Progressive Infantile Scoliosis Children's Book

July 14, 2010

Many of you know about the book that and I have been working but I will

explain for all of the new families before I give an update.

Shortly after our son, Cole, was diagnosed with PIS a little over a year ago my

husband and I decided to write a children's story to both raise money

for ISOP and help be a gentle metaphor and introduction to Mehta casting for

both children and families. It will hopefully be a wonderful story for all

children, even those not affected by PIS. We have been working with a wonderful

illustrator in sweden to get it illustrated. She has done a fantastic job! The

book is looking beautiful!

Where we are now is that we are going to copyright it in the next couple days.

We should be receiving the original artwork and getting all the layout done in

the next 3 weeks. Then we will be sending it out for an initial small print run

to ensure that everything looks perfect before doing a larger run of books that

will be available for people to purchase.

We will be selling them for $20 a piece + shipping. All profits will be going

to ISOP. We should be getting a website up and running soon so that we can take

orders and I will let you all know about that. I hope that we can make this a

great fundraiser. My goal would be to sell 2,000 in the first yea - allowing us

as a group to raise about 25,000 - 30,000 for ISOP! I know they would make a

great addition to libraries, doctor's offices, friends and families book

collections! I know that I am going to see if the small local bookstores will be

willing to sell them as well.

Realistically I think it will still be until the end of October before the books

are ready to go out to people due to the 6 week processing time of each book

run, but they will absolutely be ready for the holiday this year!

Jenn

Mommy to Cole, 2.5 years old, 1st brace from Rochester, 2 degrees out of brace

down from 47 after 10 months in 5 casts

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