Re: Kaitlyn's 1st cast date

[Guest guest]

Hi !

Oh I'm so excited for you guys! Enjoy this cast free time with Kaitlyn, but in the end, the casting isn't so bad and it's so worth it. We can either try to meet up beforehand so I can help explain some things to you or we can meet after when she has the cast on and I can help with whatever questions you stumble upon. That's great news and it'll be here before you know it!

(mother to - 25 mths old - 2 casts - 1 brace - currently cured and treatment free since March 2010)

From: Dobbs <ohana_is_love@...>Subject: Kaitlyn's 1st cast dateinfantile scoliosis treatment Date: Wednesday, July 14, 2010, 3:58 PM

Finally, after what seem's like forever...we got the call today with Kaitlyn's 1st cast date.

It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S. will be casting her.

I'm feeling a lot of emotions about it, I guess offically having a date now...has really made it a reality.

I'm scared, anxious and excited for her....and I know it has to be done.

I'm hoping we can meet some other families from the group on that day I'm not sure if you any of you will be there on that date?

My husband and my Mom will be going with me, and I'm so glad!

So we have 3 more weeks of playin' in the water and tubbies happy for that and thankful

I know Chicago does the EDF casts, but they call it rissor casts?...when I asked the care cordinator if it was indeed rissor casts or EDF casts...she said "they are EDF, we just call them rissor"

does that seem odd to anyone?

- Mommy to Kaitlyn (12 months) 40*

[Guest guest]

,

I am overjoyed you have your first casting date! I know of 3 of our friends who will be in Chicago for casting Aug. 10th. Shirley & little Adelyn, Amy & Makenna, & Rhonda & Riley. Wonderful families and there will very well be even more. Makenna will be entering cast #4, Riley cast#3, & little Adelyn #2. You will be with a great group of families.

Chicago does derotational casting. In the hospital and consents that are signed all are for Risser casting. This is more common than you would think. The Derotational casting article co-authored by casting doctors from Loma , CA, SLC Shriners, UAB, Birmingham, University of Rochestor, Erie, PA & our doctor at Chicago refers to Mehta's modifications to Cotrel & Morels technique of derotation cast correction. Dr. S. has used Derotational casting when discussing it with us. Rest assured you are not getting a traditional Risser for Kaitlyn. I know it is scary and confusing. Let us know if you need anything. Kaitlyn will do great!

Catie,Cody(9) & 's(18mo)mom (in 4th cast 36*out of cast) proudly at Chicago Shriners

From: Dobbs <ohana_is_love@...>infantile scoliosis treatment Sent: Wed, July 14, 2010 2:58:02 PMSubject: Kaitlyn's 1st cast date

Finally, after what seem's like forever...we got the call today with Kaitlyn's 1st cast date.

It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S. will be casting her.

I'm feeling a lot of emotions about it, I guess offically having a date now...has really made it a reality.

I'm scared, anxious and excited for her....and I know it has to be done.

I'm hoping we can meet some other families from the group on that day I'm not sure if you any of you will be there on that date?

My husband and my Mom will be going with me, and I'm so glad!

So we have 3 more weeks of playin' in the water and tubbies happy for that and thankful

I know Chicago does the EDF casts, but they call it rissor casts?...when I asked the care cordinator if it was indeed rissor casts or EDF casts...she said "they are EDF, we just call them rissor"

does that seem odd to anyone?

- Mommy to Kaitlyn (12 months) 40*

[Guest guest]

Unfortunately EDF casting is not a billable insurance code in the US as of yet.

Hopefully soon it will be. In the mean time in order to treat and be paid US

physicians must bill under the Risser code. It is annoying as it is confusing

for parents and often uneducated staff and secretaries who do not actually know

the differences.

Jenn

>

> Finally, after what seem's like forever...we got the call today with Kaitlyn's

> 1st cast date.

> It will be on Augest 10th a 6:00 A.M.  at the Chicago Shriners...Dr. S. will

be

> casting her.

> I'm feeling a lot of emotions about it, I guess offically having a date

> now...has really made it a reality.

> I'm scared, anxious and excited for her....and I know it has to be done.

> I'm hoping we can meet some other families from the group on that day   I'm

> not sure if you any of you will be there on that date?

>

> My husband and my Mom will be going with me, and I'm so glad!

> So we have 3 more weeks of playin' in the water and tubbies   happy for that

> and thankful

> I know Chicago does the EDF casts,  but they call it rissor casts?...when I

> asked the care cordinator if it was indeed rissor casts or EDF casts...she

said

> " they are EDF, we just call them rissor "  

>

> does that seem odd to anyone? 

>

> - Mommy to Kaitlyn (12 months) 40*

>

[Guest guest]

It is hard with so many terms being used for our little ones casts. It is probably a decision best left to the doctors who are casting and publishing. I can assure you the care coordinator at Shriners as well as all the nurses and surgical staff at our hospital including the residents, radiology staff and even who trims the cast has never had an issue explaining or answering questions about the cast applied to our child. I hope that is standard at casting centers in the Shriners network. If not, it would be a great idea to discuss it with the centers Chief of Staff for further education. Just a thought. Sent from my iPhoneOn Jul 14, 2010, at 3:44 PM, "genericallyloud" <jennifer.leggett@...> wrote:

Unfortunately EDF casting is not a billable insurance code in the US as of yet. Hopefully soon it will be. In the mean time in order to treat and be paid US physicians must bill under the Risser code. It is annoying as it is confusing for parents and often uneducated staff and secretaries who do not actually know the differences.

Jenn

>

> Finally, after what seem's like forever...we got the call today with Kaitlyn's

> 1st cast date.

> It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S. will be

> casting her.

> I'm feeling a lot of emotions about it, I guess offically having a date

> now...has really made it a reality.

> I'm scared, anxious and excited for her....and I know it has to be done.

> I'm hoping we can meet some other families from the group on that day I'm

> not sure if you any of you will be there on that date?

>

> My husband and my Mom will be going with me, and I'm so glad!

> So we have 3 more weeks of playin' in the water and tubbies happy for that

> and thankful

> I know Chicago does the EDF casts, but they call it rissor casts?...when I

> asked the care cordinator if it was indeed rissor casts or EDF casts...she said

> "they are EDF, we just call them rissor"

>

> does that seem odd to anyone?

>

> - Mommy to Kaitlyn (12 months) 40*

>

[Guest guest]

Hi ,

Congrats on getting a cast date! This is a very emotional time and I can totally relate..... It's very bittersweet, isn't it? Great that you have this wonderful treatment option scheduled, but fear of the unknown and and putting this little turtle shell on your precious baby is a lot to grasp. And, yes, right now the terminology that is used is "Risser cast" even though the Mehta technique is being utilized. Good luck and post when you get back!- Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Dobbs <ohana_is_love@...>Subject: Kaitlyn's 1st cast dateinfantile scoliosis treatment Date: Wednesday, July 14, 2010, 7:58 PM

Finally, after what seem's like forever...we got the call today with Kaitlyn's 1st cast date.

It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S. will be casting her.

I'm feeling a lot of emotions about it, I guess offically having a date now...has really made it a reality.

I'm scared, anxious and excited for her....and I know it has to be done.

I'm hoping we can meet some other families from the group on that day I'm not sure if you any of you will be there on that date?

My husband and my Mom will be going with me, and I'm so glad!

So we have 3 more weeks of playin' in the water and tubbies happy for that and thankful

I know Chicago does the EDF casts, but they call it rissor casts?...when I asked the care cordinator if it was indeed rissor casts or EDF casts...she said "they are EDF, we just call them rissor"

does that seem odd to anyone?

- Mommy to Kaitlyn (12 months) 40*

[Guest guest]

,

So glad you got your date! Yes, our hospital was using the term Risser, it was changed for sure on our last outpatient form. I think that happens a lot, just old habits- especially when you know you are getting a Mehta Method/ EDF. Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: Dobbs <ohana_is_love@...>infantile scoliosis treatment Sent: Wed, July 14, 2010 12:58:02 PMSubject: Kaitlyn's 1st cast date

Finally, after what seem's like forever...we got the call today with Kaitlyn's 1st cast date.

It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S. will be casting her.

I'm feeling a lot of emotions about it, I guess offically having a date now...has really made it a reality.

I'm scared, anxious and excited for her....and I know it has to be done.

I'm hoping we can meet some other families from the group on that day I'm not sure if you any of you will be there on that date?

My husband and my Mom will be going with me, and I'm so glad!

So we have 3 more weeks of playin' in the water and tubbies happy for that and thankful

I know Chicago does the EDF casts, but they call it rissor casts?...when I asked the care cordinator if it was indeed rissor casts or EDF casts...she said "they are EDF, we just call them rissor"

does that seem odd to anyone?

- Mommy to Kaitlyn (12 months) 40*

[Guest guest]

Congrats ! Theres a lot of folks going to Chicago on CAST, so Im

hoping you can meet up with another family while you are there. Talking

to other parents going through the same or similar set of issues always

makes the journey a bit easier...Thats great that your hubby and mum are

able to go w/ you!

Keep us posted!

HRH

> Finally, after what seem's like forever...we got the call today with

> Kaitlyn's

> 1st cast date.

> It will be on Augest 10th a 6:00 A.M.  at the Chicago Shriners...Dr. S.

> will be

> casting her.

> I'm feeling a lot of emotions about it, I guess offically having a date

> now...has really made it a reality.

> I'm scared, anxious and excited for her....and I know it has to be done.

> I'm hoping we can meet some other families from the group on that day  

> I'm

> not sure if you any of you will be there on that date?

>

> My husband and my Mom will be going with me, and I'm so glad!

> So we have 3 more weeks of playin' in the water and tubbies   happy for

> that

> and thankful

> I know Chicago does the EDF casts,  but they call it rissor casts?...when

> I

> asked the care cordinator if it was indeed rissor casts or EDF casts...she

> said

> " they are EDF, we just call them rissor "  

>

> does that seem odd to anyone? 

>

> - Mommy to Kaitlyn (12 months) 40*

>

>

>

[Guest guest]

Yes, please refer to the derotation article (which can be found in the

FILES section of CAST)as this is the 1st medical journal published in

America about the effectiveness of applying EDF during an infants rapid

rate of growth. Instead of waiting until the childs past 2... The

authors of the article are all docs who were trained by Mehta on the

principles of her Early Treatment w/ EDF method since 2005. Not sure what

reasoning was behind changing the name of the technique to derotational

casting instead of exactly what it is....Early Treatment with EDF. Im

hoping the American docs will include Early Treatment to the title of

their next derotational article as you cannot harness the childs rapid

rate of growth to train the young spine to grow straight without this

important factor. Early Treatment. You'll get Early Treatment & EDF in

Chicago...No worries.

HRH

> ,

>       I am overjoyed you have your first casting date!  I know of 3

> of our

> friends who will be in Chicago for casting Aug. 10th.  Shirley & little

> Adelyn,

> Amy  & Makenna,  &  Rhonda & Riley.  Wonderful families and there will

> very well be

> even more.  Makenna will be entering cast #4, Riley cast#3, & little

> Adelyn

> #2.  You will be with a great group of families. 

>

>

> Chicago does derotational casting.  In the hospital and consents that are

> signed

> all are for Risser casting.  This is more common than you would think. 

> The

> Derotational casting article co-authored by casting doctors from Loma

> , CA,

> SLC Shriners, UAB, Birmingham, University of Rochestor, Erie, PA & our

> doctor at

> Chicago refers to Mehta's modifications to Cotrel &  Morels technique of

> derotation cast correction.  Dr. S. has used Derotational casting when

> discussing it with us.  Rest assured you are not getting a traditional

> Risser

> for Kaitlyn.  I know it is scary and confusing.  Let us know if you need

> anything.  Kaitlyn will do great! 

>

> Catie,Cody(9) & 's(18mo)mom (in 4th cast 36*out of cast) proudly at

> Chicago Shriners

>

>

>

>

>

> ________________________________

> From: Dobbs <ohana_is_love@...>

> infantile scoliosis treatment

> Sent: Wed, July 14, 2010 2:58:02 PM

> Subject: Kaitlyn's 1st cast date

>

>  

> Finally, after what seem's like forever...we got the call today with

> Kaitlyn's

> 1st cast date.

> It will be on Augest 10th a 6:00 A.M.  at the Chicago Shriners...Dr. S.

> will be

> casting her.

> I'm feeling a lot of emotions about it, I guess offically having a date

> now...has really made it a reality.

> I'm scared, anxious and excited for her....and I know it has to be done.

> I'm hoping we can meet some other families from the group on that day  

> I'm

> not sure if you any of you will be there on that date?

>

> My husband and my Mom will be going with me, and I'm so glad!

> So we have 3 more weeks of playin' in the water and tubbies   happy for

> that

> and thankful

> I know Chicago does the EDF casts,  but they call it rissor casts?...when

> I

> asked the care cordinator if it was indeed rissor casts or EDF casts...she

> said

> " they are EDF, we just call them rissor "  

>

> does that seem odd to anyone? 

>

> - Mommy to Kaitlyn (12 months) 40*

>

>

>

>

>

[Guest guest]

This name confusion is not good. I really hope we can all get on the same

page with proper terminology. Without it, children will be receiving all

sorts of casts in the U.S and everywhere....perhaps without Early

Treatment...Which we all know is crucial for this to treatment modality to

be effective. Early Treatment with EDF/Derotional casting....But ET must

be indicated.

HRH

> Unfortunately EDF casting is not a billable insurance code in the US as of

> yet. Hopefully soon it will be. In the mean time in order to treat and

> be paid US physicians must bill under the Risser code. It is annoying as

> it is confusing for parents and often uneducated staff and secretaries who

> do not actually know the differences.

>

> Jenn

>

>

>

>>

>> Finally, after what seem's like forever...we got the call today with

>> Kaitlyn's

>> 1st cast date.

>> It will be on Augest 10th a 6:00 A.M.  at the Chicago Shriners...Dr. S.

>> will be

>> casting her.

>> I'm feeling a lot of emotions about it, I guess offically having a date

>> now...has really made it a reality.

>> I'm scared, anxious and excited for her....and I know it has to be done.

>> I'm hoping we can meet some other families from the group on that day

>>   I'm

>> not sure if you any of you will be there on that date?

>>

>> My husband and my Mom will be going with me, and I'm so glad!

>> So we have 3 more weeks of playin' in the water and tubbies   happy

>> for that

>> and thankful

>> I know Chicago does the EDF casts,  but they call it rissor

>> casts?...when I

>> asked the care cordinator if it was indeed rissor casts or EDF

>> casts...she said

>> " they are EDF, we just call them rissor "  

>>

>> does that seem odd to anyone? 

>>

>> - Mommy to Kaitlyn (12 months) 40*

>>

>

>

>

[Guest guest]

the sooner the better

> It is hard with so many terms being used for our little ones casts. It is

> probably a decision best left to the doctors who are casting and

> publishing. I can assure you the care coordinator at Shriners as

> well as all the nurses and surgical staff at our hospital including the

> residents, radiology staff and even who trims the cast has never

> had an issue explaining or answering questions about the cast applied to

> our child. I hope that is standard at casting centers in the Shriners

> network. If not, it would be a great idea to discuss it with the centers

> Chief of Staff for further education. Just a thought.

>

> Sent from my iPhone

>

> On Jul 14, 2010, at 3:44 PM, " genericallyloud "

> <jennifer.leggett@...> wrote:

>

> Unfortunately EDF casting is not a billable insurance code in the US as of

> yet. Hopefully soon it will be. In the mean time in order to treat and be

> paid US physicians must bill under the Risser code. It is annoying as it

> is confusing for parents and often uneducated staff and secretaries who do

> not actually know the differences.

>

> Jenn

>

>

>>

>> Finally, after what seem's like forever...we got the call today with

>> Kaitlyn's

>> 1st cast date.

>> It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S.

>> will be

>> casting her.

>> I'm feeling a lot of emotions about it, I guess offically having a date

>> now...has really made it a reality.

>> I'm scared, anxious and excited for her....and I know it has to be done.

>> I'm hoping we can meet some other families from the group on that day

>> I'm

>> not sure if you any of you will be there on that date?

>>

>> My husband and my Mom will be going with me, and I'm so glad!

>> So we have 3 more weeks of playin' in the water and tubbies happy

>> for that

>> and thankful

>> I know Chicago does the EDF casts, but they call it rissor

>> casts?...when I

>> asked the care cordinator if it was indeed rissor casts or EDF

>> casts...she said

>> " they are EDF, we just call them rissor "

>>

>> does that seem odd to anyone?

>>

>> - Mommy to Kaitlyn (12 months) 40*

>>

>

>

>

>

>

>

[Guest guest]

Sorry I'm replying to late but we have just gotten back from vacation, but wanted to let you know that we will also be there that same day with our son, Riley, who will be getting his 3rd cast. We don't need to be there until 7:00 a.m. but I will look you up. We will look forward to meeting you.

Rhonna

From: Dobbs <ohana_is_love@...>infantile scoliosis treatment Sent: Wed, July 14, 2010 2:58:02 PMSubject: Kaitlyn's 1st cast date

Finally, after what seem's like forever...we got the call today with Kaitlyn's 1st cast date.

It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S. will be casting her.

I'm feeling a lot of emotions about it, I guess offically having a date now...has really made it a reality.

I'm scared, anxious and excited for her....and I know it has to be done.

I'm hoping we can meet some other families from the group on that day I'm not sure if you any of you will be there on that date?

My husband and my Mom will be going with me, and I'm so glad!

So we have 3 more weeks of playin' in the water and tubbies happy for that and thankful

I know Chicago does the EDF casts, but they call it rissor casts?...when I asked the care cordinator if it was indeed rissor casts or EDF casts...she said "they are EDF, we just call them rissor"

does that seem odd to anyone?

- Mommy to Kaitlyn (12 months) 40*

[Guest guest]

,

We just applied to Shriner's Chicago. How long from when you sent in your

application until you got your first appointment? I am not good at waiting and

while still scared as hell want to get this process started. Good luck with

everything and enjoy the water. We are trying to get Kiya as much water time as

we possibly can. In a weird twisted way I am actually looking forward to winter

and I HATE winter.

Mom to Kiya, 20 months

>

>

>

> Sorry I'm replying to late but we have just gotten back from vacation, but

> wanted to let you know that we will also be there that same day with our son,

> Riley, who will be getting his 3rd cast.  We don't need to be there until

7:00

> a.m. but I will look you up.  We will look forward to meeting you.

>

> Rhonna

>

>

> ________________________________

> From: Dobbs <ohana_is_love@...>

> infantile scoliosis treatment

> Sent: Wed, July 14, 2010 2:58:02 PM

> Subject: Kaitlyn's 1st cast date

>

>  

> Finally, after what seem's like forever...we got the call today with Kaitlyn's

> 1st cast date.

> It will be on Augest 10th a 6:00 A.M.  at the Chicago Shriners...Dr. S. will

be

> casting her.

> I'm feeling a lot of emotions about it, I guess offically having a date

> now...has really made it a reality.

> I'm scared, anxious and excited for her....and I know it has to be done.

> I'm hoping we can meet some other families from the group on that day   I'm

> not sure if you any of you will be there on that date?

>

> My husband and my Mom will be going with me, and I'm so glad!

> So we have 3 more weeks of playin' in the water and tubbies   happy for

that

> and thankful

> I know Chicago does the EDF casts,  but they call it rissor casts?...when I

> asked the care cordinator if it was indeed rissor casts or EDF casts...she

said

> " they are EDF, we just call them rissor "  

>

> does that seem odd to anyone? 

>

> - Mommy to Kaitlyn (12 months) 40*

>

[Guest guest]

Hi , We found out about Kaity's Scoli on May 12thI joined this wonderful group and got info for Chicago's care cordinator, Cree. I called her and she told me to fax theApp. to her and immunization records. I did that and as soon asshe got them she scheduled us for the consultation visiton June 2nd. She helped greatly with speeding the process up! We didn't even have to apply online and wait forever to hear back from anyone. I would get ahold with and let her know that you applied, she should be able to speed things up, she's Dr. S's care cordinator. We were very impressed with the Dr and staff at Chicago, the hospital was very nice too. I know what you mean about winter, I feel that way too.It just seems as though it won't be as hard on them in the winter!Wishing you the best

of luck! - mommy yo Kaitlyn (13 months) 1st cast August 10th Sent from my iPodOn Jul 27, 2010, at 9:42 AM, "cjustl" <cjustl@...> wrote:

,

We just applied to Shriner's Chicago. How long from when you sent in your application until you got your first appointment? I am not good at waiting and while still scared as hell want to get this process started. Good luck with everything and enjoy the water. We are trying to get Kiya as much water time as we possibly can. In a weird twisted way I am actually looking forward to winter and I HATE winter.

Mom to Kiya, 20 months

>

>

>

> Sorry I'm replying to late but we have just gotten back from vacation, but

> wanted to let you know that we will also be there that same day with our son,

> Riley, who will be getting his 3rd cast. We don't need to be there until 7:00

> a.m. but I will look you up. We will look forward to meeting you.

>

> Rhonna

>

>

> ________________________________

> From: Dobbs <ohana_is_love@...>

> infantile scoliosis treatment

> Sent: Wed, July 14, 2010 2:58:02 PM

> Subject: Kaitlyn's 1st cast date

>

> Â

> Finally, after what seem's like forever...we got the call today with Kaitlyn's

> 1st cast date.

> It will be on Augest 10th a 6:00 A.M. at the Chicago Shriners...Dr. S. will be

> casting her.

> I'm feeling a lot of emotions about it, I guess offically having a date

> now...has really made it a reality.

> I'm scared, anxious and excited for her....and I know it has to be done.

> I'm hoping we can meet some other families from the group on that day  I'm

> not sure if you any of you will be there on that date?

>

> My husband and my Mom will be going with me, and I'm so glad!

> So we have 3 more weeks of playin' in the water and tubbies  happy for that

> and thankful

> I know Chicago does the EDF casts, but they call it rissor casts?...when I

> asked the care cordinator if it was indeed rissor casts or EDF casts...she said

> "they are EDF, we just call them rissor"Â

>

> does that seem odd to anyone?Â

>

> - Mommy to Kaitlyn (12 months) 40*

>