another roller coaster day

[Guest guest]

Wow Kellie, sounds so much like and what you do is exactly what I do as well. If is melting down because he wants to leave, we will stay put and deal with it there until he is calm. It is hard, I know. I do the same things you do. What a rollar coaster ride for sure.

Yep, and are still loving camp. The last day is Aug. 6th so it has pretty much been all summer. They started a week after school got out and then when they are done, only 2 weeks and then they go back to school. It is really nice because they go all day Mon thru Thurs. so it is just Lexie and I. Hang in there mama.

Stacie

In a message dated 7/26/2009 9:49:00 P.M. Central Daylight Time, folkangel@... writes:

You know me Stacie! Poor gets away with very little when I am around LOL. A tantrum means we leave, even if it means leaving a shopping cart or it takes 30 minutes of tantruming as we slowly move toward the door (unless of course he is tantruming because he wants to leave, then we stay put LOL poor guy). I do usually know the trigger and I would say 80 percent of the time it is one of his OCD issues. I know he cannot help them but we are all trying to help him get better control and it was going well with the meds and the behavior therapy then it has started to go downhill again. I know he is starting to struggle with it more again and we are waiting a little while to see if we can work on it behaviorally before we increase his anxiety meds. I know increasing meds for can really be hard as he reacts very strongly if it is too much. I try as much as possible to give him choices and to let him have more power in his day but it is starting to feel a bit like a constant power struggle! If it isn't better by the middle of August we will increase before the start of school. I am also going to look into the L-Theanine that someone recommended for calming (for both of us, wait his Dad really needs it so all 3 of us) Is still enjoying summer camp? Does it last all summer? and Paige both go on Tue and Thurs this year and it feels like heaven to be alone. I get everything done so much quicker and then I can do more fun things with them when they are home. It is amazing but even cleaning house and running errands is relaxing when I am alone! Except for the whole Dr., headaches, MRI mess this is shaping up to be a great summer LOL! Kellie

From: stacie <hawkie6aol>autism Sent: Sunday, July 26, 2009 8:54:25 PMSubject: Re: another roller coaster day

Oh boy Kellie do I get it! It is like that here too! I know exactly what you mean. The good thing is, you got him back on track most of the time right?Stacie Sent via BlackBerry by AT & T

From: "folkangelymail (DOT) com" Date: Mon, 27 Jul 2009 01:39:32 -0000<AutismBehaviorProbl emsgroups (DOT) com>Subject: another roller coaster day

Hi Gals,I was going to say guys but I do think in this case the gals do win out! Not many guys post here so gals it is LOL. Do you see a trend with the good and the bad behaviors or just overall the way life is? This summer it has been a daily roller coaster ride in our house! Help I want to get off! The day starts out good and we go to the park, ride the trolley then a HUGE melt down at the Dinosaur museum that he insisted we go into (locked himself in the bathroom then wanted to lock the door to this bathroom with no one inside and tantrumed because he wasn't allowed to do it. I won this battle and also ended the outing right there. I will take Paige again this week without him so she can look at things. We get home he calms down and talks more then ever in full sentences with a lot of commenting and telling everyone what to do LOL. He set the TABLE AT DINNER and then afterward had a huge throw himself down tantrum because he couldn't have another ice cream cone. After he calms down and bounces on his ball some he gets on the floor with Paige and plays with her! Laughing, Tickeling her, letting her crawl on him and even letting him ride her and pretending to be a pony! I told him how proud of him I was and he said " is a very,very,very good boy!" I laughted and said yes he is and he then tried to get another ice cream cone (smart boy) of course I said he could have one tomorrow but I gave him a pack of gummies instead LOL. Then one more screaming match over something small and he went to bed with no problem. Does this sound familiar? Every outing has to go bad at some point either a melt down or he will dash into the street (sometime right away and sometimes like today at the end). It seem like everytime I think this is going well or get excited about something he is doing BAM bad behavior or meltdown. I have a hard time seeing his progress sometimes since the meltdowns can really take center stage. This is so much better then it used to be and he does listen much more often as well as d o what I asked more often... and I am thrilled with the playing with Paige part of the day as well as seeing his ability to compromise and negotiate even with his limited language. I don't want to give the wrong impression. I am not complaining. He tries really hard each day but boy those 40 minute meltdowns make it hard to see the good things sometimes. How do you cope with the ups and downs and not lose yourself in the tantrums etc... Kellie

[Guest guest]

Hi Gals,

I was going to say guys but I do think in this case the gals do win out! Not

many guys post here so gals it is LOL. Do you see a trend with the good and the

bad behaviors or just overall the way life is? This summer it has been a daily

roller coaster ride in our house! Help I want to get off! The day starts out

good and we go to the park, ride the trolley then a HUGE melt down at the

Dinosaur museum that he insisted we go into (locked himself in the bathroom then

wanted to lock the door to this bathroom with no one inside and tantrumed

because he wasn't allowed to do it. I won this battle and also ended the outing

right there. I will take Paige again this week without him so she can look at

things. We get home he calms down and talks more then ever in full sentences

with a lot of commenting and telling everyone what to do LOL. He set the TABLE

AT DINNER and then afterward had a huge throw himself down tantrum because he

couldn't have another ice cream cone. After he calms down and bounces on his

ball some he gets on the floor with Paige and plays with her! Laughing,

Tickeling her, letting her crawl on him and even letting him ride her and

pretending to be a pony! I told him how proud of him I was and he said " is

a very,very,very good boy! " I laughted and said yes he is and he then tried to

get another ice cream cone (smart boy) of course I said he could have one

tomorrow but I gave him a pack of gummies instead LOL. Then one more screaming

match over something small and he went to bed with no problem. Does this sound

familiar? Every outing has to go bad at some point either a melt down or he will

dash into the street (sometime right away and sometimes like today at the end).

It seem like everytime I think this is going well or get excited about something

he is doing BAM bad behavior or meltdown. I have a hard time seeing his

progress sometimes since the meltdowns can really take center stage. This is so

much better then it used to be and he does listen much more often as well as do

what I asked more often... and I am thrilled with the playing with Paige part of

the day as well as seeing his ability to compromise and negotiate even with his

limited language. I don't want to give the wrong impression. I am not

complaining. He tries really hard each day but boy those 40 minute meltdowns

make it hard to see the good things sometimes. How do you cope with the ups and

downs and not lose yourself in the tantrums etc... Kellie

[Guest guest]

Oh boy Kellie do I get it! It is like that here too! I know exactly what you mean. The good thing is, you got him back on track most of the time right?StacieSent via BlackBerry by AT&TFrom: "folkangel@..." Date: Mon, 27 Jul 2009 01:39:32 -0000<autism >Subject: another roller coaster day Hi Gals, I was going to say guys but I do think in this case the gals do win out! Not many guys post here so gals it is LOL. Do you see a trend with the good and the bad behaviors or just overall the way life is? This summer it has been a daily roller coaster ride in our house! Help I want to get off! The day starts out good and we go to the park, ride the trolley then a HUGE melt down at the Dinosaur museum that he insisted we go into (locked himself in the bathroom then wanted to lock the door to this bathroom with no one inside and tantrumed because he wasn't allowed to do it. I won this battle and also ended the outing right there. I will take Paige again this week without him so she can look at things. We get home he calms down and talks more then ever in full sentences with a lot of commenting and telling everyone what to do LOL. He set the TABLE AT DINNER and then afterward had a huge throw himself down tantrum because he couldn't have another ice cream cone. After he calms down and bounces on his ball some he gets on the floor with Paige and plays with her! Laughing, Tickeling her, letting her crawl on him and even letting him ride her and pretending to be a pony! I told him how proud of him I was and he said " is a very,very,very good boy! " I laughted and said yes he is and he then tried to get another ice cream cone (smart boy) of course I said he could have one tomorrow but I gave him a pack of gummies instead LOL. Then one more screaming match over something small and he went to bed with no problem. Does this sound familiar? Every outing has to go bad at some point either a melt down or he will dash into the street (sometime right away and sometimes like today at the end). It seem like everytime I think this is going well or get excited about something he is doing BAM bad behavior or meltdown. I have a hard time seeing his progress sometimes since the meltdowns can really take center stage. This is so much better then it used to be and he does listen much more often as well as d o what I asked more often... and I am thrilled with the playing with Paige part of the day as well as seeing his ability to compromise and negotiate even with his limited language. I don't want to give the wrong impression. I am not complaining. He tries really hard each day but boy those 40 minute meltdowns make it hard to see the good things sometimes. How do you cope with the ups and downs and not lose yourself in the tantrums etc... Kellie

[Guest guest]

You know me Stacie! Poor gets away with very little when I am around LOL. A tantrum means we leave, even if it means leaving a shopping cart or it takes 30 minutes of tantruming as we slowly move toward the door (unless of course he is tantruming because he wants to leave, then we stay put LOL poor guy). I do usually know the trigger and I would say 80 percent of the time it is one of his OCD issues. I know he cannot help them but we are all trying to help him get better control and it was going well with the meds and the behavior therapy then it has started to go downhill again. I know he is starting to struggle with it more again and we are waiting a little while to see if we can work on it behaviorally before we increase his

anxiety meds. I know increasing meds for can really be hard as he reacts very strongly if it is too much. I try as much as possible to give him choices and to let him have more power in his day but it is starting to feel a bit like a constant power struggle! If it isn't better by the middle of August we will increase before the start of school. I am also going to look into the L-Theanine that someone recommended for calming (for both of us, wait his Dad really needs it so all 3 of us) Is still enjoying summer camp? Does it last all summer? and Paige both go on Tue and Thurs this year and it feels like heaven to be alone. I get everything done so much quicker and then I can do more fun things with them when they are home. It is amazing but even cleaning house and running errands is relaxing when I am alone! Except for the whole Dr.,

headaches, MRI mess this is shaping up to be a great summer LOL! Kellie

From: stacie <hawkie6@...>autism Sent: Sunday, July 26, 2009 8:54:25 PMSubject: Re: another roller coaster day

Oh boy Kellie do I get it! It is like that here too! I know exactly what you mean. The good thing is, you got him back on track most of the time right?Stacie Sent via BlackBerry by AT & T

From: "folkangelymail (DOT) com" Date: Mon, 27 Jul 2009 01:39:32 -0000<AutismBehaviorProbl emsgroups (DOT) com>Subject: another roller coaster day

Hi Gals,I was going to say guys but I do think in this case the gals do win out! Not many guys post here so gals it is LOL. Do you see a trend with the good and the bad behaviors or just overall the way life is? This summer it has been a daily roller coaster ride in our house! Help I want to get off! The day starts out good and we go to the park, ride the trolley then a HUGE melt down at the Dinosaur museum that he insisted we go into (locked himself in the bathroom then wanted to lock the door to this bathroom with no one inside and tantrumed because he wasn't allowed to do it. I won this battle and also ended the outing right there. I will take Paige again this week without him so she can look at things. We get home he calms down and talks more then ever in full sentences with a lot of commenting and telling everyone what to do LOL. He set the TABLE AT DINNER and then afterward had a huge throw himself down tantrum because he couldn't have

another ice cream cone. After he calms down and bounces on his ball some he gets on the floor with Paige and plays with her! Laughing, Tickeling her, letting her crawl on him and even letting him ride her and pretending to be a pony! I told him how proud of him I was and he said " is a very,very,very good boy!" I laughted and said yes he is and he then tried to get another ice cream cone (smart boy) of course I said he could have one tomorrow but I gave him a pack of gummies instead LOL. Then one more screaming match over something small and he went to bed with no problem. Does this sound familiar? Every outing has to go bad at some point either a melt down or he will dash into the street (sometime right away and sometimes like today at the end). It seem like everytime I think this is going well or get excited about something he is doing BAM bad behavior or meltdown. I have a hard time seeing his progress sometimes since the meltdowns can really

take center stage. This is so much better then it used to be and he does listen much more often as well as d o what I asked more often... and I am thrilled with the playing with Paige part of the day as well as seeing his ability to compromise and negotiate even with his limited language. I don't want to give the wrong impression. I am not complaining. He tries really hard each day but boy those 40 minute meltdowns make it hard to see the good things sometimes. How do you cope with the ups and downs and not lose yourself in the tantrums etc... Kellie

[Guest guest]

Of course having a little one with ASD makes my days different...but wow they are crazy, and I'm soooooooooo sick of summer.

j

From: "folkangel@..." <folkangel@...>autism Sent: Sunday, July 26, 2009 8:39:32 PMSubject: another roller coaster day

Hi Gals,I was going to say guys but I do think in this case the gals do win out! Not many guys post here so gals it is LOL. Do you see a trend with the good and the bad behaviors or just overall the way life is? This summer it has been a daily roller coaster ride in our house! Help I want to get off! The day starts out good and we go to the park, ride the trolley then a HUGE melt down at the Dinosaur museum that he insisted we go into (locked himself in the bathroom then wanted to lock the door to this bathroom with no one inside and tantrumed because he wasn't allowed to do it. I won this battle and also ended the outing right there. I will take Paige again this week without him so she can look at things. We get home he calms down and talks more then ever in full sentences with a lot of commenting and telling everyone what to do LOL. He set the TABLE AT DINNER and then afterward had a huge throw himself down tantrum because he couldn't have

another ice cream cone. After he calms down and bounces on his ball some he gets on the floor with Paige and plays with her! Laughing, Tickeling her, letting her crawl on him and even letting him ride her and pretending to be a pony! I told him how proud of him I was and he said " is a very,very,very good boy!" I laughted and said yes he is and he then tried to get another ice cream cone (smart boy) of course I said he could have one tomorrow but I gave him a pack of gummies instead LOL. Then one more screaming match over something small and he went to bed with no problem. Does this sound familiar? Every outing has to go bad at some point either a melt down or he will dash into the street (sometime right away and sometimes like today at the end). It seem like everytime I think this is going well or get excited about something he is doing BAM bad behavior or meltdown. I have a hard time seeing his progress sometimes since the meltdowns can really

take center stage. This is so much better then it used to be and he does listen much more often as well as do what I asked more often... and I am thrilled with the playing with Paige part of the day as well as seeing his ability to compromise and negotiate even with his limited language. I don't want to give the wrong impression. I am not complaining. He tries really hard each day but boy those 40 minute meltdowns make it hard to see the good things sometimes. How do you cope with the ups and downs and not lose yourself in the tantrums etc... Kellie

[Guest guest]

Man, I know what you mean e. I really do. I cant believe it is the end of July already. Wow.

Stacie

In a message dated 7/27/2009 12:30:12 A.M. Central Daylight Time, ljdjd1234@... writes:

Of course having a little one with ASD makes my days different...but wow they are crazy, and I'm soooooooooo sick of summer.

j

From: "folkangelymail" <folkangelymail (DOT) .com>autism Sent: Sunday, July 26, 2009 8:39:32 PMSubject: another roller coaster day

Hi Gals,I was going to say guys but I do think in this case the gals do win out! Not many guys post here so gals it is LOL. Do you see a trend with the good and the bad behaviors or just overall the way life is? This summer it has been a daily roller coaster ride in our house! Help I want to get off! The day starts out good and we go to the park, ride the trolley then a HUGE melt down at the Dinosaur museum that he insisted we go into (locked himself in the bathroom then wanted to lock the door to this bathroom with no one inside and tantrumed because he wasn't allowed to do it. I won this battle and also ended the outing right there. I will take Paige again this week without him so she can look at things. We get home he calms down and talks more then ever in full sentences with a lot of commenting and telling everyone what to do LOL. He set the TABLE AT DINNER and then afterward had a huge throw himself down tantrum because he couldn't have another ice cream cone. After he calms down and bounces on his ball some he gets on the floor with Paige and plays with her! Laughing, Tickeling her, letting her crawl on him and even letting him ride her and pretending to be a pony! I told him how proud of him I was and he said " is a very,very,very good boy!" I laughted and said yes he is and he then tried to get another ice cream cone (smart boy) of course I said he could have one tomorrow but I gave him a pack of gummies instead LOL. Then one more screaming match over something small and he went to bed with no problem. Does this sound familiar? Every outing has to go bad at some point either a melt down or he will dash into the street (sometime right away and sometimes like today at the end). It seem like everytime I think this is going well or get excited about something he is doing BAM bad behavior or meltdown. I have a hard time seeing his progress sometimes since the meltdowns can really take center stage. This is so much better then it used to be and he does listen much more often as well as do what I asked more often... and I am thrilled with the playing with Paige part of the day as well as seeing his ability to compromise and negotiate even with his limited language. I don't want to give the wrong impression. I am not complaining. He tries really hard each day but boy those 40 minute meltdowns make it hard to see the good things sometimes. How do you cope with the ups and downs and not lose yourself in the tantrums etc... Kellie