Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hi again, Cordula, I'm De. We talked in chat a little Thurs. I'm a single mother on tx (treatment) working full time. I have to admit I've been well & truly blessed with minimal side effects (29 down 19 to go!) I'm off on weekends, so I started doing shots after work on Friday, but still had a hard time on Monday so now I do them Thurs. after work. I start sinking about 5-6 on Friday. The biggest problem I have is fatigue. I mostly check email, lay around and watch tv after work and on weekends. My teen daughter cleans the kitchen and the rest of the housework pretty much goes undone. I've been getting Schwan's food deliveries some because it's easy to fix, although a bit pricey. As far as the dizziness, mine means I'm not drinking enough fluids so I drink more water when I get dizzy. I think any liquids without caffeine or carbonation will do. Small meals or snacks throught out the day help. I've discovered I can't do raw onion or spicy things anymore, but not sure if that the tx or my IBS. My nausea is usually minor, but sometimes it helps if I suck on dried ginger root. I still get some surprise reactions, but it's much more predictable now than in the beginning. The longer I do it, the fewer good days I'm having, but I've heard other people say it gets better the longer they do it. The important thing for you to remember is that if you HAVE to work, you have to let a lot of things go so you can rest, but I'm not the only person that's worked the whole time on tx, so it CAN be done. De Faith is the ability to not panic. -----Original Message-----From: craf12 [mailto:cordula_rafalko@...] Sent: Monday, August 23, 2004 3:41 PMHepatitis CSupportGroupForDummies Subject: hello, on this Monday!I have been chatting to some of you folks on Thursdays (the "German gal"), but I feel it's time to say hi to the rest of the community.I was dignosed several months ago (Stage 2 - 1b), just started TX 2 weeks ago. First weekend was a complete knock-out for me. Man, I've never felt so shitty in my life before. Even with all the education and kind words I have received from boards and other heppers, I was not prepared. Last weekend was better (only nausea and tired), thought today is really tough on me again. The heat is making me dizzy and I'm having a hard time focusing on work. I work full-time ... and that's what I'm trying to continue.I was so happy feeling better this weekend, that it's even harder to feel so weak again and I'm worried. Will I have to face every time I have the shot the unexpected? Can someone share their experience with me? Thank you all for your support in the last couple of weeks. I know I have a long journey ahead of me ... and I'm glad I found this place to talk about it.All the best!Cordula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Gail, I love your dogs. Obviously as a German I have to... lol I've been drinking a lot of water and also trying to rest more. Believe me, it's a big change to just hang around a lot and not constantly do the things I usually do. Been remodeling my home and now it just have to come to a halt at this point. But I'm keeping my mind filled with positive thoughts and thank god I found a great group of people to talk with. Thanks. Cordula > You should be taking your shot when you are going to be off work for a > couple of days.The worst of it lasts for a couple of days and you will have > to start deciding what can be done later at home instead of right now.Work > is about all you will be able to handle of treatment and you have to pace > yourself.Have a rest when you get home from work and then decide what is the > most important things to get done.If you have a family,you will need their > help cause you will not be able to do all that you used to do,not even close > to it.You have to make sure you eat.I ate about six small portions of food a > day and used Ensure or Boost inbetween to help settle my stomach and > supplement my diet.You should be drinking water constantly even at work.It > will help to reduce the sides.If you get too tired get the pills B12-1000mg > tablits with folic acid in them.Take two in the morning to help you through > the day.Rest when you are tired.We will help you all we can.Take care.My > treatment was successful and it was in 98-99 for 52wks.I was also geno 1.I > have been undetectable since so keep the faith. > Gail > > http://deveauxkennels.tk > > mailto:gaila@n... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 De, I don't know what to expect at this point about the working issue. I have no choice... as you know I'm a single mother too and what else could I fall back on? I had finally been able to buy a house last year and I'm not willing not to be unable to pay for it b/c the tx. I will have to make it! I never heard about the Ginger roots.... have to try that. Thanks for sharing... Cordula > Hi again, Cordula, I'm De. We talked in chat a little Thurs. I'm a single > mother on tx (treatment) working full time. I have to admit I've been well > & truly blessed with minimal side effects (29 down 19 to go!) I'm off on > weekends, so I started doing shots after work on Friday, but still had a > hard time on Monday so now I do them Thurs. after work. I start sinking > about 5-6 on Friday. The biggest problem I have is fatigue. I mostly check > email, lay around and watch tv after work and on weekends. My teen daughter > cleans the kitchen and the rest of the housework pretty much goes undone. > I've been getting Schwan's food deliveries some because it's easy to fix, > although a bit pricey. > > As far as the dizziness, mine means I'm not drinking enough fluids so I > drink more water when I get dizzy. I think any liquids without caffeine or > carbonation will do. Small meals or snacks throught out the day help. I've > discovered I can't do raw onion or spicy things anymore, but not sure if > that the tx or my IBS. My nausea is usually minor, but sometimes it helps > if I suck on dried ginger root. > > I still get some surprise reactions, but it's much more predictable now than > in the beginning. The longer I do it, the fewer good days I'm having, but > I've heard other people say it gets better the longer they do it. The > important thing for you to remember is that if you HAVE to work, you have to > let a lot of things go so you can rest, but I'm not the only person that's > worked the whole time on tx, so it CAN be done. > > De > Faith is the ability to not panic. > > hello, on this Monday! > > > I have been chatting to some of you folks on Thursdays (the " German > gal " ), but I feel it's time to say hi to the rest of the community. > > I was dignosed several months ago (Stage 2 - 1b), just started TX 2 > weeks ago. First weekend was a complete knock-out for me. Man, > I've never felt so shitty in my life before. Even with all the > education and kind words I have received from boards and other > heppers, I was not prepared. Last weekend was better (only nausea > and tired), thought today is really tough on me again. The heat is > making me dizzy and I'm having a hard time focusing on work. I work > full-time ... and that's what I'm trying to continue. > I was so happy feeling better this weekend, that it's even harder > to feel so weak again and I'm worried. Will I have to face every > time I have the shot the unexpected? > Can someone share their experience with me? > > Thank you all for your support in the last couple of weeks. I know > I have a long journey ahead of me ... and I'm glad I found this > place to talk about it. > All the best! > Cordula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 If you feel like throwing up when you take pills, try eating smaller more frequent meals or crackers, ginger snaps or vanilla wafers. You can do this! Just decide! With you all the way, De Faith is the ability to not panic. -----Original Message-----From: craf12 [mailto:cordula_rafalko@...] Sent: Wednesday, September 08, 2004 11:22 AMHepatitis CSupportGroupForDummies Subject: Re: Kathy!Kathy, thanks for your advise. I've been reading a lot about B12... will give it a try. I am taking Vitamins already and everytime I take some pills I feel like throwing up. I know many of you folks are in a much more difficult situation, hate being a complainer. Cordula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 I agree 100% on the anti-depressants, I thought it was almost standard now with tx. Call the doc tomorrow and ask for some. I'm doing well with 20mg of Lexapro (start with 10 mg), but the Lexapro is expensive and not on the insurance formulary, so I have to beg samples of that. De Faith is the ability to not panic. -----Original Message-----From: craf12 [mailto:cordula_rafalko@...] Sent: Wednesday, September 08, 2004 12:13 PMHepatitis CSupportGroupForDummies Subject: Re: sandyI'm on no anti depressants... noticing that I'm getting very easy agitated these days. Especially when my son is pushing those buttons.. ;)thanks for your advise... I will check with my dr. and see what they think is the right thing to do now.Your day is almost over there.... so have a great evening. Cordula Quote Link to comment Share on other sites More sharing options...
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