ial's new x-rays

[Guest guest]

When we had Abigail casted at Shriner's they X-Rayed her brother ial as

well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5 months after

his set at Shriner's and showed a small progression to 13 degrees, I don't see

any signs of rotation. We are going to ask Dr. C to for his opinion when

Abigail gets her cast changed on August 6th..but as a mother, what would you

guys do? He has staples in his chest b/c of his heart defects and he will be 2

in September so time is important.

[Guest guest]

Whatever you decide to do, don't worry about the chest staples. Audrey also had

heart surgery and she's in a cast with no problems to the staples.

mom to Audrey, 3rd cast tomorrow, SLC

>

> When we had Abigail casted at Shriner's they X-Rayed her brother ial as

well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5 months after

his set at Shriner's and showed a small progression to 13 degrees, I don't see

any signs of rotation. We are going to ask Dr. C to for his opinion when

Abigail gets her cast changed on August 6th..but as a mother, what would you

guys do? He has staples in his chest b/c of his heart defects and he will be 2

in September so time is important.

>

[Guest guest]

I think in the orthopaedic world 13 degrees is not something that most docs would treat. But given the history, I think you are doing absolutely the right thing by bringing it up to your casting doc at your next appointment and getting a professional opinion. Please let me know how that works out.... Big hugs! - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: luckyvtmama <amibeautinet@...>Subject: ial's new x-raysinfantile scoliosis treatment Date: Wednesday, July 14, 2010, 5:56 PM

When we had Abigail casted at Shriner's they X-Rayed her brother ial as well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5 months after his set at Shriner's and showed a small progression to 13 degrees, I don't see any signs of rotation. We are going to ask Dr. C to for his opinion when Abigail gets her cast changed on August 6th..but as a mother, what would you guys do? He has staples in his chest b/c of his heart defects and he will be 2 in September so time is important.

[Guest guest]

Thanks you two..Audrey, depending what happens I might have a ton of questions

for you down the road, but for now I think after talking to a CAST mom we are

going to ask if we can brace him. This is the exact age that Abigail's curve

really started to show up, at least I have a heads up now. I'll keep

you posted as to what Dr. C suggests : )

-Ami

>

>

> From: luckyvtmama <amibeautinet@...>

> Subject: ial's new x-rays

> infantile scoliosis treatment

> Date: Wednesday, July 14, 2010, 5:56 PM

>

>

>  

>

>

>

> When we had Abigail casted at Shriner's they X-Rayed her brother ial as

well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5 months after

his set at Shriner's and showed a small progression to 13 degrees, I don't see

any signs of rotation. We are going to ask Dr. C to for his opinion when Abigail

gets her cast changed on August 6th..but as a mother, what would you guys do? He

has staples in his chest b/c of his heart defects and he will be 2 in September

so time is important.

>

[Guest guest]

How old is iel? Sorry if I missed it.~Noah 4 1/2 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 16 months old - resolved Infantile Scoliosis

infantile scoliosis treatment From: amibeautinet@...Date: Wed, 14 Jul 2010 23:42:18 +0000Subject: Re: ial's new x-rays

Thanks you two..Audrey, depending what happens I might have a ton of questions for you down the road, but for now I think after talking to a CAST mom we are going to ask if we can brace him. This is the exact age that Abigail's curve really started to show up, at least I have a heads up now. I'll keep you posted as to what Dr. C suggests : ) -Ami > > > From: luckyvtmama <amibeautinet@...>> Subject: ial's new x-rays> infantile scoliosis treatment > Date: Wednesday, July 14, 2010, 5:56 PM> > > Â > > > > When we had Abigail casted at Shriner's they X-Rayed her brother ial as well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5 months after his set at Shriner's and showed a small progression to 13 degrees, I don't see any signs of rotation. We are going to ask Dr. C to for his opinion when Abigail gets her cast changed on August 6th..but as a mother, what would you guys do? He has staples in his chest b/c of his heart defects and he will be 2 in September so time is important.>

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[Guest guest]

I would go with your gut on this one (and consult w/ a ET trained doc or

2, of course). If lil ial had some heart surgery, I would keep a

real close eye as these cases tend to progress and with a cardiac surgery

behind him, he needs to take no steps backwards. I would take pics of his

back once a wk as they may help you to see/document progression.

Sometimes its hard to see when you look it so much.

Please keep us posted.

HRH

> I think in the orthopaedic world 13 degrees is not something that most

> docs would treat.  But given the history, I think you are doing

> absolutely the right thing by bringing it up to your casting doc at your

> next appointment and getting a professional opinion.  Please let me know

> how that works out....  Big hugs! 

>

> - Noelle's mommy, 3 years old

> Rochester NY

> Casted 8 times for 1 1/2 years and in first brace!

> reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity,

> suspected Ehler's Danlos III

>

>

>

>

> From: luckyvtmama <amibeautinet@...>

> Subject: ial's new x-rays

> infantile scoliosis treatment

> Date: Wednesday, July 14, 2010, 5:56 PM

>

>

>  

>

>

>

> When we had Abigail casted at Shriner's they X-Rayed her brother ial

> as well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5

> months after his set at Shriner's and showed a small progression to 13

> degrees, I don't see any signs of rotation. We are going to ask Dr. C to

> for his opinion when Abigail gets her cast changed on August 6th..but as a

> mother, what would you guys do? He has staples in his chest b/c of his

> heart defects and he will be 2 in September so time is important.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks My gut is very nervous. Shriner's said they wouldn't consider

it progression as there is a 3-5 degree margin of error in measurement. So, I

will be taking pictures once a week (thank you!) so I can keep tabs as opposed

to buying my own personal radiation machine..*L* Good news, we got Abigail's

measurements and she didn't progress at all while in her 1st cast, stable at 24

so far : )

-Ami

> >

> >

> > From: luckyvtmama <amibeautinet@...>

> > Subject: ial's new x-rays

> > infantile scoliosis treatment

> > Date: Wednesday, July 14, 2010, 5:56 PM

> >

> >

> >  

> >

> >

> >

> > When we had Abigail casted at Shriner's they X-Rayed her brother ial

> > as well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5

> > months after his set at Shriner's and showed a small progression to 13

> > degrees, I don't see any signs of rotation. We are going to ask Dr. C to

> > for his opinion when Abigail gets her cast changed on August 6th..but as a

> > mother, what would you guys do? He has staples in his chest b/c of his

> > heart defects and he will be 2 in September so time is important.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Hi Amy,

Great news on Abigail! Please keep us posted on lil ial. I think

you're on top of it Ami.

HRH

> Thanks My gut is very nervous. Shriner's said they wouldn't

> consider it progression as there is a 3-5 degree margin of error in

> measurement. So, I will be taking pictures once a week (thank you!) so I

> can keep tabs as opposed to buying my own personal radiation machine..*L*

> Good news, we got Abigail's measurements and she didn't progress at all

> while in her 1st cast, stable at 24 so far : )

>

> -Ami

>

>

>

>

>> >

>> >

>> > From: luckyvtmama <amibeautinet@...>

>> > Subject: ial's new x-rays

>> > infantile scoliosis treatment

>> > Date: Wednesday, July 14, 2010, 5:56 PM

>> >

>> >

>> >  

>> >

>> >

>> >

>> > When we had Abigail casted at Shriner's they X-Rayed her brother

>> ial

>> > as well, and he has a 11.5 C-Curve. He had X-rays taken yesterday, 2.5

>> > months after his set at Shriner's and showed a small progression to 13

>> > degrees, I don't see any signs of rotation. We are going to ask Dr. C

>> to

>> > for his opinion when Abigail gets her cast changed on August 6th..but

>> as a

>> > mother, what would you guys do? He has staples in his chest b/c of his

>> > heart defects and he will be 2 in September so time is important.

>> >

>> >

>> >

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