Re: Audrey's 3rd Cast - Disappointing News

[Guest guest]

,

I am so sorry it was not good news. You are doing everything in your power to do the best for Audrey. And doing it well! Although we have a totally different experience with my son, , casting only did so much for him. I know what it feels like to be disappointed. I am thinking about you and saying a prayer.

Take some time to let it all sink in and deal with the details later. Casting is such a blessing. Maybe you could alternate casting and bracing. At least with the brace she would have the opportunity to do water stuff. I go back in forth on which I like better. has been in a brace since September 2007.

Glad your family had some FUN times while there!!! TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: audreymdawson <audreymdawson@...>infantile scoliosis treatment Sent: Sat, July 17, 2010 5:32:12 PMSubject: Audrey's 3rd Cast - Disappointing News

Hi everyone,We are home from SLC and did not receive the news we were hoping for. Dr. D'A said he is unable to get any correction in Audrey's curve, which is currently 53*. He doesn't know whether it's because of her heart defect or chromosome abnormality, but for whatever reason her spine is too stiff, and she will be facing surgery in the future. We are very upset, as she has already been through so much. Dr. D'A gave us the option of bracing as a way to hold the curve or we can continue casting. We're willing to continue casting since it's keeping the curve from progressing but have not made any final decisions - it's still sinking in...On a happier note, we had a really fun time in SLC with our boys and Audrey - saw the baby elephant at the zoo, did lots of swimming in the pool, and rode the free train downtown, oh and ate "The Pie" pizza which was delicious!mom to Audrey, 2 1/23rd cast

SLC

[Guest guest]

,

I'm so sorry! You are doing everything you can. I know she will continue to get the best care possible. It is not fair that scoliosis is such a complicated condition with so many variables. Hugs to you, and you really sound very strong and brave in your handling the news, much better than I would be. Audrey will have a beautiful life and you will just take it one step at a time and come out the other side of this. Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: audreymdawson <audreymdawson@...>infantile scoliosis treatment Sent: Sat, July 17, 2010 3:32:12 PMSubject: Audrey's 3rd Cast - Disappointing News

Hi everyone,We are home from SLC and did not receive the news we were hoping for. Dr. D'A said he is unable to get any correction in Audrey's curve, which is currently 53*. He doesn't know whether it's because of her heart defect or chromosome abnormality, but for whatever reason her spine is too stiff, and she will be facing surgery in the future. We are very upset, as she has already been through so much. Dr. D'A gave us the option of bracing as a way to hold the curve or we can continue casting. We're willing to continue casting since it's keeping the curve from progressing but have not made any final decisions - it's still sinking in...On a happier note, we had a really fun time in SLC with our boys and Audrey - saw the baby elephant at the zoo, did lots of swimming in the pool, and rode the free train downtown, oh and ate "The Pie" pizza which was delicious!mom to Audrey, 2 1/23rd cast

SLC

[Guest guest]

Thank you, Tasha.

>

> ,

> I am so sorry it was not good news.  You are doing everything in your power

> to do the best for Audrey.  And doing it well!  Although we have a totally

> different experience with my son, , casting only did so much for him.  I

> know what it feels like to be disappointed.  I am thinking about you and

saying

> a prayer.

> Take some time to let it all sink in and deal with the details later. 

Casting

> is such a blessing.  Maybe you could alternate casting and bracing.  At

least

> with the brace she would have the opportunity to do water stuff.  I go back

in

> forth on which I like better.  has been in a brace since September 2007.

> Glad your family had some FUN times while there!!!

>  Tasha

> Mommy of 5 year old twin boys- and

> Fort Worth, Texas

> is treated at Texas ish Rite Hospital in Dallas, Texas

> Series of 6 casts for 14 months followed by bracing since September 2007

> You can read 's story at....

http://www.infantilescoliosis.org/stories.html

>

>

>

>

>

>

>

>

> ________________________________

> From: audreymdawson <audreymdawson@...>

> infantile scoliosis treatment

> Sent: Sat, July 17, 2010 5:32:12 PM

> Subject: Audrey's 3rd Cast - Disappointing News

>

>  

> Hi everyone,

> We are home from SLC and did not receive the news we were hoping for. Dr. D'A

> said he is unable to get any correction in Audrey's curve, which is currently

> 53*. He doesn't know whether it's because of her heart defect or chromosome

> abnormality, but for whatever reason her spine is too stiff, and she will be

> facing surgery in the future. We are very upset, as she has already been

through

> so much. Dr. D'A gave us the option of bracing as a way to hold the curve or

we

> can continue casting. We're willing to continue casting since it's keeping the

> curve from progressing but have not made any final decisions - it's still

> sinking in...

> On a happier note, we had a really fun time in SLC with our boys and Audrey -

> saw the baby elephant at the zoo, did lots of swimming in the pool, and rode

the

> free train downtown, oh and ate " The Pie " pizza which was delicious!

>

> mom to Audrey, 2 1/2

> 3rd cast SLC

>

[Guest guest]

Thanks, Heidi.

>

> ,

>

> I'm so sorry! You are doing everything you can. I know she will continue to

get

> the best care possible. It is not fair that scoliosis is such a complicated

> condition with so many variables. Hugs to you, and you really sound very

strong

> and brave in your handling the news, much better than I would be. Audrey will

> have a beautiful life and you will just take it one step at a time and come

out

> the other side of this.

>  Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City

Shriners,

> currently down from 62 degrees to 19.7 in cast)

>

>

>

>

>

> ________________________________

> From: audreymdawson <audreymdawson@...>

> infantile scoliosis treatment

> Sent: Sat, July 17, 2010 3:32:12 PM

> Subject: Audrey's 3rd Cast - Disappointing News

>

>  

> Hi everyone,

> We are home from SLC and did not receive the news we were hoping for. Dr. D'A

> said he is unable to get any correction in Audrey's curve, which is currently

> 53*. He doesn't know whether it's because of her heart defect or chromosome

> abnormality, but for whatever reason her spine is too stiff, and she will be

> facing surgery in the future. We are very upset, as she has already been

through

> so much. Dr. D'A gave us the option of bracing as a way to hold the curve or

we

> can continue casting. We're willing to continue casting since it's keeping the

> curve from progressing but have not made any final decisions - it's still

> sinking in...

> On a happier note, we had a really fun time in SLC with our boys and Audrey -

> saw the baby elephant at the zoo, did lots of swimming in the pool, and rode

the

> free train downtown, oh and ate " The Pie " pizza which was delicious!

>

> mom to Audrey, 2 1/2

> 3rd cast SLC

>

[Guest guest]

Thanks, Heidi.

>

> ,

>

> I'm so sorry! You are doing everything you can. I know she will continue to

get

> the best care possible. It is not fair that scoliosis is such a complicated

> condition with so many variables. Hugs to you, and you really sound very

strong

> and brave in your handling the news, much better than I would be. Audrey will

> have a beautiful life and you will just take it one step at a time and come

out

> the other side of this.

>  Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City

Shriners,

> currently down from 62 degrees to 19.7 in cast)

>

>

>

>

>

> ________________________________

> From: audreymdawson <audreymdawson@...>

> infantile scoliosis treatment

> Sent: Sat, July 17, 2010 3:32:12 PM

> Subject: Audrey's 3rd Cast - Disappointing News

>

>  

> Hi everyone,

> We are home from SLC and did not receive the news we were hoping for. Dr. D'A

> said he is unable to get any correction in Audrey's curve, which is currently

> 53*. He doesn't know whether it's because of her heart defect or chromosome

> abnormality, but for whatever reason her spine is too stiff, and she will be

> facing surgery in the future. We are very upset, as she has already been

through

> so much. Dr. D'A gave us the option of bracing as a way to hold the curve or

we

> can continue casting. We're willing to continue casting since it's keeping the

> curve from progressing but have not made any final decisions - it's still

> sinking in...

> On a happier note, we had a really fun time in SLC with our boys and Audrey -

> saw the baby elephant at the zoo, did lots of swimming in the pool, and rode

the

> free train downtown, oh and ate " The Pie " pizza which was delicious!

>

> mom to Audrey, 2 1/2

> 3rd cast SLC

>

[Guest guest]

I know there's nothing I can say right now that will make this news any easier

to bear, you and Audrey deserve a break to rest and I am going to pray for a

casting miracle. Audrey has a wonderful mom looking after her, upbeat and

positive even in the face of bad news..remember you have lots of support for the

days you need to let go

Ami

> >

> > ,

> >

> > I'm so sorry! You are doing everything you can. I know she will continue to

get

> > the best care possible. It is not fair that scoliosis is such a complicated

> > condition with so many variables. Hugs to you, and you really sound very

strong

> > and brave in your handling the news, much better than I would be. Audrey

will

> > have a beautiful life and you will just take it one step at a time and come

out

> > the other side of this.

> >  Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City

Shriners,

> > currently down from 62 degrees to 19.7 in cast)

> >

> >

> >

> >

> >

> > ________________________________

> > From: audreymdawson <audreymdawson@>

> > infantile scoliosis treatment

> > Sent: Sat, July 17, 2010 3:32:12 PM

> > Subject: Audrey's 3rd Cast - Disappointing News

> >

> >  

> > Hi everyone,

> > We are home from SLC and did not receive the news we were hoping for. Dr.

D'A

> > said he is unable to get any correction in Audrey's curve, which is

currently

> > 53*. He doesn't know whether it's because of her heart defect or chromosome

> > abnormality, but for whatever reason her spine is too stiff, and she will be

> > facing surgery in the future. We are very upset, as she has already been

through

> > so much. Dr. D'A gave us the option of bracing as a way to hold the curve or

we

> > can continue casting. We're willing to continue casting since it's keeping

the

> > curve from progressing but have not made any final decisions - it's still

> > sinking in...

> > On a happier note, we had a really fun time in SLC with our boys and Audrey

-

> > saw the baby elephant at the zoo, did lots of swimming in the pool, and rode

the

> > free train downtown, oh and ate " The Pie " pizza which was delicious!

> >

> > mom to Audrey, 2 1/2

> > 3rd cast SLC

> >

>

[Guest guest]

I know there's nothing I can say right now that will make this news any easier

to bear, you and Audrey deserve a break to rest and I am going to pray for a

casting miracle. Audrey has a wonderful mom looking after her, upbeat and

positive even in the face of bad news..remember you have lots of support for the

days you need to let go

Ami

> >

> > ,

> >

> > I'm so sorry! You are doing everything you can. I know she will continue to

get

> > the best care possible. It is not fair that scoliosis is such a complicated

> > condition with so many variables. Hugs to you, and you really sound very

strong

> > and brave in your handling the news, much better than I would be. Audrey

will

> > have a beautiful life and you will just take it one step at a time and come

out

> > the other side of this.

> >  Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City

Shriners,

> > currently down from 62 degrees to 19.7 in cast)

> >

> >

> >

> >

> >

> > ________________________________

> > From: audreymdawson <audreymdawson@>

> > infantile scoliosis treatment

> > Sent: Sat, July 17, 2010 3:32:12 PM

> > Subject: Audrey's 3rd Cast - Disappointing News

> >

> >  

> > Hi everyone,

> > We are home from SLC and did not receive the news we were hoping for. Dr.

D'A

> > said he is unable to get any correction in Audrey's curve, which is

currently

> > 53*. He doesn't know whether it's because of her heart defect or chromosome

> > abnormality, but for whatever reason her spine is too stiff, and she will be

> > facing surgery in the future. We are very upset, as she has already been

through

> > so much. Dr. D'A gave us the option of bracing as a way to hold the curve or

we

> > can continue casting. We're willing to continue casting since it's keeping

the

> > curve from progressing but have not made any final decisions - it's still

> > sinking in...

> > On a happier note, we had a really fun time in SLC with our boys and Audrey

-

> > saw the baby elephant at the zoo, did lots of swimming in the pool, and rode

the

> > free train downtown, oh and ate " The Pie " pizza which was delicious!

> >

> > mom to Audrey, 2 1/2

> > 3rd cast SLC

> >

>

[Guest guest]

Hi ,

Sorry to hear this. My daughter was able to buy time with casting until

age 8.5. She then was re haloed and adjustable rods were placed. They

were fraught with complications and my precious daughter was hospitalized

multiple times in an attempt to fix, but it never worked. Her doc is top

notch....Its the 1 dimensional rods that suck. Pardon my negativity. Its

hard not to get a disgusted look on my face while Im typing this. If

casting was holding her at 8.5 yrs old, we would have kept going with

it....One thing that did work to maximize cast time was to alternate

between casting/bracing. Liv would be in cast all winter and would

transfer to brace in summer. Im glad you're in SLC and have choices with

a doc who understands PIS in and out and is willing to continue casting.

HRH

> Hi everyone,

> We are home from SLC and did not receive the news we were hoping for. Dr.

> D'A said he is unable to get any correction in Audrey's curve, which is

> currently 53*. He doesn't know whether it's because of her heart defect

> or chromosome abnormality, but for whatever reason her spine is too stiff,

> and she will be facing surgery in the future. We are very upset, as she

> has already been through so much. Dr. D'A gave us the option of bracing

> as a way to hold the curve or we can continue casting. We're willing to

> continue casting since it's keeping the curve from progressing but have

> not made any final decisions - it's still sinking in...

> On a happier note, we had a really fun time in SLC with our boys and

> Audrey - saw the baby elephant at the zoo, did lots of swimming in the

> pool, and rode the free train downtown, oh and ate " The Pie " pizza which

> was delicious!

>

> mom to Audrey, 2 1/2

> 3rd cast SLC

>

>

[Guest guest]

Hi ,

Sorry to hear this. My daughter was able to buy time with casting until

age 8.5. She then was re haloed and adjustable rods were placed. They

were fraught with complications and my precious daughter was hospitalized

multiple times in an attempt to fix, but it never worked. Her doc is top

notch....Its the 1 dimensional rods that suck. Pardon my negativity. Its

hard not to get a disgusted look on my face while Im typing this. If

casting was holding her at 8.5 yrs old, we would have kept going with

it....One thing that did work to maximize cast time was to alternate

between casting/bracing. Liv would be in cast all winter and would

transfer to brace in summer. Im glad you're in SLC and have choices with

a doc who understands PIS in and out and is willing to continue casting.

HRH

> Hi everyone,

> We are home from SLC and did not receive the news we were hoping for. Dr.

> D'A said he is unable to get any correction in Audrey's curve, which is

> currently 53*. He doesn't know whether it's because of her heart defect

> or chromosome abnormality, but for whatever reason her spine is too stiff,

> and she will be facing surgery in the future. We are very upset, as she

> has already been through so much. Dr. D'A gave us the option of bracing

> as a way to hold the curve or we can continue casting. We're willing to

> continue casting since it's keeping the curve from progressing but have

> not made any final decisions - it's still sinking in...

> On a happier note, we had a really fun time in SLC with our boys and

> Audrey - saw the baby elephant at the zoo, did lots of swimming in the

> pool, and rode the free train downtown, oh and ate " The Pie " pizza which

> was delicious!

>

> mom to Audrey, 2 1/2

> 3rd cast SLC

>

>

[Guest guest]

,

Thanks for sharing your experience - I did read your daughter's story on ISOP.

It seems that the outcomes of surgery vary from little problems to major

complications, which adds stress to the decision-making process. I like the

idea of alternating cast and brace.

mom to Audrey, 3rd cast, SLC

>

> Hi ,

> Sorry to hear this. My daughter was able to buy time with casting until

> age 8.5. She then was re haloed and adjustable rods were placed. They

> were fraught with complications and my precious daughter was hospitalized

> multiple times in an attempt to fix, but it never worked. Her doc is top

> notch....Its the 1 dimensional rods that suck. Pardon my negativity. Its

> hard not to get a disgusted look on my face while Im typing this. If

> casting was holding her at 8.5 yrs old, we would have kept going with

> it....One thing that did work to maximize cast time was to alternate

> between casting/bracing. Liv would be in cast all winter and would

> transfer to brace in summer. Im glad you're in SLC and have choices with

> a doc who understands PIS in and out and is willing to continue casting.

> HRH

>

> > Hi everyone,

> > We are home from SLC and did not receive the news we were hoping for. Dr.

> > D'A said he is unable to get any correction in Audrey's curve, which is

> > currently 53*. He doesn't know whether it's because of her heart defect

> > or chromosome abnormality, but for whatever reason her spine is too stiff,

> > and she will be facing surgery in the future. We are very upset, as she

> > has already been through so much. Dr. D'A gave us the option of bracing

> > as a way to hold the curve or we can continue casting. We're willing to

> > continue casting since it's keeping the curve from progressing but have

> > not made any final decisions - it's still sinking in...

> > On a happier note, we had a really fun time in SLC with our boys and

> > Audrey - saw the baby elephant at the zoo, did lots of swimming in the

> > pool, and rode the free train downtown, oh and ate " The Pie " pizza which

> > was delicious!

> >

> > mom to Audrey, 2 1/2

> > 3rd cast SLC

> >

> >

>