Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 If they do not have an experienced radiologist for AVS and an experienced adrenal surgeon, you need to appeal. If denied, take it to the state insurance commissioner. I went through five PCPs in five months before I could find one who would let me have the surgery I needed. Never, never, never again will I part of an HMO. Need to get your numbers. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of amberhudson@...Im not sure Kaiser would take an appeal but it is a good idea especially of they do not have a specialist in PA. I could try it.> > > Oh goodness, I wish you had different insurance and could go to UCLA > > Medical Center, where I had my tumor tested and removed. What you've > > told us so far does not make me feel especially confident about the > > care you are receiving. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 With the thousands of pts they must have a PA specialist.You want an minimally invasive surgeon who had done a lot of them-adrenals and can tell you how many are cured at 1 year or longer. CE Grim MDOn Jul 8, 2012, at 4:46 PM, amberhudson@... wrote: Im not sure Kaiser would take an appeal but it is a good idea especially of they do not have a specialist in PA. I could try it. > > > > > > I have a 2.6cm tumor on my right adrenal. My potassium was very > > low at around 3.4 for many years and my blood pressure over the last > > couple years kept going up and up. I live in Los Angeles area and > > have Kaiser Insurance. After doctor found tumor they started > > treating me with Inspra and blood pressure medication. My Potassium > > levels and blood pressure is in the normal range with medication. > > The doctor had not checked my renin/aldosterone levels before > > treating with me Inspra. I starting seeing an endocrinologist to > > advise about surgery. They said that AVS was very unsafe and that > > people die on the table all of the time with the procedure. So, they > > freaked me out into not wanting to consider that test. They ended up > > tapering me of Inspra for about a week and did the Renin/Aldosterone > > test. I was certain that was not enough time off Inspra to get an > > accurate reading but apparently it was. The doctor called me to > > advise my aldosterone was way higher than normal and that she was > > referring me to a surgeon. The surgeon is just a general surgeon and > > does not specialize in Adrenelcomy. So, I was wondering if this was > > ok to have a general surgeon do the surgery.... and also is it ok to > > remove one of the adrenal glands without testing the other one > > through AVS to make sure it is working properly? > > > > > > > > > This is my first time posting to this group. I am new to all of > > this and have been really going at this alone. Thanks for any help. > > > > > > Amber Hudson > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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