 332 1339 >>> www.marykay.com/lsantos >>> Cadillac Unit December 2004 >>> www.laurasantos.com >>> >>> >>> >>> >>> Texas Autism Advocacy >>> >>> >>> Unlocking Autism >>> www.UnlockingAutism.org >>> >>> Autism-Awareness-Action >>> Worldwide internet group for parents who have a >>> child with AUTISM. >>> >>> SeekingJoyinDisability - Prayer support for those touched by > Disability: >>> SeekingJoyinDisability/ >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Yes we have tried 3 different anti-virals with no reduction in titers. My son was " normal " until his MMR when he lost he speech and regressed into a violent mess. We have also done the Vit A high dose protocol with McCandless with some reduction in saliva rubeola titers but none in serum. He loses most of his speech without enzymes and we have worked so much on his " gut " . You can tell when there is a disconnect at times with his brain and I know that there continues to be some damage because of his measles problem. I still can't believe he is doing with all of these problems going on. What a kid!! I appreciate the suggestion. Never leave a stone unturned. Thanks so much, Theresa Madore, SA > Have you tried anti-virals? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Yes we have tried 3 different anti-virals with no reduction in titers. My son was " normal " until his MMR when he lost he speech and regressed into a violent mess. We have also done the Vit A high dose protocol with McCandless with some reduction in saliva rubeola titers but none in serum. He loses most of his speech without enzymes and we have worked so much on his " gut " . You can tell when there is a disconnect at times with his brain and I know that there continues to be some damage because of his measles problem. I still can't believe he is doing with all of these problems going on. What a kid!! I appreciate the suggestion. Never leave a stone unturned. Thanks so much, Theresa Madore, SA > Have you tried anti-virals? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Theresa, Thank you for the kind words. One correction. You are the one who has impressed me with how much you have done with your son. Give yourself a pat on the back... Re: Digest Number 1780 > > > > > > > > > > I must confess that I don't always scroll through every day and > read every > > > single article, but wanted to take the time to send a message > today about > > > the series Channel 2 Houston is doing on Autism. If you watched > the 4pm > > > news Thursday, you saw my family on the " recovering with DAN " > spot. What > > is > > > important to note is that they did an incredible job of editing > that piece > > > to show what is really happening for our family with the DAN > protocol, but > > > it doesn't show the dedication, time, patience, and cost > involved. That > > > would simply be too much. > > > > > > The reason I feel we have had such good results with the DAN > protocol are > > > that we have read EVERYTHING we could get our hands on, we've > traveled to > > > meet the doctors and hear the researchers give their case > studies (I did a > > > lot of that before I put on methyl b-12 and DMSA > chelation), we've > > > been gf/cf for almost 3 years, our entire household is gf/cf, > not just our > > > son, and we work together as a team in therapies, homework, > communication, > > > household running, etc. > > > > > > It is a tremendous process, but if you saw the piece and saw my > son hug me > > > and say, " mommy I love you, " and you want that, too, AND you > are willing > > to > > > do whatever it takes, then do the DAN protocol. Not just > pieces of it. > > > ALL of it, and get a GOOD DAN! doctor that believes in the > protocol and > > have > > > patience to allow things time to work. Most importantly, have > faith, and > > > put it all in the hands that are big enough to carry the load. > > > > > > My prayer is that other families will have recovery like we have > with our > > > son. He was never " severe, " but he just wasn't here with us. > His speech > > > was 2.5 year level at age 5, and he had SID's, stimming, etc. > He's with > > us > > > now! > > > > > > We are planning an autism conference with Dr. Volpe to be held > at our > > > church, League City United Methodist Church, on April 10th from > 1:30-6. > > > There will be no cost for this event, but in January, I'll send > out > > notices > > > so you can call and reserve tickets to hear our family's story, > and hear > > the > > > newest up to date DAN! data from Dr. Volpe. We are also looking > for one > > > more person that would be willing to speak. > > > > > > My husband will be doing an overview of the rise of autism with > stats, > > > studies, charts, videos and all. I'll be sharing our recovery > story of > > > , and Dr. Volpe will be there to answer questions. I'd > like to > > have > > > one more speaker to possibly talk about getting insurance help, > different > > > therapies, or something along those lines. If you read this and > have a > > > suggestion, please email me at lsantos@m... > > > > > > Oh, p.s. If you were one of the people I referred to as " a > bunch of kooks > > > and nut eating weirdoes, " before I believed the theories on > vaccine > > damage, > > > thank you for paving the way for us to remove the thimerosol > from my son's > > > system. It's parents who began this that we owe the recovery of > our son. > > > Thank you from the bottom of a very grateful heart. > > > > > > With love and belief, > > > Fellow kook and nut eating weirdo, > > > > > > P. Santos > > > 281 332 1339 > > > www.marykay.com/lsantos > > > Cadillac Unit December 2004 > > > www.laurasantos.com > > > > > > > > > > > > > > > Texas Autism Advocacy > > > > > > > > > Unlocking Autism > > > www.UnlockingAutism.org > > > > > > Autism-Awareness-Action > > > Worldwide internet group for parents who have a > > > child with AUTISM. > > > > > > SeekingJoyinDisability - Prayer support for those touched by > Disability: > > > SeekingJoyinDisability/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Theresa, Thank you for the kind words. One correction. You are the one who has impressed me with how much you have done with your son. Give yourself a pat on the back... Re: Digest Number 1780 > > > > > > > > > > I must confess that I don't always scroll through every day and > read every > > > single article, but wanted to take the time to send a message > today about > > > the series Channel 2 Houston is doing on Autism. If you watched > the 4pm > > > news Thursday, you saw my family on the " recovering with DAN " > spot. What > > is > > > important to note is that they did an incredible job of editing > that piece > > > to show what is really happening for our family with the DAN > protocol, but > > > it doesn't show the dedication, time, patience, and cost > involved. That > > > would simply be too much. > > > > > > The reason I feel we have had such good results with the DAN > protocol are > > > that we have read EVERYTHING we could get our hands on, we've > traveled to > > > meet the doctors and hear the researchers give their case > studies (I did a > > > lot of that before I put on methyl b-12 and DMSA > chelation), we've > > > been gf/cf for almost 3 years, our entire household is gf/cf, > not just our > > > son, and we work together as a team in therapies, homework, > communication, > > > household running, etc. > > > > > > It is a tremendous process, but if you saw the piece and saw my > son hug me > > > and say, " mommy I love you, " and you want that, too, AND you > are willing > > to > > > do whatever it takes, then do the DAN protocol. Not just > pieces of it. > > > ALL of it, and get a GOOD DAN! doctor that believes in the > protocol and > > have > > > patience to allow things time to work. Most importantly, have > faith, and > > > put it all in the hands that are big enough to carry the load. > > > > > > My prayer is that other families will have recovery like we have > with our > > > son. He was never " severe, " but he just wasn't here with us. > His speech > > > was 2.5 year level at age 5, and he had SID's, stimming, etc. > He's with > > us > > > now! > > > > > > We are planning an autism conference with Dr. Volpe to be held > at our > > > church, League City United Methodist Church, on April 10th from > 1:30-6. > > > There will be no cost for this event, but in January, I'll send > out > > notices > > > so you can call and reserve tickets to hear our family's story, > and hear > > the > > > newest up to date DAN! data from Dr. Volpe. We are also looking > for one > > > more person that would be willing to speak. > > > > > > My husband will be doing an overview of the rise of autism with > stats, > > > studies, charts, videos and all. I'll be sharing our recovery > story of > > > , and Dr. Volpe will be there to answer questions. I'd > like to > > have > > > one more speaker to possibly talk about getting insurance help, > different > > > therapies, or something along those lines. If you read this and > have a > > > suggestion, please email me at lsantos@m... > > > > > > Oh, p.s. If you were one of the people I referred to as " a > bunch of kooks > > > and nut eating weirdoes, " before I believed the theories on > vaccine > > damage, > > > thank you for paving the way for us to remove the thimerosol > from my son's > > > system. It's parents who began this that we owe the recovery of > our son. > > > Thank you from the bottom of a very grateful heart. > > > > > > With love and belief, > > > Fellow kook and nut eating weirdo, > > > > > > P. Santos > > > 281 332 1339 > > > www.marykay.com/lsantos > > > Cadillac Unit December 2004 > > > www.laurasantos.com > > > > > > > > > > > > > > > Texas Autism Advocacy > > > > > > > > > Unlocking Autism > > > www.UnlockingAutism.org > > > > > > Autism-Awareness-Action > > > Worldwide internet group for parents who have a > > > child with AUTISM. > > > > > > SeekingJoyinDisability - Prayer support for those touched by > Disability: > > > SeekingJoyinDisability/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 There are many wonderful DAN! doctors out there and there are many recoveries too. www.autismistreatable.com YouTube - Autism B12 shots Befo H Cale Vice President, Unlocking Autism 770.463.4475 home office 866.366.3361 UA Office www.unlockingautism.org NanCale@... Let those who say it can't be done get out of the way of those who are doing it! Giving Mercury To Children on Purpose is STUPID! Today's mighty oak is just yesterday's nut that held it's ground! 'As individual fingers we can easily be broken, but all together we make a mighty fist.' – Sitting Bull Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Jeanne, I think the doctor you went to was pulled off the DAN! list years ago...ofcourse being the kind of person he was he may have continued to present himself as a DAN! doctor. My best friend was also a patient of his for Chronic Fatigue. You should always talked to several other parents who have used a doc in my opinion. The majority of DAN! are dedicated to our children and giving the best possible chance at a healthy life. The fact that your insurance doesn't cover treatment for autism is not the fault of the doctor but of the insurance industry that is not open minded enough to look at out come of treatment and not their narrow definition my 2 cents. H Cale Vice President, Unlocking Autism 770.463.4475 home office 866.366.3361 UA Office www.unlockingautism.org NanCale@... Let those who say it can't be done get out of the way of those who are doing it! Giving Mercury To Children on Purpose is STUPID! Today's mighty oak is just yesterday's nut that held it's ground! 'As individual fingers we can easily be broken, but all together we make a mighty fist.' – Sitting Bull Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Other than charge you through the nose to poison your child? Not a lot. DAN is Defeat Autism Now and according to a well meaning woman (and I use the term loosely), “DAN Doctors are wonderful, they help you using homeopathic techniques to cure your child of Autism.” I wonder if that woman could use a DAN doctor to pull her head out of her butt. From: autism [mailto:autism ] On Behalf Of godsmercysaidno Sent: Monday, November 06, 2006 7:32 AM autism Subject: DAN Hi everyone, I feel stupid asking so many questions, but I just don't know some of the language everyone is talking about. I guess it's just going to take time to learn. Here's the new question. What is a DAN and what does a DAN doctor do? Thanks again, -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Pretty funny ! DAN doctors are proponents of natural methods to deal with the symptoms of autism; vitamins, supplements, restricted diets, etc. There are not that many of them out there, so they do tend to be pricey, and generally don’t take insurance. If your child responds to dietary changes and/or vitamin supplements, this may be an option. My son never responded to any of that, but I do know some people whose children have. They have not been cured by any means, but some of the behaviors were lessened. If you do decide to go this route, be careful finding a doctor. Not everyone listed on the DAN site is a medical doctor and the one that we got involved with had a prior drug conviction and several lawsuits filed against him. Check with other parents regarding the dr’s reputation. Jeanne From: autism [mailto:autism ] On Behalf Of Sent: Monday, November 06, 2006 7:47 AM autism Subject: RE: DAN Other than charge you through the nose to poison your child? Not a lot. DAN is Defeat Autism Now and according to a well meaning woman (and I use the term loosely), “DAN Doctors are wonderful, they help you using homeopathic techniques to cure your child of Autism.” I wonder if that woman could use a DAN doctor to pull her head out of her butt. From: autism [mailto:autism ] On Behalf Of godsmercysaidno Sent: Monday, November 06, 2006 7:32 AM autism Subject: DAN Hi everyone, I feel stupid asking so many questions, but I just don't know some of the language everyone is talking about. I guess it's just going to take time to learn. Here's the new question. What is a DAN and what does a DAN doctor do? Thanks again, -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 11/4/2006 -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.13.27/517 - Release Date: 11/3/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.13.27/517 - Release Date: 11/3/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 My son has seen a DAN doc for two years now. I have to say...He has made enormous progress when we were aware of malabsorption issues and supplemented him with the vitamin's and minerals that he was deficient in, changed his diet, and treated him for yeast/bacteria in his gut. He is a different child when he does not have elevated yeast. I would have never believed it if I didn't see it myself. I know that not all children respond to the DAN protocal but many do and I have seen them first hand. I would recommend getting the book " children with starving brains " and determine if you think for your individual child this would be an option. I also attribute Floortime, a great occupational therapist, and speech therapy to his success as well. I just do not think we would be at the place we are without treating his body as well. I do not think that everyone responds, but your child might...There are those who had very bad experiences and I was frightened by all the mixed reviews I got when exploring different treatment options but it helped to first start out with a doctor and do some testing and make supplementation choices based on labs. The doctors are not cheap but I know that on the Ga Biomed forum they have listed doctors who accept insurance. just my opinion, Annemarie On 11/6/06, godsmercysaidno <godsmercysaidno@...> wrote: Hi everyone,I feel stupid asking so many questions, but I just don't know some of the language everyone is talking about. I guess it's just going to take time to learn. Here's the new question. What is a DAN and what does a DAN doctor do?Thanks again, -- Annemarie Messerschmidt Quote Link to comment Share on other sites More sharing options...
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