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sending again.......

----------------------- hip pain

From: heather@...

Date: Mon, August 16, 2010 10:12 am

infantile scoliosis treatment

--------------------------------------------------------------------------

Well, here we go again....Liv has been complaining of hip pain on both

sides for the last few weeks. To recap, my daughter had the dual Veptr

hybrid 1 & 2 attached at the iliac crests for approx. 4 yrs...After a

continual assortment of complications, we opted to remove at age 12.

Unfortunately, during the removal procedure I was informed that the metal

hooks/attachment anchors had eroded significantly through her ilium and I

had a pretty big decision to make.....Crack her pelvis to remove metal or

leave in....I was told that it shouldnt cause pain or problems so I

decided to leave in as she was already undergoing a fairly large

procedure.....Well, she has been complaining of hip pain for a few weeks.

I ask where and she says its where the metal is....Im sick to my

stomach...How much more can my child take? How much more can I take? NOT

MUCH!!!!! PIS that has not been treated early is a devistating

condition...Theres no two ways about it. I'll let you all know what I

find out and if you dont see me on CAST for a bit, please just call as its

hard to keep up effectively with this awesome group anymore.

Love,

HRH

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SO SORRY HEATHER! I HATE THAT YOU & YOUR DAUGHTER HAVE BEEN THROUGH SO MUCH! YOU HAVE BEEN SUCH A BLESSING SINCE WE STARTED THIS JOURNEY WITH SIERRA. YA'LL ARE IN MY THOUGHTS & PRAYERS!

KRISTI MOMMY TO SIERRA

From: heather@...

Sent: Monday, August 16, 2010 9:25 AM

infantile scoliosis treatment

Subject: [Fwd: hip pain]

sending again.......----------------------- hip painFrom: heather@...Date: Mon, August 16, 2010 10:12 aminfantile scoliosis treatment ----------------------------------------------------------Well, here we go again....Liv has been complaining of hip pain on bothsides for the last few weeks. To recap, my daughter had the dual Veptrhybrid 1 & 2 attached at the iliac crests for approx. 4 yrs...After acontinual assortment of complications, we opted to remove at age 12.Unfortunately, during the removal procedure I was informed that the metalhooks/attachment anchors had eroded significantly through her ilium and Ihad a pretty big decision to make.....Crack her pelvis to remove metal orleave in....I was told that it shouldnt cause pain or problems so Idecided to leave in as she was already undergoing a fairly largeprocedure.....Well, she has been complaining of hip pain for a few weeks.I ask where and she says its where the metal is....Im sick to mystomach...How much more can my child take? How much more can I take? NOTMUCH!!!!! PIS that has not been treated early is a devistatingcondition...Theres no two ways about it. I'll let you all know what Ifind out and if you dont see me on CAST for a bit, please just call as itshard to keep up effectively with this awesome group anymore.Love,HRH

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,I have not caught up on posts- there are so many in just 3 days- but I saw this and I'm so sorry! I was just thinking about the metal in Liv's hips ans that they really don't know the long term effects. I pray it is something else and passes very, very soon. HORRIBLE!Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Kristi <kristij@...>Subject: Re: [Fwd: hip pain]infantile scoliosis treatment Date: Tuesday, August 17, 2010, 10:39 AM

SO SORRY HEATHER! I HATE THAT YOU & YOUR DAUGHTER HAVE BEEN THROUGH SO MUCH! YOU HAVE BEEN SUCH A BLESSING SINCE WE STARTED THIS JOURNEY WITH SIERRA. YA'LL ARE IN MY THOUGHTS & PRAYERS!

KRISTI MOMMY TO SIERRA

From: heather@...

Sent: Monday, August 16, 2010 9:25 AM

infantile scoliosis treatment

Subject: [Fwd: hip pain]

sending again.......----------------------- hip painFrom: heather@...Date: Mon, August 16, 2010 10:12 aminfantile scoliosis treatment ----------------------------------------------------------Well, here we go again....Liv has been complaining of hip pain on bothsides for the last few weeks. To recap, my daughter had the dual Veptrhybrid 1 & 2 attached at the iliac crests for approx. 4 yrs...After acontinual assortment of complications, we opted to remove at age 12.Unfortunately, during the removal procedure I was informed that the metalhooks/attachment anchors had eroded significantly through her ilium and Ihad a pretty big decision to make.....Crack her pelvis to remove metal orleave in....I was told that it shouldnt cause pain or problems so Idecided to leave in as she was already undergoing a fairly largeprocedure.....Well, she has been complaining of hip pain for a few weeks.I ask where and she says its where the metal is....Im sick to mystomach...How much more can my child take? How much more can I take? NOTMUCH!!!!! PIS that has not been treated early is a devistatingcondition...Theres no two ways about it. I'll let you all know what Ifind out and if you dont see me on CAST for a bit, please just call as itshard to keep up effectively with this awesome group anymore.Love,HRH

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