GFCF diet

[Guest guest]

Any health food grocery store should carry safe extracts, especially Whole

Foods. They have a whole line of alcohol free extracts and vanilla powder

(if you prefer).

The way you tell if anything is completely dairy free is look for the word

" parve " . Or K p (kosher parve). Kosher parve means there is no form of

dairy in the factory period. K-d (kosher dairy) means the product contains

dairy/whey/casein or there is dairy somewhere in the factory. Tropical

source brand chocolate chips and candy bars are always safe (no wheat or

gluten either).

They are available Whole Foods, Seekers and Fiesta and other health food

grocery stores. I purchase my kosher parve chocolate at my local kosher

grocery store. I happen to have such a store near me. It tends to be less

expensive.

Tropical source product information and where to buy:

http://www.nspiredfoods.com/tropicalsrc.html

gfcf diet

Can anyone tell me if the Sam's Choice semi-sweet chocolate chips that you

buy at Walmart are ok for kids on the diet? I heard a couple of years back

that they are dairy free and was wondering if any of you have used them

without any problem. Also, where around Houston do you buy alcohol -free

vanilla extract...or do you have to order it? Thanks a bunch! a

[Guest guest]

Any health food grocery store should carry safe extracts, especially Whole

Foods. They have a whole line of alcohol free extracts and vanilla powder

(if you prefer).

The way you tell if anything is completely dairy free is look for the word

" parve " . Or K p (kosher parve). Kosher parve means there is no form of

dairy in the factory period. K-d (kosher dairy) means the product contains

dairy/whey/casein or there is dairy somewhere in the factory. Tropical

source brand chocolate chips and candy bars are always safe (no wheat or

gluten either).

They are available Whole Foods, Seekers and Fiesta and other health food

grocery stores. I purchase my kosher parve chocolate at my local kosher

grocery store. I happen to have such a store near me. It tends to be less

expensive.

Tropical source product information and where to buy:

http://www.nspiredfoods.com/tropicalsrc.html

gfcf diet

Can anyone tell me if the Sam's Choice semi-sweet chocolate chips that you

buy at Walmart are ok for kids on the diet? I heard a couple of years back

that they are dairy free and was wondering if any of you have used them

without any problem. Also, where around Houston do you buy alcohol -free

vanilla extract...or do you have to order it? Thanks a bunch! a

[Guest guest]

--

Hi--

I've had my son on the diet for 21/2 years now. Major

difference/improvements. In fact, we did a gluten challenge for a ped. GI

where he ate just one bowl of spelt noodles. Within 20 minutes he was

complaining of a stomach ache and had diarrhea for two weeks. Since that

time, all I have to do is say that " This will make you sick " and he won't

touch the food. He usually won't touch any food that he hasn't seen me or

his father prepare.

We don't have him in public school because I don't want to deal with

situations that you describe. The best way that I can think of for you to

get around them is to get a doctor's note saying he needs to be on the diet.

Maybe you can do some kind of challenge and document the adverse reaction.

Schools are required to obey doctor's orders. You shouldn't even need that.

I say, just call the TEA parent information line in the special ed programs

and complaints department 1.800.252.9668. Your school should be reported.

cs

[Guest guest]

--

Hi--

I've had my son on the diet for 21/2 years now. Major

difference/improvements. In fact, we did a gluten challenge for a ped. GI

where he ate just one bowl of spelt noodles. Within 20 minutes he was

complaining of a stomach ache and had diarrhea for two weeks. Since that

time, all I have to do is say that " This will make you sick " and he won't

touch the food. He usually won't touch any food that he hasn't seen me or

his father prepare.

We don't have him in public school because I don't want to deal with

situations that you describe. The best way that I can think of for you to

get around them is to get a doctor's note saying he needs to be on the diet.

Maybe you can do some kind of challenge and document the adverse reaction.

Schools are required to obey doctor's orders. You shouldn't even need that.

I say, just call the TEA parent information line in the special ed programs

and complaints department 1.800.252.9668. Your school should be reported.

cs

[Guest guest]

Hi,I think that if your child has the gut issues, then the diet is bound to make a difference because putting less stress on digestion organs allows them to heal. I know that high oxalates and specific carbohydrate works for lots of kids too. I think you are absolutely right, everything is worth a try. Since asd is a spectrum disorder nothing works for all and you just keep looking till you find something that does. Cook, TACA

not professional, just a grandma

From: pkuenstleraol (DOT) com <pkuenstleraol (DOT) com>Subject: Re: tried them allAutismBehaviorProbl emsgroups (DOT) comDate: Monday, June 29, 2009, 8:46 AM

Well, none of those meds helped Karac either. It sounds like youhave done it all except the diet. Pat K I am frustrated!good morning all. My son, Ricky is suppossed to be up and ready to go to his summer program right now. He absolutely refusing to get up and get ready. It is only 8:10 am and he is already defiant and nasty. I usually have to bribe him in order to get up. That didn't even work this morning. What do you all do when your child refuses to do something? Time out and taking things away don't work. I have made the decision to place him in residential treatment. Fortunately the treatment home is only around the corner from where i live. Thanks if you read this far. I can get kinda

wordy sometimes.____________ _________ _________ __Finding the best videos just got easier. Try the NEW Truveo..com.

Finding the best videos just got easier. Try the NEW Truveo..com.

[Guest guest]

we have done the diet for over 2 years. We tried to go off of it and his behavior got worse. He started talking and making great improvements with the use of the diet 2 years ago. is high functioning. The diet is a little expensive until you start making everything. This takes time. I make all his bread, hot dog buns, doughnuts, cakes,chicken nuggets etc. we also have a grocery store that sell things in bulk so I can pick up all his special flours except for coconut flour. Everything else I buy off amazon. I am a stay at home mom and 2 of my 3 are in school full time so I have time to stay in the kitchen.

From: pkuenstleraol (DOT) com <pkuenstleraol (DOT) com>Subject: Re: tried them allAutismBehaviorProbl emsgroups (DOT) comDate: Monday, June 29, 2009, 8:46 AM

Well, none of those meds helped Karac either. It sounds like youhave done it all except the diet. Pat K I am frustrated!good morning all. My son, Ricky is suppossed to be up and ready to go to his summer program right now. He absolutely refusing to get up and get ready. It is only 8:10 am and he is already defiant and nasty. I usually have to bribe him in order to get up. That didn't even work this morning. What do you all do when your child refuses to do something? Time out and taking things away don't work. I have made the decision to place him in residential treatment. Fortunately the treatment home is only around the corner from where i live. Thanks if you read this far. I can get kinda

wordy sometimes.____________ _________ _________ __Finding the best videos just got easier. Try the NEW Truveo.com.

Finding the best videos just got easier. Try the NEW Truveo..com.

[Guest guest]

we have done the diet for over 2 years. We tried to go off of it and his behavior got worse. He started talking and making great improvements with the use of the diet 2 years ago. is high functioning. The diet is a little expensive until you start making everything. This takes time. I make all his bread, hot dog buns, doughnuts, cakes,chicken nuggets etc. we also have a grocery store that sell things in bulk so I can pick up all his special flours except for coconut flour. Everything else I buy off amazon. I am a stay at home mom and 2 of my 3 are in school full time so I have time to stay in the kitchen.

From: pkuenstleraol (DOT) com <pkuenstleraol (DOT) com>Subject: Re: tried them allAutismBehaviorProbl emsgroups (DOT) comDate: Monday, June 29, 2009, 8:46 AM

Well, none of those meds helped Karac either. It sounds like youhave done it all except the diet. Pat K I am frustrated!good morning all. My son, Ricky is suppossed to be up and ready to go to his summer program right now. He absolutely refusing to get up and get ready. It is only 8:10 am and he is already defiant and nasty. I usually have to bribe him in order to get up. That didn't even work this morning. What do you all do when your child refuses to do something? Time out and taking things away don't work. I have made the decision to place him in residential treatment. Fortunately the treatment home is only around the corner from where i live. Thanks if you read this far. I can get kinda

wordy sometimes.____________ _________ _________ __Finding the best videos just got easier. Try the NEW Truveo.com.

Finding the best videos just got easier. Try the NEW Truveo..com.

[Guest guest]

Count my son as one of those who did not respond to the diet as other children did.

However, we are still on it any way. We have been on the diet for at least 7 years. Now, once in a while we "cheat" but since we have not seen any changes any way, it does not really affect the outcome.

Actually, it is really not that difficult to follow especially nowadays you find a lot of the Gluten free items in the regular grocery stores.

If you have any questions, feel free to contact me and I will be happy to help you out.

ginaam@...

GFCF diet

I know I have asked this question before, but didn't get too many responses. So I'll try again : )

has there been anybody who has done the GFCF diet and not see enough improvements to continue with this very difficult to follow diet? I tried it with my son a couple years back, and didn't really see any changes. My son has however been absolutely crazy, hyper, and ocd-ing all over the place. We have tried everything, but to no avail. No meds, vitamins...nothing has helped to calm him down. So I was wondering if I should give this diet another try...I just remember it not working before, so I wonder if it is worth trying it again. He is a very very picky eater...so this diet will be a complete uphill battle for us! Any input would so be appreciated!

Thanks,

A delirious mother who is running on 4 hours of sleep a night.

[Guest guest]

Count my son as one of those who did not respond to the diet as other children did.

However, we are still on it any way. We have been on the diet for at least 7 years. Now, once in a while we "cheat" but since we have not seen any changes any way, it does not really affect the outcome.

Actually, it is really not that difficult to follow especially nowadays you find a lot of the Gluten free items in the regular grocery stores.

If you have any questions, feel free to contact me and I will be happy to help you out.

ginaam@...

GFCF diet

I know I have asked this question before, but didn't get too many responses. So I'll try again : )

has there been anybody who has done the GFCF diet and not see enough improvements to continue with this very difficult to follow diet? I tried it with my son a couple years back, and didn't really see any changes. My son has however been absolutely crazy, hyper, and ocd-ing all over the place. We have tried everything, but to no avail. No meds, vitamins...nothing has helped to calm him down. So I was wondering if I should give this diet another try...I just remember it not working before, so I wonder if it is worth trying it again. He is a very very picky eater...so this diet will be a complete uphill battle for us! Any input would so be appreciated!

Thanks,

A delirious mother who is running on 4 hours of sleep a night.

[Guest guest]

Count my son as one of those who did not respond to the diet as other children did.

However, we are still on it any way. We have been on the diet for at least 7 years. Now, once in a while we "cheat" but since we have not seen any changes any way, it does not really affect the outcome.

Actually, it is really not that difficult to follow especially nowadays you find a lot of the Gluten free items in the regular grocery stores.

If you have any questions, feel free to contact me and I will be happy to help you out.

ginaam@...

GFCF diet

I know I have asked this question before, but didn't get too many responses. So I'll try again : )

has there been anybody who has done the GFCF diet and not see enough improvements to continue with this very difficult to follow diet? I tried it with my son a couple years back, and didn't really see any changes. My son has however been absolutely crazy, hyper, and ocd-ing all over the place. We have tried everything, but to no avail. No meds, vitamins...nothing has helped to calm him down. So I was wondering if I should give this diet another try...I just remember it not working before, so I wonder if it is worth trying it again. He is a very very picky eater...so this diet will be a complete uphill battle for us! Any input would so be appreciated!

Thanks,

A delirious mother who is running on 4 hours of sleep a night.

[Guest guest]

My son did not respond to taking him of casein, but did respond to being taken

off gluten and soy. He actually has celiac disease in addition to autism, so he

would have to be off gluten regardless.

When we took him off gluten, we noticed immediate improvement. When we took him

off casein, we noticed nothing, and actually have recently reintroduced casein

after two years casein free.

By far he is most reactive to soy. Whenever I hear of someone who is trying the

GF/CF diet, I always recommend they try removing soy as well because it is so

often a worse culprit.

Another thing is the length of time and whether or not you're 100% sure

everything you're giving is GF/CF. Many people say they didn't see any benefit

from the diet, but then it turns out they only tried it for a month or many of

the things they were giving really had " hidden " gluten or casein in them. I

have heard that benefits from casein removal are usually noticeable pretty

quickly, but benefits from gluten removal can take 9 months to be noticeable.

I was also always told that if your child prefers to eat mainly things

containing gluten and casein (e.g. " a picky eater " ), that is a sign that they

are getting the opiate effect from those foods and are therefore addicted to

them, which is all the more reason to try removing them. But I know it is hard.

We just put my son through a (very expensive and difficult) week-long feeding

clinic at CARD here in Austin to help expand his food repertoire because he was

so picky. It really helped.

Good luck!

-

>

> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )

> has there been anybody who has done the GFCF diet and not see enough

> improvements to continue with this very difficult to follow diet? I tried it

> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We

> have tried everything, but to no avail. No meds, vitamins...nothing has

> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is

> worth trying it again. He is a very very picky eater...so this diet will be

> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,

> A delirious mother who is running on 4 hours of sleep a night.

>

[Guest guest]

My son did not respond to taking him of casein, but did respond to being taken

off gluten and soy. He actually has celiac disease in addition to autism, so he

would have to be off gluten regardless.

When we took him off gluten, we noticed immediate improvement. When we took him

off casein, we noticed nothing, and actually have recently reintroduced casein

after two years casein free.

By far he is most reactive to soy. Whenever I hear of someone who is trying the

GF/CF diet, I always recommend they try removing soy as well because it is so

often a worse culprit.

Another thing is the length of time and whether or not you're 100% sure

everything you're giving is GF/CF. Many people say they didn't see any benefit

from the diet, but then it turns out they only tried it for a month or many of

the things they were giving really had " hidden " gluten or casein in them. I

have heard that benefits from casein removal are usually noticeable pretty

quickly, but benefits from gluten removal can take 9 months to be noticeable.

I was also always told that if your child prefers to eat mainly things

containing gluten and casein (e.g. " a picky eater " ), that is a sign that they

are getting the opiate effect from those foods and are therefore addicted to

them, which is all the more reason to try removing them. But I know it is hard.

We just put my son through a (very expensive and difficult) week-long feeding

clinic at CARD here in Austin to help expand his food repertoire because he was

so picky. It really helped.

Good luck!

-

>

> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )

> has there been anybody who has done the GFCF diet and not see enough

> improvements to continue with this very difficult to follow diet? I tried it

> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We

> have tried everything, but to no avail. No meds, vitamins...nothing has

> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is

> worth trying it again. He is a very very picky eater...so this diet will be

> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,

> A delirious mother who is running on 4 hours of sleep a night.

>

[Guest guest]

I did not see any changes in either one of my twins while on the diet. We tried

it twice while they were 3 and again when they turned 5. Each time we followed

the diet for almost a year. The first time we followed a GF/CF diet, the second

time around we had a food sensitivity blood panel done. The results were that

neither one of them showed any reaction to casein but other items such as

peanuts, eggs, and soy. So the second time we actually did a very individual

diet eliminating the foods that they showed a reaction to. Neither one of them

showed any change. Of course they made improvements but we were also doing a

slew of therapies at the same time. I agree with , though that it really was

not that difficult to find substitutions. It is also my understanding that the

diet should not take an eternity to show results. If your child responds to it

you should be able to see a difference in about 6 months; that's how long it

will take for his body to eliminate all residual casein and gluten. What I did

see in of my boys was that once we went back to a typical diet he refused foods

that he had eaten prior to the diets such as chicken in any form (grilled,

broiled, breaded), vegetables and fruits that he had eaten before. He has a

self-limited diet that is now worse than before and I truly wish we had never

tried it.

[Guest guest]

I did not see any changes in either one of my twins while on the diet. We tried

it twice while they were 3 and again when they turned 5. Each time we followed

the diet for almost a year. The first time we followed a GF/CF diet, the second

time around we had a food sensitivity blood panel done. The results were that

neither one of them showed any reaction to casein but other items such as

peanuts, eggs, and soy. So the second time we actually did a very individual

diet eliminating the foods that they showed a reaction to. Neither one of them

showed any change. Of course they made improvements but we were also doing a

slew of therapies at the same time. I agree with , though that it really was

not that difficult to find substitutions. It is also my understanding that the

diet should not take an eternity to show results. If your child responds to it

you should be able to see a difference in about 6 months; that's how long it

will take for his body to eliminate all residual casein and gluten. What I did

see in of my boys was that once we went back to a typical diet he refused foods

that he had eaten prior to the diets such as chicken in any form (grilled,

broiled, breaded), vegetables and fruits that he had eaten before. He has a

self-limited diet that is now worse than before and I truly wish we had never

tried it.

[Guest guest]

I did not see any changes in either one of my twins while on the diet. We tried

it twice while they were 3 and again when they turned 5. Each time we followed

the diet for almost a year. The first time we followed a GF/CF diet, the second

time around we had a food sensitivity blood panel done. The results were that

neither one of them showed any reaction to casein but other items such as

peanuts, eggs, and soy. So the second time we actually did a very individual

diet eliminating the foods that they showed a reaction to. Neither one of them

showed any change. Of course they made improvements but we were also doing a

slew of therapies at the same time. I agree with , though that it really was

not that difficult to find substitutions. It is also my understanding that the

diet should not take an eternity to show results. If your child responds to it

you should be able to see a difference in about 6 months; that's how long it

will take for his body to eliminate all residual casein and gluten. What I did

see in of my boys was that once we went back to a typical diet he refused foods

that he had eaten prior to the diets such as chicken in any form (grilled,

broiled, breaded), vegetables and fruits that he had eaten before. He has a

self-limited diet that is now worse than before and I truly wish we had never

tried it.

[Guest guest]

We didn't see any major changes on the diet or when we took our kids off of the

diet. I think it is a case by case thing.

Brittney

>

> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )

> has there been anybody who has done the GFCF diet and not see enough

> improvements to continue with this very difficult to follow diet? I tried it

> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We

> have tried everything, but to no avail. No meds, vitamins...nothing has

> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is

> worth trying it again. He is a very very picky eater...so this diet will be

> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,

> A delirious mother who is running on 4 hours of sleep a night.

>

[Guest guest]

We didn't see any major changes on the diet or when we took our kids off of the

diet. I think it is a case by case thing.

Brittney

>

> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )

> has there been anybody who has done the GFCF diet and not see enough

> improvements to continue with this very difficult to follow diet? I tried it

> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We

> have tried everything, but to no avail. No meds, vitamins...nothing has

> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is

> worth trying it again. He is a very very picky eater...so this diet will be

> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,

> A delirious mother who is running on 4 hours of sleep a night.

>

[Guest guest]

We didn't see any major changes on the diet or when we took our kids off of the

diet. I think it is a case by case thing.

Brittney

>

> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )

> has there been anybody who has done the GFCF diet and not see enough

> improvements to continue with this very difficult to follow diet? I tried it

> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We

> have tried everything, but to no avail. No meds, vitamins...nothing has

> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is

> worth trying it again. He is a very very picky eater...so this diet will be

> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,

> A delirious mother who is running on 4 hours of sleep a night.

>

[Guest guest]

We also did CARD's feeding clinic and had good results although my son was one of their "tough nuts" and didn't progress as fast as most kids. But I wanted to add, we have been GFCF, soy and banana free since our feeding clinic week last September and I didn't see a huge increase in better behavior but MUCH improved poops! My son had horrible constipation and we are finally off of suppositories to make him go. It wasn't just diet - we see Dr. Krigsman at Thoughtfulhouse and had the big scope/colonoscopy, cleaned him out, saw what he was allergic to, added some meds, and then went to the feeding clinic to get him to eat the right foods. He was the classic kid only eating french fries and pancakes (regular, horrible ones from McD's) when we showed up at CARD and before Dr. K I didn't know he was more allergic to soy then dairy. So, it's all parts of a puzzle and even though the diet may not make a huge immediate difference, your child may be slowly healing on it. Bottom line, it's a pain in the --- for us parents but it's worth it.

We recently cheated and I know my son reacts to gluten - I found some new frozen GFCF pancakes to try at Whole Foods but had run out of GFCF syrup. I put a tiny bit of regular syrup for him and my son has been crazily requesting more pancakes with syrup like a crack addict. I offered him his favorite GFCF cookies instead and he freaked. I offered him more pancakes and told him we were out of syrup and he tried to rip the door off the cabinet looking for it (he's 6). He hasn't reacted this strongly emotionally about a food since we went back on the diet 9 months ago. So, I think it matters.

Re: GFCF diet

My son did not respond to taking him of casein, but did respond to being taken off gluten and soy. He actually has celiac disease in addition to autism, so he would have to be off gluten regardless.When we took him off gluten, we noticed immediate improvement. When we took him off casein, we noticed nothing, and actually have recently reintroduced casein after two years casein free.By far he is most reactive to soy. Whenever I hear of someone who is trying the GF/CF diet, I always recommend they try removing soy as well because it is so often a worse culprit.Another thing is the length of time and whether or not you're 100% sure everything you're giving is GF/CF. Many people say they didn't see any benefit from the diet, but then it turns out they only tried it for a month or many of the things they were giving really had "hidden" gluten or casein in them. I have heard that benefits from casein removal are usually noticeable pretty quickly, but benefits from gluten removal can take 9 months to be noticeable.I was also always told that if your child prefers to eat mainly things containing gluten and casein (e.g. "a picky eater"), that is a sign that they are getting the opiate effect from those foods and are therefore addicted to them, which is all the more reason to try removing them. But I know it is hard. We just put my son through a (very expensive and difficult) week-long feeding clinic at CARD here in Austin to help expand his food repertoire because he was so picky. It really helped.Good luck!- >> I know I have asked this question before, but didn't get too many responses.> So I'll try again : )> has there been anybody who has done the GFCF diet and not see enough> improvements to continue with this very difficult to follow diet? I tried it> with my son a couple years back, and didn't really see any changes. My son> has however been absolutely crazy, hyper, and ocd-ing all over the place. We> have tried everything, but to no avail. No meds, vitamins...nothing has> helped to calm him down. So I was wondering if I should give this diet> another try...I just remember it not working before, so I wonder if it is> worth trying it again. He is a very very picky eater...so this diet will be> a complete uphill battle for us! Any input would so be appreciated!> Thanks,> A delirious mother who is running on 4 hours of sleep a night.>

[Guest guest]

We also did CARD's feeding clinic and had good results although my son was one of their "tough nuts" and didn't progress as fast as most kids. But I wanted to add, we have been GFCF, soy and banana free since our feeding clinic week last September and I didn't see a huge increase in better behavior but MUCH improved poops! My son had horrible constipation and we are finally off of suppositories to make him go. It wasn't just diet - we see Dr. Krigsman at Thoughtfulhouse and had the big scope/colonoscopy, cleaned him out, saw what he was allergic to, added some meds, and then went to the feeding clinic to get him to eat the right foods. He was the classic kid only eating french fries and pancakes (regular, horrible ones from McD's) when we showed up at CARD and before Dr. K I didn't know he was more allergic to soy then dairy. So, it's all parts of a puzzle and even though the diet may not make a huge immediate difference, your child may be slowly healing on it. Bottom line, it's a pain in the --- for us parents but it's worth it.

We recently cheated and I know my son reacts to gluten - I found some new frozen GFCF pancakes to try at Whole Foods but had run out of GFCF syrup. I put a tiny bit of regular syrup for him and my son has been crazily requesting more pancakes with syrup like a crack addict. I offered him his favorite GFCF cookies instead and he freaked. I offered him more pancakes and told him we were out of syrup and he tried to rip the door off the cabinet looking for it (he's 6). He hasn't reacted this strongly emotionally about a food since we went back on the diet 9 months ago. So, I think it matters.

Re: GFCF diet

My son did not respond to taking him of casein, but did respond to being taken off gluten and soy. He actually has celiac disease in addition to autism, so he would have to be off gluten regardless.When we took him off gluten, we noticed immediate improvement. When we took him off casein, we noticed nothing, and actually have recently reintroduced casein after two years casein free.By far he is most reactive to soy. Whenever I hear of someone who is trying the GF/CF diet, I always recommend they try removing soy as well because it is so often a worse culprit.Another thing is the length of time and whether or not you're 100% sure everything you're giving is GF/CF. Many people say they didn't see any benefit from the diet, but then it turns out they only tried it for a month or many of the things they were giving really had "hidden" gluten or casein in them. I have heard that benefits from casein removal are usually noticeable pretty quickly, but benefits from gluten removal can take 9 months to be noticeable.I was also always told that if your child prefers to eat mainly things containing gluten and casein (e.g. "a picky eater"), that is a sign that they are getting the opiate effect from those foods and are therefore addicted to them, which is all the more reason to try removing them. But I know it is hard. We just put my son through a (very expensive and difficult) week-long feeding clinic at CARD here in Austin to help expand his food repertoire because he was so picky. It really helped.Good luck!- >> I know I have asked this question before, but didn't get too many responses.> So I'll try again : )> has there been anybody who has done the GFCF diet and not see enough> improvements to continue with this very difficult to follow diet? I tried it> with my son a couple years back, and didn't really see any changes. My son> has however been absolutely crazy, hyper, and ocd-ing all over the place. We> have tried everything, but to no avail. No meds, vitamins...nothing has> helped to calm him down. So I was wondering if I should give this diet> another try...I just remember it not working before, so I wonder if it is> worth trying it again. He is a very very picky eater...so this diet will be> a complete uphill battle for us! Any input would so be appreciated!> Thanks,> A delirious mother who is running on 4 hours of sleep a night.>

[Guest guest]

We also did CARD's feeding clinic and had good results although my son was one of their "tough nuts" and didn't progress as fast as most kids. But I wanted to add, we have been GFCF, soy and banana free since our feeding clinic week last September and I didn't see a huge increase in better behavior but MUCH improved poops! My son had horrible constipation and we are finally off of suppositories to make him go. It wasn't just diet - we see Dr. Krigsman at Thoughtfulhouse and had the big scope/colonoscopy, cleaned him out, saw what he was allergic to, added some meds, and then went to the feeding clinic to get him to eat the right foods. He was the classic kid only eating french fries and pancakes (regular, horrible ones from McD's) when we showed up at CARD and before Dr. K I didn't know he was more allergic to soy then dairy. So, it's all parts of a puzzle and even though the diet may not make a huge immediate difference, your child may be slowly healing on it. Bottom line, it's a pain in the --- for us parents but it's worth it.

We recently cheated and I know my son reacts to gluten - I found some new frozen GFCF pancakes to try at Whole Foods but had run out of GFCF syrup. I put a tiny bit of regular syrup for him and my son has been crazily requesting more pancakes with syrup like a crack addict. I offered him his favorite GFCF cookies instead and he freaked. I offered him more pancakes and told him we were out of syrup and he tried to rip the door off the cabinet looking for it (he's 6). He hasn't reacted this strongly emotionally about a food since we went back on the diet 9 months ago. So, I think it matters.

Re: GFCF diet

My son did not respond to taking him of casein, but did respond to being taken off gluten and soy. He actually has celiac disease in addition to autism, so he would have to be off gluten regardless.When we took him off gluten, we noticed immediate improvement. When we took him off casein, we noticed nothing, and actually have recently reintroduced casein after two years casein free.By far he is most reactive to soy. Whenever I hear of someone who is trying the GF/CF diet, I always recommend they try removing soy as well because it is so often a worse culprit.Another thing is the length of time and whether or not you're 100% sure everything you're giving is GF/CF. Many people say they didn't see any benefit from the diet, but then it turns out they only tried it for a month or many of the things they were giving really had "hidden" gluten or casein in them. I have heard that benefits from casein removal are usually noticeable pretty quickly, but benefits from gluten removal can take 9 months to be noticeable.I was also always told that if your child prefers to eat mainly things containing gluten and casein (e.g. "a picky eater"), that is a sign that they are getting the opiate effect from those foods and are therefore addicted to them, which is all the more reason to try removing them. But I know it is hard. We just put my son through a (very expensive and difficult) week-long feeding clinic at CARD here in Austin to help expand his food repertoire because he was so picky. It really helped.Good luck!- >> I know I have asked this question before, but didn't get too many responses.> So I'll try again : )> has there been anybody who has done the GFCF diet and not see enough> improvements to continue with this very difficult to follow diet? I tried it> with my son a couple years back, and didn't really see any changes. My son> has however been absolutely crazy, hyper, and ocd-ing all over the place. We> have tried everything, but to no avail. No meds, vitamins...nothing has> helped to calm him down. So I was wondering if I should give this diet> another try...I just remember it not working before, so I wonder if it is> worth trying it again. He is a very very picky eater...so this diet will be> a complete uphill battle for us! Any input would so be appreciated!> Thanks,> A delirious mother who is running on 4 hours of sleep a night.>

[Guest guest]

Wow, thanks everyone for sharing your experiences...I did go on Amazon and bought several cookbooks on cooking gfcf. I was a little overwhelmed, looking at some of the ingredients. I was thinking to my self, " I've never heard of half these things, and where in the heck would I find them? " My second dilema is that it seems like everything has to pretty much be made from scratch. I have to be honest, I've never been much of a cook. Never have the time to! My son was 3 the last time we did the gfcf diet, and it was so much easier then, because i had my mom in town helping us, plus he was less picky at 3 : )

I also didn't worry about him accidentally having the offending foods at school. Thanks again, for the input.

mache

 

We also did CARD's feeding clinic and had good results although my son was one of their " tough nuts " and didn't progress as fast as most kids. But I wanted to add, we have been GFCF, soy and banana free since our feeding clinic week last September and I didn't see a huge increase in better behavior but MUCH improved poops! My son had horrible constipation and we are finally off of suppositories to make him go. It wasn't just diet - we see Dr. Krigsman at Thoughtfulhouse and had the big scope/colonoscopy, cleaned him out, saw what he was allergic to, added some meds, and then went to the feeding clinic to get him to eat the right foods. He was the classic kid only eating french fries and pancakes (regular, horrible ones from McD's) when we showed up at CARD and before Dr. K I didn't know he was more allergic to soy then dairy. So, it's all parts of a puzzle and even though the diet may not make a huge immediate difference, your child may be slowly healing on it.  Bottom line, it's a pain in the --- for us parents but it's worth it. 

We recently cheated and I know my son reacts to gluten - I found some new frozen GFCF pancakes to try at Whole Foods but had run out of GFCF syrup. I put a tiny bit of regular syrup for him and my son has been crazily requesting more pancakes with syrup like a crack addict. I offered him his favorite GFCF cookies instead and he freaked. I offered him more pancakes and told him we were out of syrup and he tried to rip the door off the cabinet looking for it (he's 6). He hasn't reacted this strongly emotionally about a food since we went back on the diet 9 months ago. So, I think it matters. 

Re: GFCF diet

 

My son did not respond to taking him of casein, but did respond to being taken off gluten and soy. He actually has celiac disease in addition to autism, so he would have to be off gluten regardless.When we took him off gluten, we noticed immediate improvement. When we took him off casein, we noticed nothing, and actually have recently reintroduced casein after two years casein free.

By far he is most reactive to soy. Whenever I hear of someone who is trying the GF/CF diet, I always recommend they try removing soy as well because it is so often a worse culprit.Another thing is the length of time and whether or not you're 100% sure everything you're giving is GF/CF. Many people say they didn't see any benefit from the diet, but then it turns out they only tried it for a month or many of the things they were giving really had " hidden " gluten or casein in them. I have heard that benefits from casein removal are usually noticeable pretty quickly, but benefits from gluten removal can take 9 months to be noticeable.

I was also always told that if your child prefers to eat mainly things containing gluten and casein (e.g. " a picky eater " ), that is a sign that they are getting the opiate effect from those foods and are therefore addicted to them, which is all the more reason to try removing them. But I know it is hard. We just put my son through a (very expensive and difficult) week-long feeding clinic at CARD here in Austin to help expand his food repertoire because he was so picky. It really helped.

Good luck!- >> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )> has there been anybody who has done the GFCF diet and not see enough> improvements to continue with this very difficult to follow diet? I tried it> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We> have tried everything, but to no avail. No meds, vitamins...nothing has> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is> worth trying it again. He is a very very picky eater...so this diet will be> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,> A delirious mother who is running on 4 hours of sleep a night.>

[Guest guest]

Wow, thanks everyone for sharing your experiences...I did go on Amazon and bought several cookbooks on cooking gfcf. I was a little overwhelmed, looking at some of the ingredients. I was thinking to my self, " I've never heard of half these things, and where in the heck would I find them? " My second dilema is that it seems like everything has to pretty much be made from scratch. I have to be honest, I've never been much of a cook. Never have the time to! My son was 3 the last time we did the gfcf diet, and it was so much easier then, because i had my mom in town helping us, plus he was less picky at 3 : )

I also didn't worry about him accidentally having the offending foods at school. Thanks again, for the input.

mache

 

We also did CARD's feeding clinic and had good results although my son was one of their " tough nuts " and didn't progress as fast as most kids. But I wanted to add, we have been GFCF, soy and banana free since our feeding clinic week last September and I didn't see a huge increase in better behavior but MUCH improved poops! My son had horrible constipation and we are finally off of suppositories to make him go. It wasn't just diet - we see Dr. Krigsman at Thoughtfulhouse and had the big scope/colonoscopy, cleaned him out, saw what he was allergic to, added some meds, and then went to the feeding clinic to get him to eat the right foods. He was the classic kid only eating french fries and pancakes (regular, horrible ones from McD's) when we showed up at CARD and before Dr. K I didn't know he was more allergic to soy then dairy. So, it's all parts of a puzzle and even though the diet may not make a huge immediate difference, your child may be slowly healing on it.  Bottom line, it's a pain in the --- for us parents but it's worth it. 

We recently cheated and I know my son reacts to gluten - I found some new frozen GFCF pancakes to try at Whole Foods but had run out of GFCF syrup. I put a tiny bit of regular syrup for him and my son has been crazily requesting more pancakes with syrup like a crack addict. I offered him his favorite GFCF cookies instead and he freaked. I offered him more pancakes and told him we were out of syrup and he tried to rip the door off the cabinet looking for it (he's 6). He hasn't reacted this strongly emotionally about a food since we went back on the diet 9 months ago. So, I think it matters. 

Re: GFCF diet

 

My son did not respond to taking him of casein, but did respond to being taken off gluten and soy. He actually has celiac disease in addition to autism, so he would have to be off gluten regardless.When we took him off gluten, we noticed immediate improvement. When we took him off casein, we noticed nothing, and actually have recently reintroduced casein after two years casein free.

By far he is most reactive to soy. Whenever I hear of someone who is trying the GF/CF diet, I always recommend they try removing soy as well because it is so often a worse culprit.Another thing is the length of time and whether or not you're 100% sure everything you're giving is GF/CF. Many people say they didn't see any benefit from the diet, but then it turns out they only tried it for a month or many of the things they were giving really had " hidden " gluten or casein in them. I have heard that benefits from casein removal are usually noticeable pretty quickly, but benefits from gluten removal can take 9 months to be noticeable.

I was also always told that if your child prefers to eat mainly things containing gluten and casein (e.g. " a picky eater " ), that is a sign that they are getting the opiate effect from those foods and are therefore addicted to them, which is all the more reason to try removing them. But I know it is hard. We just put my son through a (very expensive and difficult) week-long feeding clinic at CARD here in Austin to help expand his food repertoire because he was so picky. It really helped.

Good luck!- >> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )> has there been anybody who has done the GFCF diet and not see enough> improvements to continue with this very difficult to follow diet? I tried it> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We> have tried everything, but to no avail. No meds, vitamins...nothing has> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is> worth trying it again. He is a very very picky eater...so this diet will be> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,> A delirious mother who is running on 4 hours of sleep a night.>

[Guest guest]

Wow, thanks everyone for sharing your experiences...I did go on Amazon and bought several cookbooks on cooking gfcf. I was a little overwhelmed, looking at some of the ingredients. I was thinking to my self, " I've never heard of half these things, and where in the heck would I find them? " My second dilema is that it seems like everything has to pretty much be made from scratch. I have to be honest, I've never been much of a cook. Never have the time to! My son was 3 the last time we did the gfcf diet, and it was so much easier then, because i had my mom in town helping us, plus he was less picky at 3 : )

I also didn't worry about him accidentally having the offending foods at school. Thanks again, for the input.

mache

 

We also did CARD's feeding clinic and had good results although my son was one of their " tough nuts " and didn't progress as fast as most kids. But I wanted to add, we have been GFCF, soy and banana free since our feeding clinic week last September and I didn't see a huge increase in better behavior but MUCH improved poops! My son had horrible constipation and we are finally off of suppositories to make him go. It wasn't just diet - we see Dr. Krigsman at Thoughtfulhouse and had the big scope/colonoscopy, cleaned him out, saw what he was allergic to, added some meds, and then went to the feeding clinic to get him to eat the right foods. He was the classic kid only eating french fries and pancakes (regular, horrible ones from McD's) when we showed up at CARD and before Dr. K I didn't know he was more allergic to soy then dairy. So, it's all parts of a puzzle and even though the diet may not make a huge immediate difference, your child may be slowly healing on it.  Bottom line, it's a pain in the --- for us parents but it's worth it. 

We recently cheated and I know my son reacts to gluten - I found some new frozen GFCF pancakes to try at Whole Foods but had run out of GFCF syrup. I put a tiny bit of regular syrup for him and my son has been crazily requesting more pancakes with syrup like a crack addict. I offered him his favorite GFCF cookies instead and he freaked. I offered him more pancakes and told him we were out of syrup and he tried to rip the door off the cabinet looking for it (he's 6). He hasn't reacted this strongly emotionally about a food since we went back on the diet 9 months ago. So, I think it matters. 

Re: GFCF diet

 

My son did not respond to taking him of casein, but did respond to being taken off gluten and soy. He actually has celiac disease in addition to autism, so he would have to be off gluten regardless.When we took him off gluten, we noticed immediate improvement. When we took him off casein, we noticed nothing, and actually have recently reintroduced casein after two years casein free.

By far he is most reactive to soy. Whenever I hear of someone who is trying the GF/CF diet, I always recommend they try removing soy as well because it is so often a worse culprit.Another thing is the length of time and whether or not you're 100% sure everything you're giving is GF/CF. Many people say they didn't see any benefit from the diet, but then it turns out they only tried it for a month or many of the things they were giving really had " hidden " gluten or casein in them. I have heard that benefits from casein removal are usually noticeable pretty quickly, but benefits from gluten removal can take 9 months to be noticeable.

I was also always told that if your child prefers to eat mainly things containing gluten and casein (e.g. " a picky eater " ), that is a sign that they are getting the opiate effect from those foods and are therefore addicted to them, which is all the more reason to try removing them. But I know it is hard. We just put my son through a (very expensive and difficult) week-long feeding clinic at CARD here in Austin to help expand his food repertoire because he was so picky. It really helped.

Good luck!- >> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )> has there been anybody who has done the GFCF diet and not see enough> improvements to continue with this very difficult to follow diet? I tried it> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We> have tried everything, but to no avail. No meds, vitamins...nothing has> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is> worth trying it again. He is a very very picky eater...so this diet will be> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,> A delirious mother who is running on 4 hours of sleep a night.>

[Guest guest]

Mache,

The diet has helped my son under the autism spectrum tremendously but my

suggestion before beginning is to make sure you consult with those who could

help guide you here. Do not do what I did when I had begun this journey.

It is getting to the root cause should your son be suffering from Candida/Yeast

overgrowth or some type of streptococcal viral infection, inflammation of the

brain, gut & autoimmune, etc.

Yes, if your son has suffered from any type of illness growing up and bombarded

with antibiotics, any medication, etc., and then the vaccines, there is so much

to rule out here that could trigger off which suppresses the immune, gut system

and do not get me wrong we still need some of the conventional treatments but it

is going out of the box when all avenues fail and seek alternative approaches.

This involves certain treatments to help decrease on what is stirring such

challenging issues your son is suffering from that are missed out by several

like in my son's case not knowing which test are needed.

When I was told to eliminate all white flour from his diet, no one told me that

replacing it with corn ingredients would cause such huge regression and

aggressive behavior in my son's case.

I went back to my son's neurologist to request once again the med trial, speak

about being in shock here, he knew my mission and had witnessed how much my son

improved with the diet and at the time some sensory integration activities and

told me not to throw in the towel, yet! What? So, it left me with which doctor

to turn to when they specialize with what they do and some where left also not

knowing what else to try out for my son's aggressive behavior and regression.

Until I had attended the Autism One conference and behold very glad that I had

to do some homework here as when applying the GFCF diet, once I removed all corn

ingredients, my son calm down tremendously.

I was very glad that I had seek the route with CARE clinics as well but continue

to do my homework where needed. Currently of course you are probably aware of

the latest news, which is very upsetting since I was really looking forward to

the treatments my son makes tremendous gains from it where my son would not be

alive if I had not seek this approach.

So, it is back to, what are you really targeting? Will it really work for your

son? Maybe not right away in certain areas because it is getting to the culprit

of what is going on inside.

How are you replenishing the nutrients in the diet? See where I am going with

this?

Soy and corn are also not the best in my son's case as it does not break down

the enzymes. I thought it was safe eating Chinese food, nope there is soy and

wheat in the sauce, rotating the meals helps tremendously, like do not give too

much rice one week, rotation is a must. With the milk, Almond milk, coconut

milk, Hempmilk, Rice, etc. Then finding the right Gluten-free pasta, we like

Tinkayada, etc.

Ice cream, is Nada-Moo, not the mint flavor as this does contain gluten.

I have learn how to cook from scratch and my family can tell you I was not a

cook, grew up with maids, then when I married, hamburger helpers to the rescue,

then when I had my kids the discovery of living at one of the most dangerous

place at McD's. I know you can do it if I can.

In the mean time, make sure to remove any food or liquid from your son's diet

that contain corn syrup or High Fructose corn syrup, try to limit his sugar

intake, no sugar-free too.

I would also be caution giving apples as well, give him something like Organic

pear, in other words jot down in a journal everything he eats (food or liquid)

for about 2 weeks and whatever symptoms he is undergoing. Also eliminate bananas

as well, this feeds the gut bug, too.

Food intolerance is huge even when ruled out with certain food allergies,

Celiac, IBD,etc.

Should you consider not applying the GFCF diet and want to add to his daily

routine like a good chewable probiotics for about a good 90 days, Cod Liver Oil,

a good chewable multivitamin like Nordic Berries, even like those chewable Juice

Plus veg. & fruit to add on here as well, ask the clerk at one of the People's

pharmacy. Juice Plus is through someone that is a distributor though, not sold

at pharmacy or stores. If interested I will be glad to share someone your way if

you do not find one in your area.

Another suggestion is some type of a supplement like Fiber Smart to smoothies,

juice, cookies, muffins, etc. This is how I started with my 5 y/o grandson who

is a very picky eater and just underwent the Zyto test which does not involve

the intensive lab work and about 85% accurate but had shown what I had already

detected and disclaimer, I am not a doctor.

http://startlivingwelltoday.com/virtualclinic.html

This device is awesome.

What you described with similar behavioral issues my grandson was undergoing,

not dx'd with autism but always leans towards ADHD. Remember what I had

suggested is according to my grandson's test result. Plus he prefers what I make

at home which is the GF/CF diet.

Still, my suggestion is to find a good doctor who understands the DAN! Protocol,

Nutritionist or Dietitian who works with many individuals under the autism

spectrum, Homeopathic or Chiropractic who are also pursuing working around the

Wellness of individuals who are affected with so much that could trigger off

like the no sleep, aggression, OCD's, anxiety, etc. There are some remedies that

has helped my son along with the diet.

Please try to attend the meetings that is provided by the NAA of Central Texas.

Check out the calendar events. Great work that this awesome group are doing who

I am very glad to be connected with since we are this percentage of families who

will chase any rainbows when it comes to our individuals under the autism

spectrum and see results even though not a one size fits all treatments but

gives us such HOPE and will share from our experience, learning together,

supporting one another, as informational purpose only as we travel on a similar

path.

http://naacentraltexas.org/

Please inquire taking your son to Dr. , have heard some positive

responses from several friends who are very pleased with him or his partner.

NeuroSensory Centers of America

Phone:

http://www.neurosensorycenters.com/patient/index.html

Mark your calendar and check this out if you can.

RE:

Chef Alain Braux will present a hands-on Gluten-Free, Dairy-free Classic French

Desserts class at Whole Foods at 6th and Lamar on Saturday, August 22nd, 2009 10

am-1 pm.

Famous locally for his exquisite Gluten-Free/Dairy-Free pastries and breads,

Chef Braux will guide you into making yummy GF/DF treats you never thought you

could master: Chocolate Mousse, Hot Raspberry Souffle and Lavender Creme Brulee.

See you there. A bientot.

Chef Alain Braux

Alain Braux

Chef-Nutritherapist. Macrobiotic Counselor.

A Votre Sante (To Your Health)

alaingb@...

www.alainbraux.com

Irma

>

> I know I have asked this question before, but didn't get too many responses.

> So I'll try again : )

> has there been anybody who has done the GFCF diet and not see enough

> improvements to continue with this very difficult to follow diet? I tried it

> with my son a couple years back, and didn't really see any changes. My son

> has however been absolutely crazy, hyper, and ocd-ing all over the place. We

> have tried everything, but to no avail. No meds, vitamins...nothing has

> helped to calm him down. So I was wondering if I should give this diet

> another try...I just remember it not working before, so I wonder if it is

> worth trying it again. He is a very very picky eater...so this diet will be

> a complete uphill battle for us! Any input would so be appreciated!

> Thanks,

> A delirious mother who is running on 4 hours of sleep a night.

>