Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Elaine, The ignorance of the school at the time played its part. They took a verbal little boy and made him nonverbal. I witnessed it, but that is water under the bridge. I am not the mother; so I had no control. I am thankful that you young mothers are such strong advocates for your children, and the special ed. teachers have more knowledge and training now about autism. Love and blessings, Pat K Re: It's Quiet Here Today It may have not been the school. When a child is younger and has reached his "peak" IQ, it may not be as different from his/her peers as it might be at 16. A developementally age 10 isn't so different in skills as a NT 10 year old but a developementally 10 year is vastly different than a 16 year old. Not sure I am explaining clearly what I mean. At age 4 my daughter was different but not as noticable as it is now at 16. Elaine Re: It's Quiet Here Today Hi all! Ricky is started school last Thursday and he hates everything about it. I figured he would. This morning he was going to run away while waiting for the school bus. He is just so angry lately. Nothing I do makes him happy. We went on a mini vacation over the weekend and that didn't even make him happy. He went to his grandma's house Friday night, then on Saturday we went to Put in Bay,which is on an island in Lake Erie, near where I grew up. I thought he would like it, since we drove around in a golf cart most of the day. He fussed the whole time that he wanted to drive the go-carts and play putt putt all day long. His moods are up and down so drastically, they change alot through out the day. He is back to hitting and breaking things. Very defiant. He has a family doc appointment this week and sees the psychiatrist in a couple of weeks. I thought we had found the miracle drug cause everything has been going well. Guess I was wrong. I have become very down and depressed because I feel like a failure. That's why I have been pretty quiet here lately. I have no desire to do anything. I see my own doc and counselor this week. After Ricky got on his bus around 8am, I went back to sleep til 10:30. I have energy to do anything. I also have Fibromyalgia and Crohnes disease, so I usually don't have much energy anyway, but this is worse. Just wanted to share. ___ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.392 / Virus Database: 270.13.65/2324 - Release Date: 08/24/09 12:55:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Elaine, The ignorance of the school at the time played its part. They took a verbal little boy and made him nonverbal. I witnessed it, but that is water under the bridge. I am not the mother; so I had no control. I am thankful that you young mothers are such strong advocates for your children, and the special ed. teachers have more knowledge and training now about autism. Love and blessings, Pat K Re: It's Quiet Here Today It may have not been the school. When a child is younger and has reached his "peak" IQ, it may not be as different from his/her peers as it might be at 16. A developementally age 10 isn't so different in skills as a NT 10 year old but a developementally 10 year is vastly different than a 16 year old. Not sure I am explaining clearly what I mean. At age 4 my daughter was different but not as noticable as it is now at 16. Elaine Re: It's Quiet Here Today Hi all! Ricky is started school last Thursday and he hates everything about it. I figured he would. This morning he was going to run away while waiting for the school bus. He is just so angry lately. Nothing I do makes him happy. We went on a mini vacation over the weekend and that didn't even make him happy. He went to his grandma's house Friday night, then on Saturday we went to Put in Bay,which is on an island in Lake Erie, near where I grew up. I thought he would like it, since we drove around in a golf cart most of the day. He fussed the whole time that he wanted to drive the go-carts and play putt putt all day long. His moods are up and down so drastically, they change alot through out the day. He is back to hitting and breaking things. Very defiant. He has a family doc appointment this week and sees the psychiatrist in a couple of weeks. I thought we had found the miracle drug cause everything has been going well. Guess I was wrong. I have become very down and depressed because I feel like a failure. That's why I have been pretty quiet here lately. I have no desire to do anything. I see my own doc and counselor this week. After Ricky got on his bus around 8am, I went back to sleep til 10:30. I have energy to do anything. I also have Fibromyalgia and Crohnes disease, so I usually don't have much energy anyway, but this is worse. Just wanted to share. ___ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.392 / Virus Database: 270.13.65/2324 - Release Date: 08/24/09 12:55:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 e, Thanks for the prayers and support. I am glad for this group. I don't have many people around me who really care. My mom and I are not getting along, my sister doesn't speak to me and my brother pretty much has disowned me because of my son and his behavior. Funny thing is, his oldest son is in the process of getting a diagnosis of ASD and his youngest son is very hyper. I pretty much have no family or support other than my son, fiance and our counselors. We go to church, but people don't seem to want to be friends outside of church. Some will speak at church, but many don't understand what I am going through. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 e, Thanks for the prayers and support. I am glad for this group. I don't have many people around me who really care. My mom and I are not getting along, my sister doesn't speak to me and my brother pretty much has disowned me because of my son and his behavior. Funny thing is, his oldest son is in the process of getting a diagnosis of ASD and his youngest son is very hyper. I pretty much have no family or support other than my son, fiance and our counselors. We go to church, but people don't seem to want to be friends outside of church. Some will speak at church, but many don't understand what I am going through. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Thanks, that makes me smile!! Love and blessings, Pat K Re: It's Quiet Here Today Happy birthday to Karac! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Thank you God that Ricky had a decent day!! you are such a good mother!! That is great that you are able to use the video games as a positive reinforcer!! It works. I am a teacher and I won't let myself get my email until I have finished grading my papers. LOL, LOL, Pat K Re: It's Quiet Here Today Ricky actually had a fairly decent evening and morning this morning. He had one piece of homework and he didn't fuss too much about doing it. I had him do it as soon as he got home, so we wouldn't forget or have problems later on getting it done. He wasn't allowed to play video games or call a friend on the phone until the homework was done. That seemed to motivate him, for now. I know I shouldn't let his moods and actions bother me or take what he says personally, but I do. I already have depression because of the constant physical pain I am in (have been for about 10 years), so when he verbally and physically attacks me, it hurts bad. I have noticed I have been shutting down, been very passive and wanting to do nothing but sleep. I have alot to talk to my doctor about tomorrow. I just have been doing the bare minimum. Also spending too much time with the computer. Thanks for listening, ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Hi ! I am glad you are happy for this group and it is helping you. I am sorry for all you are going through! It is so hard not having support! We are all here for you! I will bepraying for you!StacieSent via BlackBerry by AT&TFrom: Wylie Date: Tue, 25 Aug 2009 06:06:06 -0700 (PDT)<autism >Subject: Re: It's Quiet Here Today e, Thanks for the prayers and support. I am glad for this group. I don't have many people around me who really care. My mom and I are not getting along, my sister doesn't speak to me and my brother pretty much has disowned me because of my son and his behavior. Funny thing is, his oldest son is in the process of getting a diagnosis of ASD and his youngest son is very hyper. I pretty much have no family or support other than my son, fiance and our counselors. We go to church, but people don't seem to want to be friends outside of church. Some will speak at church, but many don't understand what I am going through. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Happy birthday karac.StacieSent via BlackBerry by AT&TFrom: Wylie Date: Tue, 25 Aug 2009 05:56:12 -0700 (PDT)<autism >Subject: Re: It's Quiet Here Today Happy birthday to Karac! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Thanks, Stacie, I can hardly wait for the birthday party. Karac is going to be so happy, Love and blessings, Pat K Re: It's Quiet Here Today Happy birthday to Karac! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Keep going , you need to be in the presence of God...I know it always makes me feel better...change if you need to, but keep worshiping God...he's my only hope! Blessings, justine From: Wylie <mlwpdb@...>autism Sent: Tuesday, August 25, 2009 8:06:06 AMSubject: Re: It's Quiet Here Today e, Thanks for the prayers and support. I am glad for this group. I don't have many people around me who really care. My mom and I are not getting along, my sister doesn't speak to me and my brother pretty much has disowned me because of my son and his behavior. Funny thing is, his oldest son is in the process of getting a diagnosis of ASD and his youngest son is very hyper. I pretty much have no family or support other than my son, fiance and our counselors. We go to church, but people don't seem to want to be friends outside of church. Some will speak at church, but many don't understand what I am going through. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 From me too!!!!!! Happy, Happy Karac... J From: stacie <hawkie6@...>autism Sent: Tuesday, August 25, 2009 8:23:25 AMSubject: Re: It's Quiet Here Today Happy birthday karac.Stacie Sent via BlackBerry by AT & T From: Wylie Date: Tue, 25 Aug 2009 05:56:12 -0700 (PDT)<AutismBehaviorProbl emsgroups (DOT) com>Subject: Re: It's Quiet Here Today Happy birthday to Karac! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 : I know I am late responding to this but you are definitely going through depression. I understand.... I am on so much medication for depression, anxiety, and STRESS!!!! I have family but they don't help me with Caleb. They call and ask about him once in a while but that's about it. My in laws will watch him for me to go grocery shopping but I'm on a time schedule. If he was acting up then they won't watch him for another couple of weeks. Thank God I have an older son who helps me a lot. My husband works offshore so when he's not in it's hard for me. I moved to a new town got married and continued going to church. I couldn't find any friends in my new church. After having Caleb me and my husband deciding to switch churches for personal reasons. The new church we went to was the same. I couldn't make any friends. When we found out Caleb had autism I e-mailed a few of them and no one responded. When Caleb was moved to "kids church" he couldn't handle the music. It was too loud for him. I tried sending him with head phones. Then it came to the point where if we just passed in front of the church he would start screaming no mommy that's the loud church. I thank God for my co-workers. They are my support group. My boss understands and lets me take off as much as I need to for Caleb. But i don't have that "best friend" that every women needs. You need to go to your doctor and let them know what is going on. Your son and fiance need you. There are lots of women on medication for depression especially those who have kids on the spectrum. lol We're all going crazy. It's a hard life and you know that already. Someone once told me this and I try to remember it when I get depressed. "God has trusted me to take care of Caleb" God wouldn't trust just anyone but he chose me. When I'm down I try to remember that God sees something special in me. Hang in there you're not alone I PROMISE..... Gwen autism From: mlwpdb@...Date: Tue, 25 Aug 2009 06:06:06 -0700Subject: Re: It's Quiet Here Today e, Thanks for the prayers and support. I am glad for this group. I don't have many people around me who really care. My mom and I are not getting along, my sister doesn't speak to me and my brother pretty much has disowned me because of my son and his behavior. Funny thing is, his oldest son is in the process of getting a diagnosis of ASD and his youngest son is very hyper. I pretty much have no family or support other than my son, fiance and our counselors. We go to church, but people don't seem to want to be friends outside of church. Some will speak at church, but many don't understand what I am going through. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 Thanks Gwen for responding! Other than my fiance and his sister, I have no other friends than you all on this list. I just went to my doctor on Wednesday and he kept me on the same meds (Cymbalta, Trazodone and Zanax), saying that my depression is due mostly to my son and his behavior. Well, duh! I also have crohns and fibromyalgia, so some of the depression comes from that as well. I can't do as much as I once did. My counselor is a good listener, but I don't know how much help sometimes. I see her every two weeks. I am trying my best not to have a breakdown because I don't want to go in the hospital and have my son's dad take custody away from me. He is just waiting for something like that to happen. I haven't decided if I am going to church tomorrow or not. Ricky has been out of control all day today. I had to come to the laundromat this evening...no choice. Thank god it isn't too busy and a computer was available for him to play games. I think he is exhibiting some signs of bipolar. He meets all the symptoms that I looked at today on the NAMI website. I think that is part of the reason he is on Abilify and Lamictal, but they aren't working like they were in July. I am actually afraid to be alone with my son. I gotta go check the laundry. I'll keep in touch. ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 i too have fibromyalgia. Are you seeing a psychiatrist for your meds? I am on wellbutrin, cymbalta, and zanax. I take lyrica for my fibromyalgia. Has your dr given you something to help you rest at night like lunesta. If your still depressed you need to find a new dr. There is a lot of meds out there you can try. Me and caleb go to the same psychiatrist for our meds. He knows what i go through with caleb. There are meds out there to help you deal with your son. Sent from my iPhoneGwen HebertOn Aug 29, 2009, at 6:24 PM, Wylie <mlwpdb@...> wrote: Thanks Gwen for responding! Other than my fiance and his sister, I have no other friends than you all on this list. I just went to my doctor on Wednesday and he kept me on the same meds (Cymbalta, Trazodone and Zanax), saying that my depression is due mostly to my son and his behavior. Well, duh! I also have crohns and fibromyalgia, so some of the depression comes from that as well. I can't do as much as I once did. My counselor is a good listener, but I don't know how much help sometimes. I see her every two weeks. I am trying my best not to have a breakdown because I don't want to go in the hospital and have my son's dad take custody away from me. He is just waiting for something like that to happen. I haven't decided if I am going to church tomorrow or not. Ricky has been out of control all day today. I had to come to the laundromat this evening...no choice. Thank god it isn't too busy and a computer was available for him to play games. I think he is exhibiting some signs of bipolar. He meets all the symptoms that I looked at today on the NAMI website. I think that is part of the reason he is on Abilify and Lamictal, but they aren't working like they were in July. I am actually afraid to be alone with my son. I gotta go check the laundry. I'll keep in touch. ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 Yep, I see a psychiatrist for my meds, other than the Tramadol, which I get from my family doc. I have never taken Wellbutrin. I took Lyrica but I gained too much weight. I take Trazodone to help me sleep at night. My insurance wouldn't cover Lunesta and I took Ambien and i had hallucinations. Where I live, there is a problem with finding good doctors. And most agency's have waiting lists. I also have medicare and medicaid, so I have that problem of finding a doctor to take both insurances. I go back in 2 months, though I may make it sooner. It is such a chore to get out of bed, get dressed and start the day. I don't know if you have seen the new commercial for a new antidepressent, but I feel like the lady who has to wind herself up everyday and through out the day. Thanks for writing back, ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 , does your church offer a disability or special needs ministry? If not, you may want to see if there's one with such a ministry available in your area, as they may be able to offer more support than a church without such an outreach. If you google "Joni and Friends" and go to their website, there is a link on the left hand side for "resources"; then on the right there's an area to click on churches and organizations with disability ministries. I can't remember where you said you are in Ohio, but there are a number of churches listed for that state.HTH,Heidi Re: It's Quiet Here Today Thanks Gwen for responding! Other than my fiance and his sister, I have no other friends than you all on this list. I just went to my doctor on Wednesday and he kept me on the same meds (Cymbalta, Trazodone and Zanax), saying that my depression is due mostly to my son and his behavior. Well, duh! I also have crohns and fibromyalgia, so some of the depression comes from that as well. I can't do as much as I once did. My counselor is a good listener, but I don't know how much help sometimes. I see her every two weeks. I am trying my best not to have a breakdown because I don't want to go in the hospital and have my son's dad take custody away from me. He is just waiting for something like that to happen. I haven't decided if I am going to church tomorrow or not. Ricky has been out of control all day today. I had to come to the laundromat this evening...no choice. Thank god it isn't too busy and a computer was available for him to play games. I think he is exhibiting some signs of bipolar. He meets all the symptoms that I looked at today on the NAMI website. I think that is part of the reason he is on Abilify and Lamictal, but they aren't working like they were in July. I am actually afraid to be alone with my son. I gotta go check the laundry. I'll keep in touch. ___ Quote Link to comment Share on other sites More sharing options...
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