Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 I totally understand this, it can be anything that sets them off,my step daughter was upset because our car broke and she could not bowling!! Well we had a full weekend of of tantrums and fits,and to be honest we are done,we are loking for placement.Sorry if that bothers anyone,but when you have been dealing with what,at first for my husband for 11 years and myself for almost 2,you get to the point when you really REALIZE that you can not change them to be NORMAL!! You want them to "normal",you may or may not treat them normal,but there comes a time when you HAVE to say,'I HAVE DONE MY BEST,I HAVE DONE EVERYTHING THAT HAS BEEN GIVEN ME!! Yes it may be selfish,and yes could cause family probs,but,as I have said along, I CAN NOT AND WILL NOT!!,sacrifice my kids or my new husband because she can/wont accept us as a family!! I hope you dont misunderstand me,I am new to this, but I am sick and tired of her MANIPULATION TACTICTS!! sHE DONT GET,if I leave,so does my and her farther's new born son(his x took his 1st son away with her when they where 2,3)(oh yea did I also tell you, she tried to stab the family(mother,stepfather,brother,1 infant step brother) and she also set fire to their home....SO YEA, WE LIVE IN FEAR OF THIS 20 YEAR OLD EVERYDAY!!(SHE WAS 10, WHEN SHE DID THIS) Again think and do what is good for your family, BUT IF YOU THINK YOUR CHILD IS GOING TO BETTER WITH AGE,PLEASE,PLEASE LISTEN AND KNOW IT REALLY IS NOT REALITY!! I DONT MEAN TO BE HARSH OR CRUEL,BUT FOR YOU PEOPLE WHO ARE DEALING WITH PROBS AT A YOUNG AGE..........i PRAY FOR YOU!!! aND i TRULLY MEAN IT!! iT TAKES THE TOLL ON EVERYTHING IN YOUR LIFE!! aND i WILL MAKE MY HUSBAND CHOOSE BETWEEN HER AND HIS NEW BABY BOY~~ Luv ya, Tobie From: jellylady47 <jellylady47@...>Subject: Re: Please pray for Rickyautism Date: Tuesday, September 8, 2009, 10:46 PM Thank you very much for the prayers. We are doing okay -- now. went for almost two weeks on very little sleep. He wakes me up, asking for permission to go to the bathroom. Once I wake up, I cannot go back to sleep. It really affects how I function during the day. I cannot go as long as he can without sleep. Last Saturday morning was terrible. He woke up late and started screaming. He started banging the walls and throwing things into the hallway. He broke my large mirror that used to be my Grandmother' s (it was over 70 years old), and started running down the hallway through the glass. He has never done anything so bizarre before. It scared us all to death! I had to give him an Ativan to calm down so I could pick out the pieces of glass on his feet. He tracked blood down the hallway and onto the carpet. Surprisingly, he just had superficial cuts, nothing deep. About 45 minutes later, he apologized and was fine with everything. Meanwhile we were all still shaking. What annoys me is that his behavioral therapist is going to ask me what started it. What she doesn't get that sometimes NOTHING THAT WE DID WRONG started it. Times like this, I wonder what is going on inside of his head. I also wanted to say hi to Kellie too and tell her that my other son, , is home now from the Navy. He has been here for a week. He didn't tell me that he was on his way home, and surprised me by ringing my doorbell, after dinner time. It was very emotional. I haven't seen him since January. and (23) > >> > , do you live in Texas?? Pat K> > > > > > Re: Please pray for Ricky> > > > > > > > > > > > > > > > > > > > Thanks Judy!? Ricky sees his doctor on September 14, and I will ask more questions about the medication dosage.? > > He may come home tomorrow evening if he has a good day and a good family meeting.? I think he thought he would go home tonight, but the doctor noted she wanted him to stay one more night for observation. ? I noticed it is a full moon.? I often wonder if that affects him or not.? I have noticed a pattern around that time.> > > > ?> > > > I have got to finish up here and go to bed.? I am exhausted.? My fiance and I went out to eat tonight.? We went to Texas RoadHouse steakl house.? Wonderful meal!? It was nice not to have to eat at Mcs. > > > > ?> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 I know how scary that is; when Karac does something like that it reminds me of post traumatic stress, some kind of painful thoughts in his head. That's nice that your son is home from the navy. My grandson just left for Iraq yesterday; this will be his second time. He is on a special assignment and it concerns us, but his church had special prayers and blessings for he and his family; that is very comforting. I pray you and have a good day today. Love and blessings, Pat K Re: Please pray for Ricky > > > > > > > > > > > > > > > > > > > > Thanks Judy!? Ricky sees his doctor on September 14, and I will ask more questions about the medication dosage.? > > He may come home tomorrow evening if he has a good day and a good family meeting.? I think he thought he would go home tonight, but the doctor noted she wanted him to stay one more night for observation.? I noticed it is a full moon.? I often wonder if that affects him or not.? I have noticed a pattern around that time. > > > > ? > > > > I have got to finish up here and go to bed.? I am exhausted.? My fiance and I went out to eat tonight.? We went to Texas RoadHouse steakl house.? Wonderful meal!? It was nice not to have to eat at Mcs. > > > > ? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 I know how scary that is; when Karac does something like that it reminds me of post traumatic stress, some kind of painful thoughts in his head. That's nice that your son is home from the navy. My grandson just left for Iraq yesterday; this will be his second time. He is on a special assignment and it concerns us, but his church had special prayers and blessings for he and his family; that is very comforting. I pray you and have a good day today. Love and blessings, Pat K Re: Please pray for Ricky > > > > > > > > > > > > > > > > > > > > Thanks Judy!? Ricky sees his doctor on September 14, and I will ask more questions about the medication dosage.? > > He may come home tomorrow evening if he has a good day and a good family meeting.? I think he thought he would go home tonight, but the doctor noted she wanted him to stay one more night for observation.? I noticed it is a full moon.? I often wonder if that affects him or not.? I have noticed a pattern around that time. > > > > ? > > > > I have got to finish up here and go to bed.? I am exhausted.? My fiance and I went out to eat tonight.? We went to Texas RoadHouse steakl house.? Wonderful meal!? It was nice not to have to eat at Mcs. > > > > ? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 For the most part, has been doing much better (in adulthood) than he did in his childhood. I think that it is because he now understands that HIS behavior has EVERYTHING to do with what he is allowed to do in/with our household. When he was young, he didn't seem to understand. He always saw me as the bad guy. He is lower-functioning so this took some time for him to " get it " . As far as placement, I would suggest only doing it when there are no more options. Also, it needs to be a sound and level-headed decision, not to be made when angry or emotional. It almost killed me to place in a state school, but he was truly a danger to our family and I was afraid that CPS was going to take my OTHER children out of the house, because of . It was after he was in the state school for over 2 years, when he leveled out and then I brought him home. He has been home now for two years. He still has ups and downs, but not like he used to before I placed him. The incident about the breaking the mirror was just BIZARRE and it caught all of off guard. It was as though something went off in his head -- scary. and (23) > > > > > > , do you live in Texas?? Pat K > > > > > > > > > Re: Please pray for Ricky > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Thanks Judy!? Ricky sees his doctor on September 14, and I will ask more questions about the medication dosage.? > > > He may come home tomorrow evening if he has a good day and a good family meeting.? I think he thought he would go home tonight, but the doctor noted she wanted him to stay one more night for observation.? I noticed it is a full moon.? I often wonder if that affects him or not.? I have noticed a pattern around that time. > > > > > > ? > > > > > > I have got to finish up here and go to bed.? I am exhausted.? My fiance and I went out to eat tonight.? We went to Texas RoadHouse steakl house.? Wonderful meal!? It was nice not to have to eat at Mcs. > > > > > > ? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 For the most part, has been doing much better (in adulthood) than he did in his childhood. I think that it is because he now understands that HIS behavior has EVERYTHING to do with what he is allowed to do in/with our household. When he was young, he didn't seem to understand. He always saw me as the bad guy. He is lower-functioning so this took some time for him to " get it " . As far as placement, I would suggest only doing it when there are no more options. Also, it needs to be a sound and level-headed decision, not to be made when angry or emotional. It almost killed me to place in a state school, but he was truly a danger to our family and I was afraid that CPS was going to take my OTHER children out of the house, because of . It was after he was in the state school for over 2 years, when he leveled out and then I brought him home. He has been home now for two years. He still has ups and downs, but not like he used to before I placed him. The incident about the breaking the mirror was just BIZARRE and it caught all of off guard. It was as though something went off in his head -- scary. and (23) > > > > > > , do you live in Texas?? Pat K > > > > > > > > > Re: Please pray for Ricky > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Thanks Judy!? Ricky sees his doctor on September 14, and I will ask more questions about the medication dosage.? > > > He may come home tomorrow evening if he has a good day and a good family meeting.? I think he thought he would go home tonight, but the doctor noted she wanted him to stay one more night for observation.? I noticed it is a full moon.? I often wonder if that affects him or not.? I have noticed a pattern around that time. > > > > > > ? > > > > > > I have got to finish up here and go to bed.? I am exhausted.? My fiance and I went out to eat tonight.? We went to Texas RoadHouse steakl house.? Wonderful meal!? It was nice not to have to eat at Mcs. > > > > > > ? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 Tobie: This is a decision you and your husband need to make for your family. Yeah people will talk and some will be upset. But where are these people at when you just need a break. I am not here to judge you. I have no clue what your family is going through but I will pray for y'all. I have heard good things about places for our kids. They will teach her how to care for herself. Things that you're not able to teach her. Take y'all time and find the one that will be good for her too. Gwen autism From: tobieluvsdalejr@...Date: Tue, 8 Sep 2009 23:38:36 -0700Subject: Re: Please pray for Ricky I totally understand this, it can be anything that sets them off,my step daughter was upset because our car broke and she could not bowling!! Well we had a full weekend of of tantrums and fits,and to be honest we are done,we are loking for placement.Sorry if that bothers anyone,but when you have been dealing with what,at first for my husband for 11 years and myself for almost 2,you get to the point when you really REALIZE that you can not change them to be NORMAL!! You want them to "normal",you may or may not treat them normal,but there comes a time when you HAVE to say,'I HAVE DONE MY BEST,I HAVE DONE EVERYTHING THAT HAS BEEN GIVEN ME!! Yes it may be selfish,and yes could cause family probs,but,as I have said along, I CAN NOT AND WILL NOT!!,sacrifice my kids or my new husband because she can/wont accept us as a family!! I hope you dont misunderstand me,I am new to this, but I am sick and tired of her MANIPULATION TACTICTS!! sHE DONT GET,if I leave,so does my and her farther's new born son(his x took his 1st son away with her when they where 2,3)(oh yea did I also tell you, she tried to stab the family(mother,stepfather,brother,1 infant step brother) and she also set fire to their home....SO YEA, WE LIVE IN FEAR OF THIS 20 YEAR OLD EVERYDAY!!(SHE WAS 10, WHEN SHE DID THIS) Again think and do what is good for your family, BUT IF YOU THINK YOUR CHILD IS GOING TO BETTER WITH AGE,PLEASE,PLEASE LISTEN AND KNOW IT REALLY IS NOT REALITY!! I DONT MEAN TO BE HARSH OR CRUEL,BUT FOR YOU PEOPLE WHO ARE DEALING WITH PROBS AT A YOUNG AGE..........i PRAY FOR YOU!!! aND i TRULLY MEAN IT!! iT TAKES THE TOLL ON EVERYTHING IN YOUR LIFE!! aND i WILL MAKE MY HUSBAND CHOOSE BETWEEN HER AND HIS NEW BABY BOY~~ Luv ya, Tobie From: jellylady47 <jellylady47msn>Subject: Re: Please pray for Rickyautism Date: Tuesday, September 8, 2009, 10:46 PM Thank you very much for the prayers. We are doing okay -- now. went for almost two weeks on very little sleep. He wakes me up, asking for permission to go to the bathroom. Once I wake up, I cannot go back to sleep. It really affects how I function during the day. I cannot go as long as he can without sleep. Last Saturday morning was terrible. He woke up late and started screaming. He started banging the walls and throwing things into the hallway. He broke my large mirror that used to be my Grandmother' s (it was over 70 years old), and started running down the hallway through the glass. He has never done anything so bizarre before. It scared us all to death! I had to give him an Ativan to calm down so I could pick out the pieces of glass on his feet. He tracked blood down the hallway and onto the carpet. Surprisingly, he just had superficial cuts, nothing deep. About 45 minutes later, he apologized and was fine with everything. Meanwhile we were all still shaking. What annoys me is that his behavioral therapist is going to ask me what started it. What she doesn't get that sometimes NOTHING THAT WE DID WRONG started it. Times like this, I wonder what is going on inside of his head. I also wanted to say hi to Kellie too and tell her that my other son, , is home now from the Navy. He has been here for a week. He didn't tell me that he was on his way home, and surprised me by ringing my doorbell, after dinner time. It was very emotional. I haven't seen him since January. and (23) > >> > , do you live in Texas?? Pat K> > > > > > Re: Please pray for Ricky> > > > > > > > > > > > > > > > > > > > Thanks Judy!? Ricky sees his doctor on September 14, and I will ask more questions about the medication dosage.? > > He may come home tomorrow evening if he has a good day and a good family meeting.? I think he thought he would go home tonight, but the doctor noted she wanted him to stay one more night for observation. ? I noticed it is a full moon.? I often wonder if that affects him or not.? I have noticed a pattern around that time.> > > > ?> > > > I have got to finish up here and go to bed.? I am exhausted.? My fiance and I went out to eat tonight.? We went to Texas RoadHouse steakl house.? Wonderful meal!? It was nice not to have to eat at Mcs. > > > > ?> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggression and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally). We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. Thanks for listening. I feel alone in this journey right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 Hi Milissa, With your permission, and what I will do is at specific time, do prayer and by distant send energy to him that my began to help him get better, I say specific time only to let you know time wise that some shift may began to occur in him, and it is not my intentions more to show you that I may be able to share with you a few things that you could daily do to help him get better and hopefully too stay better. If your were to google my name and clorox, Harry Chambers, years ago I learned how to take the odor out of clorox, but since then I learned a many other things that can help others. Aloha, Harry From: W <mlwpdb@...>autism Sent: Tue, February 9, 2010 10:46:59 AMSubject: Re: Please pray for Ricky I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggression and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally) .We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. Thanks for listening. I feel alone in this journey right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 I'm so sorry . Even though you have needed a break; I have been praying for you and Ricky every day without fail. Sometimes it gets worse before it gets better. I think I have told you that Karac became so aggressive on Abilify that we had to hospitalize him. Love and blessings, Pat K Re: Please pray for Ricky I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggression and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally). We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. Thanks for listening. I feel alone in this journey right now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Pat, What do I do when no one will listen (meaning the medical community) and refuses to admit him into the hospital? He needs off these meds, perhaps there is another med that will be better or no meds at all for awhile and let the GFCF diet/supplements work. The Toledo Hospital refuses to admit him to the children's psych ward and now the crisis center won't admit him either. Both facilities say that this is all behaviorial, not psychiatric. Well, he is on meds that aren't helping his " behaviors " . His psychiatrist will again hear from me about taking him off the meds. She will probably tell me that since he is so aggressive, he needs the meds. Maybe, but not the Abilify and Lamictal. Both can cause all the symptoms Ricky is having...increased aggression, violent behavior, insomnia. I have printed off information to back me up. Also, both medicines have artificial colors in them, which Ricky is sensitive too. I hadn't realized that until I began to dig deeper. He is getting the Abilify in a liquid form, but the Lamictal, even though white in color, has Blue #2 in it. Ricky's caseworker will be going with me tomorrow to talk to the doctor. Hopefully we will be able to get dug out from this monster snow storm we are getting. I told his caseworker I will be there, even if it takes me an hour driving (normally 20 minutes), as this is so important. > > I'm so sorry . Even though you have needed a break; I have been praying for you and Ricky every day without fail. Sometimes it gets worse before it gets better. I think I have told you that Karac became so aggressive on Abilify that we had to hospitalize him. Love and blessings, Pat K > > > > > > Re: Please pray for Ricky > > > > > > > I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggression and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally). > > We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. > > Thanks for listening. I feel alone in this journey right now. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Gwen, This may very well be enough for his case manager of his I/O waiver to be able to " find " the extra money for residential. I am not the least bit thrilled about having strangers in my home almost 24/7. THe only time no staff will be here is during school hours. I am working on the weekend staff situation as well. We are getting used to the afterschool staff person. But it has taken about a month to get used to him. Physically, I am not hurting as bad. I still feel very nauseated and sick to my stomach. I probably have deep bruising. At least nothing was damaged inside. Mentally I am a mess. I am gonna go to bed early tonight, hoping that a good nights sleep will help me. I keep thinking about what kind of childhood RIcky will look back on. I have very few good memories, since all I can think about it all the problems we have had. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Thanks so much Sharon. > > ((((())))) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 I will be praying for you and Ricky. I always try to keep everyone in the groups in my prayers throughout the day. May God grant you the physical and emotional strength that you need to get through this difficult time. May God Grant Ricky healing and rest and detoxification of all the poision that is in him. TwilaFrom: W <mlwpdb@...>Subject: Re: Please pray for Rickyautism Date: Tuesday, February 9, 2010, 3:46 PMI haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggression and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally).We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. Thanks for listening. I feel alone in this journey right now. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Why can't your psy. doc. get Ricky admitted to the hospital? Isn't he associated with a hospital? Re: Please pray for Ricky > > > > > > > I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggressi on and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally). > > We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. > > Thanks for listening. I feel alone in this journey right now. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Ricky's psychiatrist is at Toledo Hospital and they have a children's psych unit. But, the thing is, she too beleives that this behavior is not psychiatric, but behavioral problems, therefore not needing to be admitted. The previous psych doctor Ricky saw is also affliated with the same children's psych unit. He absolutely refuses to allow Ricky to be admitted. Ricky behaves perfectly when he has been in the hospital. No one ever sees any of the behaviors he has. The University of Toledo Medical Center children's psych unit has had him admitted 2 times since the beginning of December. The people there tell me the same thing...this is behavioral, not psychiatric. Eventually, this last option will refuse us as well. Even the police have told me that he doesn't belong in Juvenile Detention. He hasn't committed a really horrible, dangerous crime. But he did break the law by hurting me like he did. I am hoping for some success today with the psychiatrist. Even though Ricky won't be with me, I, along with his caseworker, will go to the appointment. If these psychiatric meds were right for him, they would be helping. He is on a med for seizures and he has never been diagnosed with having seizures. I know that certain meds can be used for other things, but, shouldn't we see some improvement in almost 7 months?? He can hold things together while at school (he has since age 3), and behave in the hospital, etc., but when at home he lets completely loose. I know he is more comfortable at home and therefore is being himself. But how much more can one put up with? Does he have to seriously hurt me for someone to take notice? I am very confused, depressed, angry,and scared right now. > > > > I'm so sorry . Even though you have needed a break; I have been praying for you and Ricky every day without fail. Sometimes it gets worse before it gets better. I think I have told you that Karac became so aggressive on Abilify that we had to hospitalize him. Love and blessings, Pat K > > > > > > > > > > > > Re: Please pray for Ricky > > > > > > > > > > > > > > I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggressi on and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally). > > > > We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. > > > > Thanks for listening. I feel alone in this journey right now. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 prayers to you my friend. Ask the doctors about ODD. See if they can treat him for that with different meds Love Sharon From: W <mlwpdb@...>Subject: Re: Please pray for Rickyautism Date: Wednesday, February 10, 2010, 8:35 AM Ricky's psychiatrist is at Toledo Hospital and they have a children's psych unit. But, the thing is, she too beleives that this behavior is not psychiatric, but behavioral problems, therefore not needing to be admitted. The previous psych doctor Ricky saw is also affliated with the same children's psych unit. He absolutely refuses to allow Ricky to be admitted. Ricky behaves perfectly when he has been in the hospital. No one ever sees any of the behaviors he has. The University of Toledo Medical Center children's psych unit has had him admitted 2 times since the beginning of December. The people there tell me the same thing...this is behavioral, not psychiatric. Eventually, this last option will refuse us as well.Even the police have told me that he doesn't belong in Juvenile Detention. He hasn't committed a really horrible, dangerous crime. But he did break the law by hurting me like he did. I am hoping for some success today with the psychiatrist. Even though Ricky won't be with me, I, along with his caseworker, will go to the appointment. If these psychiatric meds were right for him, they would be helping. He is on a med for seizures and he has never been diagnosed with having seizures. I know that certain meds can be used for other things, but, shouldn't we see some improvement in almost 7 months?? He can hold things together while at school (he has since age 3), and behave in the hospital, etc., but when at home he lets completely loose. I know he is more comfortable at home and therefore is being himself. But how much more can one put up with? Does he have to seriously hurt me for someone to take notice?I am very confused, depressed, angry,and scared right now.> >> > I'm so sorry . Even though you have needed a break; I have been praying for you and Ricky every day without fail. Sometimes it gets worse before it gets better. I think I have told you that Karac became so aggressive on Abilify that we had to hospitalize him. Love and blessings, Pat K> > > > > > > > > > > > Re: Please pray for Ricky> > > > > > > > > > > > > > I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggressi on and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally) .> > > > We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. > > > > Thanks for listening. I feel alone in this journey right now. > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Hi. I'm sorry to hear about your son's issues. If. They don't believe you maybe you should videotape him when he is at home so you can show then what he does to you. Sometimes kids will do things at home that they don't do elsewhere because it is gome. They r more familiar.Sent from my Verizon Wireless BlackBerryFrom: "W" <mlwpdb@...>Date: Wed, 10 Feb 2010 14:35:37 -0000<autism >Subject: Re: Please pray for Ricky Ricky's psychiatrist is at Toledo Hospital and they have a children's psych unit. But, the thing is, she too beleives that this behavior is not psychiatric, but behavioral problems, therefore not needing to be admitted. The previous psych doctor Ricky saw is also affliated with the same children's psych unit. He absolutely refuses to allow Ricky to be admitted. Ricky behaves perfectly when he has been in the hospital. No one ever sees any of the behaviors he has. The University of Toledo Medical Center children's psych unit has had him admitted 2 times since the beginning of December. The people there tell me the same thing...this is behavioral, not psychiatric. Eventually, this last option will refuse us as well.Even the police have told me that he doesn't belong in Juvenile Detention. He hasn't committed a really horrible, dangerous crime. But he did break the law by hurting me like he did. I am hoping for some success today with the psychiatrist. Even though Ricky won't be with me, I, along with his caseworker, will go to the appointment. If these psychiatric meds were right for him, they would be helping. He is on a med for seizures and he has never been diagnosed with having seizures. I know that certain meds can be used for other things, but, shouldn't we see some improvement in almost 7 months?? He can hold things together while at school (he has since age 3), and behave in the hospital, etc., but when at home he lets completely loose. I know he is more comfortable at home and therefore is being himself. But how much more can one put up with? Does he have to seriously hurt me for someone to take notice?I am very confused, depressed, angry,and scared right now.> >> > I'm so sorry . Even though you have needed a break; I have been praying for you and Ricky every day without fail. Sometimes it gets worse before it gets better. I think I have told you that Karac became so aggressive on Abilify that we had to hospitalize him. Love and blessings, Pat K> > > > > > > > > > > > Re: Please pray for Ricky> > > > > > > > > > > > > > I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggressi on and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally).> > > > We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. > > > > Thanks for listening. I feel alone in this journey right now. > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 , I was reading the posts about Ricky..My daughter is now 15..she was diagnosed at the age of 4 with AD/HD..I had family base workers and couselors comeing to the house and they seen how she was..at the age of 7, she was admitted..Most kids that are admitted, dont' show themselves b/c they know that is how to get out of there..do what they want there. I had Cheyenne put at a partials program schooling and that is where she really started showing the behavior..sounds like Ricky needs to be places someplace, taken off all his meds so they can see what he acts like without them. Cheyenne has been on so many different meds and at the age of 15, She is on older meds..Not the newer ones they have out b/c none of htem work..I printed out different things from the internet and kept on them. She was diagnosed with Aspergers about 3 yrs ago and just recently, I gave them papers b/c Iknew there was more to it..Most recently, they have finally listened to me, She has been finally diagnosed her with Psychotic disorder, Asperger, Social Anxiety disorder, Schizotypal personality disorder..I has been a long haul and still is..I also got counselors to come and see how she acts at home. What about social services? I will keep you in my prayers. As the one lady said, I also had problems with Cheyenne at night and was giving her meletonin..Now she is on Trazadone to help her sleep..If one medicine don't work, they need to place him to get the right one..Keep us updated and will keep praying for Ricky. PAT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 I think video taping is a great idea...and easy to hide the camera so he wont realize what is happening. Just viewing the rape might give the drs some clues as to how to best proceed with helping him. Good luck and keep us posted. Re: Please pray for Ricky> > > > > > > > > > > > > > I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggressi on and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally).> > > > We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. > > > > Thanks for listening. I feel alone in this journey right now. > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 YIKES!!! I meant to type "tape" not "rape"....this will teach me to check emails before hitting the send button...sorry Re: Please pray for Ricky> > > > > > > > > > > > > > I haven't posted in a long time. Guess I just needed a break for awhile. Anyways, Ricky really needs prayer and I need encouragement and suggestions. We have been having a bad time recently. Ricky decided last night to kick me in the stomach and right side of abdomen and I was in so much pain that I had to go to the ER. Of course when the ambulance is called, the police come as well. Well, the crisis center we have here refused to see him because he isn't exhibiting crisis psychiatric symptoms, so he went to the Juvenile Justice Center. We just got home from court, in the horrible snow storm we are having today. He can't come home until we get overnight staff in our home. We have afternoon and evening staff, but not overnight. he has been waking up everynight very violent and angry. I made an appoinment with his psychiatrist for tomorrow to discuss the meds he is on (Abilify and Lamictal). They aren't helping him. I read some of the side effects can be increased aggressi on and anger and violent behavior. I know I have posted about this before, but I am just so sick of this behavior (physically and emotionally).> > > > We have started the Gluten Free/Casein Free diet, though it can't be done when he is in jail or the hospital. He is also seeing a DAN doctor and is on various supplements. He is so full of heavy toxic metals, lead, cadmium, antimony, arsenic. > > > > Thanks for listening. I feel alone in this journey right now. > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Exactly my point. These meds have made him behave psychotic. But he knows just what to do and what to say to get out of the crisis center. I thought that physically hurting someone or threatening to kill would be enough. He even tried to stab my husband with a butter knife back in December. I have never thought to ask what the criteria is to get admitted. Maybe I should if we ever have to go that route again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 A few years ago my daughter went manic on zonegran. Her behavior was terrible. She started putting her hands around her sister's neck. My daughter functions on a 3 or 4 year old level and she had no clue what she was doing. Our psych dr said, before we realized it was the med, that attempting to hurt someone is grounds for hospitalization. I think your drs are putting your off. Know what I would do...I suspect the meds aremaking him worse. Did you say he was on Abilify and Lamictal both? those were bad bad bad for our daughter. Anxieties, screaming, out of control behavior. I would wean him but do it slowly. And when he is off, get a baseline and start over.Do it slowly or he will go more psycho...well, he will any way for about 3 weeks in my experience. And then we tried some other things and right now have a good handle on it. My daughters dr has learned that he listens to me or I will take things in my own hands. LOL! I will not live like that. Elaine Re: Please pray for Ricky > Exactly my point. These meds have made him behave psychotic. But he > knows just what to do and what to say to get out of the crisis center. > I thought that physically hurting someone or threatening to kill would be > enough. He even tried to stab my husband with a butter knife back in > December. > > I have never thought to ask what the criteria is to get admitted. Maybe I > should if we ever have to go that route again. > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Ricky has begun trying to put his hands around our necks. Also will try and choke us in the car with the seatbelt. Ricky functions between 4-7 in a lot of ways. Although people tell me he knows what he is doing all the time, I do question that sometimes. I think we have a quack for a psych doctor. I also thought that hurting someone would be grounds for hospitalization as well. Like someone else said before, what do they want him to do in order to be in the hospital? We made an appointment for 3 months out, but I only did that to keep the doctor from fussing at me. We may keep it to show her how good he is doing. I am trying to have positive thoughts that things will be better for him off these meds. Especially after what we have been through. Ricky has all those side effects you mentioned...anxiety, screaming, being out of control. I gave him half of his medicine last night and this morning. Either the doctor cooperated with me to shut me up, or realized that this is what I truly want for my son. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Can you find a new dr? Elaine > > Ricky has begun trying to put his hands around our necks. Also will try > and choke us in the car with the seatbelt. Ricky functions between 4-7 in > a lot of ways. Although people tell me he knows what he is doing all the > time, I do question that sometimes. I think we have a quack for a psych > doctor. I also thought that hurting someone would be grounds for > hospitalization as well. Like someone else said before, what do they want > him to do in order to be in the hospital? > > We made an appointment for 3 months out, but I only did that to keep the > doctor from fussing at me. We may keep it to show her how good he is > doing. I am trying to have positive thoughts that things will be better > for him off these meds. Especially after what we have been through. > > Ricky has all those side effects you mentioned...anxiety, screaming, being > out of control. I gave him half of his medicine last night and this > morning. > > Either the doctor cooperated with me to shut me up, or realized that this > is what I truly want for my son. > > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 I have thought about finding a different doctor. There doesn't seem to be much of a choice where we live, even though there are three major mental health agencies. None of them seem too good, and we are at the one people say is the best?? Not sure about that one. We see a DAN doctor 2 1/2 hours away from us. We have tossed around the idea of moving to be closer to her office. Not sure yet. I am thinking of looking in the Columbus/Dayton area, unless I can find someone not linked with one of the three mental health agencies that takes Medicaid. THat's the main problem, insurance. Quote Link to comment Share on other sites More sharing options...
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